| Short Name: | edq |
|---|---|
| Version: |
Early Development Questionnaire
The Modified Checklist for Autism in Toddlers
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| ElementName | DataType | Size | Required | ElementDescription | ValueRange | Notes | Aliases |
|---|---|---|---|---|---|---|---|
| subjectkey | GUID | Required | The NDAR Global Unique Identifier (GUID) for subjects which identifies a subject in NDAR | NDAR* | |||
| src_subject_id | String | 20 | Required | The site or study's subject identification | |||
| interview_date | Date | Required | Date on which the interview/genetic test/sampling/imaging was completed | Required field | |||
| interview_age | Integer | Required | Age in months at the time of the interview/test/sampling/imaging. | 0 :: 1200 | Age is rounded to chronological month If the research participant is 15 days old at time of interview the appropriate value would be 0 months if the participant is 16 days old the value would be 1 month | ||
| gender | String | 50 | Required | Gender | M; F | ||
| regression_age | Integer | Recommended | If your child experienced a regression before 18 months of age only rate his or her behavior up to the point of the regression. Specify age in months. | 0 :: 18 | |||
| rel_child_spfy | String | 250 | Recommended | If other please specify | |||
| look_social | Integer | Recommended | My child looked at others during social interactions | 0 :: 4 | 0 = never ; 1 = rarely ; 2 = occasionally ; 3 = often ; 4 = Don't know or can't remember | EDQ_1 | |
| repetitive_behavior | Integer | Recommended | My child engaged in repetitive motor behavior | 0 :: 4 | 0 = never ; 1 = rarely ; 2 = occasionally ; 3 = often ; 4 = Don't know or can't remember | EDQ_2 | |
| choice_answer | Integer | Recommended | When given a choice between two items my child clearly let me know which one he or she wanted. | 0 :: 4 | 0 = never ; 1 = rarely ; 2 = occasionally ; 3 = often ; 4 = Don't know or can't remember | ||
| smile_back | Integer | Recommended | My child smiled back at me when I smiled at him or her. | 0 :: 4 | 0 = never ; 1 = rarely ; 2 = occasionally ; 3 = often ; 4 = Don't know or can't remember | EDQ_4 | |
| child_non_interests | Integer | Recommended | My child rarely noticed or seemed interested in new objects or toys in his or her environment. | 0 :: 4 | 0 = never ; 1 = rarely ; 2 = occasionally ; 3 = often ; 4 = Don't know or can't remember | EDQ_5 | |
| attention_book | Integer | Recommended | My child could listen and pay attention to a book for at least 5 minutes. | 0 :: 4 | 0 = never ; 1 = rarely ; 2 = occasionally ; 3 = often ; 4 = Don't know or can't remember | EDQ_6 | |
| arms_up | Integer | Recommended | My child put his/her arms up when he or she wanted to be picked up. | 0 :: 4 | 0 = never ; 1 = rarely ; 2 = occasionally ; 3 = often ; 4 = Don't know or can't remember | EDQ_7 | |
| part_toy | Integer | Recommended | My child was more interested in playing with a certain part of a toy (e.g. spinning the wheels of a car) than playing with the whole toy. | 0 :: 4 | 0 = never ; 1 = rarely ; 2 = occasionally ; 3 = often ; 4 = Don't know or can't remember | EDQ_8 | |
| understandable_speech | Integer | Recommended | My child's speech at whatever level acquired was easy to understand. | 0 :: 4 | 0 = never ; 1 = rarely ; 2 = occasionally ; 3 = often ; 4 = Don't know or can't remember | EDQ_9 | |
