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Medical History Form

114 Shared Subjects

N/A
Clinical Assessments
Med History
08/24/2012
medhist_ucsf01
10/05/2017
View Change History
01
Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR*
src_subject_id String 20 Required Subject ID how it's defined in lab/project SexSpecificGenAut_medicalhist_src_Subject_ID
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY SexSpecificGenAut_medicalhist_interview_date
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0::1440 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month. SexSpecificGenAut_medicalhist_interview_age, child_age
sex String 20 Required Sex of subject at birth M;F; O; NR M = Male; F = Female; O=Other; NR = Not reported SexSpecificGenAut_medicalhist_gender, child_gender, gender
ethnic_group String 255 Recommended Ethnic group SexSpecificGenAut_dem_ethnicity_subject
comments_misc String 4,000 Recommended Miscellaneous comments on study, interview, methodology relevant to this form data SexSpecificGenAut_medicalhist_comments_misc
Query height_std Float Recommended Height - Standard Unit -1 = Not known; 999 = Missing SexSpecificGenAut_interview_height
Query weight_std Float Recommended Weight - Standard Unit -1 = Not known; 999 = Missing SexSpecificGenAut_interview_weight
Query diag_diagnosis String 4,000 Required Diagnosis Autism; PDD-NOS; Asperger's; ADHD; Language Disorder; Other; None SexSpecificGenAut_diag_diagnosis
Query diag_diagnosismadeby String 50 Required Diagnosis made by Physician;Psychologist;Other; NK NK = Not known SexSpecificGenAut_diag_madeby
Query preg_numberof Integer Recommended Total number of pregnancies by biological mother SexSpecificGenAut_preg_numberof
Query preg_numberofdeliv Integer Recommended Number of deliveries by biological mother SexSpecificGenAut_preg_numberofdeliv
Query preg_numberofmiscarr Integer Recommended Number of miscarriages by biological mother SexSpecificGenAut_preg_numberofmiscarr
Query preg_numberofabortions Integer Recommended Number of abortions by biological mother SexSpecificGenAut_preg_numberofabortions
Query preg_diffconcv String 50 Required Was there difficulty conceiving? Yes; No;999 SexSpecificGenAut_preg_diffconcv
Query preg_diffconcv_note String 255 Recommended Note regarding difficulty conceiving SexSpecificGenAut_preg_diffconcv_note
Query fertilitydrugs_at_contracep String 200 Recommended were fertility drugs used to help conceive subject Yes; No SexSpecificGenAut_preg_fertmed
Query preg_asstrep String 255 Recommended Was any other assisted reproduction used? If so, specify SexSpecificGenAut_preg_asstrep
Query preg_asstrep_note String 255 Recommended Note regarding assisted reproduction used SexSpecificGenAut_preg_asstrep_note
Query preg_ivf String 50 Required Was in vitro fertilization attempted to conceive? Yes; No;999 SexSpecificGenAut_preg_IVF
Query preg_surrogate String 50 Required Was surrogacy attempted to conceive? Yes; No;999 SexSpecificGenAut_preg_surrogate
Query preg_comp String 50 Required Were there complications during pregnancy? Yes; No;999 SexSpecificGenAut_preg_comp
Query preg_comp_note String 300 Recommended Note regarding complications during pregnancy SexSpecificGenAut_preg_comp_note
Query preg_nausea String 50 Required Did mother experience nausea during pregnancy? Yes; No;999 SexSpecificGenAut_preg_nausea
Query preg_anemia String 50 Required Did mother experience anemia during pregnancy? Yes; No;999 SexSpecificGenAut_preg_anemia
Query quesmoth_probclamp String 50 Recommended Preeclampsia
