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NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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This is a U.S. Government computer system, which may be accessed and used only for authorized Government business by authorized personnel. Unauthorized access or use of this computer system may subject violators to criminal, civil, and/or administrative action.

All information on this computer system may be intercepted, recorded, read, copied, and disclosed by and to authorized personnel for official purposes, including criminal investigations. Such information includes sensitive data encrypted to comply with confidentiality and privacy requirements. Access or use of this computer system by any person, whether authorized or unauthorized, constitutes consent to these terms. There is no right of privacy in this system.

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Request Access

Summary information on the data shared in NDAR is available on the NDAR homepage without the need for an NDAR account. For access to detailed human subjects data, you must be sponsored by an NIH recognized institution with a Federal Wide Assurance and have a research related need to access NDAR data. NDAR federated repositories have their own access requirements.

To request access to NDAR shared data, an investigator must complete a Data Use Certification signed by the investigator and an institutional official with signature authority. If you do not know your institution's signing official, contact us at The NDA Help Desk. Additional research staff from the same institution may be added to the Data Use Certification by completing the Senior/Key Person Profile (Collaborating Investigator) section. There is no limit to the number of additional staff members who can be added to a data access request so only one request is needed for your entire lab.

Create an account by completing Request Access and upload the scanned Data Use Certification.

Once completed, the request is reviewed by the Data Access Committee (DAC) established to oversee access to the NDAR shared data. Refer to SOP-04 Data Access Permission Request for the entire procedure.

Those approved will have access to NDAR for one year after which you will need to reapply. Those publishing are required to acknowledge NDAR as defined in the Data Use Certification. Additionally, the sharing of an NDAR Study is strongly encouraged to provide proper attribution to those who initially collected the data.

Last Updated: March 6, 2014