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NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information. Request an account here.

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1 Numbers reported are subjects by age
New Trial
New Project

Format should be in the following format: Activity Code, Institute Abbreviation, and Serial Number. Grant Type, Support Year, and Suffix should be excluded. For example, grant 1R01MH123456-01A1 should be entered R01MH123456

Please select an experiment type below

New Documentation
New Funding Source
New Publication
Pediatric MRI pedsmri@mail.nih.gov Shared

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection. Collection State of Private will not be visible to the community. NDAR Staff will change the Collection State to Shared once the agreed date of Data Expected has been reached for any measure. The Collection State of Ongoing Study indicates that the Data Collection is ongoing and will not be shared as defined by NDAR SOP #9

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, this information will be completed for the investigator by linking the grant using the project information (e.g. R01MH123456). Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Clinical Trials

For clinical trials, the clinical trial associated with the collection data is provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Pediatric MRI
PEDIATRIC STUDY CENTERS: Michael J. Rivkin, M.D., Boston Children's Hospital; William S. Ball, M.D., Children's Hospital Medical Center of Cincinnati; Dah-Jyuu Wang, Ph.D., Children's Hospital of Philadelphia; James T. McCracken, M.D., University of California at Los Angeles; Michael Brandt, Ph.D. and Jack Fletcher, Ph.D., University of Texas Health Science Center; Robert McKinstry, M.D., Washington University. DATA COORDINATING CENTER: Alan Evans, Ph.D., Montreal Neurological Institute Center. CLINICAL COORDINATING CENTER: Kelly Botteron, M.D., Washington University. DIFFUSION TENSOR PROCESSING CENTER: Carlo Pierpaoli, M.D., National Institute of Child Health and Human Development. SPECTROSCOPY PROCESSING CENTER: Joseph O'Neill, Ph.D., University of California at Los Angeles.  (Owner: MRI, Pediatric)
Pediatric MRI Release 5.0. Visit our website at http://pediatricmri.nih.gov for more information about this project.

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http://www.plosone.org/article/info%3Adoi%2F10.1371%2Fjournal.pone.0018712 Publication Hanson JL, Chandra A, Wolfe BL, Pollak SD (2011) Association between Income and the Hippocampus. PLoS ONE 6(5): e18712. doi:10.1371/journal.pone.0018712 Qualified Researchers
Objective1_procedure_manual.pdf Objectives Procedure manual for Objective 1 subjects (ages 4.5+ years). Version public release 1.0, January 2007. Qualified Researchers
Objective2_procedure_manual.pdf Objectives Procedure manual for Objective 2 subjects (ages 0-4.5 years). Final version. Qualified Researchers
MRI_protocol_manual.pdf Analysis Protocol MRI procedure manual distributed to each participating site in the study. Covers acquisition and transfer of MRI data only. November 2006 version. Qualified Researchers
Release3_notes.pdf Other Release 3 notes. October 2009. Qualified Researchers
Release4_notes.pdf Publication Release 4 notes. June 2010. Qualified Researchers
Neuroimaging_white_paper.pdf Methods Neuroimaging white paper. Qualified Researchers
Clinical_behavioral_white_paper.pdf Methods Clinical/behavior white paper. Qualified Researchers
Spectroscopy_white_paper.pdf Methods Spectroscopy white paper. Qualified Researchers
Release3_notes.pdf Other Release 3 notes. October 2009. Qualified Researchers
Release4_notes.pdf Other Release 4 notes. June 2010. Qualified Researchers
www.tortoisedti.org Software New free DTI software. Qualified Researchers
Objective1_Procedure_Manual.pdf Objectives Procedure manual for Objective 1 subjects (ages 4.5+ years). Qualified Researchers
Objective2_Procedure_Manual.pdf Objectives Procedure manual for Objective 2 subjects (ages 0-4.5 years). Qualified Researchers
Study_Protocol.pdf Methods Study protocol. Qualified Researchers
MRI_Procedure_Manual.pdf Methods MRI procedure manual. Qualified Researchers
Clinical_Behavioral_White_Paper.pdf Methods Clinical/behavioral white paper. Qualified Researchers
Database_White_Paper.pdf Methods Database white paper. Qualified Researchers
Neuroimaging_White_Paper.pdf Methods Structural MRI white paper. Qualified Researchers
Spectroscopy_White_Paper.pdf Methods Spectroscopy white paper. Qualified Researchers
Release3_Notes.pdf Other Release 3 notes. October 2009. Qualified Researchers
Release4_Notes.pdf Other Release 4 notes. June 2010. Qualified Researchers
www.tortoisedti.org Software DTI analysis software developed by the project. Qualified Researchers
Growth maps.zip Other Group-averaged surface growth maps for Objective 2 data that passed QC for surface extraction. R1 Qualified Researchers
Growth_maps.zip Other Group-averaged surface growth maps for Objective 2 data that passed QC for surface extraction. Qualified Researchers
eDTI_White_Paper_R5.1.pdf Methods Expanded diffusion tensor imaging (eDTI) white paper. Qualified Researchers
DTI_White_Paper_R5.1.pdf Methods Diffusion tensor imaging (DTI) white paper. Qualified Researchers
Release5.1_Notes.pdf Other Release 5.1 notes (July 9, 2012). Qualified Researchers
Study_Protocol.pdf Methods Study protocol Qualified Researchers
Release5_Notes.pdf Other Release 5 notes (April 5, 2012). Qualified Researchers
Anatomic_MRI_White_Paper_R5.pdf Methods Anatomic MRI white paper and project overview. Qualified Researchers
Clinical_Behavioral_White_Paper_R5.pdf Methods Clinical/behavioral white paper. Qualified Researchers
DTI_White_Paper_R5.pdf Methods Diffusion tensor imaging (DTI) white paper. Qualified Researchers
Spectroscopy_White_Paper_R5.pdf Methods Spectroscopy white paper. Qualified Researchers
Pediatric_MRI_Data_Dictionary_R5.xls Other Release 5 data dictionary. Qualified Researchers
Release5.1_Notes_revised_061213.pdf Other Release 5.1 Notes Qualified Researchers


Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

Experiments

Omics and EEG experiments can be defined here by selecting "Add New". fMRI and Eye Tracking experiments will be offered in fiscal year 2014. Once an experiment is created, then raw files for these types of experiments should be provided, associating the experiment – through Experiment_ID – with the file (see category experimental)

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

Shared Data

Data structures that are currently shared are listed.

Image Imaging 2
Imaging_qa Imaging 527
Peds - BRIEF Adult Version (Informant Report) Clinical Assessments 554
Peds - BRIEF Adult Version (Self Report) Clinical Assessments 554
Peds - BRIEF Parent Form Clinical Assessments 554
Peds - BSID II Behavior Rating Scale Clinical Assessments 554
Peds - BSID II Mental Scale Clinical Assessments 554
Peds - BSID II Motor Scale Clinical Assessments 554
Peds - Brief Telephone Screening Interview Clinical Assessments 554
Peds - CANTAB Clinical Assessments 554
Peds - CDISC4 Parent Version Clinical Assessments 554
Peds - California Verbal Learning Test for Children Clinical Assessments 554
Peds - California Verbal Learning Test, 2nd ed. Clinical Assessments 554
Peds - Carey Temperament Scales, BSQ (3 to 7 years) Clinical Assessments 554
Peds - Carey Temperament Scales, EITQ (1 to 4 months) Clinical Assessments 554
Peds - Carey Temperament Scales, RITQ (4 to 11 months) Clinical Assessments 554
Peds - Carey Temperament Scales, TTS (1 to 2 years) Clinical Assessments 554
Peds - Child Behavior Checklist (CBCL) Clinical Assessments 554
Peds - Demographics Clinical Assessments 554
Peds - Differential Ability Scales (DAS) Clinical Assessments 554
Peds - Diffusion Tensor Imaging Imaging 274
Peds - Disc Predictive Scales Clinical Assessments 554
Peds - Expanded Diffusion Tensor Imaging (eDTI) Imaging 152
Peds - FIGS Family History Int. Genetic Studies Yr1 Clinical Assessments 554
Peds - FIGS Family History Int. Genetic Studies Yr3 Clinical Assessments 554
Peds - Family Biographical History Form (0:0 - 4:5 y:m) Clinical Assessments 554
Peds - Full Telephone Screening Interview - Version 1 Clinical Assessments 554
Peds - Full Telephone Screening Interview - Version 2 Clinical Assessments 554
Peds - Handedness (1:0 to 2:11 y:m) Clinical Assessments 554
Peds - Handedness (3:0 to 5:11 y:m) - Part 1 Clinical Assessments 554
Peds - Handedness (3:0 to 5:11 y:m) - Part 2 Clinical Assessments 554
Peds - Handedness (6:0+ y:m) Clinical Assessments 554
Peds - JTCI Parent Report Clinical Assessments 554
Peds - JTCI Self Report Clinical Assessments 554
Peds - Longitudinally Registered aMRI Variables Imaging 553
Peds - MRI Child History Form (4:6+ y:m) Clinical Assessments 554
Peds - NEPSY Verbal Fluency (Semantic and Phonemic) Clinical Assessments 554
Peds - NEPSY Verbal Fluency (Semantic) Clinical Assessments 554
Peds - Neuropsychological Clinical Assessments 554
Peds - Non-longitudinally Registered aMRI Variables Imaging 553
Peds - Parental Stress Index Clinical Assessments 554
Peds - Physical Clinical Assessments 554
