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NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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1 Numbers reported are subjects by age
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Format should be in the following format: Activity Code, Institute Abbreviation, and Serial Number. Grant Type, Support Year, and Suffix should be excluded. For example, grant 1R01MH123456-01A1 should be entered R01MH123456

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Type the name of assessment:
Fred Volkmar fred.volkmar@yale.edu Shared

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection.

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, linkage to Project Reporter information (e.g. R01MH123456) is supported. Projects funded by others, including the URL of the project, are listed. Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Supporting Documentation

Any documents related to the project may be uploaded clarifying the data or acquisition methods used may be uploaded and made available here. The default is to share these documents to the general public. An option to share only to qualified Researchers is also an option.

Clinical Trials

For clinical trials, the option to link to the clinical trial in clinicaltrials.gov is optionally provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Yale Autism Center of Excellence: Mechanisms of Social Engagement in the Autism Spectrum Disorders
Volkmar, Fred  (Owner: Volkmar, Fred)
The Yale ACE consists of 5 project areas and 3 core resources. Projects I, II, and III focus on the same cohort of 12- to 24-month old infants with ASD followed up longitudinally. Project IV involves structural and functional neuroimaging protocols on a group of 10-year-olds with ASD who were extensively characterized at the age of 2 and 4 years. Project V includes cytogenetic studies of the infants evaluated in Projects I, II, and III, and the ASD children evaluated in Project IV. The Administrative Core is charged with planning, oversight, and management of the Yale ACE. The Assessment Core ensures that all project areas have access to well-characterized patients, family members and control populations, from a behavioral/phenotypic standpoint and from a medical/pediatric and genetics standpoint. The Data Management and Analysis provides data management and data analytic expertise across projects.

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P50MH81756 Mechanisms of Social Engagement in Autism Spectrum Disorders 04/01/2008 03/31/2013 YALE UNIVERSITY

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

Experiments

Omics, eye tracking, fMRI and EEG experiments can be defined here by selecting Add New. Once an experiment is created, then raw files for these types of experiments should be provided, associating the experiment – through Experiment_ID – with the metadata defined in the experiments interface.

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

Shared Data

Data structures with the number of subjects submitted and shared are provided.

Autism Diagnostic Interview, Revised (ADI-R) Clinical Assessments 109
Autism Diagnostic Observation Schedule - Module 1 Clinical Assessments 143
Autism Diagnostic Observation Schedule - Module 2 Clinical Assessments 61
CHARGE Family Characteristics Questionnaire Clinical Assessments 169
CHARGE Medical History Clinical Assessments 175
CHARGE Physical Exam Clinical Assessments 90
CSBS DP Behavior Sample Clinical Assessments 195
Intervention History Full Version Clinical Assessments 131
Karyotype Clinical Assessments 98
MacArthur-Bates CDI - Words and Gestures Form Clinical Assessments 156
MacArthur-Bates CDI - Words and Sentences Form Clinical Assessments 59
Mullen Scales of Early Learning Clinical Assessments 145
NIMH Medical History Questionnaire Clinical Assessments 166
Preschool Language Scale, Fourth Edition (PLS-4) Clinical Assessments 103
Vineland-II - Parent and Caregiver Rating Form (2005) Clinical Assessments 44
Vineland-II - Survey Form (2005) Clinical Assessments 141

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

Publications

Publications relevant to NDAR data are listed below. Most displayed publications have been associated with the grant within Pubmed. To add a publication, use the (+) to add new publications. Publications relevant/not relevant to data expected are categorized. Relevant publications are then linked to the underlying data by selecting the Create Study link. Study provides the ability to define cohorts, assign subjects, define outcome measures and lists the study type, data analysis and results. Analyzed data and results are expected in this way.




P50MH81756 Mechanisms of Social Engagement in Autism Spectrum Disorders 04/01/2008 03/31/2013 YALE UNIVERSITY
  "Research in autism spectrum disorders"  Production of Syllable Stress in Speakers with Autism Spectrum Disorders.  (E)PubDate: 01/01/2008
Klin A  "Biological psychiatry"  Three things to remember if you are a functional magnetic resonance imaging researcher of face processing in autism spectrum disorders.  (E)PubDate: 10/01/2008
  "Future neurology"  Pathogenesis of autism: a patchwork of genetic causes.  (E)PubDate: 09/27/2009

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

Associated Studies

Studies that have been defined using data from a Collection are important criteria to determine the value of data shared. The number of subjects column displays the counts from this Collection that are included in a Study, out of the total number of subjects in that study. The Data Use column represents whether or not the study is a primary analysis of the data or a secondary analysis. State indicates whether the study is private or shared with the research community.

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