Yes;No;Don't Know; -999
SexSpecificGenAut_preg_preeclampsia
Query preg_eclampsia String 50 Required Did mother experience eclampsia during pregnancy? Yes; No;999 SexSpecificGenAut_preg_eclampsia
Query quesmoth_probhighbp String 50 Recommended Hypertension (High blood pressure)
Yes;No;Don't Know
SexSpecificGenAut_preg_hypertension
Query preg_hyperglycemia String 50 Required Did mother have hyperglycemia during pregnancy? Yes; No;999 SexSpecificGenAut_preg_hyperglycemia
Query preg_bleeding String 50 Required Did mother experience excessive bleeding during pregnancy? Yes; No;999 SexSpecificGenAut_preg_bleeding
Query preg_infection String 50 Required Did infection occur during pregnancy? Yes; No;999 SexSpecificGenAut_preg_infection
Query preg_infection_note String 255 Recommended Note regarding infection during pregnancy SexSpecificGenAut_preg_infection_note
Query preg_fever String 50 Required Did fever occur during pregnancy? Yes; No;999 SexSpecificGenAut_preg_fever
Query preg_bleeding_ft String 50 Recommended Did bleeding after the first trimester occur during pregnancy? Yes; No SexSpecificGenAut_preg_bleeding_ft
Query illness_pregnancy String 200 Recommended did the mother experience any illnesses during pregnancy Yes; No SexSpecificGenAut_preg_illness
Query preg_sti String 50 Required Did a sexually transmitted infection occur during pregnancy? Yes; No;999 SexSpecificGenAut_preg_STI
Query preg_abntsh String 50 Required Was there abnormal TSH level during pregnancy? Yes; No;999 SexSpecificGenAut_preg_abnTSH
Query preg_trauma String 50 Recommended Did mother experience trauma during pregnancy?
Yes; No; 99; -999
-999=missing; 99=DK SexSpecificGenAut_preg_trauma
Query preg_preexist_cond String 50 Recommended Were there any pre-existing chronic maternal conditions during pregnancy? Yes; No SexSpecificGenAut_preg_preexisting_condition
Query preg_preexist_cond_note String 255 Recommended Note regarding pre-existing maternal conditions during pregnancy SexSpecificGenAut_preg_preexisting_condition_note
Query presmed_alcohol String 50 Recommended In this pregnancy, did the birth mother do any of the following activities - Drink alcohol
Yes;No;999
999 = Don't Know SexSpecificGenAut_preg_alcohol, alcohol
Query preg_alcohol_note String 255 Recommended Note regarding alcohol used during pregnancy SexSpecificGenAut_preg_alcohol_note
Query presmed_smoke String 50 Required In this pregnancy, did the birth mother do any of the following activities - Smoke cigarettes or other tobacco products
Yes;No;999
999=NA/missing SexSpecificGenAut_preg_tobacco, smoke
Query preg_tobacco_note String 255 Recommended Note regarding tobacco used during pregnancy SexSpecificGenAut_preg_tobacco_note
Query presmed_drugs String 50 Recommended In this pregnancy, did the birth mother do any of the following activities - Use recreational drugs (e.g. marijuana, cocaine, etc)
Yes;No
SexSpecificGenAut_preg_drugs
preg_drugs_note String 255 Recommended Note regarding street or "recreational" drugs used during pregnancy SexSpecificGenAut_preg_drugs_note
Query preg_chemorad String 50 Required Was there exposure to chemicals or radiation during pregnancy? Yes; No;999 SexSpecificGenAut_preg_chemorad
Query preg_vit_supp_meds String 50 Required Were there any vitamins, supplements or medications used during pregnancy? Yes; No;999 SexSpecificGenAut_preg_vit_supp_meds
preg_vit_supp_meds_note String 255 Recommended Note regarding vitamins, supplements or medications used during pregnancy SexSpecificGenAut_preg_vit_supp_meds_note
