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NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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The filters you have selected from various query interfaces will be stored here, in the 'Filter Cart'. The database will be queried using filters added to your 'Filter Cart', when multiple filters are defined, each will be executed using 'AND' logic, so with each filter that is applied the result set gets smaller.

From the 'Filter Cart' you can inspect each of the filters that have been defined, and you also have the option to remove filters. The 'Filter Cart' itself will display the number of filters applied along with the number of subjects that are identified by the combination of those filters. For example a GUID filter with two subjects, followed by a GUID filter for just one of those subjects would return only data for the subject that is in both GUID filters.

If you have a question about the filter cart, or underlying filters please contact the help desk at The NDA Help Desk

Description
Value Range
Notes
Data Structures with shared data
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ACCR Demographics

accrdemo

01

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Element NameData TypeSizeRequiredDescriptionValue RangeNotesAliases
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*
src_subject_idString20RequiredSubject ID how it's defined in lab/project
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging was completed. MM/DD/YYYYRequired field
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.child_age
genderString20RequiredSex of the subjectM;FM = Male; F = Femalechild_gender
version_formString100RecommendedForm used
relationshipIntegerRecommendedRelationship of respondent to individual1::84; -9991 = Biological mom; 2 = Biological dad; 3 = Grandparent; 4 = Special education (sped) teacher; 5 = General education teacher; 6 = Occupational therapist; 7 = Speech and language therapist; 8 = Behavioral therapist; 9 = Paraprofessional; 10 = Aide; 11 = Principal; 12 = Administrator; 13 = Other; 14 = Content teacher; 15 = Parent center director; 16 = Self; 17=Adoptive mother; 18=Adoptive father; 19=Foster mother; 20 = Foster father; 21=Grandmother; 22=Grandfather; 23=Step-mother; 24 = Step-father; 25=Aunt; 26=Uncle; 27=Missing Data; 28=Both parents;31= Grandmother from mother side; 32= Grandfather from mother side; 33= Grandmother from father side; 34= Grandfather from father side; 36= Brother; 37= Sister; 38= Cousin; 39= female caregiver; 40=male caregiver; 41=Female child; 42=Male child; 43=Spouse/Mate; 44=Friend; 45=Parent; 46=Significant other; 47=Sibling; 48=Son/Daughter; 49=Son-in-law/Daughter-in law; 50=Other Relative; 51=Paid caregiver; 52=Friends; 90= Other, specify; -999= Missing; 53=Roommate; 54=Supervisor; 55=mother's boyfriend; 56=other parental figure; 57=Summary; 58=counselor ; 59 = other female relative; 60 = other male relative; 61 = non-relative ; ;62=Maternal Aunt; 63=Maternal Uncle; 64=Maternal Cousin; 65 = Paternal Aunt; 66=Paternal Uncle; 67=Paternal Cousin ;68=Biological/Adoptive Mother and Grandmother; 69=Biological/Adoptive Mother and Stepmother and Grandmother; 70=Biological/Adoptive Mother and Grandmother and Foster Father; 71=Biological/Adoptive Mother and Stepmother and Foster Mother; 72=Biological/Adoptive Mother and Foster Mother; 73=Biological/Adoptive Mother and Biological/Adoptive Father; 74=Biological/Adoptive Mother and Stepmother and Biological/Adoptive Father; 75=Biological/Adoptive Mother and Other; 76=Biological/Adoptive Mother and Stepmother and Stepfather; 77=Biological/Adoptive Mother and Stepfather; 78=Biological/Adoptive Mother and Grandfather; 79=Biological/Adoptive Mother and Stepmother and Foster Father; 80=Biological/Adoptive Mother and Stepmother; 81=Guardian, female; 82=Other female; 83=Guardian, male; 84=Other male; 85=Other/Grandparent/Nannyresp_rel
resp_rel_otherString100RecommendedIf not already listed, what is your relationship to the child?
resp_genderString2RecommendedWhat is your gender?M;F
resp_ageIntegerRecommendedRespondent's age0::1200In months
resp_religionIntegerRecommendedWhat is your religion?1::61 = Catholic; 2 = Protestant; 3 = Muslim; 4 = Born-again/Saved; 5 = None; 6 = Other (specify)
resp_religion_otherString100RecommendedIf not already listed, what is your religion?
child_religionIntegerRecommendedWhat is child's religion?1::61 = Catholic; 2 = Protestant; 3 = Muslim; 4 = Born-again/Saved; 5 = Not religious; 6 = Other (specify)
religion_specString50RecommendedSpecify child's religion, if 'other'
mother_aliveIntegerRecommendedIs your biological mother still alive?0;10 = No; 1 = Yes
father_aliveIntegerRecommendedIs your biological father still alive?0;10 = No; 1 = Yes
stay_withString100RecommendedWho does child stay with at home?
num_clothesIntegerRecommendedHow many sets of clothes do you have?0::30 = None; 1 = One; 2 = Two; 3 = More than two
num_shoesIntegerRecommendedHow many pairs of shoes do you have?0::30 = None; 1 = One pair; 2 = Two pairs; 3 = More than two pairs
own_blanketIntegerRecommendedDo you have your own blanket?0;10 = No; 1 = Yes
wk_meatIntegerRecommendedIn last week how often did you eat meat or fish?0::40 = None; 1 = Once; 2 = Twice; 3 = Three times; 4 = Every day
