|
subjectkey |
GUID |
|
Required |
The NDAR Global Unique Identifier (GUID) for research subject |
NDAR*
|
|
|
|
src_subject_id |
String |
20
|
Required |
Subject ID how it's defined in lab/project |
|
|
|
|
interview_date |
Date |
|
Required |
Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY |
|
|
date_taken |
|
interview_age |
Integer |
|
Required |
Age in months at the time of the interview/test/sampling/imaging. |
0::1440
|
Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
|
age_months |
|
comments_misc |
String |
4,000
|
Recommended |
Miscellaneous comments on study, interview, methodology relevant to this form data |
|
|
|
Query
|
rbsr_stereo_behavior_endorsed |
Integer |
|
Recommended |
Stereotyped Behavior (Number of subscale items endorsed) |
0::50;-9
|
-9=NK
|
Stereotyped_Behavior_Endorsed |
Query
|
rbsr_stereo_total |
Integer |
|
Recommended |
Stereotyped Behavior (Total subscale score) |
0::50
|
-9=NK
|
Stereotyped_Total |
Query
|
rbsr_self_injurous_endorsed |
Integer |
|
Recommended |
Self Injurous Behavior (Number of subscale items endorsed) |
0 :: 8;-9
|
-9=NK
|
Self_Injurous_Endorsed |
Query
|
rbsr_self_injurous_total |
Integer |
|
Recommended |
Self Injurous Behavior (Total subscale score) |
0 :: 28;-9
|
-9=NK
|
Self_Injurous_Total |
Query
|
rbsr_compulsive_endorsed |
Integer |
|
Recommended |
Compulsive Behavior (Number of subscale items endorsed) |
0 :: 8;-9
|
-9=NK
|
Compulsive_Endorsed |
Query
|
rbsr_compulsive_total |
Integer |
|
Recommended |
Compulsive Behavior (Total subscale score) |
|
|
Compulsive_Total |
Query
|
rbsr_ritualistic_endorsed |
Integer |
|
Recommended |
Ritualistic Behavior (Number of subscale items endorsed) |
0::10; -9
|
-9=NK
|
Ritualistic_Endorsed |
Query
|
rbsr_ritualistic_total |
Integer |
|
Recommended |
Ritualistic Behavior (Total subscale score) |
0 :: 40;-9
|
-9=NK
|
Ritualistic_Total |
Query
|
rbsr_sameness_endorsed |
Integer |
|
Recommended |
Sameness Behavior (Number of subscale items endorsed) |
0::12;-9
|
-9=NK
|
Sameness_Endorsed |
Query
|
rbsr_sameness_total |
Integer |
|
Recommended |
Sameness Behavior (Total subscale score) |
0::33;-9
|
-9=NK
|
Sameness_Total |
Query
|
rbsr_restricted_endorsed |
Integer |
|
Recommended |
Restricted Behavior (Number of subscale items endorsed) |
0::8;-9
|
-9=NK
|
Restricted_Endorsed |
Query
|
rbsr_restricted_total |
Integer |
|
Recommended |
Restricted Behavior (Total subscale score) |
0 :: 32;-9
|
-9=NK
|
Restricted_Total |
Query
|
rbsr_overall_endorsed |
Integer |
|
Recommended |
Overall number of items endorsed |
|
|
Overall_Endorsed |
Query
|
rbsr_overall_total |
Integer |
|
Recommended |
Overall score |
|
|
Overall_Total |
|
version_form |
String |
121
|
Recommended |
Form used/assessment name |
|
|
|
|
site |
String |
101
|
Recommended |
Site |
|
Study Site
|
|
|
respond_detail_oth_spec |
String |
255
|
Recommended |
Respondent details |
|
|
completed_by_other |
|
comments1 |
String |
1,000
|
Recommended |
Comments 1 |
|
|
page_2_comments |
|
comments2 |
String |
1,000
|
Recommended |
Comments 2 |
|
|
page_3_comments |
|
comments3 |
String |
1,000
|
Recommended |
Comments 3 |
|
|
page_4_comments |
|
comments4 |
String |
1,000
|
Recommended |
Comments 4 |
|
|
page_6_comments |
|
respond_detail |
Integer |
|
Recommended |
Respondent detail |
