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ACE Subject Medical History



ACE Subject Medical History

Download Definition as
Download Submission Template as
PDF file iconACE Subject Medical History Form.pdf
Element NameData TypeSizeRequiredDescriptionValue RangeNotesAliases
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*
src_subject_idString20RequiredSubject ID how it's defined in lab/project
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYYRequired field
genderString20RequiredSex of the subjectM;FM = Male; F = Female
comments_miscString4,000RecommendedMiscellaneous comments on study, interview, methodology relevant to this form datacomment
data_derivedIntegerRequiredData Derived From1::41 = Physical examination; 2 = Medical record; 3 = Both; 4=Parental report
diag_aofcIntegerRecommendedAge of First Concern(in months)0 :: 1200age_of_first_developmental_con
devel_concernString10RecommendedDevelopmental concern1 = Cognitive/learning; 2 = Behavior; 3 = Hearing; 4 = Motor; 5 = Language; 6= all
aut_diagIntegerRequiredAutism-related diagnosis1::4;9991 = Autism; 2 = Autism Spectrum Disorder; 3 = Asperger syndrome; 4 = PDD-NOSautism_related_diagnosis
diag_ageatdiagIntegerRecommendedAge at diagnosis(in months)
0 :: 1200
diag_diagnosismadebyString50RecommendedDiagnosis made byPhysician;Psychologist;Other; NKNK = Not known
preg_complicString10RequiredComplications during pregnancy?Yes; No; NKNK = Not knowncomplications_during_pregnancy
preg_dxdrugString10RequiredUsed prescription medications during pregnancy?
Yes; No; NK
NK = Not knownused_prescription_medications_
full_termString10RequiredFull-term delivery? 37-42 weeks
Yes; No; NK
NK = Not known
info_gestString50RecommendedNo. Weeks Gestation (G.A.)if_how_many_weeks_gestation
birth_weight_lbsFloatRecommendedBirth weight pounds
ldnb_lgthinFloatRecommendedWhat was the babys length at birth(inches)-1 = Not knownbirth_length_inches
ldnb_hosptotalbabydayFloatRecommendedHow many days total did this baby stay in the hospital (after delivery up until discharge, including the neonatal ICU) (days)0 :: 365number_of_days_hospital_after_
earlydev_walkIntegerRecommendedAge when first walked unaided (in months)995 = Still not reached; 996 = N/K, but apparently normal; 997 = N/K, but apparently delayed; 998 = N/A; 999 = N/K or not askedage_at_walking_10_steps_months
ad016IntegerRecommendedAge of first single words (months)994 = Milestone not reached; 996 = N/K, but apparently normal; 997 = N/K, but apparently delayed; 998 = N/A; 999 = N/K or not askedage_at_first_words_months_or_y
age_3wordIntegerRecommendedAge at 3-word sentences (in months)age_at_3_word_sentences_months
current_langString10RecommendedCurrent speech/language. Verbal?Yes; No; NKNK = Not knowncurrent_speech_language_verbal
verb_wordsIntegerRecommendedIf yes, how many words?1::41 = <10 Single words; 2 = Speaks in 10 or more single words; 3 = Speaks in 2 word combinations; 4 = Speaks in 3 or more word combinationsif_yes_how_many_words
othmem_devdelayString50RecommendedDevelopmental Delay
Yes;No; NK
NK = Not knowndevelopmental_delays
school_perfIntegerRecommendedSchool Performance1::41 = Below grade level; 2 = At grade level; 3 = Above grade level; 4 = Mixed (at or above grade level in some areas and below grade level in other areas)school_performance
rx_behavString10RequiredPrescription medications for behavioral concernsYes; No; NKNK = Not knownprescription_medications_behav
rx_physString10RequiredPrescription medications for physical health concernsYes; No; NKNK = Not knownprescription_medications_physi
otc_medString10RequiredOver-the-counter medicationsYes; No; NKNK = Not knownover_counter_medications
