|
subjectkey |
GUID |
|
Required |
The NDAR Global Unique Identifier (GUID) for research subject |
NDAR*
|
|
|
|
src_subject_id |
String |
20
|
Required |
Subject ID how it's defined in lab/project |
|
|
clinical_barcode |
|
interview_date |
Date |
|
Required |
Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY |
|
|
bl_visit_date, date_demographics |
|
interview_age |
Integer |
|
Required |
Age in months at the time of the interview/test/sampling/imaging. |
0::1440
|
Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
|
ch_age |
|
sex |
String |
20
|
Required |
Sex of subject at birth |
|
M = Male; F = Female; O=Other; NR = Not reported
|
ch_sex, gender |
|
race |
String |
30
|
Required |
Race of study subject |
|
|
race_dem |
|
ethnic_group |
String |
255
|
Recommended |
Ethnic group |
|
|
ethnicity_dem |
Query
|
ca243 |
Integer |
|
Recommended |
What handedness do you consider yourself? |
1::3
|
1=Right; 2=Left; 3=Mixed
|
overall_handedness |
Query
|
dmg_q54 |
Integer |
|
Recommended |
total number of full siblings |
0::99
|
0 - 99
|
full_sib_total |
Query
|
dmg_q55 |
Integer |
|
Recommended |
total number of half siblings |
0::99
|
0 - 99
|
half_sib_total |
|
otherrace |
String |
100
|
Recommended |
specify other race |
|
The following questions are about you or the child's family.
|
race_other_dem |
Query
|
fh07 |
Integer |
|
Recommended |
7. Subject adopted |
0;1;9
|
|
dem_adopted |
|
das1ms |
String |
200
|
Recommended |
Marital status |
|
|
dem_marital_status |
Query
|
dmg_curlvcir |
Integer |
|
Recommended |
child current living circumstances |
1::8
|
1=Parental home (at least one parent)
2=Relatives (other than parents)
3=With (child's) boyfriend/girlfriend or spouse (includes common law arrangement)
4=With unrelated adults
5=Foster home
6=Group home
7=Institution
8=Other
|
subject_living_dem |
|
ses1job |
String |
100
|
Recommended |
Head of Household: Job Title |
|
|
dem_head_job_title |
Query
|
occupation |
Integer |
|
Recommended |
(or OCCUP); Hollingshead Status - HEAD OF HOUSEHOLD |
1::9
|
1 = Farm Laborers/Menial Service Workers, Welfare Recipients; 2 = Unskilled Workers; 3 = Machine Operators, Semi-Skilled Workers; 4 = Smaller Business Owners, Skilled Manual Workers, Craftsmen, Tenant Farmers; 5 = Clerical and Sales Workers, Small Farm and Business Owners; 6 = Technicians, Semi-Professionals and Small Business Owners; 7 = Smaller Business Owners, Farm Owners, Managers, Minor Professionals; 8 = Administrators, Lesser Professionals, Proprietors of Medium-Sized Businesses; 9 = Higher Executives, Proprietors of Large Businesses, Major Professionals
|
dem_head_hollingshead |
Query
|
emply |
Integer |
|
Recommended |
HEAD OF HOUSEHOLD Presently Employed |
0;1;2;7
|
0 = NO; 1 = YES - PART TIME; 2 = YES - FULL TIME; 7 = RETIRED
|
dem_head_employed |
|
ses2job |
String |
50
|
Recommended |
Spouse/Significant Other: Job Title |
|
|
dem_spouse_job_title |
Query
|
ses2educ |
Integer |
|
Recommended |
Spouse/Significant Other: Education |
1::7
|
1 = Less than 7th Grade; 2 = Jr. High School (7th/8th/9th grade); 3 = Some High School (10th/11th/12th grade); 4 = High School Graduate; 5 = Some College (at least 1 year); 6 = Standard College Degree; 7 = Graduate Professional Training
|
dem_spouse_education |
Query
|
occupationsp |
Integer |
|
Recommended |
(or OCCUPSP); Hollingshead Status - SPOUSE |
1::9
|
1 = Farm Laborers/Menial Service Workers, Welfare Recipients; 2 = Unskilled Workers; 3 = Machine Operators, Semi-Skilled Workers; 4 = Smaller Business Owners, Skilled Manual Workers, Craftsmen, Tenant Farmers; 5 = Clerical and Sales Workers, Small Farm and Business Owners; 6 = Technicians, Semi-Professionals and Small Business Owners; 7 = Smaller Business Owners, Farm Owners, Managers, Minor Professionals; 8 = Administrators, Lesser Professionals, Proprietors of Medium-Sized Businesses; 9 = Higher Executives, Proprietors of Large Businesses, Major Professionals; 88 = not applicable; 99 = missing
