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NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information. Request an account here.

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1 Numbers reported are subjects by age
UIC ACE: Translational Studies of Insistence on Sameness in Autism #1

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
UIC ACE: Translational Studies of Insistence on Sameness in Autism
Ed Cook  (Owner: Guter, Steve)
The UIC ACE was focused on the genetics, neurobiology, cognitive and affective processes, and pharmacology of insistence on sameness (IS) in autism spectrum disorders (ASD). A large sample of children with self-reported autism spectrum disorder will be screened by the Assessment Core for further...

No Data Shared

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Biological and Information Processing Mechanisms Underlying Autism #6

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Biological and Information Processing Mechanisms Underlying Autism
Nancy Minshew, M.D.Mark Strauss, Ph.D.Kevin Pelphrey, Ph.D.Marcel Just, Ph.D.Thomas Mitchell, Ph.D.Diane Williams, Ph.D.  (Owner: Minshew, Nancy)
This center focuses on elucidating fundamental information processing and neurobiological mechanisms causing autism with studies of infant siblings, first-diagnosed toddlers, and groups of children, adolescents, and adults with and without autism. Project I: Development of Categorization Knowledge...

No Data Shared

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AGRE - U24 Collection #7

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
AGRE - U24 Collection
Clara Lajonchere  (Owner: Lajonchere, Clara)
AGRE is a DNA repository and family registry, housing a database of genotypic and phenotypic information that is available to autism researchers worldwide.

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Yale Autism Center of Excellence: Mechanisms of Social Engagement in the Autism Spectrum Disorders #8

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Yale Autism Center of Excellence: Mechanisms of Social Engagement in the Autism Spectrum Disorders
Volkmar, Fred  (Owner: Volkmar, Fred)
The Yale ACE consists of 5 project areas and 3 core resources. Projects I, II, and III focus on the same cohort of 12- to 24-month old infants with ASD followed up longitudinally. Project IV involves structural and functional neuroimaging protocols on a group of 10-year-olds with ASD who were...

No Data Shared

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Biomarkers of Autism at 12 Months: From Brain Overgrowth to Genes #9

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Biomarkers of Autism at 12 Months: From Brain Overgrowth to Genes
Eric Courchesne, Karen Pierce and others.  (Owner: Courchesne, Eric)
Behavioral data from the UCSD Autism Center of Excellence. This first data deposit will include Mullen Scales of Early Learning Scores from infants ages 12-36 months who are part of the ACE. Infants represent those at risk for an ASD, language delay (LD) and developmental delay (DD). Normal...

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UCLA Sigman/Bookheimer ACE and ARRA #10

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
UCLA Sigman/Bookheimer ACE and ARRA
Sigman M, Geschwind D, Bookheimer S  (Owner: Bookheimer, Susan)
ACE Projects: 1) PI Sigman - Infant Sibs. 2) PI Geschwind - Genetics. 3) PIs Dapretto - Mirror neuron and imaging. 4) PI Kasari - Optimizing outcomes for toddlers. 5) PI McCracken - Understanding repetitive behaviors. ARRA: PI Bookheimer - Neural and Phenotypic Correlates...

No Data Shared

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UW ACE #11

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
UW ACE
Bryan King  (Owner: Munson, Jeff)
University of Washington ACE projects

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Hunterdon Autism Center Data #13

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Hunterdon Autism Center Data
Audrey Mars MD  (Owner: Mars, Audrey)
Data collection of individuals at center partially funded by the NJ Governer's Council on Autism/Dept. of Health and Senior Services

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Early Pharmacotherapy Guided by Biomarkers in Autism #14

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Early Pharmacotherapy Guided by Biomarkers in Autism
Diane C Chugani  (Owner: Chugani, Diane)
Clinical trial of buspirone in young children with autism testing a PET scan of serotonin synthesis as a biomarker of drug response

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Measuring QALYs in Children with ASDs #15

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Measuring QALYs in Children with ASDs
John Tilford; Karen Kuhlthau  (Owner: Tilford, John)
Autism spectrum disorders (ASDs) are characterized by impairments in social skills, communication, and cognitive and behavioral functioning. Successful interventions for children with ASDs thus have the potential to not only affect outcomes of the child, but may include substantial health benefits...

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Intensive Intervention for Toddlers With Autism (EARLY STEPS) #16

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Intensive Intervention for Toddlers With Autism (EARLY STEPS)
Sally J. Rogers  (Owner: Rogers, Sally)
A Multi-Site Randomized Study of Intensive Treatment for Toddlers with Autism

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Aberrant Behavior Checklist in Fragile X Syndrome #18

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Aberrant Behavior Checklist in Fragile X Syndrome
David Hessl, Ph.D.  (Owner: Hessl, David)
This project will combine data from the Aberrant Behavior Checklist for individuals with fragile X syndrome from multiple centers throughout the U.S. in order to examine its factor structure, reliability, and clinical utility, and to examine its potential as an outcome measure for clinical trials. ...

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Longitudinal MRI Study of Infants at Risk for Autism #19

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Longitudinal MRI Study of Infants at Risk for Autism
Joe Piven  (Owner: Piven, Joseph)
Research data for the IBIS Autism project. Autism Centers of Excellence (ACE) Network is a collaborative effort by investigators at four clinical sites: University of North Carolina (UNC), University of Washington (UW), Washington University (WU), and Yale University; and one data coordinating...

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No Data Shared

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CBT for Anxiety in Adolescents with Autism #20

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
CBT for Anxiety in Adolescents with Autism
Eric A. Storch, Ph.D.  (Owner: Storch, Eric)
The purpose of the research study is to see how well a cognitive-behavioral psychotherapy program works to reduce anxiety in adolescents with autism spectrum disorders. This collection will contain data associated with this project. Including but not limited to the: ADIS, PARS, SACA, ADI-R, ADOS,...

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Pediatric MRI #1151

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Pediatric MRI
PEDIATRIC STUDY CENTERS: Michael J. Rivkin, M.D., Boston Children's Hospital; William S. Ball, M.D., Children's Hospital Medical Center of Cincinnati; Dah-Jyuu Wang, Ph.D., Children's Hospital of Philadelphia; James T. McCracken, M.D., University of California at Los Angeles; Michael Brandt, Ph.D. and Jack Fletcher, Ph.D., University of Texas Health Science Center; Robert McKinstry, M.D., Washington University. DATA COORDINATING CENTER: Alan Evans, Ph.D., Montreal Neurological Institute Center. CLINICAL COORDINATING CENTER: Kelly Botteron, M.D., Washington University. DIFFUSION TENSOR PROCESSING CENTER: Carlo Pierpaoli, M.D., National Institute of Child Health and Human Development. SPECTROSCOPY PROCESSING CENTER: Joseph O'Neill, Ph.D., University of California at Los Angeles.  (Owner: MRI, Pediatric)
Pediatric MRI Release 5.0. Visit our website at http://pediatricmri.nih.gov for more information about this project.

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Induced pluripotent cells in ASD with macrocephaly #1201

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Induced pluripotent cells in ASD with macrocephaly
Flora Vaccarino  (Owner: Vaccarino, Flora)
R01MH89176 - This project will develop lines of pluripotent cells (iPSC) from a longitudinally acquired cohort of patients with autism spectrum disorders (ASD) and macrocephaly and their family members, as well as typically developing children, using cells obtained by a skin biopsy. We will produce...

No Data Shared

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Treatment as usual and peer engagement in Adolescents with High Functioning Autism #1202

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Treatment as usual and peer engagement in Adolescents with High Functioning Autism
Felice Orlich, PhD  (Owner: Orlich, Felice)
Multi-site RCT contrasting peer-mediated intervention and typical social skills intervention in teens with HFA. ********NOTICE********NOTICE********NOTICE********* Subject ages provided in these datasets are provided in the unit of months, but are not accurate. They are, instead, approximate...

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Distance to Freeway and Major Road Data #1203

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Distance to Freeway and Major Road Data
Rob McConnell  (Owner: Volk, Heather)
This collection contains birth address based measures on distance to interstate highway, state highway, major road, and local road for study subjects enrolled in the CHARGE study.