|
1 = Mother; 2 = Father; 3 = Other relative or custodial adult; 4 = Teacher or caregiver; 5 = Other specialist; 6 = Other; 7 = Child; 8= Spouse; 999 = Not available
|
completed_by |
|
repetitive_interference |
Integer |
|
Recommended |
Repetitive Motor: In total, how often do the above behaviors interfere with other activities or interactions? |
0::4
|
0 = Never; 1 = Rarely; 2 = Sometimes; 3 = Often; 4 = Always
|
|
|
repetitive_mean_freq |
Float |
|
Recommended |
Repetitive Motor: Mean frequency score |
|
|
|
|
injurious_interference |
Integer |
|
Recommended |
Self-Directed and Self-Injurious: In total, how often do the above behaviors interfere with other activities or interactions? |
0::4
|
0 = Never; 1 = Rarely; 2 = Sometimes; 3 = Often; 4 = Always
|
|
|
injurious_mean_freq |
Float |
|
Recommended |
Self-Directed and Self-Injurious: Mean frequency score |
|
|
|
|
restricted_mean_freq |
Float |
|
Recommended |
Restricted Behavior: Mean frequency score |
|
|
|
|
ritual_interference |
Integer |
|
Recommended |
Ritual and Routine Behavior: In total, how often do the above behaviors interfere with other activities or interactions? |
0::4
|
0 = Never; 1 = Rarely; 2 = Sometimes; 3 = Often; 4 = Always
|
|
|
ritual_mean_freq |
Float |
|
Recommended |
Ritual and Routine Behavior: Mean frequency score |
|
|
|
|
composite_endorsed |
Integer |
|
Recommended |
Composite Score: Number of items endorsed |
|
|
|
|
composite_interference |
Integer |
|
Recommended |
Composite Score: Interference Rating |
0::4
|
0 = Never; 1 = Rarely; 2 = Sometimes; 3 = Often; 4 = Always
|
|
|
composite_raw_freq |
Integer |
|
Recommended |
Composite Score: Raw frequency score |
|
|
|
|
composite_mean_freq |
Float |
|
Recommended |
Composite Score: Mean frequency score |
|
|
|
|
rbs_ecs_q_1 |
Integer |
|
Recommended |
Repetitive Motor Behavior: Legs |
0::4
|
0 = Behavior does not occur; 1 = Behavior occurs about weekly or less; 2 = Behavior occurs several times a week; 3 = Behavior occurs about daily; 4 = Behavior occurs many times a day
|
q_1 |
|
rbs_ecs_q_2 |
Integer |
|
Recommended |
Repetitive Motor Behavior: Head |
0::4
|
0 = Behavior does not occur; 1 = Behavior occurs about weekly or less; 2 = Behavior occurs several times a week; 3 = Behavior occurs about daily; 4 = Behavior occurs many times a day
|
q_2 |
|
rbs_ecs_q_3 |
Integer |
|
Recommended |
Repetitive Motor Behavior: Whole body/Torso |
0::4
|
0 = Behavior does not occur; 1 = Behavior occurs about weekly or less; 2 = Behavior occurs several times a week; 3 = Behavior occurs about daily; 4 = Behavior occurs many times a day
|
q_3 |
|
rbs_ecs_q_4 |
Integer |
|
Recommended |
Repetitive Motor Behavior: Arms/Hands/Fingers |
0::4
|
0 = Behavior does not occur; 1 = Behavior occurs about weekly or less; 2 = Behavior occurs several times a week; 3 = Behavior occurs about daily; 4 = Behavior occurs many times a day
|
q_4 |
|
rbs_ecs_q_5 |
Integer |
|
Recommended |
Repetitive Motor Behavior: Arms/Hands/Fingers on surfaces |
0::4
|
0 = Behavior does not occur; 1 = Behavior occurs about weekly or less; 2 = Behavior occurs several times a week; 3 = Behavior occurs about daily; 4 = Behavior occurs many times a day
|
q_5 |
|
rbs_ecs_q_6 |
Integer |
|
Recommended |
Repetitive Motor Behavior: Object usage |
0::4
|
