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NIMH Data Archive
NDA ABCD CCF OAI NIAAADA AMP SCZ HEAL

Pediatric Quality of Life Inventory

2,460 Shared Subjects

N/A
Clinical Assessments
Quality of Life
07/01/2016
pedsql01
07/05/2022
View Change History
01
Definition
Submission Template
Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR*
src_subject_id String 20 Required Subject ID how it's defined in lab/project child_id, demo_study_id, pid
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY scr_demo_:doi, visit_date, visitdate
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0::1440 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month. scr_demo_:ch_age
sex String 20 Required Sex of subject at birth M;F; O; NR M = Male; F = Female; O=Other; NR = Not reported gender, scr_demo_:ch_gender, sex
Query physical_functioning_r1 Integer Recommended In the past ONE month, how much of a problem has your child (C: have you) had with Physical Functioning (problems with...) Walking more than one block 0::4 0=never, 1=almost never, 2=sometimes, 3=often, 4=almost always block, block_par, pedsql:_phyfunc:_1, pedsql_phys_1
Query physical_functioning_r2 Integer Recommended In the past ONE month, how much of a problem has your child (C: have you) had with Physical Functioning (problems with...) Running 0::4 0=never, 1=almost never, 2=sometimes, 3=often, 4=almost always pedsql:_phyfunc:_2, pedsql_phys_2, run, run_par
Query physical_functioning_r3 Integer Recommended In the past ONE month, how much of a problem has your child (C: have you) had with Physical Functioning (problems with...) Participating in sports activity or exercise 0::4 0=never, 1=almost never, 2=sometimes, 3=often, 4=almost always exercise, exercise_par, pedsql:_phyfunc:_3, pedsql_phys_3
Query physical_functioning_r4 Integer Recommended In the past ONE month, how much of a problem has your child (C: have you) had with Physical Functioning (problems with...) Lifting something heavy 0::4 0=never, 1=almost never, 2=sometimes, 3=often, 4=almost always heavy, heavy_par, pedsql:_phyfunc:_4, pedsql_phys_4
Query physical_functioning_r5 Integer Recommended In the past ONE month, how much of a problem has your child had with Physical Functioning (problems with...) Taking a bath or shower by him or herself 0::4 0=never, 1=almost never, 2=sometimes, 3=often, 4=almost always pedsql:_phyfunc:_5, pedsql_phys_5, shower, shower_par
Query physical_functioning_r6 Integer Recommended In the past ONE month, how much of a problem has your child (C: have you) had with Physical Functioning (problems with...) Doing chores, like picking up his or her toys 0::4 0=never, 1=almost never, 2=sometimes, 3=often, 4=almost always chores, chores_par, pedsql:_phyfunc:_6, pedsql_phys_6
Query physical_functioning_r7 Integer Recommended In the past ONE month, how much of a problem has your child had with Physical Functioning (problems with...) Having hurts or aches 0::4 0=never, 1=almost never, 2=sometimes, 3=often, 4=almost always ache, ache_par, pedsql:_phyfunc:_7, pedsql_phys_7
Query physical_functioning_r8 Integer Recommended In the past ONE month, how much of a problem has your child had with Physical Functioning (problems with...) Low energy level 0::4 0=never, 1=almost never, 2=sometimes, 3=often, 4=almost always energy, energy_par, pedsql:_phyfunc:_8, pedsql_phys_8
Query emotional_functioning_r1 Integer Recommended In the past ONE month, how much of a problem has your child (C: have you) had with Emotional Functioning (problems with...) Feeling afraid or scared 0::4 0=never, 1=almost never, 2=sometimes, 3=often, 4=almost always pedsql:_emofunc:_1, pedsql_emo_1, scared, scared_par
Query emotional_functioning_r2 Integer Recommended In the past ONE month, how much of a problem has your child (C: have you) had with Emotional Functioning (problems with...) Feeling sad or blue 0::4 0=never, 1=almost never, 2=sometimes, 3=often, 4=almost always blue, blue_par, pedsql:_emofunc:_2, pedsql_emo_2
Query emotional_functioning_r3 Integer Recommended In the past ONE month, how much of a problem has your child (C: have you) had with Emotional Functioning (problems with...) Feeling angry 0::4 0=never, 1=almost never, 2=sometimes, 3=often, 4=almost always angry, angry_par, pedsql:_emofunc:_3, pedsql_emo_3
Query emotional_functioning_r4 Integer Recommended In the past ONE month, how much of a problem has your child had with Emotional Functioning (problems with...) Trouble sleeping 0::4 0=never, 1=almost never, 2=sometimes, 3=often, 4=almost always pedsql:_emofunc:_4, pedsql_emo_4, sleeping, sleeping_par
Query emotional_functioning_r5 Integer Recommended In the past ONE month, how much of a problem has your child (C: have you) had with Emotional Functioning (problems with...) Worrying about what will happen to him or her 0::4 0=never, 1=almost never, 2=sometimes, 3=often, 4=almost always pedsql:_emofunc:_5, pedsql_emo_5, worry, worry_par