No Data Shared

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Screening and Diagnostic Measures in Toddlers with ASD #1250

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Screening and Diagnostic Measures in Toddlers with ASD
Dr. Amy M. Wetherby  (Owner: Wetherby, Amy)
This dataset includes toddlers and controls with red flags of ASD. This includes participants from the FIRSTWORDS Project and the Early Social Interaction Project.

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Behavioral Treatment for Autism in Community Settings Using a Telehealth Network #1300

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Behavioral Treatment for Autism in Community Settings Using a Telehealth Network
Scott Lindgren  (Owner: Kopelman, Todd)
The purpose of this study is to evaluate assessment and treatment procedures for children with autism or a related disorder

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Identifying Brain-Based Biomarkers for ASD and their Biological Subtypes #1356

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Identifying Brain-Based Biomarkers for ASD and their Biological Subtypes
Bradley S. Peterson  (Owner: Peterson, Bradley)
This is a multi-modal brain imaging study of Autism Spectrum Disorders to define biomarkers and subtypes of the disorder.

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No Data Shared

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Biological Signatures of Autism #1358

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Biological Signatures of Autism
David G. Amaral  (Owner: Amaral, David)
Collection of data associated with the Autism Phenome Project and ARRA grant

No Data Shared

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RNA-Seq data from cerebral cortex in control subjects #1360

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
RNA-Seq data from cerebral cortex in control subjects
John Allman  (Owner: Hakeem, Atiya)
RNA-Seq studies of Gene Expression in Cells and Networks in FI (fronto-insular) and AC (anterior cingulate) cortex in Autism. We seek to understand the cellular bases of autism by using a new technology, RNA-Seq, to determine differences in gene expression in autopsy brains of subjects with well...

No Data Shared

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Pupillary Light Reflex as a Biomarker for Autism #1400

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Pupillary Light Reflex as a Biomarker for Autism
Gang Yao, Judith H. Miles, Shawn Christ  (Owner: Yao, Gang)
Pupillary light reflex, Heart rate variability, medical history.

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No Data Shared

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Systems biology of ASD #1401

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Systems biology of ASD
Lilia Iakoucheva  (Owner: Iakoucheva, Lilia)
Sequencing and building protein-protein interaction network of brain-expressed alternatively spliced isoforms of autism candidate genes

No Data Shared

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The Met Signaling System, Autism and Gastrointestinal Dysfunction. #1450

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
The Met Signaling System, Autism and Gastrointestinal Dysfunction.
Dr. Pat R. Levitt  (Owner: Gorrindo, Phillip)
This dataset contains three types of individuals: with ASD and with gastrointestinal dysfunction; with ASD but without gastrointestinal dysfunction; and without ASD but with gastrointestinal dysfunction.

No Data Shared

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Autism in the second half of the lifespan #1500

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Autism in the second half of the lifespan
Ruth Carper  (Owner: Carper, Ruth)
Behavior, daily living, service needs.

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No Data Shared

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Neural and Behavioral Outcomes of Social Skills Groups in Children with ASD #1501

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Neural and Behavioral Outcomes of Social Skills Groups in Children with ASD
A. Ting Wang  (Owner: Wang, A.Ting)
Neuroimaging and phenotypic measures of school-age children undergoing social skills group interventions

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Sensory Integration Treatment in ASD #1550

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Sensory Integration Treatment in ASD
Stephen Camarata & Mark Wallace  (Owner: Camarata, Stephen)
Sensory integration deficit is a controversial but widely used diagnostic classification in ASD and sensory integration (SI) based treatment is commonly provided to children with autism spectrum disorder, but has an extremely limited evidence base. The purpose of this proposal will be to complete...

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Neural Dissection of Hyperactivity/Inattention in Autism #1551

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Neural Dissection of Hyperactivity/Inattention in Autism
Francisco Xavier Castellanos  (Owner: Castellanos, Francisco)
This data collection is intended to contain neuroimaging and phenotypic and diagnostic data from approximately 100 children with Autism Spectrum Disorder, 50 children with Attention Deficit/Hyperactivity Disorder and 50 typically developing children.

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No Data Shared

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Early Autism Risk Longitudinal Investigation (EARLI) Network #1600

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Early Autism Risk Longitudinal Investigation (EARLI) Network
Craig Newschaffer  (Owner: Newschaffer, Craig)
Descriptive data for EARLI (probands and sibling) ADOS, Vineland, SRS, SCQ

No Data Shared

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Imaging Brain and Movement in ASD #1601

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Imaging Brain and Movement in ASD
Dr. Jeanne Townsend  (Owner: Townsend, Jeanne)
This dataset contains diagnostic information, standardized neuropsychological test measures, EEG, structural MRI, and movement-related measures from adolescents with ASD and control adolescents.

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SFARI - DNA Methylation Analysis Cohort #1650

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
SFARI - DNA Methylation Analysis Cohort
Stephen T Warren  (Owner: Warren, Stephen)
DNA methylation analysis of peripheral blood cells from siblings discordant for ASD

No Data Shared

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UW_ACE_Proj5_Pathways #1651

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
UW_ACE_Proj5_Pathways
Annette Estes (Bryan King)  (Owner: Munson, Jeff)
Longitudinal follow-up of children with ASD assessed at 6 years of age

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UW_ACE_Proj2_EarlyConnections #1652

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
UW_ACE_Proj2_EarlyConnections
Sara Webb (Bryan King)  (Owner: Munson, Jeff)
Prospective study of infants siblings of chlidren with ASD

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UW_ACE_Proj5_Adolescent_Devel_Study #1653

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
UW_ACE_Proj5_Adolescent_Devel_Study
Annette Estes (Bryan King)  (Owner: Munson, Jeff)
Longitudinal follow-up of children with ASD assessed when they are 13-14 years old

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UW_ACE_Proj1_Extended_Family_Study #1654

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
UW_ACE_Proj1_Extended_Family_Study
Ellen Wijsman (Bryan King)  (Owner: Munson, Jeff)
Data collection to extend the pedigrees of multiplex families who have participated in previous genetics studies at UW

No Data Shared

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Gross morphological correlates to the minicolumnopathy of autism (ATP postmortem MRI) #1655

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Gross morphological correlates to the minicolumnopathy of autism (ATP postmortem MRI)
Manuel Casanova  (Owner: Casanova, Manuel)
Proton density weighted scans of fixed, postmortem brain tissue

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Genes disrupted by balanced genomic rearrangements in autism spectrum disorders #1700

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Genes disrupted by balanced genomic rearrangements in autism spectrum disorders
James Gusella  (Owner: Gusella, James)
Sequencing rearrangements in ASD

No Data Shared

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Initial Investigation of Prevention of ASD in Infants at Risk #1800

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Initial Investigation of Prevention of ASD in Infants at Risk
Sally J. Rogers   (Owner: Rogers, Sally)
The project's overall goal is to develop and pilot test a manualized, parent-delivered intervention for symptomatic infants ages 6-11 months of age at high risk for autism that will reduce atypical behaviors and developmental delays and increase developmental rates, thus lessening or...

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CBT for anxiety in adolescents with autism #1850

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
CBT for anxiety in adolescents with autism
Jeffrey Wood  (Owner: Wood, Jeff)
Collection consists of youth with autism and coexisting anxiety undergoing cognitive-behavioral treatment

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No Data Shared

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Collaborative Programs of Excellence in Autism (CPEA) #1853

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Collaborative Programs of Excellence in Autism (CPEA)
Dawson, Geraldine; Loveland, Katherine; McMahon, William; Minshew, Nancy; Rodier, Patricia; Rogers, Sally; Sigman,Marian; Tager-Flusberg, Helen; Volkmar, Fred   (Owner: Tager-Flusberg, Helen)
The CPEAs link 129 scientists from 23 universities in the United States, Canada, Britain, and five other countries, and more than 2,000 families of people with autism. The clinical data associated with the CPEAs are contained here.

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Studies to Advance Autism Research and Treatment (STAART). #1854

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Studies to Advance Autism Research and Treatment (STAART).
Aylward, Elizabeth; Buxbaum, Joseph; Dawson, Geraldine; Hollander, Eric; Landa, Rebecca; Rodier, Patricia; Sigman, Marian; Tager-Flusberg, Helen   (Owner: Buxbaum, Joseph)
The STAART Network is comprised of eight centers across the country. Most of these centers are evaluating and treating patients, as well as enrolling them into clinical trials.

