|
subjectkey |
GUID |
|
Required |
The NDAR Global Unique Identifier (GUID) for research subject |
NDAR*
|
|
guid |
|
src_subject_id |
String |
20
|
Required |
Subject ID how it's defined in lab/project |
|
|
clinical_barcode, id, patid |
|
interview_date |
Date |
|
Required |
Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY |
|
|
bl_visit_date |
|
interview_age |
Integer |
|
Required |
Age in months at the time of the interview/test/sampling/imaging. |
0::1440
|
Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
|
TSMagemos, ch_age |
|
sex |
String |
20
|
Required |
Sex of subject at birth |
|
M = Male; F = Female; O=Other; NR = Not reported
|
ch_sex, gender, sex, tangen |
Query
|
tsmfemale |
Integer |
|
Required |
TSM Female development stage |
1::5; 9; 9998; 9999
|
1 = Prepubertal. No breast tissue; 2 = Areolar enlargement with breast bud; 3 = Enlargement of breast and areola as single mound; 4 = Projection of areola above breast as double mound; 5 = Adult. Papilla projects out of areola that is part of breast contour; 9 = Missing value; 9998 =subject skipped; 9999=not applicable--subject is not female
|
tanner_fem_breast, tannerf_5, tsfcsg, tsfemalebreast |
Query
|
tsmmale |
Integer |
|
Required |
TSM Male development stage |
1::5; 9; 9998; 9999
|
1 = Prepubertal; 2 = Testes enlarge. Scrotum larger, reddened and coarser; 3 = Penis enlarges, initially in length. Continued growth of testes and scrotum; 4 = Penis grows in length and breadth. Continued growth of testes and scrotum; 5 = Testes, scrotum and penis adult size; -9 = Missing value; 9998 =subject skipped; 9999=not applicable--subject is not male
|
tanner_male_genital, tannerm_4, tsmalepenis |
Query
|
tsmboth |
Integer |
|
Required |
TSM Pubic hair development stage |
1::6; 9; 9998
|
1 = None; 2 = Few darker hairs along labia or at base of penis; 3 = Curly pigmented hairs across pubes; 4 = Small adult configuration; 5 = Adult configuration with spread onto inner thighs; 6 = Adult configuration with spread to linea alba; -9 = Missing value; 9998=subject skipped
|
tanner_fem_pubic_hair, tanner_male_pubic_hair, tannerf_6, tannerm_5, tsfcphg, tsfemalepubichair, tsmalepubichair |
|
nctclin |
String |
1,000
|
Recommended |
Clinical Notes |
|
|
TSMNote |
Query
|
stage |
Integer |
|
Recommended |
Study stage |
|
0 = Pre-Randomization (TADS) 1 = Stage 1 (TADS) 2 = Stage 2 (TADS) 3 = Stage 3 (TADS) 4 = Stage 4 (TADS) 5 = Stage 5 (SOFTAD); 51=Treatmentas Usual; 52=Screening Alone; 53=Intervention; 67=Unknown; -888=Not Applicable; -999=Missing;
|
|
Query
|
tsf1 |
Integer |
|
Recommended |
Developmental questions: How old do you look compared to other (boys/girls) your age? |
1::5
|
1= I look much younger than other boys/girls my age.; 2 = I look younger than other boys/girls my age.; 3 = I look about the same age as other boys/girls my age.; 4 = I look older than other boys/girls my age.; 5 = I look much older than other boys/girls my age.
