|
subjectkey |
GUID |
|
Required |
The NDAR Global Unique Identifier (GUID) for research subject |
NDAR*
|
|
|
|
src_subject_id |
String |
20
|
Required |
Subject ID how it's defined in lab/project |
|
|
|
|
interview_date |
Date |
|
Required |
Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY |
|
|
|
|
interview_age |
Integer |
|
Required |
Age in months at the time of the interview/test/sampling/imaging. |
0::1440
|
Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
|
|
|
sex |
String |
20
|
Required |
Sex of subject at birth |
M;F; O; NR
|
M = Male; F = Female; O=Other; NR = Not reported
|
gender |
Query
|
respondent |
String |
20
|
Required |
Respondent |
|
|
whocompletedthisform |
Query
|
sensory_c_30 |
Integer |
|
Recommended |
Expresses distress during grooming (for example fights or cries during haircuttingface washing fingernail cutting) |
1 :: 5
|
1 = Always; 2 = Frequently; 3 = Occasionally; 4 = Seldom; 5 = Never
|
sens_discomfortingrooming |
Query
|
sensory_c_31 |
Integer |
|
Recommended |
Prefers long-sleeved clothing when it is warm or short sleeves when it is cold |
1 :: 5
|
1 = Always; 2 = Frequently; 3 = Occasionally; 4 = Seldom; 5 = Never
|
sens_longsleevedclothing |
Query
|
sensory_c_35 |
Integer |
|
Recommended |
Avoids going barefoot especially in sand or grass |
1 :: 5
|
1 = Always; 2 = Frequently; 3 = Occasionally; 4 = Seldom; 5 = Never
|
sens_avoidbarefoot |
Query
|
sensory_c_36 |
Integer |
|
Recommended |
Reacts emotionaily or aggressively to touch |
1 :: 5
|
1 = Always; 2 = Frequently; 3 = Occasionally; 4 = Seldom; 5 = Never
|
sens_reactstotouch |
Query
|
sensory_c_37 |
Integer |
|
Recommended |
Withdraws from splashing water |
1 :: 5
|
1 = Always; 2 = Frequently; 3 = Occasionally; 4 = Seldom; 5 = Never
|
sens_splashingwater |
Query
|
sensory_c_38 |
Integer |
|
Recommended |
Has difficulty standing in line or close to other people |
1 :: 5
|
1 = Always; 2 = Frequently; 3 = Occasionally; 4 = Seldom; 5 = Never
|
sens_difficultinline |
Query
|
sensory_c_39 |
Integer |
|
Recommended |
Rubs or scratches out a spot that has been touched |
1 :: 5
|
1 = Always; 2 = Frequently; 3 = Occasionally; 4 = Seldom; 5 = Never
|
sens_rubspsot |
Query
|
drawscr |
Float |
|
Required |
Touch processing raw score |
|
|
TS_RS, tactilesensitivity |
Query
|
sensory_c_55 |
Integer |
|
Recommended |
Avoids certain tastes or food smells that are typically part of children's diets |
1 :: 5
|
1 = Always; 2 = Frequently; 3 = Occasionally; 4 = Seldom; 5 = Never
|
sens_avoidstastes |
Query
|
sensory_c_56 |
Integer |
|
Recommended |
Will only eat certain tastes (list: |
1 :: 5
|
1 = Always; 2 = Frequently; 3 = Occasionally; 4 = Seldom; 5 = Never
|
sens_certaintastes |
Query
|
tastes_list |
String |
100
|
Recommended |
List: |
|
|
|
Query
|
sensory_c_57 |
Integer |
|
Recommended |
Limits self to particular food textures/temperatures (list: |
1 :: 5
|
1 = Always; 2 = Frequently; 3 = Occasionally; 4 = Seldom; 5 = Never
|
sens_foodtextures |
Query
|
textures_list |
String |
100
|
Recommended |
List: |
|
|
|
Query
|
sensory_c_58 |
Integer |
|
Recommended |
Picky eater especially regarding food textures |
1 :: 5
|
1 = Always; 2 = Frequently; 3 = Occasionally; 4 = Seldom; 5 = Never
|
sens_pickyeater |
Query
|
frawscr |
Float |
|
Required |
Oral sensory processing raw score |
|
|
TSS_RS, tastesmellsensitivity |
Query
|
sensory_c_18 |
Integer |
|
Recommended |
Becomes anxious or distressed when feet leave the ground |
1 :: 5
|
1 = Always; 2 = Frequently; 3 = Occasionally; 4 = Seldom; 5 = Never
|
sens_anxiousfeetoffground |
Query
|
sensory_c_77 |
Integer |
|
Recommended |
Fears falling or heights |
1 :: 5
|
1 = Always; 2 = Frequently; 3 = Occasionally; 4 = Seldom; 5 = Never