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Autism Tissue Program (ATP) Brain Donor Listing #1855

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Autism Tissue Program (ATP) Brain Donor Listing
Jane Pickett Ph.D, ATP Director of Brain Resources and Data  (Owner: Pickett, Rich)
This is a listing of brain donors, with GUIDs, that are within the Autism Tissue Program (ATP) database. The information in this collection is limited to just a few fields. Additional information is available to authorized researchers with ATP accounts through NDAR or ATPportal.org

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Early Language Development within the Autism Spectrum #1856

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Early Language Development within the Autism Spectrum
Susan Ellis-Weismer  (Owner: Ellis-Weismer, Susan)
This project obtained behavioral data focused on early language and communication development in autism spectrum disorders (ASD). These data were obtained from a sample of young children residing in the state of Wisconsin. All children were between 2-3 years when enrolled in the research project...

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Autism Tissue Program (ATP) Brain Donor Clinical Data #1858

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Autism Tissue Program (ATP) Brain Donor Clinical Data
Jane Pickett Ph.D, ATP Director of Brain Resources and Data  (Owner: Pickett, Rich)
This collection contains various data sets containing demographic, clinical (medical history, clinical reports) and other information.

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Autism Tissue Program (ATP) Brain Donor Imaging #1859

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Autism Tissue Program (ATP) Brain Donor Imaging
Jane Pickett Ph.D, ATP Director of Brain Resources and Data  (Owner: Pickett, Rich)
Various datasets containing MRI imaging data from ATP brain donors.

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Electrophysiologic Studies of Language Impairment in ASD #1862

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Electrophysiologic Studies of Language Impairment in ASD
Timothy Roberts  (Owner: Roberts, Timothy)
6-15 year old children recruited for MEG studies of auditory processing

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No Data Shared

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Child-Initiated Interactions and Autism Intervention #1863

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Child-Initiated Interactions and Autism Intervention
Dr. Robert Koegel  (Owner: Koegel, Robert)
Data for a project to examine specific intervention components during language intervention and social communication.

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No Data Shared

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Gene Expression and Immune Cell Function in Mothers of Children with Autism- Demographics #1864

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Gene Expression and Immune Cell Function in Mothers of Children with Autism- Demographics
Frank Sharp  (Owner: Sharp, Frank)
To investigate the gene expression profiles of parents of typically developing children and parents of children diagnosed with autism spectrum disorder. Information in this collection includes the demographic profiles for subjects enrolled in the study.

No Data Shared

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Development of a Brief Screener for Research in Autism Spectrum Disorders #1865

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Development of a Brief Screener for Research in Autism Spectrum Disorders
Cathy Lord, Ph. D. and Christopher Monk  (Owner: Lord, Catherine )
This collection contains phenotypic data from subjects diagnosed with ASD as well as subjects with non-ASD diagnoses.

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1/2 Development of a Screening Interview for Research Studies of ASD #1866

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
1/2 Development of a Screening Interview for Research Studies of ASD
Christoper Monk, Somer Bishop and Cathy Lord  (Owner: Lord, Catherine )
This collection contains phenotypic data on subjects diagnosed with ASD and subjects with non-ASD diagnoses.

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The Effects of Oxytocin on Complex Social Cognition in Autism Spectrum Disorders #1868

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
The Effects of Oxytocin on Complex Social Cognition in Autism Spectrum Disorders
Jennifer Bartz, PhD  (Owner: Bartz, Jennifer)
The Effects of Oxytocin on Complex Social Cognition

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No Data Shared

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NICHD Brain and Tissue Bank for Developmental Disorders #1870

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
NICHD Brain and Tissue Bank for Developmental Disorders
H. Ron Zielke  (Owner: Zielke, Ron)
The objective of this human tissue repository is to systematically collect, store, and distribute brain and other tissues for research dedicated to the improved understanding, care and treatment of individuals with developmental disorders.

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Elucidating the Genetic Architecture of Autism by Deep Genomic Sequencing #1872

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Elucidating the Genetic Architecture of Autism by Deep Genomic Sequencing
Mark Daly  (Owner: Neale, Ben)
ARRA Autism Sequencing Collaboration

No Data Shared

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IAN Interactive Autism Network #1877

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
IAN Interactive Autism Network
Dr. Paul A. Law  (Owner: Nestle, Jay)
IAN Research participants complete a series of baseline self-report questionnaires that collect information on ASD diagnosis, phenotypic characteristics and treatments, developmental history and educational setting, family demographics and parent past medical history, as well as many other topics....

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Genomic Identification of Autism Loci #1878

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Genomic Identification of Autism Loci
Evan E Eichler  (Owner: Eichler, Evan)
The goal of this grant is to use a targeted approach to identify the genes responsible for autism. Three different approaches were put forward to focus on genomic regions associated with autism, each was a dedicated specific aim.

No Data Shared

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AGRE Federated Collection #1879

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
AGRE Federated Collection
Clara Lajonchere  (Owner: Bosnjakovic, Dusan)
AGRE is a DNA repository and family registry, housing a database of genotypic and phenotypic information that is available to autism researchers worldwide.

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Computer Adaptive Testing of Adaptive Behavior of Children and Youth with Autism #1880

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Computer Adaptive Testing of Adaptive Behavior of Children and Youth with Autism
Wendy Coster, PhD  (Owner: Coster, Wendy)
The PEDI-CAT (ASD) will facilitate significant advances in ASD research and clinical services by providing a brief but precise, psychometrically sound assessment of daily function in home and community. The instrument will greatly improve the quality of information obtained on the adaptive behavior...

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Sex specific dissection of autism genetics #1883

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Sex specific dissection of autism genetics
Dr.Lauren A. Weiss  (Owner: Weiss, Lauren)
SRS and SCQ data for females and males with ASDs

No Data Shared

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Predicting Useful Speech in Children With Autism #1885

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Predicting Useful Speech in Children With Autism
Dr. Paul Yoder  (Owner: Yoder, Paul)
Predicting Useful Speech in Children with ASD: Analyzing speech processing, word processing, and pre-speech vocalizations

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No Data Shared

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PDN Screening Data #1886

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
PDN Screening Data
Audrey Thurm  (Owner: Thurm, Audrey)
Data from PDN Screening study

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Restricted Interests and Repetitive Behaviors in Autism #1887

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Restricted Interests and Repetitive Behaviors in Autism
Gabriel Dichter  (Owner: Dichter, Gabriel)
Collection of a broad array of phenotyping measures in adolescents with high and low functioning autism spectrum disorders that exhibit repetitive behaviors and restricted interest sets

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No Data Shared

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Emergence and Stability of Autism in Fragile X Syndrome #1888

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Emergence and Stability of Autism in Fragile X Syndrome
Jane Roberts  (Owner: Roberts, Jane)
FXS Demographics, General Demographics, and Mullen Scores

No Data Shared

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ASD Mathematical Cognition: A Cognitive and Systems Neuroscience Approach #1889

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
ASD Mathematical Cognition: A Cognitive and Systems Neuroscience Approach
Dr. Vinod Menon, Stanford University   (Owner: Menon, Vinod)
Investigation of math abilities in children with ASD via behavioral tests and brain imaging. Study will investigate cognitive and brain processes as well as brain networks involved in mathematical cognition in ASD populations. First submission will include behavioral (WASI) as well as diagnostic...

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No Data Shared

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FETAL PROGRAMMING OF THE NEWBORN AND INFANT HUMAN BRAIN #1890

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
FETAL PROGRAMMING OF THE NEWBORN AND INFANT HUMAN BRAIN
Claudia Buss  (Owner: Buss, Claudia)
demographics, DTI, T1, and T2 brain images for healthy 0-4 week old infants

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No Data Shared

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Early Detection of Autism through Acoustic Analysis of Cry #1891

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Early Detection of Autism through Acoustic Analysis of Cry
Stephen J. Sheinkopf  (Owner: Sheinkopf, Stephen)
This team will work collaboratively to develop a new acoustic analysis system for infant cry based on state of the art acoustical engineering and computer technology. In particular, we will utilize advances in digital signal processing to yield more accurate and robust detection and modeling of...

