|
subjectkey |
GUID |
|
Required |
The NDAR Global Unique Identifier (GUID) for research subject |
NDAR*
|
|
|
|
src_subject_id |
String |
20
|
Required |
Subject ID how it's defined in lab/project |
|
|
record_id |
|
interview_age |
Integer |
|
Required |
Age in months at the time of the interview/test/sampling/imaging. |
0::1440
|
Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
|
|
|
interview_date |
Date |
|
Required |
Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY |
|
|
|
|
sex |
String |
20
|
Required |
Sex of subject at birth |
M;F; O; NR
|
M = Male; F = Female; O=Other; NR = Not reported
|
gender, sex |
Query
|
pdeq1 |
Integer |
|
Recommended |
I had moments of losing track of what
was going on. I "blanked out" or "space d
out" or in some way felt that I was not
part of what was going on. |
1::5
|
1 = Not at all
true;
2 = Slightly
true;
3 = Somewhat
true;
4 = Very
true
; 5 = Extremely
true
|
|
Query
|
pdeq2 |
Integer |
|
Recommended |
I found that I was on "automatic pilot". I
ended up doing things that I later realized
I hadn't actively decided to do. |
1::5
|
1 = Not at all
true;
2 = Slightly
true;
3 = Somewhat
true;
4 = Very
true
; 5 = Extremely
true
|
|
Query
|
pdeq3 |
Integer |
|
Recommended |
My sense of time changed. Things
seemed to be happening in slow motion. |
1::5
|
1 = Not at all
true;
2 = Slightly
true;
3 = Somewhat
true;
4 = Very
true
; 5 = Extremely
true
|
|
Query
|
pdeq4 |
Integer |
|
Recommended |
What was happening seemed unreal to
me, like I was in a dream, or watching a
movie or play. |
1::5
|
1 = Not at all
true;
2 = Slightly
true;
3 = Somewhat
true;
4 = Very
true
; 5 = Extremely
true
|
|
Query
|
pdeq5 |
Integer |
|
Recommended |
I felt as though I were spectator watching what was happening to me, as if I were floating above the scene or observing it? as an outsider |
1::5
|
1 = Not at all
true;
2 = Slightly
true;
3 = Somewhat
true;
4 = Very
true
; 5 = Extremely
true
|
|
Query
|
pdeq6 |
Integer |
|
Recommended |
There were moments when my sense of my own body seemed distorted or changed. I felt disconnected from my own
body, or it was unusually large or small. |
1::5
|
1 = Not at all
true;
2 = Slightly
true;
3 = Somewhat
true;
4 = Very
true
; 5 = Extremely
true
|
|
Query
|
pdeq7 |
Integer |
|
Recommended |
I felt as though things that were actually
happening to others were happening to
me like I was in danger when I really
wasn't. |
1::5
|
1 = Not at all
true;
2 = Slightly
true;
3 = Somewhat
true;
4 = Very
true
; 5 = Extremely
true
|
|
Query
|
pdeq8 |
Integer |
|
Recommended |
I was surprised to find afterwards that a
lot of things happened at the time that I
was nor aware of, especially things I
ordinarily would have noticed |
1::5
|
1 = Not at all
true;
2 = Slightly
true;
3 = Somewhat
true;
4 = Very
true
; 5 = Extremely
true
|
|
Query
|
pdeq9 |
Integer |
|
Recommended |
I felt confused; That is, there were
moments when I had difficulty making
sense of what was happening. |
1::5
|
1 = Not at all
true;
2 = Slightly
true;
3 = Somewhat
true;
4 = Very
true
; 5 = Extremely
true
|
|
Query
|
pdeq10 |
Integer |
|
Recommended |
I felt disoriented; that is, there were
moments when I felt uncertain about
where I was or what time it was. |
1::5
|