ds_medString10RequiredDietary supplementsYes; No; NKNK = Not knowndietary_supplemants
gastro_spec_dietString50RequiredDoes subject have a special diet?Yes; No; NKNK = Not knownspecial_diet_e_g_gluten_free_e
rev_headmeningitisString50RecommendedMeningitisYes; No; NK; NSNK= Not known; NS = Not suremeningitis
rev_headmeningitisageIntegerRecommendedMeningitis: Age(in months)0 :: 1200meningitis_age
rev_headmeningitisorgString255RecommendedMeningitis: Organismmeningitis_organism
Yes; No; NK; NS
NK= Not known; NS = Not sureencephalitis
rev_headencephalitisageIntegerRecommendedEncephalitis: Age(in months)0 :: 1200encephalitis_age
rev_headencephalitisorgString255RecommendedEncephalitis: Organismencephalitis_organism
rev_headfebseizString50RecommendedFebrile Seizures
Yes; No; NK; NS
NK= Not known; NS = Not surefebrile_seizures
rev_headfebseizagesString255RecommendedFebrile Seizures: Age(S)febrile_seizures_age
rev_headseizureString50RequiredSeizuresYes; No; NK; NSNK= Not known; NS = Not surenon_febrile_seizures
rev_headseizureonsetString255RecommendedSeizures: Onsetonset
rev_headseizurecontrolString50RequiredSeizures: Controlled
NK = Not knowncontrolled
fhxcpString5RequiredCerebral Palsy
Yes;No; NK
NK = Not knowncerebral_palsy
hist_traumaString10RecommendedHistory of head trauma
Yes; No; NK; NS
NK= Not known; NS = Not surehistory_of_head_trauma
rev_headimagestudyString50RecommendedImaging Studies
NK = Not knownbrain_imaging_studies
rev_headimagestudytypeString50RecommendedImaging Studies: TypeUS;CT;MR;PET;EEG; MR; any combinations of these types
rev_headimagestudyresultString255RecommendedImaging Studies: ResultsNormal; Abnormalresults_check_any_of_above
vis_blindString10RecommendedSignificant visual loss or congenital blindnessYes; No; NKNK = Not knownsignificant_visual_loss_or_con
rev_eartestString50RecommendedHearing Testing:
NK = Not knownhearing_testing
rev_eartestagesString255RecommendedHearing Testing: Age(S)hearing_testing_age
rev_eartestresultString50RecommendedHearing Testing: ResultNormal;Abnormal;Unknownresults
hear_lossString10RequiredDeafness or significant hearing loss
NK = Not knowndeafness_or_significant_hearin
othmem_hearingcorString50RecommendedHearing corrected?
rev_earrecuotitisString50RequiredRecurrent Otitis Media
Yes; No; NK; NS
NK= Not known; NS = Not surerecurrent_otitis_media_om
rev_earrecuotitisyearIntegerRecommendedRecurrent Otitis Media: #Yearyear
rev_earrecuotitisageIntegerRecommendedRecurrent Otitis Media: Age of Onset(in months)0 :: 1200age_of_onset
rev_earpetubeString50RecommendedPE Tubes
NK = Not knownpe_ear_tubes
rev_mouthcleftlipString50RecommendedIs there a cleft lip and/or cleft palate?
NK = Not knowncleft_lip
rev_mouthcleftpalateString50RecommendedCleft Palate
NK = Not knowncleft_palate
rev_teethdentalabString50RecommendedDental abnormalities
NK = Not knowndental_abnormalities
rev_neckspinalabString50RecommendedSpinal abnormalities
NK = Not knownspinal_abnormalities
rev_skinbirthmarkString50RecommendedBirthmarks (e.g., cafe-au-lait spots, white spots)
NK = Not knownbirthmarks_e_g_caf´┐Żu_lait_sp
NK = Not knowneczema
rev_skinabcessesString50RequiredSkin Infections/Abcesses
NK = Not knownskin_infections_abscesses
rev_pulbreathabString50RecommendedAbnormal Breathing
NK = Not knownabnormal_breathing
NK = Not knownasthma
rev_lungString10RecommendedLung diseaseYes;No;NKNK = Not knownlung_disease
rev_cardiomalfuncString50RequiredCardiac Malformation
NK = Not knowncardiac_malformation
NK = Not knowncyanosis
rev_rythmString10RecommendedAbnormal rhythm or heart rateYes;No;NKNK = Not knownabnormal_rhythm_or_heart_rate
NK = Not knowndysphagia_swallowing_difficult
Yes; No; NK; NS
NK= Not known; NS = Not surereflux