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Genomic Profiling and Functional Mutation Analysis in Autism Spectrum Disorders #1895

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Genomic Profiling and Functional Mutation Analysis in Autism Spectrum Disorders
Matthew State  (Owner: State, Matthew)
This proposal is in response to a request for applications to address "Genomic Profiling of Mental Disorders", and proposes intensive genomic profiling and functional analysis of Contactin Associated Protein 2 (CNTNAP2) as well as the presynaptic cytomatrix protein Piccolo (PCLO), in an effort...

No Data Shared

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Novel computational methods for higher order diffusion MRI in autism #1896

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Novel computational methods for higher order diffusion MRI in autism
Ragini Verma  (Owner: Navidi, Gretchen)
We aim at developing computational methods for processing and analysis of high angular resolution diffusion imaging data that has been fitted with higher order diffusion models (HOMs). Compared to the tensor model in diffusion tensor imaging (DTI), HOMs provide a much richer understanding...

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Measuring Social Networks among Parents and Autism Heath Care Providers #1897

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Measuring Social Networks among Parents and Autism Heath Care Providers
Stephen Raudenbush  (Owner: McGhee Hassrick, Elizabeth)
This study will generate hypotheses, yield a field-tested survey instrument, and provide preliminary evidence about the effects of social networks on parents capacity to manage their childs autism treatment, laying the groundwork for larger-scale research and intervention.

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Cellular Density and Morphology in the Autistic Temporal Human Cerebral Cortex #1898

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Cellular Density and Morphology in the Autistic Temporal Human Cerebral Cortex
Veronica Martínez Cerdeño  (Owner: Martinez Cerdeño, Veronica)
This project will analyze the temporal lobe of 21 autistic postmortem human brains (diagnosed as autistic, not as other autism spectrum disorders) and the temporal lobe of 18 control postmortem human brains. The data obtained from this project will also serve as the basis for future studies...

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Neurobehavioral Research on Infants at Risk for SLI and Autism #1900

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Neurobehavioral Research on Infants at Risk for SLI and Autism
Helen Tager-flusberg  (Owner: Tager-Flusberg, Helen)
The specific aims of the research are (1) to identify markers that distinguish between infants at risk for SLI or ASD and low risk controls; (2) to identify the predictors of later SLI and ASD diagnoses (at 36 months of age) from measures collected between 6 and 12 months of age; and (3) to...

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Functional Neuroimaging of Attention in Autism #1904

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Functional Neuroimaging of Attention in Autism
Benjamin Yerys  (Owner: Yerys, Benjamin)
The proposed study will use functional MRI and rest state MRI along with novel, data-driven methods to examine brain networks disrupted in children with ASD and ADHD symptoms. This approach has two distinct advantages: 1) a basal ganglia-thalamocortical loop tapped by response inhibition is...

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Atypical Late Neurodevelopment in Autism #1906

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Atypical Late Neurodevelopment in Autism
Janet E Lainhart, MD  (Owner: Lainhart, Janet)
Longitudinal neuroimaging and neuropsychological study to understand how brain mechanisms and clinical phenotypes in autism are related.

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Autism Genome Project #1916

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Autism Genome Project
Scherer, S. Devlin, B  (Owner: Novikova, Svetlana)
The Autism Genome Project (AGP) Consortium represents more than 50 centers in North America and Europe. In an ongoing effort, the international AGP Consortium is collecting DNA from ASD families for ongoing genetic studies. The first phase of this initiative involved examining genetic linkage and...

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Human autism genetics and activity dependent gene activation (Whole Exome Sequencing of AGRE samples) #1918

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Human autism genetics and activity dependent gene activation (Whole Exome Sequencing of AGRE samples)
Christopher Walsh  (Owner: Walsh, Christopher)
The goal of this proposal is to bring together the power of 1) whole exome and genome sequencing, 2) homozygosity mapping in consanguineous families, 3) genome-wide maps of neuronal transcription in response to neuronal activity, and 4) genome-wide maps of the binding sites of factors that...

No Data Shared

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Next Generation Gene Discovery in Familial Autism #1919

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Next Generation Gene Discovery in Familial Autism
Zoran Brkanac  (Owner: Brkanac, Zoran)
The goal of this proposal is to identify novel genes that are responsible for autism. To achieve that, we will apply novel analytic approach to identify families from existing UW-ACE and NIH collections where inheritance is most parsimonious with single gene transmission. We will analyze such...

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Visual attention and fine motor coordination in infants at risk for autism #1920

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Visual attention and fine motor coordination in infants at risk for autism
Anjana Narayan Bhat  (Owner: Bhat, Anjana)
The broad objectives of this research are to develop novel tools for early identification of motor, social, and cognitive deficits of Autism Spectrum Disorders (ASD) within the first six months of life. In this proposal, reaching, object exploration, and associative learning tasks are used as ...

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Components of Limited Activity Monitoring in Toddlers with ASD #1923

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Components of Limited Activity Monitoring in Toddlers with ASD
Frederick Shic  (Owner: Shic, Frederick)
This proposal seeks to understand why toddlers with ASD monitor the activities of others less frequently by examining the social, perceptual, and developmental factors which may influence this ability in 20-month old toddlers with ASD and 14- and 20-month old TD toddlers. In regards to typical...

No Data Shared

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Behavioral and Genetic Biomarker Development for Autism and Related Disorders #1932

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Behavioral and Genetic Biomarker Development for Autism and Related Disorders
Linda Brzustowicz, M.D.  (Owner: Brzustowicz, Linda)
Write overview here.

No Data Shared

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Wigler SSC autism exome families #1936

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Wigler SSC autism exome families
Michael Wigler  (Owner: Wigler, Mike)
343 families from the Simons Simplex Collection. Each family includes father, mother, a proband and an unaffected sibling.

No Data Shared

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GLOBAL: Social Cognition and Learning Across Typical and Atypical Development #1937

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
GLOBAL: Social Cognition and Learning Across Typical and Atypical Development
Dr. Kevin Pelphrey  (Owner: Pelphrey, Kevin)
This collection involves the following methodologies: functional neuroimaging (fMRI, fNIRS), structural neuroimaging (sMRI, MRS), electrophysiological recordings during MRI scanning, behavioral studies, genetic collection and analyzes, eye-tracking (inside and outside of the MRI magnet), and...

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Cultural Equivalence of Autism Assessment for Latino Children #1939

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Cultural Equivalence of Autism Assessment for Latino Children
Sandra Magana  (Owner: Magana, Sandy)
The proposed study will examine the cultural equivalence of the Autism Diagnostic Interview Revised (ADI-R) for a US Latino population. The proposed study builds on an existing study of Latino children on the autism spectrum and their families and will recruit 25 additional children who have...

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Developing a novel treatment for restricted inflexible behavior #1940

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Developing a novel treatment for restricted inflexible behavior
Mark Lewis  (Owner: Lewis, Mark)
The overall goal of the proposed project is to initiate a program of research to develop a novel treatment approach to restricted, inflexible behavior, a clinically important and highly understudied problem in neurodevelopmental disorders in general and autism in specific. Rather than target a...

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Decoding 'what' and 'who' in the auditory system of children with autism spectrum #1943

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Decoding 'what' and 'who' in the auditory system of children with autism spectrum
Vinod Menon  (Owner: Menon, Vinod)
To further our understanding of basic auditory function underlying decoding of phonological content ("what" is being said) and speaker identity ("who" is saying it) in children with ASD, compared to typically developing (TD) children matched on age and language ability. Novel multivariate pattern...

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Autism Risk, Prenatal Environmental Exposures, and Pathophysiologic Markers #1946

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Autism Risk, Prenatal Environmental Exposures, and Pathophysiologic Markers
Dr. Irva Hertz-Picciotto  (Owner: Hertz-Picciotto, Irva)
An extension of the epidemiology project MARBLES (Markers of Autism Risk in Babies Learning Early Signs) to collect 1) extensive behavioral, medical, and exposure data, 2) biologic specimens from the mother and child, and 3) detailed psychometric assessments from birth to 3 years, Exposures of...