1 = Not at all
true;
2 = Slightly
true;
3 = Somewhat
true;
4 = Very
true
; 5 = Extremely
true
|
|
Query
|
pdi1 |
Integer |
|
Recommended |
I felt helpless to do more |
0::4
|
0= Not at all true; 1= Slightly true; 2 = Somewhat true; 3 = Very true; 4 = Extremely true
|
pdi_helpless |
Query
|
pdi2 |
Integer |
|
Recommended |
I felt sadness and grief |
0::4
|
0= Not at all true; 1= Slightly true; 2 = Somewhat true; 3 = Very true; 4 = Extremely true
|
|
Query
|
pdi3 |
Integer |
|
Recommended |
I felt frustrated or angry I could not do
more |
0::4
|
0= Not at all true; 1= Slightly true; 2 = Somewhat true; 3 = Very true; 4 = Extremely true
|
|
Query
|
pdi4 |
Integer |
|
Recommended |
I felt afraid for my own safety. |
0::4
|
0= Not at all true; 1= Slightly true; 2 = Somewhat true; 3 = Very true; 4 = Extremely true
|
pdi_afraidformysafety |
Query
|
pdi5 |
Integer |
|
Recommended |
I felt guilt that more was not done |
0::4
|
0= Not at all true; 1= Slightly true; 2 = Somewhat true; 3 = Very true; 4 = Extremely true
|
|
Query
|
pdi6 |
Integer |
|
Recommended |
I felt ashamed of my emotional reactions |
0::4
|
0= Not at all true; 1= Slightly true; 2 = Somewhat true; 3 = Very true; 4 = Extremely true
|
|
Query
|
pdi7 |
Integer |
|
Recommended |
I felt worried about the safety of others |
0::4
|
0= Not at all true; 1= Slightly true; 2 = Somewhat true; 3 = Very true; 4 = Extremely true
|
|
Query
|
pdi8 |
Integer |
|
Recommended |
I had the feeling I was about to lose
control of my emotions |
0::4
|
0= Not at all true; 1= Slightly true; 2 = Somewhat true; 3 = Very true; 4 = Extremely true
|
pdi_abouttolosecontrol |
Query
|
pdi9 |
Integer |
|
Recommended |
I had difficulty controlling my bowel
and bladder. |
0::4
|
0= Not at all true; 1= Slightly true; 2 = Somewhat true; 3 = Very true; 4 = Extremely true
|
pdi_difficultybowel |
Query
|
pdi10 |
Integer |
|
Recommended |
I was horrified by what happened |
0::4
|
0= Not at all true; 1= Slightly true; 2 = Somewhat true; 3 = Very true; 4 = Extremely true
|
pdi_horrifiedbywhathappen |
Query
|
pdi11 |
Integer |
|
Recommended |
I had physical reactions like sweating,
shaking, and pounding heart |
0::4
|
0= Not at all true; 1= Slightly true; 2 = Somewhat true; 3 = Very true; 4 = Extremely true
|
pdi_physicalreactions |
Query
|
pdi12 |
Integer |
|
Recommended |
I felt I might pass out. |
0::4
|
0= Not at all true; 1= Slightly true; 2 = Somewhat true; 3 = Very true; 4 = Extremely true
|
pdi_mightpassout |
Query
|
pdi13 |
Integer |
|
Recommended |
I thought I might die. |
0::4
|
0= Not at all true; 1= Slightly true; 2 = Somewhat true; 3 = Very true; 4 = Extremely true
|
pdi_mightdie |
Query
|
pdi_total |
Integer |
|
Required |
PDI total score |
|
999=Missing
|
pdi_rs |
Query
|
timept |
Integer |
|
Recommended |
Time Point |
|
888 = not applicable; 999 = missing
|
timepoint |
|
site |
String |
101
|
Recommended |
Site |
|
Study Site
|
siteid |
Query
|
pdi_sig |
Integer |
|
Recommended |
PDI Score indicative of significant distress [SIGNIFICANT] [1=Yes] |
0 :: 1
|
0=No; 1=Yes
|
|
Query
|
pdi_guilty |
Integer |
|
Recommended |
Peritraumatic Distress Inventory: Feel Guilty |
1 :: 5; -7; -8
|
1=None of the time; 2=A little of the time; 3=Some of the time; 4=Most of the time; 5=All or almost all of the time; -8=DON'T KNOW; -7=REFUSED
