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Sensory Assessment for Neurodevelopmental Disorders (SAND)

0 Shared Subjects

N/A
Clinical Assessments
Sensory
12/30/2016
sand01
12/30/2016
View Change History
01
Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR* guid
src_subject_id String 20 Required Subject ID how it's defined in lab/project
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0::1440 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
sex String 20 Required Sex of subject at birth M;F; O; NR M = Male; F = Female; O=Other; NR = Not reported gender
sand_dx Integer Required Diagnosis 1::3 1=typically developing; 2=ASD; 3=shank3 dx
respondent String 20 Recommended Respondent
Mother;Father;Parent;Guardian;Teacher;Child;Self;Caregiver;Partner;Other
respondent_rel
comments_misc String 4,000 Recommended Miscellaneous comments on study, interview, methodology relevant to this form data
v1_1o Integer Required squints, covers, or closes eyes in response to bright or flickering visual stimuli, observed 0;1 0=No; 1=Yes observed_visual_hyperreactivity_11
v1_1r Integer Required squints, covers, or closes eyes in response to bright or flickering visual stimuli, reported 0;1 0=No; 1=Yes reported_visual_hyperreactivity_11
v1_2o Integer Required squints, covers, or closes eyes in response to moving visual stimuli, observed 0;1 0=No; 1=Yes observed_visual_hyperreactivity_12
v1_2r Integer Required squints, covers, or closes eyes in response to moving visual stimuli, reported 0;1 0=No; 1=Yes reported_visual_hyperreactivity_12
v1_3o Integer Required bothered by visual stimuli (pushes away or turns away from objects), observed 0;1 0=No; 1=Yes observed_visual_hyperreactivity_13
v1_3r Integer Required bothered by visual stimuli (pushes away or turns away from objects), reported 0;1 0=No; 1=Yes reported_visual_hyperreactivity_13
v1osev Integer Recommended Visual Hyperreactivity Severity, Observed 1;2 1=Mild; 2=Moderate/Severe observed_visual_hyperreactivity_severity
v1rsev Integer Recommended Visual Hyperreactivity Severity, reported 1;2 1=Mild; 2=Moderate/Severe reported_visual_hyperreactivity_severity
v2_1o Integer Required Slow to respond or unresponsive to direct presentation of bright or flickering lights, observed 0;1 0=No; 1=Yes observed_visual_hyporeactivity_21
v2_1r Integer Required Slow to respond or unresponsive to direct presentation of bright or flickering lights, reported 0;1 0=No; 1=Yes reported_visual_hyporeactivity_21
v2_2o Integer Required Slow to respond or unresponsive to moving objects, observed 0;1 0=No; 1=Yes observed_visual_hyporeactivity_22
v2_2r Integer Required Slow to respond or unresponsive to moving objects, reported 0;1 0=No; 1=Yes reported_visual_hyporeactivity_22
v2_3o Integer Required Does not notice presentation of visual stimuli without prompting, observed 0;1 0=No; 1=Yes observed_visual_hyporeactivity_23
v2_3r Integer Required Does not notice presentation of visual stimuli without prompting, reported 0;1 0=No; 1=Yes reported_visual_hyporeactivity_23
v2osev Integer Recommended Visual Hyporeactivity Severity, observed 1;2 1=Mild; 2=Moderate/Severe observed_visual_hyporeactivity_severity
v2totalseverity Integer Recommended Visual Hyporeactivity Severity, reported 1;2 1=Mild; 2=Moderate/Severe reported_visual_hyporeactivity_severity
v3_1o Integer Required Fixates on visual stimmuli (intense peering, visual inspection), observed 0;1 0=No; 1=Yes observed_visual_sensoryseeking_31
v3_1r Integer Required Fixates on visual stimmuli (intense peering, visual inspection), reported 0;1 0=No; 1=Yes reported_visual_sensoryseeking_31
v3_2o Integer Required Moves or flicks fingers or objects in peripheral visual fields, observed 0;1 0=No; 1=Yes observed_visual_sensoryseeking_32
v3_2r Integer Required Moves or flicks fingers or objects in peripheral visual fields, reported 0;1 0=No; 1=Yes reported_visual_sensoryseeking_32
v3_3o Integer Required Seeks out bright, colored, or shiny objects/lights, observed 0;1 0=No; 1=Yes observed_visual_sensoryseeking_33
v3_3r Integer Required Seeks out bright, colored, or shiny objects/lights, reported 0;1 0=No; 1=Yes reported_visual_sensoryseeking_33