|
tanner1, tansr1 |
Query
|
tsf2 |
Integer |
|
Recommended |
Developmental questions: As (boys/girls) grow up, their bodies go through many changes. These changes start happening at different times for different people. Which of the following best describes you? |
1::5
|
1 = My body has not started changing yet; 2 = My body started changing later than most people my age; 3 = My body started changing around the same time as most people my age 4 = My body started changing earlier than most people my age; 5 = My body started changing much earlier than most people my age
|
tanner2, tansr2 |
Query
|
tsf3 |
Integer |
|
Recommended |
Developmental questions: (Boys/Girls) bodies grow and change, sometimes quickly, sometimes slowly. How fast do you think that your body has changed in the past six months? |
1::5
|
1 = My body has changed very slowly in the last six months; 2 = My body has changed slowly in the last six months; 3 = My body has changed neither slowly nor quickly in the last six months; 4 = My body has changed quickly in the last six months; 5 = My body has changed very quickly in the last six months
|
tanner3, tansr3 |
Query
|
tsftsg |
Integer |
|
Recommended |
Developmental pictures: Teenagers rating of Stage of Growth |
1::5
|
For Males: 1 = The testes, scrotum, and penis are about the same size and shape as they were when you were a child. 2 = The testes and scrotum are bigger � 3 = The penis has grown in length� 4 = The penis has gotten even bigger� 5 = The penis, scrotum, and testes are the size and shape of that of an adult man. For Females: 1 = The nipple is raised a little in this stage. The rest of the breast is still flat. 2 = This is the breast bud stage� 3 = The areola and breast are both larger than in stage 2� 4 = The areola and nipple make up a mound that sticks up above the shape of the breast� 5 = This is the mature adult stage�
|
aftb, amtg, ch_tanner_hair, pb_penis, pftb, pg_breast, pmtg, tanner4, tansr4 |
Query
|
tsftphg |
Integer |
|
Recommended |
Developmental pictures: Teenager's rating of Pubic Hair Growth |
1::5;99
|
For Males: 1 = There is no pubic hair at all. 2 = There is a little soft, long, lightly colored hair 3 = The hair is darker in this stage. It is more curled 4 = The hair is now as dark and curly as that of an adult man 5 = The hair has spread out to the legs For Females: 1 = There is no pubic hair. 2 = There is a little long, lightly colored hair 3 = The hair is darker in this stage. It is coarser and more curled 4 = The hair is now as dark, curly, and coarse as that of an adult woman 5 = The hair now is like that of an adult woman; 99 = Refused
|
aftp, amph, ch_tanner_development, pb_pubic, pftp, pg_pubic, pmtp, tanner5, tansr6 |
Query
|
asstyp |
Integer |
|
Recommended |
Assessment type |
1::20
|
1=TADS GATE A; 2=TADS GATE B; 3 = TADS Gate C; 4 = TADS Week 6; 5 = TADS Week 12; 6 = TADS Week 18; 7 = TADS Week 24; 8 = TADS Week 30; 9 = TADS Week 36; 10 = TADS F/U Mo 3; 11 = TADS F/U Mo 6; 12 = TADS F/U Mo 9; 13 = TADS F/U Mo 12; 14 = SOFTAD month 6; 15 = SOFTAD month 12; 16 = SOFTAD month 18; 17 = SOFTAD month 24; 18 = SOFTAD month 30; 19 = SOFTAD month 36; 20 = SOFTAD month 42
|
|
Query
|
bsit0 |
Float |
|
Recommended |
Weeks from Time 0/baseline to assessment |
|
|
|
Query
|
days_baseline |
Integer |
|
Recommended |
Days since baseline |
|
|
daytan |
Query
|
assbdic |
String |
5
|
Recommended |
Assessment Point |
D;14;E;24;LB;36;72;96;120; 9; B; 3; 7; 144; 168;192; C
|