Peds - Physical and Neurological Exam (0:0 to 0:1 y:m) Clinical Assessments 554
Peds - Physical and Neurological Exam (0:2 to 0:11 y:m) Clinical Assessments 554
Peds - Physical and Neurological Exam (1:0 to 2:11 y:m) Clinical Assessments 554
Peds - Physical and Neurological Exam (3:0 to 4:5 y:m) Clinical Assessments 554
Peds - Physical/Neurological Examination Clinical Assessments 554
Peds - Preschool Language Scale-3 Clinical Assessments 554
Peds - Psychiatric & Personality Clinical Assessments 554
Peds - Pubertal Status Questionnaire Clinical Assessments 554
Peds - Purdue Pegboard - Full Board Clinical Assessments 554
Peds - Purdue Pegboard - Half Board Clinical Assessments 554
Peds - Screening and Exclusion Form (0:0 to 4:5 y:m) Clinical Assessments 554
Peds - Spectroscopy Imaging 553
Peds - TCI Parent Report Clinical Assessments 554
Peds - TCI Self Report Clinical Assessments 554
Peds - Timepoint Clinical Assessments 554
Peds - Urine and Saliva Clinical Assessments 554
Peds - WAIS-R Digit Span & Digit Symbol Clinical Assessments 554
Peds - WISC III Digital Span & Coding Clinical Assessments 554
Peds - Wechsler Abbreviated Scale of Intelligence Clinical Assessments 554
Peds - Woodcock-Johnson III Clinical Assessments 554

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

Publications

Publications relevant to NDAR data are listed below. Use the (+) to add new publications. Once saved, these publications can then be linked to the underlying data in NDAR by selecting the Create Study link providing the ability to define cohorts, assign subjects, define outcome measures and lists the study type, data analysis and results. Analyzed data and results may be shared with the Community through NDAR in this way.



Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

Data Expected

Below are the data expected, received and shared by NDAR. For any changes to data expected, please contact the NDAR helpdesk at ndarmail.nih.gov. Soon, you will be able to edit these data yourself.

Data Expected Targeted Enrollment Initial Submission Date Subjects Submitted Initial Share Date Subjects Shared
MRI - raw 553 Jan 1, 2012 531 Jan 1, 2012 2

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit:

Submissions

Specific submissions are listed.

Pediatric MRI

A Study allows you to define the specific subjects associated with your experimental data allowing you to share data on subjects specific to a publication or result. When created, a Study will be private and available only to person who created it. However, basic information (e.g. description, name, investigators) will be available using the link to copy the URL and share that link in your publication. A study will remain private until you choose to have it shared, ideally at the time of your publication of a result.

Note that it is now possible to share your private data at the subject level using the Data from Papers capability allowing subject/measure level data to be shared at time of publication, without sharing all data from a lab.

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