Query preg_age_mom Integer Recommended Age of mother at the time of birth In years; 999=Unknown SexSpecificGenAut_preg_age_mom
Query preg_age_dad Integer Recommended Age of father at the time of birth In years; 999=Unknown SexSpecificGenAut_preg_age_dad
Query preg_studies String 255 Required Which studies were performed during pregnancy: none, prenatal screen, ultrasound, amniocentesis, CVS None; Prenatal screen; Ultrasound; Amniocentesis; CVS;999 SexSpecificGenAut_preg_studies
Query preg_studies_note String 255 Recommended Note regarding studies performed during pregnancy SexSpecificGenAut_preg_studies_note
Query preg_delivery_location String 50 Recommended Place of birth: Hospital, Home, or other Hospital; Home; Other SexSpecificGenAut_preg_delivery_location
preg_delivery_location_note String 255 Recommended Note regarding place of birth SexSpecificGenAut_preg_delivery_location_note
Query info_gest String 50 Recommended No. Weeks Gestation (G.A.) SexSpecificGenAut_preg_gestation_weeks
Query preg_gestation_term String 50 Recommended Period of Gestation Pre-term; Term; Post-term SexSpecificGenAut_preg_gestation_term
Query preg_mode_deliv String 225 Required What was the mode of delivery? 999=DK/NA SexSpecificGenAut_preg_mode_deliv
Query birth_weight_lbs Float Recommended Birth weight pounds SexSpecificGenAut_neo_birthwt, birth_weight
Query ldnb_lgthin Float Recommended What was the babys length at birth(inches) -1 = Not known SexSpecificGenAut_neo_birthlen
Query ldnb_headcircumcm Float Recommended What was the babys head circumference at birth (cm)
Query info_apgar1 String 50 Recommended Apgars 1 min. SexSpecificGenAut_neo_APGAR_1min
Query info_apgar5 String 50 Recommended Apgars 5 min. SexSpecificGenAut_neo_APGAR_5min
Query neo_cyanosis String 50 Required Did cyanosis occur after delivery? Yes; No;999 SexSpecificGenAut_neo_cyanosis
Query neo_apnea String 50 Required Did apnea occur after delivery? Yes; No;999 SexSpecificGenAut_neo_apnea
Query neo_resp String 50 Required Did a respiratory complication occur after delivery? Yes; No;999 SexSpecificGenAut_neo_resp
Query neo_cardiac String 50 Required Did a cardiac complication occur after delivery? Yes; No;999 SexSpecificGenAut_neo_cardiac
Query neo_jaundice String 50 Required Did jaundice occur after delivery? Yes; No;999 SexSpecificGenAut_neo_jaundice
Query neo_seizure String 50 Required Did seizures occur after delivery? Yes; No;999 SexSpecificGenAut_neo_seizure
Query neo_infection String 50 Required Did infections occur after delivery? Yes; No;999 SexSpecificGenAut_neo_infection
Query neo_stroke String 50 Required Did a stroke occur after delivery? Yes; No;999 SexSpecificGenAut_neo_stroke
Query neo_neuro String 50 Required Did neurologic complications occur after delivery? Yes; No;999 SexSpecificGenAut_neo_neuro
Query nb_feeddifficult String 50 Recommended Did the baby have any difficulty with feeding (breast or bottle
No;Yes;Don't Know
SexSpecificGenAut_neo_feed
Query child_congenitaldef String 50 Recommended Does the Child have a Congenital Defect (Cleft palate, cleft lip, other)?
Yes; No; NK; NS
NK= Not known; NS = Not sure SexSpecificGenAut_neo_congendef
Query child_congenitaldef_cmt String 255 Recommended Specify Child's Congenital Defect type SexSpecificGenAut_neo_congendef_note
Query neo_sp_assistance_meds String 50 Required Following delivery, was special assistance or medication used? Yes; No;999
Query neo_sp_assistance_meds_note String 255 Recommended Note regarding special assistance of medication used following delivery?
