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NIMH Data Archive
NDA ABCD CCF OAI NIAAADA AMP SCZ HEAL

Family Outcomes Survey

0 Shared Subjects

N/A
Clinical Assessments
Questionnaire
02/25/2016
fos01
02/29/2016
View Change History
01
Definition
Submission Template
Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR*
src_subject_id String 20 Required Subject ID how it's defined in lab/project
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY fos_date
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0::1440 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
sex String 20 Required Sex of subject at birth M;F; O; NR M = Male; F = Female; O=Other; NR = Not reported gender
Query fos_sec_a_1 Integer Recommended We know the next steps for our child's growth and learning. 0::4 0=Not at all; 1=A little; 2=Somewhat; 3=Almost; 4=Completely
Query fos_sec_a_2 Integer Recommended We understand our child's strengths and abilities. 0::4 0=Not at all; 1=A little; 2=Somewhat; 3=Almost; 4=Completely
Query fos_sec_a_3 Integer Recommended We understand our child's delays and/or needs. 0::4 0=Not at all; 1=A little; 2=Somewhat; 3=Almost; 4=Completely
Query fos_sec_a_4 Integer Recommended We are able to tell when our child is making progress. 0::4 0=Not at all; 1=A little; 2=Somewhat; 3=Almost; 4=Completely
Query fos_sec_a_5 Integer Recommended We are able to find and use the services and programs available to us. 0::4 0=Not at all; 1=A little; 2=Somewhat; 3=Almost; 4=Completely
Query fos_sec_a_6 Integer Recommended We know our rights related to our child's special needs. 0::4 0=Not at all; 1=A little; 2=Somewhat; 3=Almost; 4=Completely
Query fos_sec_a_7 Integer Recommended We know who to contact and what to do when we have questions or concerns. 0::4 0=Not at all; 1=A little; 2=Somewhat; 3=Almost; 4=Completely
Query fos_sec_a_8 Integer Recommended We know what options are available when our child leaves the program. 0::4 0=Not at all; 1=A little; 2=Somewhat; 3=Almost; 4=Completely
Query fos_sec_a_9 Integer Recommended We are comfortable asking for services & supports that our child and family need. 0::4 0=Not at all; 1=A little; 2=Somewhat; 3=Almost; 4=Completely
Query fos_sec_a_10 Integer Recommended We are able to help our child get along with others. 0::4 0=Not at all; 1=A little; 2=Somewhat; 3=Almost; 4=Completely
Query fos_sec_a_11 Integer Recommended We are able to help our child learn new skills. 0::4 0=Not at all; 1=A little; 2=Somewhat; 3=Almost; 4=Completely
Query fos_sec_a_12 Integer Recommended We are able to help our child take care of his/her needs. 0::4 0=Not at all; 1=A little; 2=Somewhat; 3=Almost; 4=Completely
Query fos_sec_a_13 Integer Recommended We are able to work on our child's goals during everyday routines. 0::4 0=Not at all; 1=A little; 2=Somewhat; 3=Almost; 4=Completely
Query fos_sec_a_14 Integer Recommended We are comfortable talking to family and friends about our child's needs. 0::4 0=Not at all; 1=A little; 2=Somewhat; 3=Almost; 4=Completely
Query fos_sec_a_15 Integer Recommended We have friends or family members who listen and care. 0::4 0=Not at all; 1=A little; 2=Somewhat; 3=Almost; 4=Completely
Query fos_sec_a_16 Integer Recommended We are able to talk with other families who have a child with similar needs. 0::4 0=Not at all; 1=A little; 2=Somewhat; 3=Almost; 4=Completely
Query fos_sec_a_17 Integer Recommended We have friends or family members we can rely on when we need help. 0::4 0=Not at all; 1=A little; 2=Somewhat; 3=Almost; 4=Completely
Query fos_sec_a_18 Integer Recommended I am able to take care of my own needs and do things that I enjoy. 0::4 0=Not at all; 1=A little; 2=Somewhat; 3=Almost; 4=Completely
Query fos_sec_a_19 Integer Recommended Our child participates in social, recreational, or religious activities that we want. 0::4 0=Not at all; 1=A little; 2=Somewhat; 3=Almost; 4=Completely
Query fos_sec_a_20 Integer Recommended We are able to do things we enjoy together as a family. 0::4 0=Not at all; 1=A little; 2=Somewhat; 3=Almost; 4=Completely
Query fos_sec_a_21 Integer Recommended Our medical and dental needs are met. 0::4 0=Not at all; 1=A little; 2=Somewhat; 3=Almost; 4=Completely
Query fos_sec_a_22 Integer Recommended Our child care needs are met. 0::4 0=Not at all; 1=A little; 2=Somewhat; 3=Almost; 4=Completely
Query fos_sec_a_23 Integer Recommended Our transportation needs are met. 0::4 0=Not at all; 1=A little; 2=Somewhat; 3=Almost; 4=Completely
Query fos_sec_a_24 Integer Recommended Our food, clothing, housing, needs are met. 0::4 0=Not at all; 1=A little; 2=Somewhat; 3=Almost; 4=Completely