Query social_functioning_r1 Integer Recommended In the past ONE month, how much of a problem has your child (C: have you) had with Social Functioning (problems with...) Getting along with other children 0::4 0=never, 1=almost never, 2=sometimes, 3=often, 4=almost always getalong, getalong_par, pedsql:_socfunc:_1, pedsql_social_1
Query social_functioning_r2 Integer Recommended In the past ONE month, how much of a problem has your child (C: have you) had with Social Functioning (problems with...) Other kids not wanting to be his or her friend 0::4 0=never, 1=almost never, 2=sometimes, 3=often, 4=almost always friend, friend_par, pedsql:_socfunc:_2, pedsql_social_2
Query social_functioning_r3 Integer Recommended In the past ONE month, how much of a problem has your child (C: have you) had with Social Functioning (problems with...) Getting teased by other children 0::4 0=never, 1=almost never, 2=sometimes, 3=often, 4=almost always pedsql:_socfunc:_3, pedsql_social_3, tease, tease_par
Query social_functioning_r4 Integer Recommended In the past ONE month, how much of a problem has your child had with Social Functioning (problems with...) Not able to do things that other children his or her age can do 0::4 0=never, 1=almost never, 2=sometimes, 3=often, 4=almost always otherthings, otherthings_par, pedsql:_socfunc:_4, pedsql_social_4
Query social_functioning_r5 Integer Recommended In the past ONE month, how much of a problem has your child had with Social Functioning (problems with...) Keeping up when playing with other children 0::4 0=never, 1=almost never, 2=sometimes, 3=often, 4=almost always pedsql:_socfunc:_5, pedsql_social_5, peers, peers_par
Query school_functioning_r1 Integer Recommended In the past ONE month, how much of a problem has your child (C: have you) had with School Functioning (problems with...) Paying attention in class 0::4 0=never, 1=almost never, 2=sometimes, 3=often, 4=almost always attention, attention_par, pedsql:_schfunc:_1, pedsql_school_1
Query school_functioning_r2 Integer Recommended In the past ONE month, how much of a problem has your child (C: have you) had with School Functioning (problems with...) Forgetting things 0::4 0=never, 1=almost never, 2=sometimes, 3=often, 4=almost always forget, forget_par, pedsql:_schfunc:_2, pedsql_school_2
Query school_functioning_r3 Integer Recommended In the past ONE month, how much of a problem has your child (C: have you) had with School Functioning (problems with...) Keeping up with school activities 0::4 0=never, 1=almost never, 2=sometimes, 3=often, 4=almost always homework, homework_par, pedsql:_schfunc:_3, pedsql_school_3
Query school_functioning_r4 Integer Recommended In the past ONE month, how much of a problem has your child had with School Functioning (problems with...) Missing school/daycare because of not feeling well 0::4 0=never, 1=almost never, 2=sometimes, 3=often, 4=almost always notwell, notwell_par, pedsql:_schfunc:_4, pedsql_school_4
Query school_functioning_r5 Integer Recommended In the past ONE month, how much of a problem has your child had with School Functioning (problems with...) Missing school/daycare to go to the doctor or hospital 0::4 0=never, 1=almost never, 2=sometimes, 3=often, 4=almost always doctor, doctor_par, pedsql:_schfunc:_5, pedsql_school_5
Query physical_functioning_sc Float Recommended Physical Functioning score physical_functioning_scale_score, physical_functioning_score, physical_score
Query emotional_functioning_sc Integer Recommended Emotional Functioning score emotional_functioning_scale_score, emotional_functioning_score, emotional_score
Query social_functioning_sc Float Recommended Social Functioning score social_functioning_scale_score, social_functioning_score, social_score
Query school_functioning_sc Integer Recommended School Functioning score school_functioning_scale_score, school_functioning_score, school_score
Query psychosocial_health_sum_score Float Recommended Psychosocial Health Summary score psychosocial_health_summary_score
Query physical_health_sum_score Float Recommended Physical Health Summary score physical_health_summary_score
Query total_sc Float Recommended PedsQL Total Scale score total_score
Query aescode Integer Recommended Staff code number of person completing this form 999= Missing Data userid
Query visit String 60 Recommended Visit name visits
version_form String 121 Recommended Form used/assessment name
comments_misc String 4,000 Recommended Miscellaneous comments on study, interview, methodology relevant to this form data pedsql_comments
respond Integer Recommended Respondent
1::7;999
1 = Parent; 2 = Teacher; 3=Self; 4= Other; 5= Significant other; 6 = Parent 1; 7 = Parent 2; 999 = Not available form_ext
dode String 10 Recommended Date of Data Entry dtcomplete
site String 101 Recommended Site Study Site siteid
weekterm String 20 Recommended Last visit attended tpid
pedsql_version Integer Recommended What is your child's current age in years? 1;2 1= 8 to 12 years old; 2= 13 to 18 years old
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

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