| brought_interested | Integer | Recommended | My child showed or brought me things that interested him or her. | 0 :: 4 | 0 = never ; 1 = rarely ; 2 = occasionally ; 3 = often ; 4 = Don't know or can't remember | EDQ_10 | |
| routine_change | Integer | Recommended | My child became upset if there was a minor change in his or her routine or environment. | 0 :: 4 | 0 = never ; 1 = rarely ; 2 = occasionally ; 3 = often ; 4 = Don't know or can't remember | EDQ_11 | |
| meaningful_phrases | Integer | Recommended | My child put 2 or 3 words together into meaningful phrases. | 0 :: 4 | 0 = never ; 1 = rarely ; 2 = occasionally ; 3 = often ; 4 = Don't know or can't remember | EDQ_12 | |
| name_look | Integer | Recommended | When I called my child¿s name he or she looked at me right away. | 0 :: 4 | 0 = never ; 1 = rarely ; 2 = occasionally ; 3 = often ; 4 = Don't know or can't remember | EDQ_13 | |
| stare_objects | Integer | Recommended | My child stared at lights or visually inspected objects at close range for extended periods of time. | 0 :: 4 | 0 = never ; 1 = rarely ; 2 = occasionally ; 3 = often ; 4 = Don't know or can't remember | EDQ_14 | |
| baby_talk | Integer | Recommended | Before my child used words his or her babbling or baby talk was clearly directed toward me. | 0 :: 4 | 0 = never ; 1 = rarely ; 2 = occasionally ; 3 = often ; 4 = Don't know or can't remember | EDQ_15 | |
| request_things | Integer | Recommended | If my child wanted something he or she would point to request it. | 0 :: 4 | 0 = never ; 1 = rarely ; 2 = occasionally ; 3 = often ; 4 = Don't know or can't remember | EDQ_16 | |
| ear_cover | Integer | Recommended | My child covered his or her ears in response to certain sounds (e.g. vacuum cleaner traffic). | 0 :: 4 | 0 = never ; 1 = rarely ; 2 = occasionally ; 3 = often ; 4 = Don't know or can't remember | EDQ_17 | |
| follow_command | Integer | Recommended | My child followed simple verbal instructions | 0 :: 4 | 0 = never ; 1 = rarely ; 2 = occasionally ; 3 = often ; 4 = Don't know or can't remember | EDQ_18 | |
| point_look | Integer | Recommended | If I pointed or looked toward something my child would look at it too. | 0 :: 4 | 0 = never ; 1 = rarely ; 2 = occasionally ; 3 = often ; 4 = Don't know or can't remember | EDQ_19 | |
| child_held | Integer | Recommended | When held my child cuddled or molded into my body. | 0 :: 4 | 0 = never ; 1 = rarely ; 2 = occasionally ; 3 = often ; 4 = Don't know or can't remember | EDQ_20 | |
| child_push_hand | Integer | Recommended | When my child wanted something he or she used my hand as a tool or pushed my body or arm to get help from me. | 0 :: 4 | 0 = never ; 1 = rarely ; 2 = occasionally ; 3 = often ; 4 = Don't know or can't remember | EDQ_21 | |
| initiated_game | Integer | Recommended | My child initiated interactive games such as peek-a-boo or hide-andseek with me. | 0 :: 4 | 0 = never ; 1 = rarely ; 2 = occasionally ; 3 = often ; 4 = Don't know or can't remember | EDQ_22 | |
| lined_toys | Integer | Recommended | My child enjoyed lining up toys or other objects. | 0 :: 4 | 0 = never ; 1 = rarely ; 2 = occasionally ; 3 = often ; 4 = Don't know or can't remember | EDQ_23 | |
| spontaneous_five_word | Integer | Recommended | My child spontaneously used 5 or more words other than mama or dada on a daily basis. | 0 :: 4 | 0 = never ; 1 = rarely ; 2 = occasionally ; 3 = often ; 4 = Don't know or can't remember | EDQ_24 | |