|
dem_spouse_hollingshead |
Query
|
spouse_empl |
Integer |
|
Recommended |
Is your spouse currently employed |
0::2; 7
|
0=No; 1=Yes part-time; 2=Yes full-time; 7=Retired
|
dem_spouse_employed |
Query
|
educ |
Integer |
|
Recommended |
HEAD OF HOUSEHOLD Education |
1::7
|
1 = Less than 7th Grade; 2 = Jr. High School (9th Grade); 3 = Some High School (10th or 11th Grade); 4 = High School Graduate; 5 = Some College (at least 1 year); 6 = Standard College Degree; 7 = Graduate Professional Training
|
dem_head_education |
|
respondent |
String |
20
|
Recommended |
Respondent |
Mother;Father;Parent;Guardian;Teacher;Child;Self;Caregiver;Partner;Other
|
|
informant_dem |
Query
|
supt |
Integer |
|
Recommended |
Receives support if parent's divorced or separated? |
0; 1
|
0 = No; 1 = Yes
|
dem_divorced_support |
Query
|
demo6 |
Integer |
|
Recommended |
Sisters |
0::9
|
0=none in home; 1= one in home; 2= two in home; 9=9 in home
|
sisters_dem |
Query
|
d6c1 |
Integer |
|
Recommended |
Number of full sisters |
|
|
full_sist_total |
Query
|
d6e1 |
Integer |
|
Recommended |
Number of half sisters |
|
|
half_sis_total |
Query
|
demo5 |
Integer |
|
Recommended |
Brothers |
0::9
|
0=none in home; 1= one in home; 2= two in home; 9=9 in home
|
brothers_dem |
Query
|
d6b1 |
Integer |
|
Recommended |
Number of full brothers |
|
|
full_bro_total |
Query
|
d6f1 |
Integer |
|
Recommended |
Number of adopted brothers |
|
|
half_bro_total |
|
medication1_name |
String |
500
|
Recommended |
Name first medication that the participant has taken |
|
0 = No medication; 999= Legitimately skipped
|
med_1 |
|
medication2_name |
String |
500
|
Recommended |
Name second medication that the participant has taken |
|
0 = No medication; 999= Legitimately skipped
|
med_2 |
|
medication3_name |
String |
500
|
Recommended |
Name third medication that the participant has taken |
|
0 = No medication; 999= Legitimately skipped
|
med_3 |
|
medication4_name |
String |
500
|
Recommended |
Name fourth medication that the participant has taken |
|
0 = No medication; 999= Legitimately skipped
|
med_4 |
|
medication5_name |
String |
500
|
Recommended |
Name fifth medication that the participant has taken |
|
0 = No medication; 999= Legitimately skipped
|
med_5 |
|
medication6_name |
String |
500
|
Recommended |
Name sixth medication that the participant has taken |
|
0 = No medication; 999= Legitimately skipped
|
med_6 |
|
medication7_name |
String |
500
|
Recommended |
Name seventh medication that the participant has taken |
|
0 = No medication; 999= Legitimately skipped
|
med_7 |
|
medication8_name |
String |
500
|
Recommended |
Name eighth medication that the participant has taken |
|
0 = No medication; 999= Legitimately skipped
|
med_8 |
|
medication9_name |
String |
500
|
Recommended |
Name ninth medication that the participant has taken |
|
|
med_9 |
|
medication10_name |
String |
100
|
Recommended |
Name tenth medication that the participant has taken |
|
|
med_10 |
|
medication11_name |
String |
500
|
Recommended |
Medication 11 name |
|
|
med_11 |
|
medication12_name |
String |
500
|
Recommended |
Med name12 |
|
|
med_12 |
|
medication13_name |
String |
500
|
Recommended |
Medication 13 name |
|
|
med_13 |
|
medication14_name |
String |
500
|
Recommended |
Medication 14 name |
|
|
med_14 |
|
medication15_name |
String |
500
|
Recommended |
Medication 15 name |
|
|
med_15 |
|
medication16_name |
String |
500
|
Recommended |
Med name16 |
|
|
med_16 |
|
medication17_name |
String |
500
|
Recommended |
Med name17 |
|
|
med_17 |
|
medication18_name |
String |
500
|
Recommended |
Med name18 |
|
|
med_18 |
|
medication19_name |
String |
500
|
Recommended |
medication name 19 |