Query dev_rollover String 255 Recommended Achievement status of developmental milestone of rolling over Reached on time; Delayed; Not reached; Reached and then lost SexSpecificGenAut_dev_rollover
Query dev_sit String 255 Recommended Achievement status of developmental milestone of sitting Reached on time; Delayed; Not reached; Reached and then lost SexSpecificGenAut_dev_sit
Query dev_crawl String 255 Recommended Achievement status of developmental milestone of crawling Reached on time; Delayed; Not reached; Reached and then lost SexSpecificGenAut_dev_crawl
Query dev_walk String 255 Recommended Achievement status of developmental milestone of walking Reached on time; Delayed; Not reached; Reached and then lost SexSpecificGenAut_dev_walk
Query dev_run String 255 Recommended Achievement status of developmental milestone of running Reached on time; Delayed; Not reached; Reached and then lost SexSpecificGenAut_dev_run
Query dev_ridetrike String 255 Recommended Achievement status of developmental milestone of riding tricycle Reached on time; Delayed; Not reached; Reached and then lost SexSpecificGenAut_dev_ridetrike
Query dev_reachtoy String 255 Recommended Achievement status of developmental milestone of reaching for toy Reached on time; Delayed; Not reached; Reached and then lost SexSpecificGenAut_dev_reachtoy
Query dev_scribble String 255 Recommended Achievement status of developmental milestone of scribbling Reached on time; Delayed; Not reached; Reached and then lost SexSpecificGenAut_dev_scribble
Query dev_feedself String 255 Recommended Achievement status of developmental milestone of feeding self with hands Reached on time; Delayed; Not reached; Reached and then lost SexSpecificGenAut_dev_feedself
Query dev_drawshape String 255 Recommended Achievement status of developmental milestone of drawing a shape Reached on time; Delayed; Not reached; Reached and then lost SexSpecificGenAut_dev_drawshape
Query dev_simpleinstruction String 255 Recommended Achievement status of developmental milestone of responding to simple instruction Reached on time; Delayed; Not reached; Reached and then lost SexSpecificGenAut_dev_simpleinstruction
Query dev_putonshoe String 255 Recommended Achievement status of developmental milestone of putting on a shoe Reached on time; Delayed; Not reached; Reached and then lost SexSpecificGenAut_dev_putonshoe
Query dev_stand String 255 Recommended Achievement status of developmental milestone of pulling to stand Reached on time; Delayed; Not reached; Reached and then lost SexSpecificGenAut_dev_stand
Query dev_hopskip String 255 Recommended Achievement status of developmental milestone of hopping or skipping Reached on time; Delayed; Not reached; Reached and then lost SexSpecificGenAut_dev_hopskip
Query dev_firstword String 255 Recommended Achievement status of developmental milestone of saying first word Reached on time; Delayed; Not reached; Reached and then lost SexSpecificGenAut_dev_firstword
Query dev_twowords String 255 Recommended Achievement status of developmental milestone of saying two words together Reached on time; Delayed; Not reached; Reached and then lost SexSpecificGenAut_dev_twowords
Query dev_fsiq Integer Recommended Full Scale IQ SexSpecificGenAut_dev_fsiq
Query therapy_physical String 50 Recommended Has the subject received physical therapy?
Yes;No;-7;-8;-9
CPEA STAART: -7 = Don't know; -8 = Refused to answer; -9 = Does not apply SexSpecificGenAut_therapy_physical
Query therapy_occupational String 50 Recommended Has the subject received occupational therapy?
Yes;No;-7;-8;-9
CPEA STAART: -7 = Don't know; -8 = Refused to answer; -9 = Does not apply SexSpecificGenAut_therapy_occupational
Query therapy_speechandlanguage String 50 Recommended Has the subject received speech and language therapy?
