|
subjectkey |
GUID |
|
Required |
The NDAR Global Unique Identifier (GUID) for research subject |
NDAR*
|
|
|
|
src_subject_id |
String |
20
|
Required |
Subject ID how it's defined in lab/project |
|
|
|
|
interview_date |
Date |
|
Required |
Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY |
|
|
|
|
interview_age |
Integer |
|
Required |
Age in months at the time of the interview/test/sampling/imaging. |
0 :: 1260
|
Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
|
|
|
sex |
String |
20
|
Required |
Sex of subject at birth |
M;F; O; NR
|
M = Male; F = Female; O=Other; NR = Not reported
|
gender |
Query
|
sixmo_advbeh_agenc |
Integer |
|
Recommended |
Searched the internet to find agencies and/or services to meet your child's needs? |
1::5
|
1=Not at all; 2=A little; 3=Sometimes; 4=Often; 5=Very often
|
|
Query
|
sixmo_advbeh_par |
Integer |
|
Recommended |
Talked with other parents about agencies and/or services to meet your child's needs? |
1::5
|
1=Not at all; 2=A little; 3=Sometimes; 4=Often; 5=Very often
|
|
Query
|
sixmo_advbeh_asp |
Integer |
|
Recommended |
Called adult service provider agencies to ask about eligibility and services? |
1::5
|
1=Not at all; 2=A little; 3=Sometimes; 4=Often; 5=Very often
|
|
Query
|
sixmo_advbeh_train |
Integer |
|
Recommended |
Attended trainings about adult services? |
1::5
|
1=Not at all; 2=A little; 3=Sometimes; 4=Often; 5=Very often
|
|
Query
|
sixmo_advbeh_docum |
Integer |
|
Recommended |
put into writing) your advocacy/communication with agencies and professionals? |
1::5
|
1=Not at all; 2=A little; 3=Sometimes; 4=Often; 5=Very often
|
|
Query
|
sixmo_advbeh_asked |
Integer |
|
Recommended |
Asked questions to professionals about services/eligbility? |
1::5
|
1=Not at all; 2=A little; 3=Sometimes; 4=Often; 5=Very often
|
|
Query
|
sixmo_advbeh_phone |
Integer |
|
Recommended |
Talked with other parents (over the phone) about agencies and/or services to meet their child's needs? |
1::5
|
1=Not at all; 2=A little; 3=Sometimes; 4=Often; 5=Very often
|
|
Query
|
sixmo_advbeh_inpers |
Integer |
|
Recommended |
Talked with other parents in person about agencies and/or services to meet their child's needs? |
1::5
|
1=Not at all; 2=A little; 3=Sometimes; 4=Often; 5=Very often
|
|
Query
|
sixmo_advbeh_facil |
Integer |
|
Recommended |
Facilitated trainings or support groups for other families about adult services? |
1::5
|
1=Not at all; 2=A little; 3=Sometimes; 4=Often; 5=Very often
|
|
Query
|
sixmo_advbeh_review |
Integer |
|
Recommended |
Reviewed the records of another family to help them determine which services they are eligible for? |
1::5
|
1=Not at all; 2=A little; 3=Sometimes; 4=Often; 5=Very often
|
|
Query
|
sixmo_advbeh_comm |
Integer |
|
Recommended |
Helped another family communicate with agencies and professionals? |
1::5
|
1=Not at all; 2=A little; 3=Sometimes; 4=Often; 5=Very often
|
|
Query
|
sixmo_advbeh_visit |
Integer |
|
Recommended |
Visited the office or held meetings with legislators about disability services? |
1::5
|
1=Not at all; 2=A little; 3=Sometimes; 4=Often; 5=Very often
|
|
Query
|
sixmo_advbeh_letters |
Integer |
|
Recommended |
Written letters to legislators about disability services? |
1::5
|
1=Not at all; 2=A little; 3=Sometimes; 4=Often; 5=Very often
|
|
Query
|
sixmo_advbeh_media |
Integer |
|
Recommended |
Tried to get media attention (e.g., newspaper, television, radio) about disability services? |
1::5
|
1=Not at all; 2=A little; 3=Sometimes; 4=Often; 5=Very often
|
|
Query
|
sixmo_advbeh_leader |
Integer |
|
Recommended |
Taken on leadership roles in national, state, or local agencies related to disability services? |
1::5
|
1=Not at all; 2=A little; 3=Sometimes; 4=Often; 5=Very often
|
|
Query
|
sixmo_advbeh_present |
Integer |
|
Recommended |
Presented at state or national conferences about disability services? |
1::5
|
1=Not at all; 2=A little; 3=Sometimes; 4=Often; 5=Very often
|
|
|
timepoint_label |
String |
50
|
Recommended |
Timepoint/visit label |
|
|
|