|
|
med_19 |
|
medication20_name |
String |
500
|
Recommended |
medication name 20 |
|
|
med_20 |
|
medication21_name |
String |
500
|
Recommended |
medication name 21 |
|
|
med_21 |
|
medication22_name |
String |
500
|
Recommended |
medication name 22 |
|
|
med_22 |
|
medication23_name |
String |
500
|
Recommended |
medication name 23 |
|
|
med_23 |
|
medication24_name |
String |
500
|
Recommended |
medication name 24 |
|
|
med_24 |
|
medication25_name |
String |
500
|
Recommended |
medication name 25 |
|
|
med_25 |
|
medication26_name |
String |
500
|
Recommended |
medication name 26 |
|
|
med_26 |
|
medication27_name |
String |
500
|
Recommended |
medication name 27 |
|
|
med_27 |
|
medication28_name |
String |
500
|
Recommended |
medication name 28 |
|
|
med_28 |
|
medication29_name |
String |
500
|
Recommended |
medication name 29 |
|
|
med_29 |
|
medication30_name |
String |
500
|
Recommended |
medication name 30 |
|
|
med_30 |
Query
|
basline_meds |
Integer |
|
Recommended |
Has participant taken medications (including OTC) at screening/baseline visit? |
0::1
|
0= No; 1= Yes
|
|
Query
|
six_mo_meds |
Integer |
|
Recommended |
Has participant taken medications (including OTC) between baseline and 6 months follow up? |
0::1
|
0= No; 1= Yes
|
|
Query
|
twentyfour_mo_meds |
Integer |
|
Recommended |
Has participant taken medications (including OTC) between 6 month and 24 month follow up? |
0::1
|
0= No; 1= Yes
|
|
Query
|
ses |
Integer |
|
Recommended |
Hollingshead SES Score |
|
SES at age of entry to study
|
dem_social_status_num |
Query
|
sestot |
Integer |
|
Recommended |
Socio-Economic Status (SES) |
1::5
|
1 = SES score of 08 to 19;2 = SES score of 20 to 29;3 = SES score of 30 to 39;4 = SES score of 40 to 54;5 = SES score of 55 to 66
|
dem_social_status_range |
Query
|
education_level_dem |
Integer |
|
Recommended |
Level of Education - Subject |
0::14; 99; 999
|
0= Kindergarten; 1= First grade; 2= Second grade; 3= Third grade; 4= Fourth grade; 5= Fifth grade; 6= Sixth grade; 7= Seventh grade; 8= Eighth grade; 9= Ninth grade; 10= Tenth grade; 11= Eleventh grade; 12= Twelfth grade; 13= Special school; 14= Out of school; 99= Other; 999= Unknown
|
|
|
srs_respond_detail_oth_spec |
String |
250
|
Recommended |
Respondent detail, specify other |
|
|
informant_other_dem |
|
living_other_dem |
String |
25
|
Recommended |
If subject is living with other person, please specify |
|
|
|
Query
|
demo_siblingscount |
Integer |
|
Recommended |
Number of siblings |
|
888 = not applicable; 999 = missing
|
total_sib_dem |
Query
|
fh13 |
Integer |
|
Recommended |
Birth order |
0::13; 99
|
99 = Missing value
|
birth_order_dem |
Query
|
dem_adopted_related |
Integer |
|
Recommended |
If subject is adopted, are adoptive parent(s) also biologically related to subject? |
0::1
|
0= No; 1= Yes
|
|
Query
|
dem_adoptive_relationship |
Integer |
|
Recommended |
If subject's adoptive parents are biologically related, please specify relationship: |
1::13
|
1= Maternal Grandmother only; 2= Maternal Grandfather only; 3= Both Maternal Grandparents; 4= Paternal Grandmother only; 5= Paternal Grandfather only; 6= Both Paternal Grandparents; 7= Maternal Aunt only; 8= Maternal Uncle only; 9= Both Maternal Aunt and Uncle; 10= Paternal Aunt only; 11= Paternal Uncle only; 12= Both Paternal Aunt and Uncle; 13= Other relative
|
|
|
dem_adoptive_related_other |
String |
50
|
Recommended |
If subject's adoptive parents are other relatives, please specify |
|
|
|
|
p002_specify |
String |
500
|
Recommended |
Describe Allergy |
|
|
ch_allergies |
Query
|
upreg |
Integer |
|
Recommended |
Pregnant - Urine test |
1::3; 9
|
1=Positive; 2=Negative; 3=Not done; 9=Equivocal (Must retest)
|
ch_pregnancy_baseline |
|
mnstrdt |
Date |
|
Recommended |
Date of Last Menstrual Period |
|
|
last_period_date_baseline |