Yes;No;-7;-8;-9
CPEA STAART: -7 = Don't know; -8 = Refused to answer; -9 = Does not apply SexSpecificGenAut_therapy_speechandlanguage
Query therapy_vision String 50 Recommended Has the subject received vision therapy? Yes; No SexSpecificGenAut_therapy_vision
Query therapy_psych String 50 Recommended Has the subject received psychological therapy? Yes; No SexSpecificGenAut_therapy_psych
Query therapy_spec_ed String 50 Recommended Is the subject enrolled in any special educational classes or learning environments? Yes; No SexSpecificGenAut_therapy_spec_ed
Query neuro_scoliosis String 50 Recommended Does subject have scoliosis? Yes; No SexSpecificGenAut_neuro_scoliosis
Query neuro_spasticity_hyper String 50 Recommended Does subject have spasticity/hypertonia? Yes; No SexSpecificGenAut_neuro_spasticity_hyper
Query neuro_hypotonia String 50 Recommended Does subject have hypotonia? Yes; No SexSpecificGenAut_neuro_hypotonia
Query neuro_insensitivepain String 50 Recommended Does subject have insensitivity to pain? Yes; No SexSpecificGenAut_neuro_insensitivepain
Query neuro_tempdysreg String 50 Recommended Does subject have temperature dysregulation? Yes; No SexSpecificGenAut_neuro_tempdysreg
Query neuro_headaches String 50 Recommended Does subject have headaches? Yes; No SexSpecificGenAut_neuro_headaches
Query neuro_tics String 50 Recommended Does subject have tics? Yes; No SexSpecificGenAut_neuro_tics
Query neuro_tremor String 50 Recommended Does subject have tremors? Yes; No SexSpecificGenAut_neuro_tremor
Query neuro_dizzy String 50 Recommended Does subject have dizziness? Yes; No SexSpecificGenAut_neuro_dizzy
Query neuro_numb String 50 Recommended Does subject have numbness? Yes; No SexSpecificGenAut_neuro_numb
Query neuro_involmov String 50 Recommended Does subject have involuntary movements? Yes; No SexSpecificGenAut_neuro_involmov
neuro_note String 255 Recommended Notes regarding neurologic issues SexSpecificGenAut_neuro_note
Query gastro_reflux String 50 Required Does subject have gastroesophageal reflux? Yes; No;999 SexSpecificGenAut_gastro_reflux
Query gastro_diarrhea String 50 Recommended Does subject have diarrhea problems?
Yes; No; NK; NS
NK= Not known; NS = Not sure SexSpecificGenAut_gastro_diarrhea
Query gastro_constipation String 50 Recommended Does subject have issue of constipation?
Yes; No; NK; NS
NK= Not known; NS = Not sure SexSpecificGenAut_gastro_constipation
Query gastro_spec_diet String 50 Required Does subject have a special diet? Yes; No; NK NK = Not known SexSpecificGenAut_gastro_spec_diet
Query gastro_other String 50 Recommended Does subject have any other gastrointestinal issues?
Yes; No
SexSpecificGenAut_gastro_other
gastro_note String 255 Recommended Note regarding gastrointestinal issues? SexSpecificGenAut_gastro_note
Query medhx_sleep_prob String 50 Recommended Does subject have sleep problems?
