|
subjectkey |
GUID |
|
Required |
The NDAR Global Unique Identifier (GUID) for research subject |
NDAR*
|
|
|
|
src_subject_id |
String |
20
|
Required |
Subject ID how it's defined in lab/project |
|
|
catieid |
|
interview_date |
Date |
|
Required |
Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY |
|
|
|
|
interview_age |
Integer |
|
Required |
Age in months at the time of the interview/test/sampling/imaging. |
0::1440
|
Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
|
|
|
sex |
String |
20
|
Required |
Sex of subject at birth |
M;F; O; NR
|
M = Male; F = Female; O=Other; NR = Not reported
|
gender |
Query
|
visit |
String |
60
|
Recommended |
Visit name |
|
|
|
Query
|
visitid |
Integer |
|
Recommended |
MetaTrial Visit ID |
|
System variable: unique code for each type of visit -use to merge files
|
|
Query
|
adl01 |
Integer |
|
Recommended |
Regarding eating, which best describes (S) usual performance? |
0;1;2;3
|
0 = Usually or always was fed by someone else; 1 = Used fingers to eat; 2 = Used a fork or spoon, but not a knife, to eat; 3 = Ate without physical help, and used a knife
|
|
Query
|
adl02 |
Integer |
|
Recommended |
Regarding walking (or getting around in a wheelchair), which best describes his/her usual performance? |
0;1;2;3
|
0 = Required physical help to walk or transfer; 1 = Transferred from bed to chair without help; 2 = Mobile across a room without physica help; 3 = Mobile outside of home without physical help
|
|
Query
|
adl03 |
Integer |
|
Recommended |
Regarding bowel and bladder function |
0;1;2;3
|
0 = Needed physical help, and was usually incontinent; 1 = Needed physical help, and was usually continent; 2 = Needed supervision, but no physical help; 3 = Did everything necessary without supervision or help
|
|
Query
|
adl04 |
Integer |
|
Recommended |
Regarding bathing, which best describes his/her usual performance? |
0;1;2;3
|
0 = Needed to be bathed completely;
1 = Needed minor physical help (e.g., washing hair) to bathe completely; 2 = No physical help, but needed supervision/reminders to bathe completely; 3 = Bathed without reminding or physical help
|
|
Query
|
adl05 |
Integer |
|
Recommended |
Regarding grooming, which best describes his/her optimal performance |
0;1;2;3
|
0 = Needed help for grooming of hair, face, hands, and fingernails; 1 = Kept face and hands clean without physical help; 2 = Brushed or combed hair without physical help; 3 = Cleaned and cut fingernails without physical help
|
|
Query
|
adl06a |
Integer |
|
Recommended |
Regarding dressing, did subject select his/her first set of clothes for the day? |
0;1;9
|
0 = No; 1 = Yes; 9 = Don't Know
|
|
Query
|
adl06aa |
Integer |
|
Recommended |
Which best describes his/her usual performance? |
1;2;3
|
1 = With physical help; 2 = With supervision; 3 = Without supervision or help
|
|
Query
|
adl06b |
Integer |
|
Recommended |
Regarding physically getting dressed, which best describes his/her usual performance? |
0::4
|
0 = Always need help, regardless of the type of clothing; 1 = Dressed without help if clothes needed no fastening or buttoning; 2 = Needed physical help only for buttons, clasps, or shoelaces; 3 = Dressed completely with supervision, but without physical help; 4 = Dressed completely without supervision or physical help
|
|
Query
|
adl07 |
Integer |
|
Recommended |
Did subject use a telephone? |
0;1;9
|
0 = No;
1 = Yes; 9 = Don't Know
|
|
Query
|
adl07a |
Integer |
|
Recommended |
Which best describes his/her highest level of performance? |
1;2;3;4;5
|