| imitated_actions | Integer | Recommended | My child imitated things I did such as clapping waving goodbye or blowing a kiss. | 0 :: 4 | 0 = never ; 1 = rarely ; 2 = occasionally ; 3 = often ; 4 = Don't know or can't remember | EDQ_25 | |
| unusual_object | Integer | Recommended | My child was attached to an unusual object and insisted on carrying it around with him or her. | 0 :: 4 | 0 = never ; 1 = rarely ; 2 = occasionally ; 3 = often ; 4 = Don't know or can't remember | EDQ_26 | |
| understand_me | Integer | Recommended | My child seemed to understand what I said to him or her even if he or she couldn¿t respond back verbally. | 0 :: 4 | 0 = never ; 1 = rarely ; 2 = occasionally ; 3 = often ; 4 = Don't know or can't remember | EDQ_27 | |
| play_others | Integer | Recommended | My child preferred to play with others than to play alone. | 0 :: 4 | 0 = never ; 1 = rarely ; 2 = occasionally ; 3 = often ; 4 = Don't know or can't remember | EDQ_28 | |
| smell_texture | Integer | Recommended | My child seemed particularly interested in the smell or texture of things. | 0 :: 4 | 0 = never ; 1 = rarely ; 2 = occasionally ; 3 = often ; 4 = Don't know or can't remember | EDQ_29 | |
| babble_speech | Integer | Recommended | My child babbled or used word approximations to get my attention. | 0 :: 4 | 0 = never ; 1 = rarely ; 2 = occasionally ; 3 = often ; 4 = Don't know or can't remember | EDQ_30 | |
| child_point | Integer | Recommended | If my child saw something that interested him or her he or she would point to it and then look at me to see if I was looking at it too. | 0 :: 4 | 0 = never ; 1 = rarely ; 2 = occasionally ; 3 = often ; 4 = Don't know or can't remember | EDQ_31 | |
| child_rocked | Integer | Recommended | My child rocked in his or her crib or play pen for extended periods of time. | 0 :: 4 | 0 = never ; 1 = rarely ; 2 = occasionally ; 3 = often ; 4 = Don't know or can't remember | EDQ_32 | |
| head_shake | Integer | Recommended | My child shook his or her head to mean No. | 0 :: 4 | 0 = never ; 1 = rarely ; 2 = occasionally ; 3 = often ; 4 = Don't know or can't remember | EDQ_33 | |
| pretend_activities | Integer | Recommended | My child engaged in simple pretend play activities | 0 :: 4 | 0 = never ; 1 = rarely ; 2 = occasionally ; 3 = often ; 4 = Don't know or can't remember | EDQ_34 | |
| one_toy | Integer | Recommended | My child played with one toy or object over and over again to an unusual degree. | 0 :: 4 | 0 = never ; 1 = rarely ; 2 = occasionally ; 3 = often ; 4 = Don't know or can't remember | EDQ_35 | |
| head_nod | Integer | Recommended | My child nodded his or her head to mean Yes. | 0 :: 4 | 0 = never ; 1 = rarely ; 2 = occasionally ; 3 = often ; 4 = Don't know or can't remember | EDQ_36 | |
| interested_children | Integer | Recommended | My child seemed interested in other children. | 0 :: 4 | 0 = never ; 1 = rarely ; 2 = occasionally ; 3 = often ; 4 = Don't know or can't remember | EDQ_37 | |
| child_mouthed | Integer | Recommended | My child mouthed objects to an unusual degree. | 0 :: 4 | 0 = never ; 1 = rarely ; 2 = occasionally ; 3 = often ; 4 = Don't know or can't remember | EDQ_38 | |
| like_smile | Integer | Recommended | When my child really liked something he or she would let me know by smiling or making noises that were clearly directed toward me. | 0 :: 4 | 0 = never ; 1 = rarely ; 2 = occasionally ; 3 = often ; 4 = Don't know or can't remember | EDQ_39 | |