0 = Behavior does not occur; 1 = Behavior occurs about weekly or less; 2 = Behavior occurs several times a week; 3 = Behavior occurs about daily; 4 = Behavior occurs many times a day
|
q_6 |
|
rbs_ecs_q_7 |
Integer |
|
Recommended |
Repetitive Motor Behavior: Mouthing objects |
0::4
|
0 = Behavior does not occur; 1 = Behavior occurs about weekly or less; 2 = Behavior occurs several times a week; 3 = Behavior occurs about daily; 4 = Behavior occurs many times a day
|
q_7 |
|
rbs_ecs_q_8 |
Integer |
|
Recommended |
Repetitive Motor Behavior: Locomotion |
0::4
|
0 = Behavior does not occur; 1 = Behavior occurs about weekly or less; 2 = Behavior occurs several times a week; 3 = Behavior occurs about daily; 4 = Behavior occurs many times a day
|
q_8 |
|
rbs_ecs_q_9 |
Integer |
|
Recommended |
Repetitive Motor Behavior: Vocalizations |
0::4
|
0 = Behavior does not occur; 1 = Behavior occurs about weekly or less; 2 = Behavior occurs several times a week; 3 = Behavior occurs about daily; 4 = Behavior occurs many times a day
|
q_9 |
|
rbs_ecs_q_10 |
Integer |
|
Recommended |
Self-Directed and Self-Injurious Behavior: Hits self with body part |
0::4
|
0 = Behavior does not occur; 1 = Behavior occurs about weekly or less; 2 = Behavior occurs several times a week; 3 = Behavior occurs about daily; 4 = Behavior occurs many times a day
|
q_10 |
|
rbs_ecs_q_11 |
Integer |
|
Recommended |
Self-Directed and Self-Injurious Behavior: Hits self with object |
0::4
|
0 = Behavior does not occur; 1 = Behavior occurs about weekly or less; 2 = Behavior occurs several times a week; 3 = Behavior occurs about daily; 4 = Behavior occurs many times a day
|
q_11 |
|
rbs_ecs_q_12 |
Integer |
|
Recommended |
Self-Directed and Self-Injurious Behavior: Hits self against surface/object |
0::4
|
0 = Behavior does not occur; 1 = Behavior occurs about weekly or less; 2 = Behavior occurs several times a week; 3 = Behavior occurs about daily; 4 = Behavior occurs many times a day
|
q_12 |
|
rbs_ecs_q_13 |
Integer |
|
Recommended |
Self-Directed and Self-Injurious Behavior: Bites self |
0::4
|
0 = Behavior does not occur; 1 = Behavior occurs about weekly or less; 2 = Behavior occurs several times a week; 3 = Behavior occurs about daily; 4 = Behavior occurs many times a day
|
q_13 |
|
rbs_ecs_q_14 |
Integer |
|
Recommended |
Self-Directed and Self-Injurious Behavior: Rubs, scratches, pokes, or pinches self |
0::4
|
0 = Behavior does not occur; 1 = Behavior occurs about weekly or less; 2 = Behavior occurs several times a week; 3 = Behavior occurs about daily; 4 = Behavior occurs many times a day
|
q_14 |
|
rbs_ecs_q_15 |
Integer |
|
Recommended |
Self-Directed and Self-Injurious Behavior: Pulls own hair |
0::4
|
0 = Behavior does not occur; 1 = Behavior occurs about weekly or less; 2 = Behavior occurs several times a week; 3 = Behavior occurs about daily; 4 = Behavior occurs many times a day
|
q_15 |
|
rbs_ecs_q_16 |
Integer |
|
Recommended |
Self-Directed and Self-Injurious Behavior: Skin picking |
0::4
|
0 = Behavior does not occur; 1 = Behavior occurs about weekly or less; 2 = Behavior occurs several times a week; 3 = Behavior occurs about daily; 4 = Behavior occurs many times a day
|
q_16 |
|
rbs_ecs_q_17 |
Integer |
|
Recommended |
Restricted Behavior: Limited and intense interests |
0::4
|