1 = Did not answer the phone, but spoke when put on the line; 2 = Answered the phone; did not make calls; 3 = Made calls only to well-known numbers, by using directory or list; 4 = Made calls only to well-known numbers, without referring to a directory or list; 5 = Made calls after looking in white or yellow pages, or by dialing directory assisstance
|
telephonelist |
Query
|
adl08 |
Integer |
|
Recommended |
Did subject watch television? |
0;1;9
|
0 = No;
1 = Yes; 9 = Don't Know
|
|
Query
|
adl08a |
Integer |
|
Recommended |
Did subject usually select or ask for different programs or his/her favorite show? |
0;1;9
|
0 = No; 1 = Yes; 9 = Don't Know
|
|
Query
|
adl08b |
Integer |
|
Recommended |
Did subject usually talk about the content of a program while watching it? |
0;1;9
|
0 = No; 1 = Yes; 9 = Don't Know
|
|
Query
|
adl08c |
Integer |
|
Recommended |
Did subject talk about the content of a program within a day (24 hours) after watching it? |
0;1;9
|
0 = No; 1 = Yes; 9 = Don't Know
|
|
Query
|
adl09 |
Integer |
|
Recommended |
Did subject ever appear to pay attention to conversation or small talk for at least 5 minutes? |
0;1;9
|
0 = No; 1 = Yes; 9 = Don't Know
|
|
Query
|
adl09a |
Integer |
|
Recommended |
Which best describes his/her usual degree of participation? |
1;2;3
|
1 = Rarely or never spoke; 2 = Usually said things that were not related to the topic; 3 = Usually said things that were related to the topice
|
|
Query
|
adl10 |
Integer |
|
Recommended |
Did subject clear the dishes from the table after a meal or snack? |
0;1;9
|
0 = No; 1 = Yes; 9 = Don't Know
|
|
Query
|
adl10a |
Integer |
|
Recommended |
Which best describes how he/she usually performed? |
1;2;3
|
1 = With physical help; 2 = With supervision; 3 = Without supervision or help
|
|
Query
|
adl11 |
Integer |
|
Recommended |
|
0;1;9
|
0 = No; 1 = Yes; 9 = Don't Know
|
|
Query
|
adl11a |
Integer |
|
Recommended |
Which best describes how he/she usually performed? |
1;2;3
|
1 = With physical help; 2 = With supervision; 3 = Without supervision or help
|
|
Query
|
adl12 |
Integer |
|
Recommended |
Did subject obtain a hot or cold beverage for him/herself? |
0;1;9
|
0 = No; 1 = Yes; 9 = Don't Know
|
|
Query
|
adl12a |
Integer |
|
Recommended |
Which best describes his/her highest level of performance? |
1;2;3
|
1 = Obtained a cold beverage, usually without physical help; 2 = Made a hot beverage, usually if someone else heated the water; 3 = Made a hot beverage, usually without physical help
|
|
Query
|
adl13 |
Integer |
|
Recommended |
Did subject make him/herself a meal or snack at home? |
0;1;9
|
0 = No; 1 = Yes; 9 = Don't Know
|
|
Query
|
adl13a |
Integer |
|
Recommended |
Which best describes his/her highest level of food preperation? |
1;2;3;4
|
1 = Obtained food on his/her own, without mixing or cooking it; 2 = Mixed or combined food items for a meal or snack, without cooking or microwaving; 3 = Cooked or microwaved food, with extensive help; 4 = Cooked or microwaved food, with little or no help
|
|
Query
|
adl14 |
Integer |
|
Recommended |
Did the subject dispose of garbage or litter in an appropriate place or container at home? |
0;1;9
|
0 = No; 1 = Yes; 9 = Don't Know
|
|
Query
|
adl14a |
Integer |
|
Recommended |
Whch best describes how he/she usually performs? |
1;2;3
|
1 = With physical help; 2 = With supervision; 3 = Without supervision or help
|
|
Query
|
adl15 |
Integer |
|
Recommended |
Did subject get around (or travel) outside of his/her home? |
0;1;9
|
0 = No; 1 = Yes; 9 = Don't Know
|
|
Query
|
adl15a |
Integer |
|
Recommended |
Which best describes his/her optimal performance |
1::4
|
1 = Only with physical help, regardless of the trip; 2 = Only when accopmanied and supervised, regardless of the trip; 3 = Alone, but remained within 1 mile of home; 4 = Alone, went at least 1 mile away from home
|
|
Query
|
adl16 |