| hurt_self | Integer | Recommended | My child injured him/herself deliberately (biting self or banging head). | 0 :: 4 | 0 = never ; 1 = rarely ; 2 = occasionally ; 3 = often ; 4 = Don't know or can't remember | EDQ_40 | |
| imitated_words | Integer | Recommended | My child imitated sounds I made or words I said after hearing them. | 0 :: 4 | 0 = never ; 1 = rarely ; 2 = occasionally ; 3 = often ; 4 = Don't know or can't remember | EDQ_41 | |
| people_preference | Integer | Recommended | My child showed a clear preference for me over less familiar people. | 0 :: 4 | 0 = never ; 1 = rarely ; 2 = occasionally ; 3 = often ; 4 = Don't know or can't remember | EDQ_42 | |
| body_part | Integer | Recommended | My child accurately indicated one or more body parts when asked. | 0 :: 4 | 0 = never ; 1 = rarely ; 2 = occasionally ; 3 = often ; 4 = Don't know or can't remember | EDQ_43 | |
| spontaneous_ten_word | Integer | Recommended | My child spontaneously and regularly used 10 or more meaningful words. | 0 :: 4 | 0 = never ; 1 = rarely ; 2 = occasionally ; 3 = often ; 4 = Don't know or can't remember | EDQ_44 | |
| interupt_activity | Integer | Recommended | My child became upset if his or her activity was interrupted and would insist on starting it over again from the beginning. | 0 :: 4 | 0 = never ; 1 = rarely ; 2 = occasionally \; 3 = often \; 4 = Don't know or can't remember | EDQ_45 | |
| roll_over | Integer | Recommended | At what age (in months) did your child first learn to roll over | EDQ_RO | |||
| crawl | Integer | Recommended | At what age (in months) did your child first learn to crawl | EDQ_CL | |||
| sit_alone | Integer | Recommended | At what age (in months) did your child first learn to sit alone unsupported | EDQ_SA | |||
| single_words_use | Integer | Recommended | At what age (in months) did your child use single words | EDQ_SW | |||
| single_word_use_lt | String | 250 | Recommended | Please list a few of his/her first words | EDQ_FW | ||
| speak_phrases | Integer | Recommended | At what age (in months) did your child speak in phrases | EDQ_SP | |||
| speak_phrases_lt | String | 250 | Recommended | Please list some of the first phrases your child used | EDQ_FP | ||
| phrase_lost | Integer | Recommended | Did your child lose all words or phrases (e.g. requesting food or other needs addressing parents greeting replying when called by name or labeling familiar objects or animals) | 0 :: 1 | 0 = no 1 = yes | EDQ_3A1 | |
| phrase_lost_lgth | Integer | Recommended | Length of loss in months | 1 :: 4 | 1 = <3 ; 2 = 3-6 ; 3 = >6 ; 4 = don't know | EDQ_3A1_L | |
| meaning_phrase_lost | Integer | Recommended | Did your child lose most meaningful words or phrases although may have retained a few | 0 :: 1 | 0 = no 1 = yes | EDQ_3A2 | |
| meaning_phrase_lost_lgth | Integer | Recommended | Length of loss in months | 1 :: 4 | 1 = <3 ; 2 = 3-6 ; 3 = >6 ; 4 = don't know | EDQ_3A2_L | |
| gesture_lost | Integer | Recommended | Did your child lose gestures or imitative behaviors such as pointing clapping waving goodbye | 0 :: 1 | 0 = no 1 = yes | EDQ_3A3 | |
| gesture_lost_lgth | Integer | Recommended | Length of loss in months | 1 :: 4 | 1 = <3 ; 2 = 3-6 ; 3 = >6 ; 4 = don't know | EDQ_3A3_L | |
| understand_lang_lost | Integer | Recommended | Did your child lose ability to understand language spoken by others | 0 :: 1 | 0 = no 1 = yes | EDQ_3A4 | |
| understand_lang_lost_lgth | Integer | Recommended | Length of loss in months | 1 :: 4 | 1 = <3 ; 2 = 3-6 ; 3 = >6 ; 4 = don't know | EDQ_3A4_L | |