wk_mealsIntegerRecommendedIn the last 7 days, what is the average number of meals (solid food) you would take per day?0::30 = None; 1 = One; 2 = Two; 3 = Three
wk_sugarIntegerRecommendedIn the last 7 days, how many times did you drink tea with sugar?0::40 = None; 1 = One; 2 = Two; 3 = Three; 4 = Every day
breakfast_todayString200RecommendedThinking about today, what did you have for breakfast today?
house_elecIntegerRecommendedDoes the house you live in have electricity?0;10 = No; 1 = Yes
wrkfrpayIntegerRecommendedWork for Pay?0;1; 90=No; 1=Yes; 9=NKwork_pay
work_pay_salString200RecommendedWhat do you get in return for your work?
work_school_freqString200RecommendedHow often did you work in the last school term?
savingIntegerRecommendedDo you save money anywhere?0;10 = No; 1 = Yes
saving_whereString100RecommendedIf you save money, where?
saving_cgIntegerRecommendedDo you know whether your parents/caregivers/guardians are saving for you?0;10 = No; 1 = Yes
saving_cg_whereString100RecommendedIf your parents/caregivers/guardians are saving for you, where?
child_livewithFloatRecommendedFor how long has the child lived with you?Record in years
children_schoolIntegerRecommendedHow many of the children in the household, age five and older, attend school?Number of children in school
children_noschoolIntegerRecommendedHow many of the children in the household, age five and older, DO NOT attend school?Number of children not in school
cbc_vii_1String500RecommendedReason for Child not to Attend Schoolchildren_noschool_why
num_femaleIntegerRecommendedHow many female adults reside in the child's home?
num_maleIntegerRecommendedHow many male adults reside in the child's home?
num_under18IntegerRecommendedHow many children under 18 years reside in the home (including child being evaluated)?
primary_cgIntegerRecommendedWho is the child's primary caregiver?1::51 = Mother; 2 = Father; 3 = Grandparent; 4 = Mother & Father; Other (specify)
primary_cg_specIntegerRecommendedIf not already listed, who is the child's primary caregiver?
food_riskIntegerRecommendedWithin the past 12 months, how often were you worried whether food would run out before you got money to buy more?1::31 = Most of the time; 2 = Sometimes; 3 = Never
food_exhaustedIntegerRecommendedWithin the past 12 months, how often did the food not last and you didn't have money to get more?1::31 = Most of the time; 2 = Sometimes; 3 = Never
observance_freqIntegerRecommendedHow often do you go to Church/Mosque?1::41 = Almost every week; 2 = Less than once a week, but more than just on holidays (e.g., Christmas, Easter); 3 = Just on holidays; 4 = Almost never
fsprelsIntegerRecommendedWhich category best describes your current relationship status?1::91= Single/never married; 2= Married; 3= Living together; 4= Domestic partnership; 5= Separated; 6= Divorced; 7= Widowed; 8= Engaged; 9=Otherresp_relstatus
resp_relstatus_otherString300RecommendedIf not already listed, what is your relationship status?
resp_eduIntegerRecommendedWhat is the highest level of education you have attained?1::91 = Primary; 2 = Lower Secondary (S1-S4); 3 = Upper Secondary (S5-S6); 4 = Some College/Certificate; 5 = Diploma; 6 = Vocational/Trade School; 7 = Bachelor's degree; 8 = Some Graduate or Professional School; 9 = Completed Graduate or Professional School
demo_caregiver_employIntegerRecommendedCaregiver's current employment status1::11;971= Not employed/Stay-at-home parent ; 2= Self-employed part-time ; 3= Self-employed full time ; 4= Employed part-time ; 5= Employed full-time ; 6= Employed full-time and second job ; 97= Don't know ; 7 = Self-employed; 8 = Student; 9 = Retired; 10 = Unemployed; 11 = Otherresp_occu
resp_occu_otherString100RecommendedIf not already listed, what is your employment status?
resp_supportIntegerRecommendedDo you financially support your family?0;10 = No; 1 = Yes
resp_support_elseIntegerRecommendedDoes someone else (apart from yourself) financially support your family?0;10 = No; 1 = Yes
resp_support_else_yString100RecommendedIf someone else (apart from yourself) financially supports your family, specify relationship
resp_support_else_occuIntegerRecommendedIs the other person financially supporting your family currently employed?0;10 = No; 1 = Yes
resp_support_else_occu_yString100RecommendedIf the other person financially supporting your family is employed, then what does she/he (you) do?
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.

Distribution for DataStructure: accrdemo01 and Element:
Chart Help

Filters enable researchers to view the data shared in NDA before applying for access or for selecting specific data for download or NDA Study assignment. For those with access to NDA shared data, you may select specific values to be included by selecting an individual bar chart item or by selecting a range of values (e.g. interview_age) using the "Add Range" button. Note that not all elements have appropriately distinct values like comments and subjectkey and are not available for filtering. Additionally, item level detail is not always provided by the research community as indicated by the number of null values given.

Filters for multiple data elements within a structure are supported. Selections across multiple data structures will be supported in a future version of NDA.