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Recovery Outcomes Assessment

272 Shared Subjects

N/A
Clinical Assessments
Questionnaire
03/23/2016
famrecov01
03/23/2016
View Change History
01
Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR*
src_subject_id String 20 Required Subject ID how it's defined in lab/project
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0::1440 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
sex String 20 Required Sex of subject at birth M;F; O; NR M = Male; F = Female; O=Other; NR = Not reported gender
Query visit String 60 Recommended Visit name
Query monthsbl Float Recommended Actual number of months from Baseline
Query days_baseline Integer Recommended Days since baseline
Query relationship Integer Recommended Relationship of respondent to individual 1::94;-999 1 = Biological mom; 2 = Biological dad; 3 = Grandparent; 4 = Special education (sped) teacher; 5 = General education teacher; 6 = Occupational therapist; 7 = Speech and language therapist; 8 = Behavioral therapist; 9 = Paraprofessional; 10 = Aide; 11 = Principal; 12 = Administrator; 14 = Content teacher; 15 = Parent center director; 16 = Self; 17=Adoptive mother; 18=Adoptive father; 19=Foster mother; 20 = Foster father; 21=Grandmother; 22=Grandfather; 23=Step-mother; 24 = Step-father; 25=Aunt; 26=Uncle; 28=Both parents;31= Grandmother from mother side; 32= Grandfather from mother side; 33= Grandmother from father side; 34= Grandfather from father side; 36= Brother; 37= Sister; 38= Cousin; 39= female caregiver; 40=male caregiver; 41=Female child; 42=Male child; 43=Spouse/Mate; 44=Friend; 45=Parent; 46=Significant other; 47=Sibling; 48=Son/Daughter; 49=Son-in-law/Daughter-in law; 50=Other Relative; 51=Paid caregiver; 52=Friends; 53=Roommate; 54=Supervisor; 55=mother's boyfriend; 56=other parental figure; 57=Summary; 58=counselor ; 59 = other female relative; 60 = other male relative; 61 = non-relative ; 62=Maternal Aunt; 63=Maternal Uncle; 64=Maternal Cousin; 65 = Paternal Aunt; 66=Paternal Uncle; 67=Paternal Cousin ; 68=Biological/Adoptive Mother and Grandmother; 69=Biological/Adoptive Mother and Stepmother and Grandmother; 70=Biological/Adoptive Mother and Grandmother and Foster Father; 71=Biological/Adoptive Mother and Stepmother and Foster Mother; 72=Biological/Adoptive Mother and Foster Mother; 73=Biological/Adoptive Mother and Biological/Adoptive Father; 74=Biological/Adoptive Mother and Stepmother and Biological/Adoptive Father; 75=Biological/Adoptive Mother and Other; 76=Biological/Adoptive Mother and Stepmother and Stepfather; 77=Biological/Adoptive Mother and Stepfather; 78=Biological/Adoptive Mother and Grandfather; 79=Biological/Adoptive Mother and Stepmother and Foster Father; 80=Biological/Adoptive Mother and Stepmother; 81=Guardian, female; 82=Other female; 83=Guardian, male; 84=Other male; 85=Other/Grandparent/Nanny; 86 = Mother, Father, Guardian; 87 = Daughter, son, grandchild; 88 = Professional (e.g., social worker, nurse, therapist, psychiatrist, or group home staff); -999=Missing; 89 = Biological parent; 90=Other; 91 = Stepparent; 92 = Adoptive parent; 93 = Foster parent; 94 = Co-worker
Query roa002 Integer Recommended Informant in same household as client 1;2 1=Yes; 2=No;
Query roa003 Integer Recommended Hours of contact per week with client (past month) 0::168
Query roa004 Integer Recommended Current work status 1::3;9 1=Currently working (performed full/part time in the competitive labor market); 2=Currently working, non-competitive (e.g., volunteer, training); 3=Not working; 9=Do not know;
Query roa005 Integer Recommended Work hours per week 1::5; 99 1=40 or more hours per week; 2=30-39 hours per week; 3=20-29 hours per week; 4=10-19 hours per week; 5=Less than 10 hours per week and/or casual labor; 99=Do not know;
Query roa006 Integer Recommended Impairment in job functioning 1::5; 99 1=No impairment; 2=Adequate but some impairment; 3=Moderate impairment; 4=Marked impairment; 5=Extreme impairment or not functioning at all; 99=Not applicable/No information;
Query roa007 Integer Recommended Student status 1::5; 99 1=Goes to school full time; 2=Taking between half to full time schedule at school; 3=Going to school half-time; 4=Goes to school less than half-time; 5=Not going to school; 99=Do not know;
Query roa008 Integer Recommended Impairment in school functioning 1::5; 99 1=No impairment; 2=Adequate but some impairment; 3=Moderate impairment; 4=Marked impairment; 5=Extreme impairment or not functioning at all; 99=Not applicable/No information;
Query roa009 Integer Recommended Subject functions as a homemaker 1;2;9 1=Yes, functions as a homemaker; 2=No, does not function as a homemaker; 9=No information;
Query roa010 Integer Recommended Impairment in homemaker functioning 1::5; 99 1=No impairment; 2=Adequate but some impairment; 3=Moderate impairment; 4=Marked impairment; 5=Extreme impairment or not functioning at all; 99=Not applicable/No information;
Query roa011 Integer Recommended Impairment in chores functioning 1::5; 99 1=Has chores to do around the house and has no difficulty doing them; 2=Usually carries out most chores with little difficulty; 3=Carries out some chores, but not others or has some difficulty doing chores; 4=Usually does not carry out most chores; 5=Does not carry out any chores around the house, or is not assigned any; 99=Informant does not know anything about chores;
Query roa012 Integer Recommended Independence, need for assistance 1::5; 99 1=Independent, requires no help; 2=Reasonably independent but requires some help; 3=Somewhat dependent; 4=Moderately dependent; 5=Markedly dependent; 99=No information;
Query roa013 Integer Recommended Personal care, appearance and grooming 1::5; 99 1=Particularly well-groomed; 2=Reasonably neat, clean and appropriate; 3=Reasonable appearance; 4=Some signs of neglect or bizarre/inappropriate appearance; 5=Unkempt, dirty, signs of extreme neglect; 99=No information;
Query spous Integer Recommended Spouse/partner lives with patient 0;1 0=No; 1=Yes roa014
Query roa015 Integer Recommended Romantic contacts 1::5; 99 1=Has contact 2 or more times a week; 2=Has contact once a week; 3=Has contact 2 or 3 times during the month; 4=Has contact about once during the month; 5=Not at all during the last month; 99=No information;
Query roa016 Integer Recommended Non face-to-face romantic contacts 1::5; 99 1=Has 4 or more hours; 2=Has more than 2 and less than 4 hours; 3=Has more than 1 hour and less than 2 hours; 4=Has less than 1 hour; 5=Not at all during the last month; 99=No information;
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.