| fam_interest_loss | Integer | Recommended | Did your child lose interest in parents siblings relative or peers | 0 :: 1 | 0 = no 1 = yes | EDQ_3B1 | |
| fam_interest_loss_lgth | Integer | Recommended | Length of loss in months | 1 :: 4 | 1 = <3 ; 2 = 3-6 ; 3 = >6 ; 4 = don't know | EDQ_3B1_L | |
| smile_response_loss | Integer | Recommended | Did your child lose smiling in response to another person's smile | 0 :: 1 | 0 = no 1 = yes | EDQ_3B2 | |
| smile_response_loss_lgth | Integer | Recommended | Length of loss in months | 1 :: 4 | 1 = <3 ; 2 = 3-6 ; 3 = >6 ; 4 = don't know | EDQ_3B2_L | |
| reach_parent_loss | Integer | Recommended | Did your child lose reaching for caregiver (e.g. putting arms up to be lifted) | 0 :: 1 | 0 = no 1 = yes | EDQ_3B3 | |
| reach_parent_loss_lgth | Integer | Recommended | Length of loss in months | 1 :: 4 | 1 = <3 ; 2 = 3-6 ; 3 = >6 ; 4 = don't know | EDQ_3B3_L | |
| eye_contact_loss | Integer | Recommended | Did your child lose direct eye contact during communication | 0 :: 1 | 0 = no 1 = yes | EDQ_3B4 | |
| eye_contact_loss_lgth | Integer | Recommended | Length of loss in months | 1 :: 4 | 1 = <3 ; 2 = 3-6 ; 3 = >6 ; 4 = don't know | EDQ_3B4_L | |
| game_interest_loss | Integer | Recommended | Did your child lose interest in interactive games such as Peek-a-boo | 0 :: 1 | 0 = no 1 = yes | EDQ_3B5 | |
| game_interest_loss_lgth | Integer | Recommended | Length of loss in months | 1 :: 4 | 1 = <3 ; 2 = 3-6 ; 3 = >6 ; 4 = don't know | EDQ_3B5_L | |
| pretend_play_loss | Integer | Recommended | Did your child lose pretend or imaginative play | 0 :: 1 | 0 = no 1 = yes | EDQ_3B6 | |
| pretend_play_loss_lgth | Integer | Recommended | Length of loss in months | 1 :: 4 | 1 = <3 ; 2 = 3-6 ; 3 = >6 ; 4 = don't know | EDQ_3B6_L | |
| feed_self_loss | Integer | Recommended | Did your child lose ability to feed self at whatever level acquired | 0 :: 1 | 0 = no 1 = yes | EDQ_3C1 | |
| feed_self_loss_lgth | Integer | Recommended | Length of loss in months | 1 :: 4 | 1 = <3 ; 2 = 3-6 ; 3 = >6 ; 4 = don't know | EDQ_3C1_L | |
| dress_self_loss | Integer | Recommended | Did your child lose ability to dress oneself at whatever level acquired | 0 :: 1 | 0 = no 1 = yes | EDQ_3C2 | |
| dress_self_loss_lgth | Integer | Recommended | Length of loss in months | 1 :: 4 | 1 = <3 ; 2 = 3-6 ; 3 = >6 ; 4 = don't know | EDQ_3C2_L | |
| toilet_skills_loss | Integer | Recommended | Did your child lose toileting skills at whatever level acquired | 0 :: 1 | 0 = no 1 = yes | EDQ_3C3 | |
| toilet_skills_loss_lgth | Integer | Recommended | Length of loss in months | 1 :: 4 | 1 = <3 ; 2 = 3-6 ; 3 = >6 ; 4 = don't know | EDQ_3C3_L | |
| motor_small_obj_loss | Integer | Recommended | Did your child lose ability to manipulate small objects such as legos or stack blocks | 0 :: 1 | 0 = no 1 = yes | EDQ_3D1 | |
| motor_small_obj_loss_lgth | Integer | Recommended | Length of loss in months | 1 :: 4 | 1 = <3 ; 2 = 3-6 ; 3 = >6 ; 4 = don't know | EDQ_3D1_L | |
| carry_ball_loss | Integer | Recommended | Did your child lose ability to carry throw or kick a ball or climb onto furniture | 0 :: 1 | 0 = no 1 = yes | EDQ_3D2 | |
| carry_ball_loss_lgth | Integer | Recommended | Length of loss in months | 1 :: 4 | 1 = <3 ; 2 = 3-6 ; 3 = >6 ; 4 = don't know | EDQ_3D2_L | |
| able_phys_loss | Integer | Recommended | Did your child lose ability to physically move about independently | 0 :: 1 | 0 = no 1 = yes | EDQ_3D3 | |