D=MTA baseline assessment; 14=MTA 14 month assessment; E=MTA early termination assessment; B = MTA Pre-Baseline Screening Assessment (579/579); 09 = MTA 9 Month Assessment (530/530); 24=MTA 24 month assessment; LB=LNCG baseline assessment; 36=MTA and LNCG 3 year assessment; 72=MTA and LNCG 6 year assessment; 96=MTA and LNCG 8 year assessment; 03 = MTA 3 Month Assessment (438/687);120=MTA and LNCG 10 year assessment; 7= 7th Grade Assessment (221/276); 144 = MTA & LNCG 12 Month Assessment (578/578); 168 = MTA & LNCG 14 Month Assessment (585/585); 192 = MTA & LNCG 16 Month Assessment (505/505); C = MTA Pre-Baseline Screening Assessment (78/78)
|
asstan |
Query
|
relationship |
Integer |
|
Recommended |
Relationship of respondent to individual |
|
1 = Biological mom; 2 = Biological dad; 3 = Grandparent; 4 = Special education (sped) teacher; 5 = General education teacher; 6 = Occupational therapist; 7 = Speech and language therapist; 8 = Behavioral therapist; 9 = Paraprofessional; 10 = Aide; 11 = Principal; 12 = Administrator; 14 = Content teacher; 15 = Parent center director; 16 = Self; 17=Adoptive mother; 18=Adoptive father; 19=Foster mother; 20 = Foster father; 21=Grandmother; 22=Grandfather; 23=Step-mother; 24 = Step-father; 25=Aunt; 26=Uncle; 28=Both parents;31= Grandmother from mother side; 32= Grandfather from mother side; 33= Grandmother from father side; 34= Grandfather from father side; 36= Brother; 37= Sister; 38= Cousin; 39= female caregiver; 40=male caregiver; 41=Female child; 42=Male child; 43=Spouse/Mate; 44=Friend; 45=Parent; 46=Significant other; 47=Sibling; 48=Son/Daughter; 49=Son-in-law/Daughter-in law; 50=Other Relative; 51=Paid caregiver; 52=Friends; 53=Roommate; 54=Supervisor; 55=mother's boyfriend; 56=other parental figure; 57=Summary; 58=counselor ; 59 = other female relative; 60 = other male relative; 61 = non-relative ; 62=Maternal Aunt; 63=Maternal Uncle; 64=Maternal Cousin; 65 = Paternal Aunt; 66=Paternal Uncle; 67=Paternal Cousin ; 68=Biological/Adoptive Mother and Grandmother; 69=Biological/Adoptive Mother and Stepmother and Grandmother; 70=Biological/Adoptive Mother and Grandmother and Foster Father; 71=Biological/Adoptive Mother and Stepmother and Foster Mother; 72=Biological/Adoptive Mother and Foster Mother; 73=Biological/Adoptive Mother and Biological/Adoptive Father; 74=Biological/Adoptive Mother and Stepmother and Biological/Adoptive Father; 75=Biological/Adoptive Mother and Other; 76=Biological/Adoptive Mother and Stepmother and Stepfather; 77=Biological/Adoptive Mother and Stepfather; 78=Biological/Adoptive Mother and Grandfather; 79=Biological/Adoptive Mother and Stepmother and Foster Father; 80=Biological/Adoptive Mother and Stepmother; 81=Guardian, female; 82=Other female; 83=Guardian, male; 84=Other male; 85=Other/Grandparent/Nanny; 86 = Mother, Father, Guardian; 87 = Daughter, son, grandchild; 88 = Professional (e.g., social worker, nurse, therapist, psychiatrist, or group home staff); -999=Missing; 89 = Biological parent; 90=Other; 91 = Stepparent; 92 = Adoptive parent; 93 = Foster parent; 94 = Co-worker
|
reltan |
Query
|
actbdic |
Integer |
|
Recommended |
Active status |
0::5
|
0=Inactive-Data collected after the 14 month treatment phase/after early termination from treatment phase/prior to treatment phase; 1=Active-Data collected during the 14 month treatment phase while subject received originally assigned treatment regardless of degree of compliance; 2=Active-This is the last active assessment for subjects who were about to violate treatment arm by receiving alternate treatment; 3=Active-This is the last active assessment for subjects who were about to leave the study by moving away;4=Yes, Active; 5=No, Not Active