No Data Shared

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Effectiveness and Implementation of a Mental Health Intervention for ASD #1950

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Effectiveness and Implementation of a Mental Health Intervention for ASD
Lauren Brookman-Frazee  (Owner: Brookman-Frazee, Lauren)
This collection includes clinical data on children ages 5 to 13 with ASD receiving community mental health services.

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Synaptic A-to-I RNA editing in autistic and neurotypical cerebella #1951

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Synaptic A-to-I RNA editing in autistic and neurotypical cerebella
Louis Kunkel  (Owner: Eran, Ally)
Ultradeep 454 and Illumina sequencing of cDNA from postmortem cerebella of individuals with ASD and matched neurotypical controls

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School-Age Children with Autism with Limited Expressive Language Intervention #1952

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
School-Age Children with Autism with Limited Expressive Language Intervention
Dr. Rebecca Landa  (Owner: Landa, Rebecca)
School-Age Children with Autism with Limited Expressive Language Skills: An Intervention Study

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Characterizing mechanistic heterogeneity across ADHD and Autism #1955

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Characterizing mechanistic heterogeneity across ADHD and Autism
Fair, Damien A  (Owner: Fair, Damien)
Progress in establishing the etiology of psychiatric illness is limited by the absence of objective biological measures able to detect and discriminate between disorders. This problem is particularly important in developmental disorders, where early identification could eventually assist in...

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A Family-Genetic Study of Autism and Fragile X Syndrome #1958

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
A Family-Genetic Study of Autism and Fragile X Syndrome
Losh, Molly C.  (Owner: Losh, Molly)
Fragile X syndrome (FXS) is associated with an increased risk of autism, with prevalence rates ranging from 25-50%. This translates to an approximate relative risk of over 100, indicating that FMR1 (the gene causing FXS) confers considerable vulnerability to autism. While efforts to uncover the...

No Data Shared

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Performance Indices of Social Disability in Toddlers with Autism #1959

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Performance Indices of Social Disability in Toddlers with Autism
Klin, Ami  (Owner: Navidi, Gretchen)
This project - 'Performance Indices of Social Disability in Toddlers with Autism' - addresses Challenge Area '(04) Clinical Research' and Specific Challenge Topic 'Autism: Addressing the Challenge (04-MH-101*)'; and Challenge Area '(01) Behavior, Behavioral Change, and Prevention' and Specific...

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Longitudinal Studies of Autism Spectrum Disorders: From 2 to 23 #1965

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Longitudinal Studies of Autism Spectrum Disorders: From 2 to 23
Cathy Lord, Ph. D  (Owner: Lord, Catherine )
Longitudinal Studies of Autism Spectrum Disorders (ASD): From 2 to 23 - Increasing Understanding of Nonverbal School-Aged Children and Children with Limited Language Skills

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Dissecting Epistasis and Pleiotropy in Autism towards Personalized Medicine (Autism Traits in the RASopathies) #1966

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Dissecting Epistasis and Pleiotropy in Autism towards Personalized Medicine (Autism Traits in the RASopathies)
Lauren A. Weiss, PhD  (Owner: Weiss, Lauren)
SRS & SCQ data for individuals with RASopathies (NF1, Noonan, CFC, & Costello syndromes) as well as healthy family members.

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Sensor-based technology in the study of motor skills in infants at risk for ASD (Infant motor planning) #1968

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Sensor-based technology in the study of motor skills in infants at risk for ASD (Infant motor planning)
Jana M. Iverson  (Owner: Iverson, Jana)
Longitudinal and cross-sectional data on motor planning in infants at HR for ASD and comparison infants. This research is designed to examine fine motor and object manipulation skills in HR and comparison infants with no such risk (Low Risk infants; LR) between the ages of 12 and 36 months. ...

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Rapid Phenotyping for Rare Variant Discovery in Autism #1971

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Rapid Phenotyping for Rare Variant Discovery in Autism
Stanley Nelson  (Owner: Nelson, Stanley)
The project proposed here is to use the combined power of web based recruiting, web-implemented and validated phenotypic measurements, and distributed blood collection to establish a cost-effective recruitment of affected children with ASD. Based on our preliminary analysis where we assessed the...

No Data Shared

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Early Brain Development in Twins #1974

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Early Brain Development in Twins
John Gilmore  (Owner: Gilmore, John)
Twin studies have been critical in determining the contributions of genetic and environmental factors to normal brain structure and for understanding abnormalities of brain development that underlie neurodevelopmental and neuropsychiatric disorders. In adults and older children, twin studies...

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A Longitudinal 3-D MRSI Study of Infants at High Risk for Autism #1975

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
A Longitudinal 3-D MRSI Study of Infants at High Risk for Autism
Stephen Dager  (Owner: Dager, Stephen)
The aim of this proposal is to expand the scope of a funded NIH project "A longitudinal MRI Study of Infants at Risk for Autism", (RO1 HD055741- IBIS network) through adding 3-D Proton Echo Planar Spectroscopic Imaging (3D PEPSI) to allow measurements of brain chemistry in 6 month-old siblings.

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Preschool Reading and Language Interventions for Children with Autism #1981

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Preschool Reading and Language Interventions for Children with Autism
Roxanne Hudson  (Owner: Hudson, Roxanne)
The goal of this proposed project is to determine the immediate (end of preschool) and longer term (end of kindergarten) effects of preschool interventions based on areas that have been previously shown to be important for emergent literacy and improved reading and language outcomes. To investigate...

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Evaluating the Time-Dependent Unfolding of Social Interactions in Children with Autism #1985

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Evaluating the Time-Dependent Unfolding of Social Interactions in Children with Autism
Michael Richardson  (Owner: Richardson, Michael)
Given the importance of social competence in ASD, the proposed research will evaluate whether social motor coordination can be a marker for social competence in autism across the spectrum of deficits and explore the relationship between motorically-based and cognitively-based conceptions of social...

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Testing the hyperspecificity hypothesis: a neural theory of autism #1986

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Testing the hyperspecificity hypothesis: a neural theory of autism
Robert Schultz  (Owner: Schultz, Robert)
The current proposal represents the first ever neural test of the "hyperspecificity" hypothesis of ASD. Testing involves application of new methods that our labs developed for implementation with fMRI and ERPs. We predict that fMRI based probe will reveal sparser neural encoding in ASD, and that...

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A Mitochondrial Etiology of Autism #1998

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
A Mitochondrial Etiology of Autism
Douglas Wallace  (Owner: Navidi, Gretchen)
We propose to test the hypothesis that mitochondrial dysfunction is an important factor in the etiology of autism spectrum disorders (ASD). The mitochondria play four central roles in cell and tissue function: they provide most of the energy, generate much of the reactive oxygen species...

No Data Shared

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NIMH Genetics #1999

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
NIMH Genetics
NIMH Genetics  (Owner: Novikova, Svetlana)
NIMH Genetics Summary Information

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Networked Cortical Responses to Movement Associated with ASD #2000

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Networked Cortical Responses to Movement Associated with ASD
Michael Murias  (Owner: Murias, Michael)
This project examines three different networks (mu, beta, gamma) of brain activity thatrespond when people view scenes involving motion. We measure these network activities by recording electroencephalographic (EEG) responses to motion, and analyze their temporal, spectral, and spatial...

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Influence of Attention and Arousal on Sensory Abnormalities in ASD #2001

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Influence of Attention and Arousal on Sensory Abnormalities in ASD
Jeanne Townsend  (Owner: Townsend, Jeanne)
Based upon our own work and existing evidence, we suggest a model in which basic sensory function is intact in ASD and abnormalities in sensory behavior result instead from the influence of poorly modulated arousal and attention on sensory responsiveness. We propose to address this important...

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Autism: Social and Communication Predictors in Siblings (Landa) AND Effects of Active Motor and Social Training on Developmental Trajectories in Infants at High-risk for Autism Spectrum Disorders (Libertus) #2003

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Autism: Social and Communication Predictors in Siblings (Landa) AND Effects of Active Motor and Social Training on Developmental Trajectories in Infants at High-risk for Autism Spectrum Disorders (Libertus)
Rebecca Landa, Klaus Libertus  (Owner: Landa, Rebecca)
The purpose of the proposed study is to identify very early indicators of ASD, beginning in infancy. Specific aims are to: (1) define markers of disrupted neurobehavioral development that appear between 6 and 14 months of age, before clinical signs of ASD; (2) translate ASD clinical...