Yes; No
SexSpecificGenAut_medhx_sleep_prob
medhx_sleep_prob_note String 255 Recommended Note regarding sleep problems SexSpecificGenAut_medhx_sleep_prob_note
Query medhx_behavior_prob String 50 Recommended Does subject have behavioral problem other then ASD? Yes; No SexSpecificGenAut_medhx_behavior_prob
Query medhx_behavior_prob_note String 255 Recommended Note regarding behavioral issue SexSpecificGenAut_medhx_behavior_prob_note
Query child_seizure String 50 Required Has she/he ever been to a doctor for any of these things…Epilepsy or Seizures /Epilepsia o convulsiones
Yes;No;999
Now I'd like to ask you about your child's use of health services during the past year and throughout his/her whole life. SexSpecificGenAut_seizure_history
Query seizure_age Integer Recommended Age of first seizure in years In years SexSpecificGenAut_seizure_age
Query seizure_frequency String 255 Recommended How often do the seizures happen (per day or per month)? SexSpecificGenAut_seizure_frequency
Query seizure_time_of_day String 50 Recommended What time of day do the seizures usually occur? AM; PM; During sleep SexSpecificGenAut_seizure_time_of_day
Query seizure_med String 500 Recommended List of current medications for seizures including dosage and side effects SexSpecificGenAut_seizure_med
Query rev_headeegresult String 255 Recommended EEG: Results SexSpecificGenAut_seizure_EEG_results
Query famhx_parents_related String 50 Recommended Are the biologic mother and father related? Yes; No SexSpecificGenAut_famhx_parents_related
famhx_autism String 500 Recommended Indicate which relatives have autism or autism spectrum disorder. SexSpecificGenAut_famhx_Autism
Query famhx_aspergers String 500 Recommended Indicate which relatives have Asperger's syndrome. SexSpecificGenAut_famhx_Aspergers
Query famhx_pdd String 500 Recommended Indicate which relatives have pervasive developmental disorder. SexSpecificGenAut_famhx_PDD
Query famhx_ocd String 500 Recommended Indicate which relatives have obsessive compulsive disorder. SexSpecificGenAut_famhx_OCD
Query famhx_adhd String 500 Recommended Indicate which relatives have attention deficit/hyperactivity disorder. SexSpecificGenAut_famhx_ADHD
Query famhx_anxiety String 500 Recommended Indicate which relatives have anxiety disorder SexSpecificGenAut_famhx_anxiety
Query famhx_bipolar String 500 Recommended Indicate which relatives have bipolar disorder. SexSpecificGenAut_famhx_bipolar
Query famhx_depression String 500 Recommended Indicate which relatives have depression and/or have made suicide attempts. SexSpecificGenAut_famhx_depression
Query famhx_personality String 500 Recommended Indicate which relatives have a personality disorder. SexSpecificGenAut_famhx_personality
Query famhx_schizophrenia String 500 Recommended Indicate which relatives have schizophrenia. SexSpecificGenAut_famhx_schizophrenia
Query famhx_ld String 500 Recommended Indicate which relatives have a learning disability. SexSpecificGenAut_famhx_LD
Query famhx_reading String 500 Recommended Indicate which relatives have a reading difficulty. SexSpecificGenAut_famhx_reading
famhx_speech String 500 Recommended Indicate which relatives have a speech problem or speech delay. SexSpecificGenAut_famhx_speech
Query famhx_selfinjure String 500 Recommended Indicate which relatives have self injuring behavior. SexSpecificGenAut_famhx_tuberous_seizureselfinjure
Query famhx_seizure_epilepsy String 500 Recommended Indicate which relatives have a seizure disorder or epilepsy. SexSpecificGenAut_famhx_tuberous_seizure_epilepsy
Query famhx_mr String 500 Recommended Indicate which relatives have mental retardation. SexSpecificGenAut_famhx_MR
Query famhx_obesity String 500 Recommended Indicate which relatives have obesity. SexSpecificGenAut_famhx_obesity
Query famhx_gi String 500 Recommended Indicate which relatives hava a gastrointestinal disorder. SexSpecificGenAut_famhx_GI
famhx_allergy_asthma String 500 Recommended Indicate which relatives have allergy and/or asthma. SexSpecificGenAut_famhx_allergy_asthma