|
sens_fearheight |
Query
|
sensory_c_19 |
Integer |
|
Recommended |
Dislikes activities where head is upside down (for example somersaults roughhousing) |
1 :: 5
|
1 = Always; 2 = Frequently; 3 = Occasionally; 4 = Seldom; 5 = Never
|
sens_upsidedown |
Query
|
crawscr |
Float |
|
Required |
Vestibular processing raw score |
|
|
MS_RS, movementsensitivity |
Query
|
sensory_c_8 |
Integer |
|
Recommended |
Enjoys strange noises/seeks to make noise for noise's sake |
1 :: 5
|
1 = Always; 2 = Frequently; 3 = Occasionally; 4 = Seldom; 5 = Never
|
sens_strangenoises |
Query
|
sensory_c_24 |
Integer |
|
Recommended |
Seeks all kinds of movement and this interferes with daily routines (for example can't sit still fidgets) |
1 :: 5
|
1 = Always; 2 = Frequently; 3 = Occasionally; 4 = Seldom; 5 = Never
|
sens_seekmovementactivity |
Query
|
sensory_c_89 |
Integer |
|
Recommended |
Becomes overly excitable during movement activity |
1 :: 5
|
1 = Always; 2 = Frequently; 3 = Occasionally; 4 = Seldom; 5 = Never
|
sens_excitable |
Query
|
sensory_c_40 |
Integer |
|
Recommended |
Touches people and objects to the point of irritating others |
1 :: 5
|
1 = Always; 2 = Frequently; 3 = Occasionally; 4 = Seldom; 5 = Never
|
sens_touchespeople |
Query
|
sensory_a_36 |
Integer |
|
Recommended |
36. I don't seem to notice when my face or hands are dirty. |
1 :: 5
|
SENSORY PROFILE ADULT: 1 = Almost never; 2 = Seldom; 3 = Occasionally; 4 = Frequently; 5 = Almost always; SENSORY PROFILE SHORT: 1 = Always; 2 = Frequently; 3 = Occasionally; 4 = Seldom; 5 = Never
|
sens_messyhands |
Query
|
sensory_c_123 |
Integer |
|
Recommended |
Jumps from one activity to another so that it interferes with play |
1 :: 5
|
1 = Always; 2 = Frequently; 3 = Occasionally; 4 = Seldom; 5 = Never
|
sens_difficultpayingattention |
Query
|
sensory_c_53 |
Integer |
|
Recommended |
Leaves clothing twisted on body |
1 :: 5
|
1 = Always; 2 = Frequently; 3 = Occasionally; 4 = Seldom; 5 = Never
|
sens_twistedclothing |
Query
|
uss_rs |
Float |
|
Required |
Underresponsive/Seeks Sensation (Raw Score) |
7::35; -9
|
-9 = Missing value
|
underresponsiveseekssensation |
Query
|
sensory_c_4 |
Integer |
|
Recommended |
Is distracted or has trouble functioning if there is a lot of noise around |
1 :: 5
|
1 = Always; 2 = Frequently; 3 = Occasionally; 4 = Seldom; 5 = Never
|
sens_distractedbynoise |
Query
|
sensory_c_6 |
Integer |
|
Recommended |
Appears to not hear what you say (for example does not tune-in" to what you say appears to ignore you)" |
1 :: 5
|
1 = Always; 2 = Frequently; 3 = Occasionally; 4 = Seldom; 5 = Never
|
sens_nottohearyou |
Query
|
sensory_c_5 |
Integer |
|
Recommended |
Can't work with background noise (for example fan refrigerator) |
1 :: 5
|
1 = Always; 2 = Frequently; 3 = Occasionally; 4 = Seldom; 5 = Never
|
sens_cantworkwithnoise |
Query
|
sensory_c_3 |
Integer |
|
Recommended |
Has trouble completing tasks when the radio is on/Has trouble completing tasks when the radio is on/struggles to complete tasks when music or TV is on. |
1 :: 5
|
1 = Always; 2 = Frequently; 3 = Occasionally; 4 = Seldom; 5 = Never
|
sens_distractedbyradio |
Query
|
sensory_c_7 |
Integer |
|
Recommended |
Doesn't respond when name is called but you know the child's hearing is OK |
1 :: 5
|
1 = Always; 2 = Frequently; 3 = Occasionally; 4 = Seldom; 5 = Never
|
sens_doesnotrespondtoname |
Query
|
sensory_c_48 |
Integer |
|
Recommended |
Has difficulty paying attention |
1 :: 5
|
1 = Always; 2 = Frequently; 3 = Occasionally; 4 = Seldom; 5 = Never
|
sens_difficultypayingattention |
Query
|
af_rs |
Float |
|
Recommended |
Auditory Filtering (Raw Score) |
6::30; -9
|
-9 = Missing value