rev_gastrorefluxmedString50RequiredReflux: Medication Required
NK = Not knownmedication_required
rev_gastrootherString50RecommendedOther feeding difficulties
NK = Not knownother_feeding_difficulties
rev_endoprecociousString50RecommendedPrecocious Puberty
NK = Not knownprecocious_early_puberty
rev_endoprecociousageIntegerRecommendedPrecocious Puberty: Age(in months)0 :: 1200age_of_puberty
NK = Not knownhypothyroidism
NK = Not knownhyperthyroidism
NK = Not knowndiabetes
rev_endodiabetestypeString50RequiredDiabetes: TypeI;II;999if_yes_check_type
NK = Not knownhypoglycemia
NK = Not knownanemia
rev_hembleeddisorderString50RecommendedBleeding disorder
NK = Not knownbleeding_disorder
rev_immunorecurinfectionString50RequiredRecurrent Infections((>2 pneum or sinus infect/yr, >8 OM /yr, absesses))
NK = Not knownrecurrent_infections
rev_immunoigdeficiencyString50RecommendedIg Deficiency
NK = Not knownimmunoglobulin_igg_deficiency
rev_immunocellimmunedefString50RecommendedCell Mediated Immune Def.
NK = Not knowncell_mediated_immune_deficienc
rev_immunoenvallergyString50RequiredEnvironmental Allergies
NK = Not knownenvironmental_allergies
rev_immunomedallergyString50RequiredMedication Allergies
NK = Not known; NA=Not Applicablemedication_allergies
Up to date;Behind;None;NK
NK = Not knownimmunizations
gen_disIntegerRequiredDoes the study subject have any of the following genetic disorders?1::5;9991 = Rett syndrome; 2 = Down syndrome; 3 = Tuberous Sclerosis Complex; 4 = Fragile X syndrome; 5 = Neurofibromatosis I
gen_dis_confString10RecommendedIf check above, is the genetic disorder confirmed by a physician-ordered genetic analysisYes;No;NKNK = Not knownif_check_above_genetic_disorde
othmem_bipolarString50RecommendedBipolar disorder (Manic/depression)
Yes;No; NK
NK = Not knownbipolar_disorder_manic_depress
Yes;No; NK
NK = Not knowndepression
othmem_anxietyString50RecommendedAnxiety disorder
Yes;No; NK
NK = Not knownanxiety_disorder
cfmh_othr_ocdIntegerRecommendedObsessive compulsive disorder1;0; -90 = No; 1 = Yes; -9 = Not knownobsessive_compulsive_disorder
Yes;No; NK
NK = Not knownschizophrenia
othmem_selfinjString50RecommendedSelf-injuring behavior
Yes;No; NK
NK = Not knownself_injuring_behavior
othmem_adhdString50RecommendedAttention deficit hyperactivity disorder (ADHD)
Yes;No; NK
NK = Not knownattention_deficit_hyperactivit
othmem_eatingdisString50RecommendedEating disorder. Bulimia, Anorexia, other
Yes;No; NK
NK = Not knowneating_disorder_bulimia_anorex
othmem_eatingdis_typeString100RecommendedIf yes, specify type
sleep_patString10RecommendedDisrupted sleep patternsYes;No;NKNK = Not knowndisrupted_sleep_patterns
touretString10RequiredTourette Syndrome
Yes; No; NK; NS
NK= Not known; NS = Not suretourette_syndrome
birth_weight_ozFloatRecommendedBirth weight ounces
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.

Distribution for DataStructure: ace_subjmedhist01 and Element:
Chart Help

Filters enable researchers to view the data shared in NDA before applying for access or for selecting specific data for download or NDA Study assignment. For those with access to NDA shared data, you may select specific values to be included by selecting an individual bar chart item or by selecting a range of values (e.g. interview_age) using the "Add Range" button. Note that not all elements have appropriately distinct values like comments and subjectkey and are not available for filtering. Additionally, item level detail is not always provided by the research community as indicated by the number of null values given.

Filters for multiple data elements within a structure are supported. Selections across multiple data structures will be supported in a future version of NDA.