Integer |
|
Recommended |
Did subject ever go shopping? |
0;1;9
|
0 = No; 1 = Yes; 9 = Don't Know
|
|
Query
|
adl16a |
Integer |
|
Recommended |
Which best describes how subject usually selects items? |
1;2;3
|
1 = Not at all, or selected mainly random or inappropriate items; 2 = With some supervision or physical help; 3 = Without supervision or physical help
|
|
Query
|
adl16b |
Integer |
|
Recommended |
Did subject usually pay for items without supervision or physical help? |
1;0;9
|
0 = No; 1 = Yes; 9 = Don't Know
|
|
Query
|
adl17 |
Integer |
|
Recommended |
Did subject keep appointments or meetings with other people, such as relatives, a doctor, the hairdresser, etc.? |
0;1;9
|
0 = No; 1 = Yes; 9 = Don't Know
|
|
Query
|
adl17a |
Integer |
|
Recommended |
Which best describes his/her awareness of the meeting ahead of time? |
1;2;3
|
1 = Usually did not remember, in spite of verbal reminders on the day; 2 = Only remembered the appointment after verbal reminders on the day; 3 = Usually remembered, may have needed written reminders
|
|
Query
|
adl18 |
Integer |
|
Recommended |
Was subject ever left on his/her own? |
0;1;8;9
|
0 = No; 1 = Yes; 8 = S is institutionalized; 9 = Don't Know
|
|
Query
|
adl18a |
Integer |
|
Recommended |
Was subject left away from home, for 15 minutes or longer, during the day? |
0;1;9
|
0 = No; 1 = Yes; 9 = Don't Know
|
|
Query
|
adl18b |
Integer |
|
Recommended |
Was subject left at home, for an hour or linger, during the day? |
0;1;9
|
0 = No; 1 = Yes; 9 = Don't Know
|
|
Query
|
adl18c |
Integer |
|
Recommended |
Was subject left at home, for less than an hour, during the day? |
0;1;9
|
0 = No; 1 = Yes; 9 = Don't Know
|
|
Query
|
adl19 |
Integer |
|
Recommended |
Did subject talk about current events? |
0;1;9
|
0 = No; 1 = Yes; 9 = Don't Know
|
|
Query
|
adl19a |
Integer |
|
Recommended |
Did subject talk about events that he/she heard or read about or saw on TV but did not take part of it? |
0;1;9
|
0 = No; 1 = Yes; 9 = Don't Know
|
|
Query
|
adl19b |
Integer |
|
Recommended |
Did subject talk about events that took part outside the home involving family, friends, or neighbors? |
0;1;9
|
0 = No; 1 = Yes; 9 = Don't Know
|
|
Query
|
adl20 |
Integer |
|
Recommended |
Did subject read a magazine, newspaper, or book for more than 5 minutes at a time? |
0;1;9
|
0 = No; 1 = Yes; 9 = Don't Know
|
|
Query
|
adl20a |
Integer |
|
Recommended |
Did subject usually talk about details of what he/she read while or shortly (<1 hour) after reading? |
0;1;9
|
0 = No; 1 = Yes; 9 = Don't Know
|
|
Query
|
adl20b |
Integer |
|
Recommended |
Did subject usually talk about what he'she read 1 hour or longer after reading |
0;1;9
|
0 = No; 1 = Yes; 9 = Don't Know
|
|
Query
|
adl21 |
Integer |
|
Recommended |
Did subject ever write things down? |
0;1;9
|
0 = No; 1 = Yes; 9 = Don't Know
|
|
Query
|
adl21a |
Integer |
|
Recommended |
Which best describes the most complicated things that he/she wrote? |
1;2;3
|
1 = His/her signature or name; 2 = Short notes or messages that other people understood; 3 = Letters or long notes that other people understood
|
|
Query
|
adl22 |
Integer |
|
Recommended |
Did subject perform a pastime, hobby or game? |
0;1;9
|
0 = No; 1 = Yes; 9 = Don't Know
|
|
Query
|
adl22aa |
Integer |
|
Recommended |
card or board games |
0;1
|
0=no; 1=yes
|
|
Query
|
adl22ab |
Integer |
|
Recommended |
bingo |
0;1
|
0=no; 1=yes
|
|
Query
|
adl22ac |
Integer |
|
Recommended |
musical instrument |
0;1
|
0=no; 1=yes
|
|
Query
|
adl22ad |
Integer |
|
Recommended |
reading |
0;1
|
0=no; 1=yes
|
|
Query
|
adl22ae |
Integer |
|
Recommended |
tennis |
0;1
|
0=no; 1=yes
|
|
Query
|
adl22af |
Integer |
|
Recommended |
crosswords |
0;1
|