|
acttan |
Query
|
site |
String |
101
|
Recommended |
Site |
|
Study Site
|
sitenum |
Query
|
sjtyp |
Integer |
|
Recommended |
Subject type |
1;2
|
1=MTA randomized trial subject; 2=Local normative comparison group (LNCG) subject
|
|
Query
|
tansr5 |
Integer |
|
Recommended |
Clinician rating of Item4 |
1::5
|
For Males: 1 = The testes, scrotum, and penis are about the same size and shape as they were when you were a child. 2 = The testes and scrotum are bigger � 3 = The penis has grown in length� 4 = The penis has gotten even bigger� 5 = The penis, scrotum, and testes are the size and shape of that of an adult man. For Females: 1 = The nipple is raised a little in this stage. The rest of the breast is still flat. 2 = This is the breast bud stage� 3 = The areola and breast are both larger than in stage 2� 4 = The areola and nipple make up a mound that sticks up above the shape of the breast� 5 = This is the mature adult stage�
|
|
Query
|
tansr7 |
Integer |
|
Recommended |
Clinician rating of Item6 |
1::5
|
For Males: 1 = There is no pubic hair at all. 2 = There is a little soft, long, lightly colored hair� 3 = The hair is darker in this stage. It is more curled� 4 = The hair is now as dark and curly as that of an adult man� 5 = The hair has spread out to the legs� For Females: 1 = There is no pubic hair. 2 = There is a little long, lightly colored hair� 3 = The hair is darker in this stage. It is coarser and more curled� 4 = The hair is now as dark, curly, and coarse as that of an adult woman� 5 = The hair now is like that of an adult woman�
|
ch_tanner_dev_clinician |
|
respondent |
String |
20
|
Recommended |
Respondent |
|
|
who |
Query
|
visit |
String |
60
|
Recommended |
Visit name |
|
|
timepoint |
|
pmud |
Integer |
|
Recommended |
When was the last time you saw your son undressed? |
1 :: 6
|
1 = 1 day - 1 week; 2 = 1 week - 4 weeks; 3 = 1 month - 3 months; 4 = 3 months - 6 months; 5 = 6 months - 1 year; 6 = 1+ year
|
|
|
comqother |
String |
255
|
Recommended |
Respondent - Other (text) |
|
|
|
|
comments_misc |
String |
4,000
|
Recommended |
Miscellaneous comments on study, interview, methodology relevant to this form data |
|
|
|
|
pftbc |
Integer |
|
Recommended |
How certain are you? Parent report of adolescent female tanner breast (gondal) (with pictures) |
1 :: 3
|
1 = Very certain; 2 = Fairly certain; 3 = I don't know
|
|
|
pftpc |
Integer |
|
Recommended |
How certain are you? Parent report of adolescent female tanner pubic hair (adrenal) (with pictures) |
1 :: 3
|
1 = Very certain; 2 = Fairly certain; 3 = I don't know
|
|
|
pfud |
Integer |
|
Recommended |
When was the last time you saw your daughter undressed? |
1 :: 6
|
1 = 1 day - 1 week; 2 = 1 week - 4 weeks; 3 = 1 month - 3 months; 4 = 3 months - 6 months; 5 = 6 months - 1 year; 6 = 1+ year
|
|
|
pmtpc |
Integer |
|
Recommended |
How certain are you? Parent report of adolescent male tanner pubic hair (adrenal) (with pictures) |
1 :: 3
|
1 = Very certain; 2 = Fairly certain; 3 = I don't know
|
|
|
pmtgc |
Integer |
|
Recommended |
How certain are you? Parent report of adolescent male tanner gonadal (with pictures) |
1 :: 3
|
1 = Very certain; 2 = Fairly certain; 3 = I don't know
|
|
|
custom_src_id |
String |
30
|
Recommended |
Subject ID how it's defined in lab/project (used for source IDs that change depending on timepoint/visit/etc.) |
|
|
|
|
tannerf_4 |
Integer |
|
Recommended |
Have you gotten your period yet? |
0;1;999
|
0 = No; 1 = Yes; 999 = N/A or Prefer Not to Answer
|
|