fos_ei String 5 Recommended Is your child current receiving Early Intervention (EI) services? Yes;No
Query fos_sec_b_1 Integer Recommended How helpful has early intervention been in giving you useful information about the services and supports for you and your child? 0::4 0=Not at all helpful; 1=A little helpful; 2=Somewhat helpful; 3=Very helpful; 4=Extremely helpful
Query fos_sec_b_2 Integer Recommended How helpful has early intervention been in giving you useful information about your rights related to your child's special needs? 0::4 0=Not at all helpful; 1=A little helpful; 2=Somewhat helpful; 3=Very helpful; 4=Extremely helpful
Query fos_sec_b_3 Integer Recommended How helpful has early intervention been in giving you useful information about who to contact when you have questions or concerns? 0::4 0=Not at all helpful; 1=A little helpful; 2=Somewhat helpful; 3=Very helpful; 4=Extremely helpful
Query fos_sec_b_4 Integer Recommended How helpful has early intervention been in giving you useful information about available options when your child leaves the program? 0::4 0=Not at all helpful; 1=A little helpful; 2=Somewhat helpful; 3=Very helpful; 4=Extremely helpful
Query fos_sec_b_5 Integer Recommended How helpful has early intervention been in explaining your rights in ways that are easy to understand? 0::4 0=Not at all helpful; 1=A little helpful; 2=Somewhat helpful; 3=Very helpful; 4=Extremely helpful
Query fos_sec_b_6 Integer Recommended How helpful has early intervention been in giving you useful information about your child's delays or needs? 0::4 0=Not at all helpful; 1=A little helpful; 2=Somewhat helpful; 3=Very helpful; 4=Extremely helpful
Query fos_sec_b_7 Integer Recommended How helpful has early intervention been in listening to you and respecting your choices? 0::4 0=Not at all helpful; 1=A little helpful; 2=Somewhat helpful; 3=Very helpful; 4=Extremely helpful
Query fos_sec_b_8 Integer Recommended How helpful has early intervention been in connecting you with other services or people who can help your child and family? 0::4 0=Not at all helpful; 1=A little helpful; 2=Somewhat helpful; 3=Very helpful; 4=Extremely helpful
Query fos_sec_b_9 Integer Recommended How helpful has early intervention been in talking with you about your child and family's strengths and needs? 0::4 0=Not at all helpful; 1=A little helpful; 2=Somewhat helpful; 3=Very helpful; 4=Extremely helpful
Query fos_sec_b_10 Integer Recommended How helpful has early intervention been in talking with you about what you think is important for your child and your family? 0::4 0=Not at all helpful; 1=A little helpful; 2=Somewhat helpful; 3=Very helpful; 4=Extremely helpful
Query fos_sec_b_11 Integer Recommended How helpful has early intervention been in developing a good relationship with you and your family? 0::4 0=Not at all helpful; 1=A little helpful; 2=Somewhat helpful; 3=Very helpful; 4=Extremely helpful
Query fos_sec_b_12 Integer Recommended How helpful has early intervention been in giving you useful information about how to help your child get along with others? 0::4 0=Not at all helpful; 1=A little helpful; 2=Somewhat helpful; 3=Very helpful; 4=Extremely helpful
Query fos_sec_b_13 Integer Recommended How helpful has early intervention been in giving you useful information about how to help your child learn new skills? 0::4 0=Not at all helpful; 1=A little helpful; 2=Somewhat helpful; 3=Very helpful; 4=Extremely helpful
Query fos_sec_b_14 Integer Recommended How helpful has early intervention been in giving you useful information about how to help your child take care of his/her needs? 0::4 0=Not at all helpful; 1=A little helpful; 2=Somewhat helpful; 3=Very helpful; 4=Extremely helpful
Query fos_sec_b_15 Integer Recommended How helpful has early intervention been in identifying things you do that help your child learn and grow? 0::4 0=Not at all helpful; 1=A little helpful; 2=Somewhat helpful; 3=Very helpful; 4=Extremely helpful
Query fos_sec_b_16 Integer Recommended How helpful has early intervention been in sharing ideas on how to include your child in daily activities? 0::4 0=Not at all helpful; 1=A little helpful; 2=Somewhat helpful; 3=Very helpful; 4=Extremely helpful
Query fos_sec_b_17 Integer Recommended How helpful has early intervention been in working with you to know when your child is making progress? 0::4 0=Not at all helpful; 1=A little helpful; 2=Somewhat helpful; 3=Very helpful; 4=Extremely helpful
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.

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