NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account
with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research
investigator sponsored by an NIH recognized institution with federal wide assurance.
See Request Access for more information.
Warning Notice
This is a U.S. Government computer system, which may be accessed and used only for authorized Government business by authorized personnel.
Unauthorized access or use of this computer system may subject violators to criminal, civil, and/or administrative action.
All information on this computer system may be intercepted, recorded, read, copied, and disclosed by and to authorized personnel for
official purposes, including criminal investigations. Such information includes sensitive data encrypted to comply with confidentiality
and privacy requirements. Access or use of this computer system by any person, whether authorized or unauthorized, constitutes consent
to these terms. There is no right of privacy in this system.
[{"fromDate":"May 10, 2013 12:00:00 AM","title":"Updates to NDAR Data Sharing Policy","text":"The recent updates to the NDAR Data Sharing Policy clarify that analyzed data are expected to be submitted at the time of publication. Analyzed data include: results; data from custom or proprietary clinical measures; final data and images derived from processed images; sufficient supporting documentation to enable efficient and appropriate use of the data; and all other de-identified research data acquired through the supported research. \n\u003cbr\u003e\u003cbr\u003e\nThe updates also include the expectation for researchers to associate data deposited in NDAR with their publications using the NDAR Study feature.\n\u003cbr\u003e\u003cbr\u003e\nThe Data Sharing Policy can be found on the website under the Data Sharing Regimen section. If you have any questions, please contact us at ndarhelp@mail.nih.gov.\n","internalUrl":"/ndarpublicweb/aboutNDAR.html","externalUrl":"http://ndar.nih.gov/ndarpublicweb/Documents/NDAR_data_sharing_language_fin.pdf","rank":1,"id":45},{"fromDate":"May 1, 2013 12:00:00 AM","title":"NDAR Sponsors the OHBM 2013 Hackathon","text":"The National Database for Autism Research (NDAR) is a secondary sponsor of the Organization for Human Brain Mapping (OHBM) 2013 Hackathon, a meeting-long analysis and resource building competition designed to accelerate the connection between open neuroscience and cloud computing. This event will be held as a part of the OHBM 2013 Meeting this June in Seattle.\n\u003cbr\u003e\u003cbr\u003eThe hackathon will include a meeting-long venue on the main poster/exhibit floor space and prepared cloud-accessible data and software. These resources will be available to participants beginning two months ahead of the meeting, with in-kind support from Amazon Web Services in the form of $100 in cloud computing credits.\n\u003cbr\u003e\u003cbr\u003eThe contest is organized around three challenges; two are pre-announced and open to work prior to the meeting. The last challenge will be announced at the time of the meeting. Challenge details are available on the OHBM website. Cooperative hackathon activity outside of the contest is also encouraged.\n\u003cbr\u003e\u003cbr\u003eThe Hackathon is open to everyone; however, in order to access the shared data in NDAR you must first submit a Data Use Certification form. Please contact the NDAR Help Desk at ndarhelp@mail.nih.gov if you would like to request access.\n\u003cbr\u003e\u003cbr\u003e For more information and to register, please visit the \u003ca href \u003d ¿http://www.humanbrainmapping.org/hackathon¿\u003eHackathon website. \u003c/a\u003e\n","internalUrl":"/ndarpublicweb/aboutNDAR.html","externalUrl":"http://www.humanbrainmapping.org/hackathon","rank":1,"id":44},{"fromDate":"Jan 23, 2013 12:00:00 AM","title":"Announcing the Advancing Autism Discovery Users Group","text":"The National Database for Autism Research is pleased to announce the Advancing Autism Discovery Users Group. This two-day workshop will be held April 22-23 at the Neuroscience Center, 6001 Executive Boulevard, Rockville, MD 20852. NDAR now contains harmonized -omics, imaging, and phenotypic data on over 44,000 research subjects. Workshop attendees will be provided instruction on how to use NDAR to advance discovery, provide short-term feedback on how NDAR can improve to meet scientific needs, and develop a user group to continue feedback for the next year.\n\u003cbr\u003e\u003cbr\u003eThis workshop is free and open to all researchers with an active NDAR data access agreement with attendance limited only by the space available. The workshop agenda and additional information is available at the link below. Individuals who plan to attend the workshop must register by March 1, 2013. For more information, please contact ndarhelp@mail.nih.gov.