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Sequencing Autism Spectrum Disorder Extended Pedigrees (1/3, 2/3, and 3/3) #2004

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Sequencing Autism Spectrum Disorder Extended Pedigrees (1/3, 2/3, and 3/3)
Gerard Schellenberg, Hilary Coon and Ellen Wijsman  (Owner: Coon, Hilary)
We have in hand a unique resource of extended autism spectrum disorder (ASD) pedigrees. We will sequence family members from the most informative pedigrees to study genetic variation contributing to ASD and related phenotypes. We will work to discover new variation, and also use the resource to...

No Data Shared

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Pivotal Response Treatment for Infants at Risk for ASD: A Pilot Intervention #2005

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Pivotal Response Treatment for Infants at Risk for ASD: A Pilot Intervention
Katarzyna Chawarska  (Owner: Chawarska, Kasia)
The proposed project aims to evaluate the feasibility and acceptability of a novel behavioral intervention, Infant-Toddler Years Pivotal Response Treatment (ITY-PRT), designed to enhance the frequency of communication and social engagement in infant siblings of children with Autism Spectrum...

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Impairments of Theory of Mind disrupt patterns of brain activity #2006

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Impairments of Theory of Mind disrupt patterns of brain activity
Rebecca Saxe  (Owner: Saxe, Rebecca)
Humans think constantly about one another's thoughts, for example, in order to communicate, to teach, to learn from, to cooperate with, to compete with, and to deceive one another. This ability to fluently infer what others are thinking is impaired in individuals with Autism Spectrum Disorders...

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No Data Shared

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Treatment of Autism Symptoms in Children (TASC): Initial RCT with Active Control #2007

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Treatment of Autism Symptoms in Children (TASC): Initial RCT with Active Control
Jeffrey Wood  (Owner: Wood, Jeff)
Cognitive behavioral therapy (CBT) offers a novel approach for addressing core autism symptoms in higher functioning school-age youngsters. CBT has been successfully adapted to treat emotional problems in school-aged children with ASD (e.g., Wood et al., 2009a). Initial results suggest that CBT...

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Early Biomarkers of Autism Spectrum Disorders in infants with Tuberous Sclerosis #2008

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Early Biomarkers of Autism Spectrum Disorders in infants with Tuberous Sclerosis
Mustafa Sahin  (Owner: Sahin, Mustafa)
Autism Spectrum Disorders (ASD) has complex and varying etiologies. A lack of understanding regarding the underlying molecular and cellular mechanisms is a key barrier in finding effective treatments. Single-gene disorders that have a high prevalence of ASD provide unique opportunities to...

No Data Shared

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Study of Oxytocin in Autism to Improve Reciprocal Social Behaviors (SOARS-B) #2009

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Study of Oxytocin in Autism to Improve Reciprocal Social Behaviors (SOARS-B)
Linmarie Sikich  (Owner: Sikich, Linmarie)
This application proposes creation of the ACE SOARS Network and a pivotal clinical trial of sustained oxytocin treatment in children with ASD known as SOARS-B (Study of Oxytocin in ASD to improve Reciprocal Social Behaviors). The ACE SOARS Network consists of five Treatment Sites across the country...

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Toward Outcome Measurement of Anxiety in Youth with Autism Spectrum Disorders #2011

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Toward Outcome Measurement of Anxiety in Youth with Autism Spectrum Disorders
Lawrence D. Scahill  (Owner: Navidi, Gretchen)
This four-year multisite project will advance outcome measurement of anxiety in future clinical trials in youth with autism spectrum disorders (ASDs). Program announcement (PAR-11-045) declares that the dearth of outcome measures in developmentally disabled populations is a major impediment for...

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Optimization of Fidelity Procedures for Pivotal Response Training in Autism #2012

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Optimization of Fidelity Procedures for Pivotal Response Training in Autism
Aubyn Stahmer  (Owner: Navidi, Gretchen)
To improve the overall quality and effectiveness of mental health intervention, it is essential to identify empirically supported behavioral treatments (ESBTs) and assure the accessibility and usability of these treatments for providers in community settings. Fidelity of implementation (FI), or...

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Magnetoencephalographic studies of lexical processing and abstraction in autism #2013

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Magnetoencephalographic studies of lexical processing and abstraction in autism
David Embick  (Owner: Navidi, Gretchen)
Language impairment and communication difficulties are a hallmark of autism spectrum disorders. The central hypothesis underlying this proposal is that children on the autism spectrum manifest difficulties forming and accessing abstract representations and categorizing acoustic distinct but...

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The Neural Substrates of Higher-Level Learning in Autism #2014

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
The Neural Substrates of Higher-Level Learning in Autism
Marjorie Solomon  (Owner: Solomon, Marjorie)
Individuals with ASD display a unique pattern of abilities and disabilities in learning and memory. They exhibit intact lower-level learning of items, facts, details, and routines. However, they manifest impairments in higherlevel learning involving abstraction, problem solving, using information...

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Genome-wide Environment Interaction Study for Autism: The SEED study #2016

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Genome-wide Environment Interaction Study for Autism: The SEED study
Daniele Fallin  (Owner: Fallin, Daniele)
Improving our understanding of gene-environment interaction (GxE) as an etiologic mechanism in autism has been identified as a research priority in the NIH Inter-Agency Autism Coordinating Committee's (IACC's) Strategic Plan for Autism Spectrum Disorders (ASD) Research as well as in the IOM's.'

No Data Shared

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Wireless EEG System for Training Attention and Eye Movement in ASD #2017

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Wireless EEG System for Training Attention and Eye Movement in ASD
Jeanne Townsend  (Owner: Townsend, Jeanne)
Autism Spectrum Disorder (ASD) is a lifelong disorder that severely affects the ability to learn and function in a social environment. In typical function, higher level social, language and communication skills develop over the first few years of life and depend upon the critical building blocks of...

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Longitudinal measurements of sleep EEG in adolescence #2018

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Longitudinal measurements of sleep EEG in adolescence
Irwin Feinberg  (Owner: Feinberg, Irwin)
Adolescence is now recognized as a period of major brain reorganization as well as rapid endocrine and physical development. Among the most prominent brain changes is a huge decline in the delta (<4 Hz) EEG of NREM sleep. Our ongoing study uses spectral and period-amplitude analyses to examine...

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The Role of Germline Mutation and Parental Age in Autism Spectrum Disorders #2019

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
The Role of Germline Mutation and Parental Age in Autism Spectrum Disorders
Jonathan Sebat  (Owner: Sebat, Jonathan)
In the new phase of our project, we will apply a whole genome sequencing-based approach to determine the role of ROHs in ASD. We will investigate the nature intrinsic hypermutability and the extrinsic forces, such as paternal age, that influence rates of germline mutation. We will accomplish...

No Data Shared

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Adaptive Interventions for Minimally Verbal Children with ASD in the Community #2020

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Adaptive Interventions for Minimally Verbal Children with ASD in the Community
Connie Kasari  (Owner: Kasari, Connie)
An estimated 30-40% of school-aged children with an autism spectrum disorder (ASD) remain minimally verbal even after receiving years of interventions. These children require an intervention approach that simultaneously (a) consolidates early success in treatment and (b) intensifies treatment given...

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Multimodal Developmental Neurogenetics of Females with ASD #2021

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Multimodal Developmental Neurogenetics of Females with ASD
Kevin Pelphrey  (Owner: Pelphrey, Kevin)
The term autism-spectrum disorders (ASD) exemplifies the tremendous heterogeneity in this developmental disorder at both the phenotypic and underlying genetic levels. It has repeatedly been observed that ASD disproportionately affects males relative to females. Although many hypotheses attempt to...