v3osev Integer Recommended Visual Sensory Seeking Severity, observed 1;2 1=Mild; 2=Moderate/Severe observed_visual_sensoryseeking_severity
v3rsev Integer Recommended Visual Sensory Seeking Severity, reported 1;2 1=Mild; 2=Moderate/Severe reported_visual_sensoryseeking_severity
t1_1o Integer Required Bothered by certain textures, observed 0;1 0=No; 1=Yes observed_tactile_hyperreactivity_11
t1_1r Integer Required Bothered by certain textures, reported 0;1 0=No; 1=Yes reported_tactile_hyperreactivity_11
t1_2o Integer Required Heightened reaction to hot or cold temperatures, observed 0;1 0=No; 1=Yes observed_tactile_hyperreactivity_12
t1_2r Integer Required Heightened reaction to hot or cold temperatures, reported 0;1 0=No; 1=Yes reported_tactile_hyperreactivity_12
t1_3o Integer Required Resists touch by people or objects, observed 0;1 0=No; 1=Yes observed_tactile_hyperreactivity_13
t1_3r Integer Required Resists touch by people or objects, reported 0;1 0=No; 1=Yes reported_tactile_hyperreactivity_13
t1osev Integer Recommended Tactile Hyperreactivity Severity, observed 1;2 1=Mild; 2=Moderate/Severe observed_tactile_hyperreactivity_severity
t1rsev Integer Recommended Tactile Hyperreactivity Severity, reported 1;2 1=Mild; 2=Moderate/Severe reported_tactile_hyperreactivity_severity
t2_1o Integer Required Does not notice when touched, observed 0;1 0=No; 1=Yes observed_tactile_hyporeactivity_21
t2_1r Integer Required Does not notice when touched, reported 0;1 0=No; 1=Yes reported_tactile_hyporeactivity_21
t2_2o Integer Required Minimal or no reaction to hot or cold temperatures or pain, observed 0;1 0=No; 1=Yes observed_tactile_hyporeactivity_22
t2_2r Integer Required Minimal or no reaction to hot or cold temperatures or pain, reported 0;1 0=No; 1=Yes reported_tactile_hyporeactivity_22
t2_3o Integer Required Decreased awareness of of texture, observed 0;1 0=No; 1=Yes observed_tactile_hyporeactivity_23
t2_3r Integer Required Decreased awareness of of texture, reported 0;1 0=No; 1=Yes reported_tactile_hyporeactivity_23
t2osev Integer Recommended Tactile Hyporeactivity Severity, observed 1;2 1=Mild; 2=Moderate/Severe observed_tactile_hyporeactivity_severity
t2rsev Integer Recommended Tactile Hyporeactivity Severity, reported 1;2 1=Mild; 2=Moderate/Severe reported_tactile_hyporeactivity_severity
t3_1o Integer Required Fascination with certain textures, observed 0;1 0=No; 1=Yes observed_tactile_unusual_31
t3_1r Integer Required Fascination with certain textures, reported 0;1 0=No; 1=Yes reported_tactile_unusual_31
t3_2o Integer Required Often crushes/bumps into things, seeks pressure, observed 0;1 0=No; 1=Yes observed_tactile_unusual_32
t3_2r Integer Required Often crushes/bumps into things, seeks pressure, reported 0;1 0=No; 1=Yes reported_tactile_unusual_32
t3_3o Integer Required Seeks opportunity to feel textures repeatedly or for extended periods, observed 0;1 0=No; 1=Yes observed_tactile_unusual_33
t3_3r Integer Required Seeks opportunity to feel textures repeatedly or for extended periods, reported 0;1 0=No; 1=Yes reported_tactile_unusual_33
t3osev Integer Recommended Tactile Sensory Seeking Severity, observed 1;2 1=Mild; 2=Moderate/Severe observed_tactile_unusual_severity
t3rsev Integer Recommended Tactile Sensory Seeking Severity, reported 1;2 1=Mild; 2=Moderate/Severe reported_tactile_unusual_severity
a1_1o Integer Required Startles often in response to sounds, observed 0;1 0=No; 1=Yes observed_auditory_hyperreactivity_11
a1_1r Integer Required Startles often in response to sounds, reported 0;1 0=No; 1=Yes reported_auditory_hyperreactivity_11
a1_2o Integer Required Tries to stop objects making sounds, observed 0;1 0=No; 1=Yes observed_auditory_hyperreactivity_12
a1_2r Integer Required Tries to stop objects making sounds, reported 0;1 0=No; 1=Yes reported_auditory_hyperreactivity_12
a1_3o Integer Required Holds hands over ears or puts fingers in ears in response to sounds, observed 0;1 0=No; 1=Yes observed_auditory_hyperreactivity_13
a1_3r Integer Required Holds hands over ears or puts fingers in ears in response to sounds, reported 0;1 0=No; 1=Yes reported_auditory_hyperreactivity_13