Query famhx_autoimmune String 500 Recommended Indicate which relatives have an autoimmune disease. SexSpecificGenAut_famhx_autoimmune
Query famhx_endocrine String 500 Recommended Indicate which relatives have an endocrine or hormonal disorder. SexSpecificGenAut_famhx_endocrine
famhx_retts String 500 Recommended Indicate which relatives have Rett's syndrome. SexSpecificGenAut_famhx_Retts
famhx_fragilex String 500 Recommended Indicate which relatives have Fragile X syndrome. SexSpecificGenAut_famhx_fragileX
Query famhx_nf String 500 Recommended Indicate which relatives have neurofibromatosis. SexSpecificGenAut_famhx_tuberous_NF
Query famhx_tuberous_schleroris String 500 Recommended Indicate which relatives have tuberous schlerosis. SexSpecificGenAut_famhx_tuberous_schlerosis
Query famhx_birthdefect String 500 Recommended Indicate which relatives have a birth defect. SexSpecificGenAut_famhx_birthdefect
Query famhx_other String 500 Recommended Indicate which relatives have another inheritable condition SexSpecificGenAut_famhx_other
Query dem_marital_mother String 255 Recommended What is the marital status of subject's biological mother? Married/ Domestic partners; Single; Divorced; Widowed SexSpecificGenAut_dem_marital_mother
Query dem_marital_father String 255 Recommended What is the marital status of subject's biological father? Married/ Domestic partners; Single; Divorced; Widowed SexSpecificGenAut_dem_marital_father
bio_mother_occupation String 100 Recommended Biological Mother Occupation SexSpecificGenAut_dem_occupation_mother
bio_father_occupation String 100 Recommended Biological Father Occupation SexSpecificGenAut_dem_occupation_father
Query bio_mother_ethnicity String 50 Recommended Biological Mother Ethnicity
Hispanic or Latino;Not Hispanic or Latino; No Answer
SexSpecificGenAut_dem_ethnicity_mother
Query bio_father_ethnicity String 50 Recommended Biological Father ethnicity (Hispanic or Latino, Not Hispanic or Latino, No Answer)
Hispanic or Latino; Not Hispanic or Latino; No Answer
SexSpecificGenAut_dem_ethnicity_father
Query bio_mother_education String 75 Recommended Biological Mother Highest level of education Less than High School;High School Degree;GED; Less than 7th Grade; Jr. High School; Some High School; Some College;Associates Degree;Bachelors Degree;Some Graduate Work;Graduate Degree; Never attended school ; Primary/all age/ Jnr. Secondary ; Secondary/High/Technical ; H.E.A.R.T/ Vocational ; Tertiary College/University ; Other tertiary- specify ; Other education-specify;99= D/K ; 77= N/A; 999= Missing SexSpecificGenAut_dem_education_mother
Query bio_father_education String 75 Recommended Biological Father Highest level of education Less than High School;High School Degree;GED; Less than 7th Grade; Jr. High School; Some High School; Some College;Associates Degree;Bachelors Degree;Some Graduate Work;Graduate Degree; Never attended school ; Primary/all age/ Jnr. Secondary ; Secondary/High/Technical ; H.E.A.R.T/ Vocational ; Tertiary College/University ; Other tertiary- specify ; Other education-specify;99= D/K ; 77= N/A; 999= Missing SexSpecificGenAut_dem_education_father
Query respondent String 20 Recommended Respondent
Mother;Father;Parent;Guardian;Teacher;Child;Self;Caregiver;Partner;Other
relationship, resp_rel
Query childgen String 2 Recommended Child gender M;F M=Male; F= Female resp_gender
Query child_race String 55 Recommended Child's Race
American Indian/Alaska Native; Asian; Hawaiian or Pacific Islander; Black or African American; White; More than one race; Unknown or not reported
Query family_bio_parent_rep_coi_ethn String 30 Recommended Family Biographical History Form (0:0 to 4:5 y:m) Question IC2 Parent Report of Child of Interest (COI) ethnicity (Hispanic or Latino, Not Hispanic or Latino, No Answer)
Hispanic or Latino;Not Hispanic or Latino;No Answer
stay_with String 100 Recommended Who does child stay with at home? 777=Not applicable
Query father_race String 55 Recommended Father's race