|
auditoryfiltering |
Query
|
sensory_c_69 |
Integer |
|
Recommended |
Seems to have weak muscles |
1 :: 5
|
1 = Always; 2 = Frequently; 3 = Occasionally; 4 = Seldom; 5 = Never
|
sens_weakmuscles |
Query
|
sensory_c_67 |
Integer |
|
Recommended |
Tires easiiy especialiy when standing or holding particular body position |
1 :: 5
|
1 = Always; 2 = Frequently; 3 = Occasionally; 4 = Seldom; 5 = Never
|
sens_tireseasily |
Query
|
sensory_c_70 |
Integer |
|
Recommended |
Has a weak grasp |
1 :: 5
|
1 = Always; 2 = Frequently; 3 = Occasionally; 4 = Seldom; 5 = Never
|
sens_weakgrasp |
Query
|
sensory_c_71 |
Integer |
|
Recommended |
Can't lift heavy objects (for example weak in comparison to same age children) |
1 :: 5
|
1 = Always; 2 = Frequently; 3 = Occasionally; 4 = Seldom; 5 = Never
|
sens_heavyobjects |
Query
|
sensory_c_72 |
Integer |
|
Recommended |
Props to support self (even during activity) |
1 :: 5
|
1 = Always; 2 = Frequently; 3 = Occasionally; 4 = Seldom; 5 = Never
|
sens_props |
Query
|
sensory_c_73 |
Integer |
|
Recommended |
Poor endurance/tires easily |
1 :: 5
|
1 = Always; 2 = Frequently; 3 = Occasionally; 4 = Seldom; 5 = Never
|
sens_poorendurance |
Query
|
lew_rs |
Float |
|
Required |
Low Energy/Weak (Raw Score) |
6::30; -9
|
-9 = Missing value
|
lowenergyweak |
Query
|
sensory_c_1 |
Integer |
|
Recommended |
Responds negatively to unexpected or loud noises (for example cries or hides at noise from vacuum cleaner dog barking hair dryer) |
1 :: 5
|
1 = Always; 2 = Frequently; 3 = Occasionally; 4 = Seldom; 5 = Never
|
sens_negativeresponsetonoise |
Query
|
sensory_c_2 |
Integer |
|
Recommended |
Holds hands over ears to protect ears from sound |
1 :: 5
|
1 = Always; 2 = Frequently; 3 = Occasionally; 4 = Seldom; 5 = Never
|
sens_holdhandsoverears |
Query
|
sensory_c_14 |
Integer |
|
Recommended |
Is bothered by bright lights after others have adapted to the light |
1 :: 5
|
1 = Always; 2 = Frequently; 3 = Occasionally; 4 = Seldom; 5 = Never
|
sens_avoidbrightlight |
Query
|
sensory_c_98 |
Integer |
|
Recommended |
Watches everyone when they move around the room |
1 :: 5
|
1 = Always; 2 = Frequently; 3 = Occasionally; 4 = Seldom; 5 = Never
|
sens_lookintenselyatthings |
Query
|
sensory_c_15 |
Integer |
|
Recommended |
Covers eyes or squints to protect eyes from light |
1 :: 5
|
1 = Always; 2 = Frequently; 3 = Occasionally; 4 = Seldom; 5 = Never
|
sens_coverseyes |
Query
|
vas_rs |
Float |
|
Required |
Visual/Auditory Sensitivity (Raw Score) |
5::25;-9
|
-9 = Missing value
|
visualauditorysensitivity |
Query
|
ts_c |
String |
50
|
Recommended |
Tactile Sensitivity (Classification) |
|
|
|
Query
|
tss_c |
String |
50
|
Recommended |
Taste/Smell Sensitivity (Classification) |
|
|
|
Query
|
ms_c |
String |
50
|
Recommended |
Movement Sensitivity (Classification) |
|
|
|
Query
|
uss_c |
String |
50
|
Recommended |
Underresponsive/Seeks Sensation (Classification) |
|
|
|
Query
|
af_c |
String |
50
|
Recommended |
Auditory Filtering (Classification) |
|
|
|
Query
|
lew_c |
String |
50
|
Recommended |
Low Energy/Weak (Classification) |
|
|
|
Query
|
vas_c |
String |
50
|
Recommended |
Visual/Auditory Sensitivity (Classification) |
|
|
|
Query
|
tot_rs |
Float |
|
Required |
Total (Raw Score) |
38::190;-9
|
-9 = Missing value
|
total |
Query
|
tot_c |
String |
50
|
Recommended |
Total (Classification) |
|
|
|
Query
|
phenotype |
String |
200
|
Required |
Phenotype/diagnosis for the subject |
|
|
|
|
respond_detail_oth_spec |
String |
255
|
Recommended |
Respondent details |
|
|
whoother |
|
comments_misc |
String |
4,000
|
Recommended |
Miscellaneous comments on study, interview, methodology relevant to this form data |
|
|
|