No Data Shared

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The Social Brain in Schizophrenia and Autism #2022

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
The Social Brain in Schizophrenia and Autism
Michal Assaf  (Owner: Assaf, Michal)
Autism measures, diagnostic measures, EEG and fMRI data

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Multigenerational FamIlial and Environmental Risk for Autism (MINERvA) Network #2023

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Multigenerational FamIlial and Environmental Risk for Autism (MINERvA) Network
Abraham Reichenberg  (Owner: Reichenberg, Avi)
We will build on an existing research network leveraging established population-based epidemiologic resources from seven countries (USA-California, Australia, Denmark, Finland, Israel, Norway, Sweden) that include individual-level perinatal medical, and demographic information and archived...

No Data Shared

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Divergent biases for conspecifics as early markers for Autism Spectrum Disorders #2024

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Divergent biases for conspecifics as early markers for Autism Spectrum Disorders
Athena Vouloumanos  (Owner: Vouloumanos, Athena)
This proposal has two short-term goals. The first goal is to help identify very young infants who have an increased risk for later social impairments typical of ASD by examining how they perceive voices and faces, the socially-relevant characteristics of their own species. The second goal is to...

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Minimally Verbal ASD: From Basic Mechanisms to Innovative Intervenfions #2025

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Minimally Verbal ASD: From Basic Mechanisms to Innovative Intervenfions
Helen Tager-Flusberg  (Owner: Tager-Flusberg, Helen)
Our ACE, located at Boston University, brings together researchers from across the university and collaborators from Harvard Medical School, Northeastern University and Albert Einstein College of Medicine. The interconnected projects in the ACE include: a novel intervenfion to promote spoken...

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Biomarkers of Developmental Trajectories and Treatment in ASD #2026

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Biomarkers of Developmental Trajectories and Treatment in ASD
Susan Bookheimer  (Owner: Bookheimer, Susan)
This is a renewal for the UCLA Autism Center of Excellence. The primary focus of the UCLA ACE renewal is to understand the relationship between aberrant brain development and core deficits in autism by identifying mechanisms relating genes to brain structure/function and brain to behavior, and to...

No Data Shared

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A Longitudinal MRI Study of Infants at Risk for Autism (ACE 2) #2027

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
A Longitudinal MRI Study of Infants at Risk for Autism (ACE 2)
Joseph Piven  (Owner: Piven, Joseph)
This application is a competing continuation of an Autism Center of Excellence (ACE) Network grant. The initial grant supported a prospective, longitudinal examination of brain and behavior at 6, 12 and 24 months in infants at high familial risk (HR) for autism. By the completion of this...

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Mechanisms of Risk and Resilience in ASD: Ontogeny, Phylogeny and Gene Disruption #2028

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Mechanisms of Risk and Resilience in ASD: Ontogeny, Phylogeny and Gene Disruption
Ami Klin  (Owner: Klin, Ami)
The Emory ACE joins 8 laboratories in 3 institutions, creating a center for clinical and translational science built-from its outset--on the expectation of transformative impact on the community. Laboratories from the Marcus Autism Center, Emory University School of Medicine, and Yerkes National...

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Autism genetics: homozygosity mapping and functional validation #2029

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Autism genetics: homozygosity mapping and functional validation
Christopher A. Walsh  (Owner: Walsh, Christopher)
Although high throughput sequencing (HTS) methods allow systematic analysis of genetic variation across the entire exome, or even the entire genome, the interpretation of this data faces analytical challenges that have by no means been solved. The use of consanguineous pedigrees, in which...

No Data Shared

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Electrophysiological Response to Executive Control Training in Autism #2030

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Electrophysiological Response to Executive Control Training in Autism
Susan Faja  (Owner: Faja, Susan)
Fifty to 96% of children with ASD demonstrate impaired executive control¿the ability to manage complex or conflicting information in the service of a goal. Development of appropriate executive control is relevant to public health because these skills are critical for success in school, the...

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The Study of Health Outcomes in Children with Autism and their Families #2032

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
The Study of Health Outcomes in Children with Autism and their Families
The Lewin Group  (Owner: Dennen, Taylor )
The National Institute of Mental Health (NIMH) contracted with The Lewin Group to conduct a two-year study from September 2010 to September 2012 entitled "The Study of Health Outcomes in Children with Autism and their Families." This study seeks to address a significant gap in the empirical...

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Genotyping and RNA-Seq in post-mortem brains from autism-affected cases and controls #2034

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Genotyping and RNA-Seq in post-mortem brains from autism-affected cases and controls
Dan E. Arking  (Owner: Arking, Dan)
Despite significant heritability of autism spectrum disorders (ASDs), the genetic basis of autism remains elusive. We have genotyped 64 autism-affected cases and controls and carried out RNA-Sequencing (RNA-Seq) on post-mortem cortical brain samples (BA19 ) from these same individuals with our goal...

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Autism Genetics, Phase II: Increasing Representation of Human Diversity #2035

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Autism Genetics, Phase II: Increasing Representation of Human Diversity
Daniel Geschwind  (Owner: Geschwind, Daniel)
Autism Spectrum Disorder (ASD) is a common, often devastating neuropsychiatric condition with largely unknown pathophysiology. Although ASD has a multifactorial etiology, it encompasses a large genetic component. The investigators in this proposal aim to continue and enhance our collaborative...

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Intervention effects of intensity and delivery style for toddlers with ASD #2036

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Intervention effects of intensity and delivery style for toddlers with ASD
Sally Rogers  (Owner: Navidi, Gretchen)
High quality, intensive early intervention is a powerful treatment for ASD, improving IQ and language markedly in randomized controlled clinical trials (RCTs), though little long term follow-up data exists. Few core characteristics that affect child change have been tested. Two potential core...

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Gender and Cognitive Profile as Predictors of Functional Outcomes in School-Aged Children #2038

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Gender and Cognitive Profile as Predictors of Functional Outcomes in School-Aged Children
Jennifer Moriuchi  (Owner: Moriuchi, Jennifer)
The vast variability of symptoms and symptom severity in autism spectrum disorders (ASD) has been one of the greatest obstacles for research on its causes and treatment. This project aims to enhance understanding of the phenotypic heterogeneity in the disorder by identifying social...

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Autism Spectrum Disorder - Inflammatory Subtype: Molecular Characterization #2043

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Autism Spectrum Disorder - Inflammatory Subtype: Molecular Characterization
Harumi Jyonouchi  (Owner: Jyonouchi, Harumi)
Previously, we have reported that some of those 'poor responders' are characterized by fluctuating behavioral symptoms following immune insults (typically microbial infection), and persistent gastrointestinal (GI) symptoms. We have also found that peripheral blood (PB) monocytes...

No Data Shared

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Piloting Very Early and Early Markers for Risk of ASD & Related Developmental Disabilites in Premature & Low Birth Weight Infants #2044

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Piloting Very Early and Early Markers for Risk of ASD & Related Developmental Disabilites in Premature & Low Birth Weight Infants
Barbie Zimmerman-Bier  (Owner: Zimmerman-Bier, Barbie )
A prospective study of the association between early biomarkers and later outcome is the ideal approach to the development of an evidence-based screening program. Our ultimate goal is to investigate the relationship between three very early biomarkers for ASD in a sample of preterm/LBW infants in...

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Development of a new autism screening tool for traditionally underserved families #2046

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Development of a new autism screening tool for traditionally underserved families
Yvette Janvier, MD  (Owner: Yvette, Janvier)
The goal of this study is to improve identification of young children with autism spectrum disorders (ASD) from traditionally underserved populations by refining and testing the utility of a new ASD screening tool designed for use in families with low English literacy and comprehension...

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An assessment of the transportation and mobility needs and barriers of adults on the autism spectrum disorder in NJ #2048

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
An assessment of the transportation and mobility needs and barriers of adults on the autism spectrum disorder in NJ
Cecilia Feeley  (Owner: Feeley, Cecilia)
Through the analysis of travel patterns, travel needs, and lost opportunities due to disability, the study will provide recommendations for developing procedures and policies that can have positive impacts on the quality of life of the targeted population. Existing literature shows that persons...