0=no; 1=yes
|
|
Query
|
adl22ag |
Integer |
|
Recommended |
knitting |
0;1
|
0=no; 1=yes
|
|
Query
|
adl22ah |
Integer |
|
Recommended |
gardening |
0;1
|
0=no; 1=yes
|
|
Query
|
adl22ai |
Integer |
|
Recommended |
workshop |
0;1
|
0=no; 1=yes
|
|
Query
|
adl22aj |
Integer |
|
Recommended |
art |
0;1
|
0=no; 1=yes
|
|
Query
|
adl22ak |
Integer |
|
Recommended |
sewing |
0;1
|
0=no; 1=yes
|
|
Query
|
adl22al |
Integer |
|
Recommended |
golf |
0;1
|
0=no; 1=yes
|
|
Query
|
adl22am |
Integer |
|
Recommended |
fishing |
0;1
|
0=no; 1=yes
|
|
Query
|
adl22an |
Integer |
|
Recommended |
other |
0;1
|
0=no; 1=yes
|
|
Query
|
adl22b |
Integer |
|
Recommended |
Did subject perform hobbies/pastime only at day care? |
0;1
|
0=no; 1=yes
|
|
Query
|
adl22c |
Integer |
|
Recommended |
How did subject usually perform his/her most common pastimes? |
1::3
|
1 = With physical help; 2 = With supervision; 3 = Without supervision or help
|
|
Query
|
adl23 |
Integer |
|
Recommended |
In the past 4 weeks, did subject use a household applicance to do chores? |
0;1; 9
|
0=no; 1=yes; 9=don't know
|
|
Query
|
adl23aa |
Integer |
|
Recommended |
washer? |
0;1
|
0=no; 1=yes
|
|
Query
|
adl23ab |
Integer |
|
Recommended |
dishwasher |
0;1
|
0=no; 1=yes
|
|
Query
|
adl23ac |
Integer |
|
Recommended |
range |
0;1
|
0=no; 1=yes
|
|
Query
|
adl23ad |
Integer |
|
Recommended |
dryer |
0;1
|
0=no; 1=yes
|
|
Query
|
adl23ae |
Integer |
|
Recommended |
toaster |
0;1
|
0=no; 1=yes
|
|
Query
|
adl23af |
Integer |
|
Recommended |
microwave |
0;1
|
0=no; 1=yes
|
|
Query
|
adl23ag |
Integer |
|
Recommended |
vacuum |
0;1
|
0=no; 1=yes
|
|
Query
|
adl23ah |
Integer |
|
Recommended |
toaster oven |
0;1
|
0=no; 1=yes
|
|
Query
|
adl23ai |
Integer |
|
Recommended |
food processor |
0;1
|
0=no; 1=yes
|
|
Query
|
adl23aj |
Integer |
|
Recommended |
other |
0;1
|
0=no; 1=yes
|
|
Query
|
adl23b |
Integer |
|
Recommended |
For the most commonly used appliances, which best describes how the subject usually used them? |
1;2;3;4
|
1 = With physical help; 2 = With supervision, but no physical help; 3 = Without help, but operated only on/off controls; 4 = Without help, operating more than on-off controls if needed
|
|
Query
|
adl24 |
Integer |
|
Recommended |
Total score |
0::78
|
|
|
Query
|
adl25 |
Integer |
|
Recommended |
Number of Don't Know responses in ADL |
0::30
|
|
|
Query
|
visnum |
Float |
|
Recommended |
Numeric Visit Number |
|
-1.5 = Pre-Screening; -1 = Screening; 0 = Baseline; ## = Visit ## (from 1 to 10); Whole numbers = standard monthly visits; #.001 - #.009 = Unscheduled; #.1 = End of Phase 1; #.2 = End of Phase 2; #.3 = End of Phase 3; #.4 = End of Open Choice Phase; #.5 = End of Study; #.6 = Genetic Analysis; 1000=all visits
|
|
Query
|
phase_ct |
String |
20
|
Recommended |
Current Phase. Phase patient was in at the time of the assessment Phase 4 refers to the follow-up phase. |
Pre-Rand; Phase 1/1A; Phase 2; Phase 3; Phase 4; Phase 1B; Open-Choice Phase; Screening; Phase 1
|
|
phase |
Query
|
adcs_ts |
Integer |
|
Recommended |
ADCS Total Score |
|
|
|
Query
|
last1 |
Integer |
|
Recommended |
Flag Last Phase 1/1A Visit |
|
1=Yes for all records meeting this criteria
|
|
Query
|
base1 |
Integer |
|
Recommended |
Flag Baseline Phase 1/1A Visit |
|
1=Yes for all records meeting this criteria
|
|
Query
|
base_ts |
Float |
|
Recommended |
Baseline Total Score |
|
Scare at Phase 1 baselline
|
|
Query
|
c_ts |
Float |
|
Recommended |
Changed from Baseline ADAS Total Score |
|
Change from Phase 1 baseline
|
|
Query
|
adl19c |
Integer |
|
Recommended |
Did subject talk about events that occurred at home that he/she took part in or watched? |
0;1;9
|
0 = No; 1 = Yes; 9 = Don't Know
|
|