| Short Name: | ndar_subject |
|---|---|
| Version: |
NDAR Subject
general and demographic information for study subjects
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| ElementName | DataType | Size | Required | Condition | ElementDescription | ValueRange | Notes | Aliases |
|---|---|---|---|---|---|---|---|---|
| subjectkey | GUID | Required | The NDAR Global Unique Identifier (GUID) for subjects which identifies a subject in NDAR | NDAR* | CandidateGUID | |||
| src_subject_id | String | 20 | Required | The site or study's subject identification | IBISID | |||
| interview_date | Date | Required | Date on which the interview/genetic test/sampling/imaging was completed | Required field | Date_taken | |||
| interview_age | Integer | Required | Age in months at the time of the interview/test/sampling/imaging. | 0 :: 1200 | Age is rounded to chronological month If the research participant is 15 days old at time of interview the appropriate value would be 0 months if the participant is 16 days old the value would be 1 month | Candidate_Age_in_Months | ||
| gender | String | 50 | Required | Gender | M; F | |||
| race | String | 30 | Required | Race of participant | American Indian/Alaska Native; Asian; Hawaiian or Pacific Islander; Black or African American; White; More than one race; Unknown or not reported | |||
| ethnic_group | String | 255 | Recommended | Ethnic group | ||||
| phenotype | String | 200 | Required | Phenotype for the subject | SubprojectID, Cohort | |||
| phenotype_description | String | 4000 | Required | Description of the phenotype for the subject | ||||
| twins_study | String | 100 | Required | Is this study of twins? | Yes; No | |||
| sibling_study | String | 50 | Required | Was it sibling study? Study of sibling(s) of autistic child. | Yes; No | |||
| family_study | String | 100 | Required | Was it family study? Study of biological mother, biological father and/or sibling of autistic child. | Yes; No | |||
| family_user_def_id | String | 20 | Conditional | #family_study=Yes | Family Pedigree User-Defined ID | |||
| subjectkey_mother | GUID | Recommended | The NDAR Global Unique Identifier (GUID) for subject's biological mother | NDAR* | ||||
| src_mother_id | String | 100 | Conditional | #subjectkey_mother!=NULL | site specific mother ID | |||
| subjectkey_father | GUID | Recommended | The NDAR Global Unique Identifier (GUID) for subject's biological father | NDAR* | ||||
| src_father_id | String | 100 | Conditional | #subjectkey_father!=NULL | site specific father ID | |||
| subjectkey_sibling1 | GUID | Conditional | #sibling_study=Yes | The NDAR Global Unique Identifier (GUID) for subject's sibling | NDAR* | ProbandGUID | ||
| src_sibling1_id | String | 100 | Conditional | #sibling_study=Yes | site specific sibling1 ID | |||
| sibling_type1 | String | 255 | Conditional | #sibling_study=Yes | Type of Sibling | Full Brother FB; Half Mother Brother HMB; Half Father Brother HFB; Full Sister FS; Half Mother Sister HMS; Half Father Sister HFS | ProbandGender | |
| subjectkey_sibling2 | GUID | Optional | The NDAR Global Unique Identifier (GUID) for subject's sibling | NDAR* | ||||
| src_sibling2_id | String | 100 | Optional | site specific sibling2 ID | ||||
| sibling_type2 | String | 255 | Optional | sibling type | Full Brother FB; Half Mother Brother HMB; Half Father Brother HFB; Full Sister FS; Half Mother Sister HMS; Half Father Sister HFS | |||
| subjectkey_sibling3 | GUID | Optional | The NDAR Global Unique Identifier (GUID) for subject's sibling | NDAR* | ||||
| src_sibling3_id | String | 100 | Optional | site specific sibling3 ID | ||||
| sibling_type3 | String | 255 | Optional | sibling type | Full Brother FB; Half Mother Brother HMB; Half Father Brother HFB; Full Sister FS; Half Mother Sister HMS; Half Father Sister HFS | |||
| subjectkey_sibling4 | GUID | Optional | The NDAR Global Unique Identifier (GUID) for subject's sibling | NDAR* | ||||
| src_sibling4_id | String | 100 | Optional | site specific sibling4 ID | ||||
| sibling_type4 | String | 255 | Optional | sibling type | Full Brother FB; Half Mother Brother HMB; Half Father Brother HFB; Full Sister FS; Half Mother Sister HMS; Half Father Sister HFS | |||
| zygosity | String | 255 | Conditional | #twins_study=Yes | Zygosity | monozygous; dizygous; trizygotic | ||
| sample_taken | String | 50 | Required | Was a sample taken at this interview? | Yes; No | |||
| sample_id_original | String | 100 | Conditional | #sample_taken=Yes | Original, user-defined Sample ID | |||
| sample_description | String | 3500 | Conditional | #sample_taken=Yes | Sample description: tissue type, i.e. blood, saliva, brain etc. | whole blood; saliva; brain; urine; serum; plasma; CSF; IPS; Fibroblast; Neuronal Progenitor; skin biopsy; temporal cortex; lymphoblastoid cell line | ||
| biorepository_name | String | 100 | Conditional | #sample_taken=Yes | Biorepository where sample is stored | |||
| sample_id_biorepository | String | 100 | Conditional | #sample_taken=Yes | Biorepository Sample ID | |||
| patient_id_biorepository | String | 100 | Conditional | #biorepository_name!=NULL | Biorepository Patient ID | |||
| cell_id_original | String | 100 | Optional | Original, user-defined cell ine ID | ||||
| cell_id_biorepository | String | 100 | Optional | Biorepository cell line ID | ||||
| agre_subject_id | String | 100 | Recommended | AGRE subject ID | ||||
| sfari_subject_id | String | 100 | Recommended | SFARI subject ID | ||||
| cpea_site | String | 100 | Recommended | CPEA/STAART site name | ||||
| cpea_id | String | 100 | Recommended | CPEA/STAART subject ID | ||||
| blood_id | String | 100 | Recommended | blood ID | ||||
| adi_dx | String | 15 | Recommended | ADI: Diagnosis | ||||
| ados_dx | String | 15 | Recommended | ADOS Diagnosis | ||||
| agp_family_id | String | 100 | Recommended | AGP family ID | ||||
| agp_subject_id | String | 100 | Recommended | AGP subject ID | ||||
| site | String | 20 | Recommended | Site | Study Site |