\u003cbr\u003e\u003cbr\u003e\u003ca href\u003d\"http://ndar.wufoo.com/forms/z7x3p3/\"\u003eRegistration Form\u003c/a\u003e\u003cbr\u003e\u003cbr\u003e\u003ca href\u003d\"http://ndar.nih.gov/ndarpublicweb/Documents/Advancing%20Autism%20Discovery%20-%20Agenda.pdf\"\u003eAgenda\u003c/a\u003e\n","internalUrl":"/ndarpublicweb/aboutNDAR.html","externalUrl":"http://ndar.nih.gov/ndarpublicweb/Documents/Advancing%20Autism%20Discovery%20-%20Agenda.pdf ","rank":1,"id":43},{"fromDate":"Nov 20, 2012 12:00:00 AM","title":"NDAR Mentioned in November 1st Issue of Nature","text":"The National Database for Autism Research was mentioned in \"Brain scans need a rethink\" by Ben Deen and Kevin Pelphrey, published in the November 1st, 2012 issue of Nature. Click \u003ca href\u003d\"http://www.nature.com/nature/journal/v491/n7422_supp/full/491S20a.html\" target\u003d\"_blank\"\u003ehere\u003c/a\u003e to read the article.","internalUrl":"/ndarpublicweb/aboutNDAR.html","rank":1,"id":34},{"fromDate":"Nov 9, 2012 12:00:00 AM","title":"omicSEARCH and Resolve Subject Identifiers Available For Use","text":"omicSEARCH allows researchers to filter and download subject data based upon experiment (e.g. molecule, type of sample, technology, and platform) and/or alteration type (e.g. SNP, CNV, SNV), affected region, chromosome, cytoband, etc., returning specific alterations. Selected alterations can then be applied - via Show results - against participant data, including phenotypic (see methods) categories and imaging results in NDAR. Next month, authorized users will be able to download. \u003cbr\u003e\u003cbr\u003eThe autism community has standardized on the NDAR GUID for cross project subject identifiers, however many other identifiers remain in use. Resolve Subject Identifiers (found under Harmonization Tools) was designed to resolve these identifiers to the appropriate GUID/Subjectkey and ensure that no duplicate subjects exist in any retrieved data. Instructions on how to associate other repositories\u0027 identifiers (e.g. SFARI, AGRE, ATN) with the GUID are also provided. ","internalUrl":"/ndarpublicweb/aboutNDAR.html","rank":1,"id":22},{"fromDate":"Sep 28, 2012 12:00:00 AM","title":"NDAR Announces the Autism Genome Project (AGP) Data Release","text":"As of September 2012, some Autism Genome Project data is now available to qualified researchers through the National Database for Autism Research (NDAR). The AGP dataset in NDAR includes raw genotypic intensity data and genotype calls. \u003cbr\u003e \u003cbr\u003eThe AGP is a study of over 5,000 strictly defined ASD subjects to understand the genetic and phenotypic heterogeneity in autism spectrum disorders (ASDs). It allowed for the discovery of key features of the ASD genomic architecture as well as new susceptibility loci, developing a course for future ASD research. The project was funded by the NIMH, NICHD, NINDS, NCCR, and Autism Speaks. \u003cbr\u003e ","internalUrl":"/ndarpublicweb/aboutNDAR.html","externalUrl":"http://ndar.nih.gov/data_from_labs.html?id\u003d1916\u0026showSingle\u003dtrue","rank":1,"id":41},{"fromDate":"Sep 28, 2012 12:00:00 AM","title":"First Publication Using NDAR Data Now Available","text":"The first ever peer-reviewed paper derived from NDAR data has been published in the Journal of Intellectual Disability Research. The paper, entitled Predictors of self-injurious behaviour exhibited by individuals with autism spectrum disorder, assesses whether impulsivity, hyperactivity, negative affect, severity of sterotypy, intellectual functioning, or severity of autism symptoms predicted the severity of self-injurious behavior (SIB).","internalUrl":"/ndarpublicweb/aboutNDAR.html","externalUrl":"http://onlinelibrary.wiley.com/doi/10.1111/j.1365-2788.2012.01628.x/full","rank":1,"id":42},{"fromDate":"May 24, 2012 12:00:00 AM","title":"NDAR Publication on Sharing Heterogeneous Data","text":"Dan Hall, Dr. Michael Huerta, Dr. Matthew McAuliffe and Dr. Gregory Farber publish \"Sharing Heterogeneous Data: The National Database for Autism Research\" article in Neuroinformatics. The publication describes the basic structure of NDAR, the strategies NDAR has used to overcome the issues of data heterogeneity, solutions to some of the problems in making data from human subjects widely available to the research community, and the results of these efforts so far. Several ways to use NDAR are also outlined in this paper.","internalUrl":"/ndarpublicweb/aboutNDAR.html","externalUrl":"http://www.springerlink.com/content/512608l255851t4j/","rank":1,"id":35},{"fromDate":"Feb 29, 2012 12:00:00 AM","title":"NDAR Releases Video Explaining GUID","text":"NDAR produced a video to help explain the value of participating autism research and to provide a better understanding of the use and security of the Global Unique Identifier (GUID). Aimed at potential participants, the video is freely available to any researcher to help supplement the informed consent process.","internalUrl":"/ndarpublicweb/aboutNDAR.html","externalUrl":"http://www.nimh.nih.gov/news/media/video/national-database-for-autism-research.shtml","rank":1,"id":34}]
NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account
with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research
investigator sponsored by an NIH recognized institution with federal wide assurance.
See Request Access for more information.
Warning Notice
This is a U.S. Government computer system, which may be accessed and used only for authorized Government business by authorized personnel. Unauthorized access or use of this computer system may subject violators to criminal, civil, and/or administrative action.
All information on this computer system may be intercepted, recorded, read, copied, and disclosed by and to authorized personnel for official purposes, including criminal investigations. Such information includes sensitive data encrypted to comply with confidentiality and privacy requirements. Access or use of this computer system by any person, whether authorized or unauthorized, constitutes consent to these terms. There is no right of privacy in this system.