| able_phys_loss_lgth | Integer | Recommended | Length of loss in months | 1 :: 4 | 1 = <3 ; 2 = 3-6 ; 3 = >6 ; 4 = don't know | EDQ_3D3_L | |
| skill_loss_age | Integer | Recommended | At what age (in months) did your child begin to lose any of the skills | EDQ_4_1 | |||
| skill_loss_stop_age | Integer | Recommended | At what age (in months) did the loss of skills appear to stop? | EDQ_4_2 | |||
| concern_development | Integer | Recommended | Did you have any concerns about your child development before the regression? | 0 :: 1 | 0 = no 1 = yes | ||
| concern_development_lt | String | 250 | Recommended | Please describe your concerns (and your child age at the time). | EDQ_4_3 | ||
| skills_loss | Integer | Recommended | Was your child's loss of skills gradual or sudden? | 1; 2; 9 | 1 = gradual 2 = sudden 9 = don't known | EDQ_4_4 | |
| lost_language | Integer | Recommended | If your child lost language skills. did he/she lose some or all words? | 1 :: 2 | 1 = some words 2 = all words | EDQ_4_5 | |
| before_loss_words | Integer | Recommended | About how many words (maximum) did your child use before the loss? | EDQ_4_6 | |||
| after_loss_words | Integer | Recommended | About how many words (maximum) does he/she use now? | EDQ_4_7 | |||
| illness_spfy | Integer | Recommended | Was there any suggestion that the loss of skills was associated with a physical illness such as a high fever encephalitis or seizure activity or with an immunization? | 0 :: 1 | 0 = no 1 = yes | EDQ_4_8 | |
| illness_spfy_lt | String | 250 | Recommended | If there was any suggestion that the loss of skills was associated with a physical illness please describe | EDQ_4_8B | ||
| loss_skills_stressors | Integer | Recommended | Was there any suggestion that the loss of skills was associated with other stressors such as birth of a sibling death in the family moving or other environmental events/factors? | 0 :: 1 | 0 = no 1 = yes | EDQ_4_9 | |
| loss_skills_stressors_lt | String | 250 | Recommended | If there was any suggestion that the loss of skills was associated with other stressors please describe | EDQ_4_9B | ||
| adaptive_losses | Integer | Required | The number of yes responses between the elements feed_self_loss, dress_self_loss and toilets_kills_loss | 0::3 | |||
| communication_losses | Integer | Required | The number of yes responses between the elements phrase_lost, meaning_phrase_lost, gesture_lost and understand_lang_lost | 0::4 | |||
| communications_scale | Integer | Required | Communications Scale for EDQ | ||||
| early_develop_summ_score | Integer | Required | Social Total + Communication Total | 0 :: 90 | |||
| motor_losses | Integer | Required | The number of yes responses between the elements motor_small_obj_loss, carry_ball_loss and able_phys_loss | 0 ; 1; 2; 3 | |||
| regression_summ_score | Integer | Required | Total losses in Social and Communication losses | 1 :: 10 | |||
| repetitive_behavior_scale | Integer | Required | Repetitive Behavior Scale for EDQ | ||||
| social_losses | Integer | Required | The number of yes responses between the elements fam_interest_loss, smile_response_loss, reach_parent_loss, eye_contact_loss, game_interest_loss and pretend_play_loss | 0::6 | |||
| social_scale | Integer | Required | Social Scale for EDQ | ||||
| ethnicity | String | 30 | Required | Ethnicity of participant | Hispanic or Latino; Not Hispanic or Latino; Unknown | ||
| respondent | String | 20 | Required | FIGS Y1: Respondent (mother or father) | Mother; Father; Both; Other |
