| Short Name: | fxs_demographics |
|---|---|
| Version: |
FXS Demographics
Demographic information as defined by Dr. Hessl's group from the Fragile X Project, MIND Institute, University of California, Davis
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| ElementName | DataType | Size | Required | ElementDescription | ValueRange | Notes | Aliases |
|---|---|---|---|---|---|---|---|
| subjectkey | GUID | Required | The NDAR Global Unique Identifier (GUID) for subjects which identifies a subject in NDAR | NDAR* | |||
| interview_age | Integer | Required | Age in months at the time of the interview/test/sampling/imaging. | 0 :: 1200 | Age is rounded to chronological month If the research participant is 15 days old at time of interview the appropriate value would be 0 months if the participant is 16 days old the value would be 1 month | ||
| src_subject_id | String | 20 | Required | The site or study's subject identification | |||
| gender | String | 50 | Required | Gender | M; F | ||
| fmr1_status | String | 20 | Required | FMR1 DNA group | Full mutation; mosaic; premutation; unknown | premutation - mother of child with Fragile X | |
| iqtestname | String | 30 | Recommended | Name of IQ test given to participant | |||
| race | String | 30 | Recommended | Race of participant | American Indian/Alaska Native; Asian; Hawaiian or Pacific Islander; Black or African American; White; More than one race; Unknown or not reported | ||
| ethnicity | String | 30 | Recommended | Ethnicity of participant | Hispanic or Latino; Not Hispanic or Latino; Unknown | ||
| iq | Integer | Recommended | IQ score as defined by the completion of an appropriate assessement | fsiq | |||
| iq_date | Date | Recommended | Date that IQ test was given | ||||
| fxs_site_id | Integer | Required | Fragile X project site 1=UC Davis, 2=Stanford, 3=Rush, 4=Duke, 5=UNC, 6=Colorado, 7=Johns Hopkins, 8=Wisconsin, 9=Indiana, 10=Other | 1 :: 10 | |||
| fxs_site_name_other | String | 50 | Optional | Enter the site name if the code of 10 is used for the fxs_site_id data element to indicate a site that is not described with an id number |