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Efficacy of Relationship Development Intervention and Parent-Implemented Applied Behavior #2049

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Efficacy of Relationship Development Intervention and Parent-Implemented Applied Behavior
Mary Louise Kerwin Ph.D.   (Owner: Kerwin, MaryLou)
Relationship Development Intervention® (RDI) is a relationship-based intervention focusing on recreating developmental milestones through meaningful interactions with parents. The primary goal of RDI is to increase the child¿s response to parent¿s bid for JA and the child¿s initiation of JA with...

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Peers, Play and Performance to Improve Social Interaction in Autism #2052

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Peers, Play and Performance to Improve Social Interaction in Autism
Blythe Corbett  (Owner: Corbett, Blythe)
Current psychosocial interventions in autism generally target only specific aspects of social knowledge or functioning. Moreover, promising initial gains often fail to maintain or generalize. Our goal is to address the need for the development of interventions for older children and adolescents...

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Autism Spectrum Disorder: Birth Cohort 1976-2000, Epidemiology and Adult #2053

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Autism Spectrum Disorder: Birth Cohort 1976-2000, Epidemiology and Adult
Slavica Katusic  (Owner: Navidi, Gretchen)
Autism Spectrum Disorders (ASDs) are lifelong neurodevelopmental conditions with mostly unknown etiology that have a huge impact on affected individuals and their families, and are a major public health concern. This proposal, ¿Autism Spectrum Disorder: Birth Cohort 1976-2000, Epidemiology and...

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How Autism Affects Speech Understanding in Multitalker Environments #2054

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
How Autism Affects Speech Understanding in Multitalker Environments
Rochelle Newman  (Owner: Navidi, Gretchen)
Characteristic symptoms of autism include abnormalities in perception and attention, particularly sound and speech sound processing (Ceponiene et al., 2003; Iarocci & McDonald, 2006; Teder-Sälejärvi, Pierce, Courchesne, & Hillyard, 2005). Some researchers have suggested that the auditory and/or...

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Silvio O. Conte Center for Oxytocin and Social Cognition #2055

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Silvio O. Conte Center for Oxytocin and Social Cognition
Larry Young  (Owner: Young, Larry)
The oxytocin (OT) system is arguably the most viable target for pharmacologically enhancing social cognition in psychiatric disorders with compromised social cognition, including autism spectrum disorder (ASD). Central OT enhances key aspects of social behavior in animals, and intranasal (IN) OT...

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Studies of Theory of Mind, Relational Reasoning and Social Responsiveness #2056

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Studies of Theory of Mind, Relational Reasoning and Social Responsiveness
John Pruett  (Owner: Navidi, Gretchen)
This ESI / New Investigator brings an inter-institutional, interdisciplinary team to test a key hypothesis about the interdependencies between social responsiveness, higher-order relational reasoning, and Theory of Mind in a diverse sample of human children. Understanding the cognitive...

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Racial and Ethnic Differences in Pathways to Autism Diagnosis and Treatment Choices #2057

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Racial and Ethnic Differences in Pathways to Autism Diagnosis and Treatment Choices
Karolynn Siegel  (Owner: Navidi, Gretchen)
It is now widely accepted that early identification of and intervention with children with autism can contribute significantly to optimizing treatment and developmental outcomes. However, ethnic/racial minority parents on average attend more mental health care visits for their children over a...

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Reduced NADH Production in the Presence of Tryptophan as a Biomarker of ASD #2058

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Reduced NADH Production in the Presence of Tryptophan as a Biomarker of ASD
Charles Schultz  (Owner: Navidi, Gretchen)
Autism Spectrum Disorders (ASDs) affect 1/110 children in the United States, but physicians do not yet have an effective laboratory test which can confirm the clinical diagnosis. This proposal aims to develop a quick and reliable metabolic array to identify individuals with ASD. Using Phenotype...

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Family Outcomes in Autism Spectrum Disorders #2059

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Family Outcomes in Autism Spectrum Disorders
Sigan L. Hartley  (Owner: Hartley, Sigan)
It is now estimated that 1 in 88 children in the U.S. are diagnosed with an autism spectrum disorder (ASD). Few disabilities are more stressful on parents than ASD. There is theoretical and empirical evidence to suggest that chronic parenting stress affects marital adjustment. The overarching...

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Dysfunction of Sensory Inhibition in Autism #2060

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Dysfunction of Sensory Inhibition in Autism
Richard Edden  (Owner: Navidi, Gretchen)
Autism Spectrum Disorder (ASD) is a group of developmental disorders which affects approximately 1% of children, a prevalence rate that is increasing annually. The molecular basis of ASD is likely to be complex and heterogeneous, but given the central role of the inhibitory neurotransmitter GABA...

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No Data Shared

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Verbal/non-verbal asynchrony in adolescents with high-functioning Autism #2062

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Verbal/non-verbal asynchrony in adolescents with high-functioning Autism
Grossman, Ruth B.  (Owner: Grossman, Ruth)
Adolescents with high-functioning autism (HFA) have significant deficits in non-verbal social communication, which often lead to depression and social withdrawal. These deficits are particularly apparent in their ability to process and produce qualitatively appropriate facial expressions. It has...

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Epidemiological Research on Autism in Jamaica - Phase II #2063

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Epidemiological Research on Autism in Jamaica - Phase II
Mohammad Rahbar  (Owner: Rahbar, Mohammad Hossein)
Autism Spectrum Disorders (ASDs) are complex lifelong neurodevelopmental and behavioral disorders manifesting in infancy or early childhood, characterized by impairments in social interaction and communication, and by repetitive, stereotyped behavior. Although the causes of ASD are unknown, the...

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The CCS: A Treatment Outcome Measure for Individuals with Severe ID #2064

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
The CCS: A Treatment Outcome Measure for Individuals with Severe ID
Nancy Brady  (Owner: Brady, Nancy)
This application is in response to FOA PAR-11-045, Outcome Measures for Use in Treatment trials for Individuals with Intellectual and Developmental Disabilities. We propose to further develop and validate an endpoint measure of communication for use in clinical trials research. We created a scale...

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The CHARGE Study: Childhood Autism Risks From Genetics and the Environment #2066

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
The CHARGE Study: Childhood Autism Risks From Genetics and the Environment
Irva Hertz-Picciotto  (Owner: Hertz-Picciotto, Irva)
Few rigorous epidemiologic studies have addressed the environmental causes and biologic underpinnings of autism spectrum disorder (ASD). The CHARGE (CHildhood Autism Risks from Genetics and Environment) Study is a large, population-based case-control investigation of environmental risk factors,...

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Targeting GABA-A for the Treatment of Social Disability in Young Adults with Autism Spectrum Disorders: A Phase II Proof of Mechanism Trial #2067

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Targeting GABA-A for the Treatment of Social Disability in Young Adults with Autism Spectrum Disorders: A Phase II Proof of Mechanism Trial
James T. McCracken  (Owner: McCracken, James)
Autism Spectrum Disorders (ASD) (DSM-V, APA 2013) include the Pervasive Developmental Disorders (PDDs) previously referred to as Autistic Disorder, Asperger¿s disorder and PDD-Not Otherwise Specified (NOS). ASD are chronic neurodevelopmental disorders of early childhood onset that are associated...

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Simons Foundation Autism Research Initiative (SFARI) #2068

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Simons Foundation Autism Research Initiative (SFARI)
Louis F. Reichardt  (Owner: Lash, Alex)
Launched in 2005, the Simons Foundation Autism Research Initiative (SFARI) is a research campaign within the Simons Foundation's overall suite of programs. SFARI's mission is to improve the diagnosis and treatment of autism spectrum disorders by funding innovative research of the highest quality...

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Treatment of anxiety in autism spectrum disorder #2076

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Treatment of anxiety in autism spectrum disorder
Jeffrey Wood, Eric Storch and Philip Kendall  (Owner: Storch, Eric)
Comorbid anxiety disorders affect 40 to 50% of children with ASD, causing substantial distress and impairment over and above that caused by ASD alone. High anxiety is associated with increased severity of ASD symptoms and social maladjustment in affected youth. Further, parents of children with...

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Gaze Modification Strategies for Toddlers with ASD #2077

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Gaze Modification Strategies for Toddlers with ASD
Frederick Shic  (Owner: Shic, Frederick)
Recent eyetracking studies have shown that 20month old toddlers with autism spectr