American Indian/Alaska Native; Asian; Hawaiian or Pacific Islander; Black or African American; White; More than one race; Unknown or not reported
Query father_ethnicity String 30 Recommended Father ethnicity (choices are Hispanic/Latino or Not Hispanic/Latino)
Hispanic or Latino;Not Hispanic or Latino;Not Provided
Query mother_race String 55 Recommended Mother's race
American Indian/Alaska Native; Asian; Hawaiian or Pacific Islander; Black or African American; White; More than one race; Unknown or not reported
Query mother_ethnicity String 30 Recommended Mother ethnicity (choices are Hispanic/Latino or Not Hispanic/Latino)
Hispanic or Latino;Not Hispanic or Latino;Not Provided
Query dem_47_compl Integer Recommended Were there any birth complications with this child? 0;1;-999 0=No; 1=Yes; -999=Prefer not to answer birth_complications
Query demo_preg_meds Integer Recommended Did the biological mother use prescription medications during pregnancy? 0;1;3 1=Yes; 0=No; 3=Don't Know medications
fatherocup String 100 Recommended Father' occupation
momoccuc String 100 Recommended mother's current occupation
com_childcare String 10 Recommended What type of childcare does your child attend? Check all that apply 1= In home with other family member ;2= In home with babysitter ;3= At a home-based daycare ;4= At Headstart ;5= At a private nursery school / preschool ;6= At a school district preschool; 7 = Day Care Center; 8 = Home Day Care; 9 = Nanny or Au-Pair daycare_type
Query fsprels Integer Recommended Which category best describes your current relationship status? 1::9;777 1= Single/never married; 2= Married; 3= Living together; 4= Domestic partnership; 5= Separated; 6= Divorced; 7= Widowed; 8= Engaged; 9=Other; 777=Not applicable resp_relstatus
Query annincome Integer Recommended What is the gross (before taxes) annual income including child support and any other financial aid household? 0= $4999 or less ; 1= $5000-$9999 ; 2= $1000-$14999 ; 3= $15000-$19000 ; 4= $20000-$24999 ; 5= $25000-29999 ; 6= $30000-$39999 ; 7= $40000-$49999 ; 8= $50000-$59999 ; 9= $60000-$69999 ; 10=0 $70000-$79999; 11=1 $80000-$89000 ; 12=2 $90000 or more ; -99= N/A; 77= Refused ; 88= Missing resp_income_other
Query resp_rel_biological Integer Recommended Is your child Biological 1::4 1 = biologcal, 2 = adopted, 3 = foster, 4 = other
lstc String 10 Recommended Language(s) spoken to child (select all that apply) 1 = English; 2 = Spanish; 3 = Other language
Query born_within_3weeks Integer Recommended Was your child born within 3 weeks of his or her due date? 0::1 0 = No; 1 = Yes
resp_duedate Date Recommended What is/was your child's due date MM/DD/YYYY In the format of Month/Day/Year. The childs due date is defined as the predicted date of birth given to the parents by a doctor.
major_miles_stones String 200 Recommended Please specify at what age your child was first able to do the following: Sit Unsupported; Crawl; Pull up to standing; stand momentarily; show stepping movements; walk independently Ages in months
Query schooling_mother Integer Recommended Number of years of formal schooling/education Mother 8::18; 20 8 = Grade School; 9-11= some high school; 12= High School Graduate; 12-15 = Trade, technical or some college; 16 = College graduate; 17-18 = Graduate Training; 20 = Graduate degree (M.D., J.D., D.D.S., Ph.D.)
Query schooling_father Integer Recommended Number of years of formal schooling/education Father 8::18; 20 8 = Grade School; 9-11= some high school; 12= High School Graduate; 12-15 = Trade, technical or some college; 16 = College graduate; 17-18 = Graduate Training; 20 = Graduate degree (M.D., J.D., D.D.S., Ph.D.)
Query visitation Integer Recommended Does your child have visitation with both parents?
0;1;3
1 = yes; 0 = no; 3 = N/A
Query marital_status_change Integer Recommended Has your marital status changed since your last visit?
0;1;3
1 = yes; 0 = no; 3 = N/A marital_status
Query daycare_yn Integer Recommended Does your child attend daycare or some type of child care? 0::1 0 = No; 1 = Yes daycare
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.