a1osev Integer Recommended Auditory Hyperreactivity Severity, observed 1;2 1=Mild; 2=Moderate/Severe observed_auditory_hyperreactivity_severity
a1rsev Integer Recommended Auditory Hyperreactivity Severity, reported 1;2 1=Mild; 2=Moderate/Severe reported_auditory_hyperreactivity_severity
a2_1o Integer Required Slow to respond or unaware of everyday sounds (i.e., phone ringing), observed 0;1 0=No; 1=Yes observed_auditory_hyporeactivity_21
a2_1r Integer Required Slow to respond or unaware of everyday sounds (i.e., phone ringing), reported 0;1 0=No; 1=Yes reported_auditory_hyporeactivity_21
a2_2o Integer Required Slow to respond or unaware of noxious noises (i.e., sirens), observed 0;1 0=No; 1=Yes observed_auditory_hyporeactivity_22
a2_2r Integer Required Slow to respond or unaware of noxious noises (i.e., sirens), reported 0;1 0=No; 1=Yes reported_auditory_hyporeactivity_22
a2_3o Integer Required Minimally responsive to loud unexpected noises, observed 0;1 0=No; 1=Yes observed_auditory_hyporeactivity_23
a2_3r Integer Required Minimally responsive to loud unexpected noises, reported 0;1 0=No; 1=Yes reported_auditory_hyporeactivity_23
a2osev Integer Recommended Auditory Hyporeactivity Severity, observed 1;2 1=Mild; 2=Moderate/Severe observed_auditory_hyporeactivity_severity
a2rsev Integer Recommended Auditory Hyporeactivity Severity, reported 1;2 1=Mild; 2=Moderate/Severe reported_auditory_hyporeactivity_severity
a3_1o Integer Required Repeatedly seeks out/fascinated by sounds (including unusual sounds i.e., water), observed 0;1 0=No; 1=Yes observed_auditory_sensoryseeking_31
a3_1r Integer Required Repeatedly seeks out/fascinated by sounds (including unusual sounds i.e., water), reported 0;1 0=No; 1=Yes reported_auditory_sensoryseeking_31
a3_2o Integer Required Atypical use of objects to create sounds, observed 0;1 0=No; 1=Yes observed_auditory_sensoryseeking_32
a3_2r Integer Required Atypical use of objects to create sounds, reported 0;1 0=No; 1=Yes reported_auditory_sensoryseeking_32
a3_3o Integer Required Puts ear close to noisemaking objects, observed 0;1 0=No; 1=Yes observed_auditory_sensoryseeking_33
a3_3r Integer Required Puts ear close to noisemaking objects, reported 0;1 0=No; 1=Yes reported_auditory_sensoryseeking_33
a3osev Integer Recommended Auditory Sensory Seeking Severity,observed 1;2 1=Mild; 2=Moderate/Severe observed_auditory_sensoryseeking_severity
a3rsev Integer Recommended Auditory Sensory Seeking Severity,reported 1;2 1=Mild; 2=Moderate/Severe reported_auditory_sensoryseeking_severity
sand_tot Integer Required SAND Total score 0 :: 100 total
totalo Integer Required Total observed 0 :: 100
totalr Integer Required Total reported 0 :: 100
hyperreactivity Integer Required Total hyperractivity 0 :: 100
hyporeactivity Integer Required Total hyporeactivity 0 :: 100
seeking Integer Required Total seeking 0 :: 100
ohyper Integer Required Total hyperreactivity, observed 0 :: 100
rhyper Integer Required Total hyperreactivity, reported 0 :: 100
ohypo Integer Required Total hyporeactivity, observed 0 :: 100
rhypo Integer Required Total hyporeactivity, reported 0 :: 100
oseeking Integer Required Total seeking, observed 0 :: 100
rseeking Integer Required Total seeking, reported 0 :: 100
totalvisual Integer Required Total visual 0 :: 100
totaltactile Integer Required Total tactile 0 :: 100
totalauditory Integer Required Total auditory 0 :: 100
ovisual Integer Required Total visual, observed 0 :: 100
rvisual Integer Required Total visual, reported 0 :: 100
otactile Integer Required Total tactile, observed 0 :: 100
rtactile Integer Required Total tactile, reported 0 :: 100
oauditory Integer Required Total auditory, observed 0 :: 100
rauditory Integer Required Total auditory, reported 0 :: 100
total_minus_severity Integer Required Total minus severity 0 :: 100
totalo_minus_severity Integer Required Total observed minus severity 0 :: 100
total_r_minus_severity Integer Required Total reported minus severity 0 :: 100
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
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  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
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