National Database for Autism Research
Short Name: parent_satisfy_rate
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Parent Satisfaction Rating

A Parent Satisfaction Rating form as defined by Sally Rogers' lab at UC, Davis

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ElementName DataType Size Required ElementDescription ValueRange Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for subjects which identifies a subject in NDAR NDAR*
src_subject_id String 20 Required The site or study's subject identification
interview_date Date Required Date on which the interview/genetic test/sampling/imaging was completed Required field Addate
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0 :: 1200 Age is rounded to chronological month If the research participant is 15 days old at time of interview the appropriate value would be 0 months if the participant is 16 days old the value would be 1 month ADagemos
interview_chrono_age Integer Recommended Interview Chronological Age 0 :: 1200
interview_adj_age Integer Recommended Interview Adjusted Age 0 :: 1200
gender String 50 Required Gender M; F SEX
comments_misc String 255 Optional Miscellaneous comments on study, interview, methodology relevant to this form data
respondent String 20 Recommended FIGS Y1: Respondent (mother or father) Mother; Father; Both; Other
ps1 Integer Recommended How easy was it for you to conduct ESDM intervention with your child? (Rate 1=not easy; 5=very easy)
ps2 Integer Recommended How much do you think the ESDM intervention helps your child use spontaneous speech? (5= very much)
ps3 Integer Recommended How easily is ESDM intervention incorporated into your daily routine?
ps4 Integer Recommended How much does this intervention affect the speed of learning spontaneous speech for your child?
ps5 Integer Recommended Overall, my feelings about the ESDM intervention project are that I am:
ps6 Integer Recommended My feelings about my child's progress since beginning ESDM intervention are that my child has:
ps7 Integer Recommended Would you recommend this intervention to other parents?
ps8 Integer Recommended I feel that the paperwork is being done in a timely manner (data collection, binder updates)?
ps9 Integer Recommended I feel that the program provided adequate training to the intervention staff working with us.
ps10 Integer Recommended I feel that my questions and concerns are brought to the intervention staff's attention and are answ
ps11 Integer Recommended In terms of promptness and attendance, I feel that the intervention staff is:
ps12 Integer Recommended In dealing with my family, I feel that the intervention staff have acted: (professionally?)
ps13 Integer Recommended In dealing with my family, I feel that the intervention staff have acted:(respectfully?)
ps14 Integer Recommended I feel that the intervention staff have a warm and caring attitude toward my family.
ps15a Integer Recommended Was the time commitment a barrier to your participation in this program?
ps15ac String 100 Recommended Notes (regarding the time commitment of the program)
ps15b Integer Recommended Was scheduling a barrier to your participation in this program?
ps15bc String 100 Recommended Notes (regarding scheduling of the program)
ps15c Integer Recommended Were associated costs a barrier to your participation in this program?
ps15cc String 100 Recommended Notes (regarding associated costs of the program)
ps15d Integer Recommended Were the needs of an older child with autism a barrier to your participation in this program?
ps15dc String 100 Recommended Notes (reagrding the needs of an older child with autism)
ps15e Integer Recommended well matched to my own style of interacting with and parenting my child
ps15ec String 100 Recommended Notes (regarding matching to parent's style of interaction with child)
ps15fs String 100 Recommended Other, specify (barrier to your participation in the program)
ps15f Integer Recommended Other (barrier to your participation in the program)
ps15fc String 100 Recommended Notes (regarding other barriers to program participation)
ps15gs String 100 Recommended Other #2, specify (barrier to your participation in the program)
ps15g Integer Recommended Other #2 (barrier to your participation in the program)
ps15gc String 100 Recommended Notes (regarding other barriers to program participation)
ps16 String 255 Recommended Are there any other comments or concerns about you or your child's participation in Early Steps Stud