0 = Behavior does not occur; 1 = Behavior occurs about weekly or less; 2 = Behavior occurs several times a week; 3 = Behavior occurs about daily; 4 = Behavior occurs many times a day
|
q_17 |
|
rbs_ecs_q_18 |
Integer |
|
Recommended |
Restricted Behavior: Restricted use of media |
0::4
|
0 = Behavior does not occur; 1 = Behavior occurs about weekly or less; 2 = Behavior occurs several times a week; 3 = Behavior occurs about daily; 4 = Behavior occurs many times a day
|
q_18 |
|
rbs_ecs_q_19 |
Integer |
|
Recommended |
Restricted Behavior: Sensory interests |
0::4
|
0 = Behavior does not occur; 1 = Behavior occurs about weekly or less; 2 = Behavior occurs several times a week; 3 = Behavior occurs about daily; 4 = Behavior occurs many times a day
|
q_19 |
|
rbs_ecs_q_20 |
Integer |
|
Recommended |
Restricted Behavior: Strongly attached to specific object |
0::4
|
0 = Behavior does not occur; 1 = Behavior occurs about weekly or less; 2 = Behavior occurs several times a week; 3 = Behavior occurs about daily; 4 = Behavior occurs many times a day
|
q_20 |
|
rbs_ecs_q_21 |
Integer |
|
Recommended |
Restricted Behavior: Preoccupation with parts of objects |
0::4
|
0 = Behavior does not occur; 1 = Behavior occurs about weekly or less; 2 = Behavior occurs several times a week; 3 = Behavior occurs about daily; 4 = Behavior occurs many times a day
|
q_21 |
|
rbs_ecs_q_22 |
Integer |
|
Recommended |
Restricted Behavior: Stillness |
0::4
|
0 = Behavior does not occur; 1 = Behavior occurs about weekly or less; 2 = Behavior occurs several times a week; 3 = Behavior occurs about daily; 4 = Behavior occurs many times a day
|
q_22 |
|
rbs_ecs_q_23 |
Integer |
|
Recommended |
Restricted Behavior: Visual inspection |
0::4
|
0 = Behavior does not occur; 1 = Behavior occurs about weekly or less; 2 = Behavior occurs several times a week; 3 = Behavior occurs about daily; 4 = Behavior occurs many times a day
|
q_23 |
|
rbs_ecs_q_24 |
Integer |
|
Recommended |
Restricted Behavior: Fascination with movement |
0::4
|
0 = Behavior does not occur; 1 = Behavior occurs about weekly or less; 2 = Behavior occurs several times a week; 3 = Behavior occurs about daily; 4 = Behavior occurs many times a day
|
q_24 |
|
rbs_ecs_q_25 |
Integer |
|
Recommended |
Ritual and Routine Behavior: Arranging |
0::4
|
0 = Behavior does not occur; 1 = Behavior occurs about weekly or less; 2 = Behavior occurs several times a week; 3 = Behavior occurs about daily; 4 = Behavior occurs many times a day
|
q_25 |
|
rbs_ecs_q_26 |
Integer |
|
Recommended |
Ritual and Routine Behavior: Placement of objects |
0::4
|
0 = Behavior does not occur; 1 = Behavior occurs about weekly or less; 2 = Behavior occurs several times a week; 3 = Behavior occurs about daily; 4 = Behavior occurs many times a day
|
q_26 |
|
rbs_ecs_q_27 |
Integer |
|
Recommended |
Ritual and Routine Behavior: Upset visiting new places |
0::4
|
0 = Behavior does not occur; 1 = Behavior occurs about weekly or less; 2 = Behavior occurs several times a week; 3 = Behavior occurs about daily; 4 = Behavior occurs many times a day
|
q_27 |
|
rbs_ecs_q_28 |
Integer |
|
Recommended |
Ritual and Routine Behavior: Upset if interrupted |
0::4
|
0 = Behavior does not occur; 1 = Behavior occurs about weekly or less; 2 = Behavior occurs several times a week; 3 = Behavior occurs about daily; 4 = Behavior occurs many times a day
|
q_28 |
|
rbs_ecs_q_29 |
Integer |
|
Recommended |
Ritual and Routine Behavior: Appearance of others |
0::4
|
0 = Behavior does not occur; 1 = Behavior occurs about weekly or less; 2 = Behavior occurs several times a week; 3 = Behavior occurs about daily; 4 = Behavior occurs many times a day
|
q_29 |
|
rbs_ecs_q_30 |
Integer |
|
Recommended |
Ritual and Routine Behavior: Inflexible routine |
0::4
|
0 = Behavior does not occur; 1 = Behavior occurs about weekly or less; 2 = Behavior occurs several times a week; 3 = Behavior occurs about daily; 4 = Behavior occurs many times a day
|
q_30 |
|
rbs_ecs_q_31 |
Integer |
|
Recommended |
Ritual and Routine Behavior: Eating/mealtime |
0::4
|
0 = Behavior does not occur; 1 = Behavior occurs about weekly or less; 2 = Behavior occurs several times a week; 3 = Behavior occurs about daily; 4 = Behavior occurs many times a day
|
q_31 |
|
rbs_ecs_q_32 |
Integer |
|
Recommended |
Ritual and Routine Behavior: Sleeping/bedtime |
0::4
|
0 = Behavior does not occur; 1 = Behavior occurs about weekly or less; 2 = Behavior occurs several times a week; 3 = Behavior occurs about daily; 4 = Behavior occurs many times a day
|
q_32 |
|
rbs_ecs_q_33 |
Integer |
|
Recommended |
Ritual and Routine Behavior: Play |
0::4
|
0 = Behavior does not occur; 1 = Behavior occurs about weekly or less; 2 = Behavior occurs several times a week; 3 = Behavior occurs about daily; 4 = Behavior occurs many times a day
|
q_33 |
|
rbs_ecs_q_34 |
Integer |
|
Recommended |
Ritual and Routine Behavior: Social interaction |
0::4
|
0 = Behavior does not occur; 1 = Behavior occurs about weekly or less; 2 = Behavior occurs several times a week; 3 = Behavior occurs about daily; 4 = Behavior occurs many times a day
|
q_34 |
|
restricted_interference |
Integer |
|
Recommended |
Restricted Behavior: In total, how often do the above behaviors interfere with other activities or interactions? |
0::4
|
0 = Never; 1 = Rarely; 2 = Sometimes; 3 = Often; 4 = Always
|
|
|
sex |
String |
20
|
Required |
Sex of subject at birth |
|
M = Male; F = Female; O=Other; NR = Not reported
|
gender |
|
repetitive_endorsed |
Integer |
|
Recommended |
Repetitive Motor: Number of items endorsed |
0::9; -9
|
-9=NK
|
|
|
repetitive_raw_freq |
Integer |
|
Recommended |
Repetitive Motor: Raw frequency score |
0::36; -9
|
-9=NK
|
|
|
injurious_endorsed |
Integer |
|
Recommended |
Self-Directed and Self-Injurious: Number of items endorsed |
0::7; -9
|
-9=NK
|
|
|
injurious_raw_freq |
Integer |
|
Recommended |
Self-Directed and Self-Injurious: Raw frequency score |
0::28; -9
|
-9=NK
|
|
|
restricted_endorsed |
Integer |
|
Recommended |
Restricted Behavior: Number of items endorsed |
0::8; -9
|
-9=NK
|
|
|
restricted_raw_freq |
Integer |
|
Recommended |
Restricted Behavior: Raw frequency score |
0::32; -9
|
-9=NK
|
|
|
ritual_endorsed |
Integer |
|
Recommended |
Ritual and Routine Behavior: Number of items endorsed |
0::10; -9
|
-9=NK
|
|
|
ritual_raw_freq |
Integer |
|
Recommended |
Ritual and Routine Behavior: Raw frequency score |
0::40; -9
|
-9=NK
|
|
|
sum_interference |
Integer |
|
Recommended |
Sum of interference ratings: Restricted, Repetitive, Injurious, and Ritual Interference |
0 :: 16; -9
|
-9=NK
|
|