|
|
Query
|
pdi_ashamed |
Integer |
|
Recommended |
Peritraumatic Distress Inventory: Feel Ashamed |
1 :: 5; -7; -8
|
1=None of the time; 2=A little of the time; 3=Some of the time; 4=Most of the time; 5=All or almost all of the time; -8=DON'T KNOW; -7=REFUSED
|
|
|
comments_misc |
String |
4,000
|
Recommended |
Miscellaneous comments on study, interview, methodology relevant to this form data |
|
|
|
|
version_form |
String |
121
|
Recommended |
Form used/assessment name |
|
|
|
|
ed_pdi_rs_imputed_f1b |
Integer |
|
Recommended |
PDI: Sum of all items on scale; fully imputed using Freeze 1B cohort |
0 :: 42
|
0 = No symptoms; 42 = Most severe symptoms
|
|
|
pdi_might_die |
Integer |
|
Recommended |
PDI: Might Die |
0 :: 4; -5; -7; -8
|
0=None of the time; 1=A little of the time; 2=Some of the time; 3=Most of the time; 4=All or almost all of the time; -8=DON''T KNOW; -7=REFUSED; -5=Presented, not answered
|
|
|
pdi_feel_guilty_2wks |
Integer |
|
Recommended |
PDI: Feel Guilty (2 weeks) |
1 :: 5; -5; -7; -8
|
1=None of the time; 2=A little of the time; 3=Some of the time; 4=Most of the time; 5=All or almost all of the time; -8=DON''T KNOW; -7=REFUSED; -5=Presented, not answered
|
|
|
pdi_feel_ashamed_2wks |
Integer |
|
Recommended |
PDI: Feel Ashamed (2 weeks) |
1 :: 5; -5; -7; -8
|
1=None of the time; 2=A little of the time; 3=Some of the time; 4=Most of the time; 5=All or almost all of the time; -8=DON''T KNOW; -7=REFUSED; -5=Presented, not answered
|
|
|
ed_pdi_rs |
Integer |
|
Recommended |
PDI: Sum of all items on scale |
0 :: 42
|
0=No symptoms; 42=Most severe symptoms
|
|
|
pdi_guiltshm_rs |
Integer |
|
Recommended |
PROMIS/PDI Guilt Shame Raw Score |
0 :: 8
|
Higher scores indicate higher levels of guilt/shame
|
|
|
ed_pdi |
Integer |
|
Recommended |
PDI - Peritraumatic Distress Inventory - Severe peritraumatic distress indicator, raw score greater than 9 |
0;1
|
0 = False; 1 = True
|
|
|
pdi_feel_helpless |
Integer |
|
Recommended |
PDI: Feel Helpless |
0 :: 4; -5; -7; -8
|
0=None of the time; 1=A little of the time; 2=Some of the time; 3=Most of the time; 4=All or almost all of the time; -8=DON''T KNOW; -7=REFUSED; -5=Presented, not answered
|
|
|
pdi_feel_afraid |
Integer |
|
Recommended |
PDI: Feel Afraid |
0 :: 4; -5; -7; -8
|
0=None of the time; 1=A little of the time; 2=Some of the time; 3=Most of the time; 4=All or almost all of the time; -8=DON''T KNOW; -7=REFUSED; -5=Presented, not answered
|
|
|
pdi_lose_control |
Integer |
|
Recommended |
PDI: Lose Control |
0 :: 4; -5; -7; -8
|
0=None of the time; 1=A little of the time; 2=Some of the time; 3=Most of the time; 4=All or almost all of the time; -8=DON''T KNOW; -7=REFUSED; -5=Presented, not answered
|
|
|
pdi_difficulty_bowel |
Integer |
|
Recommended |
PDI: Difficulty Control Bowel or Bladder |
0 :: 4; -5; -7; -8
|
0=None of the time; 1=A little of the time; 2=Some of the time; 3=Most of the time; 4=All or almost all of the time; -8=DON''T KNOW; -7=REFUSED; -5=Presented, not answered
|
|
|
pdi_feel_horrified |
Integer |
|
Recommended |
PDI: Feel Horrified |
0 :: 4; -5; -7; -8
|
0=None of the time; 1=A little of the time; 2=Some of the time; 3=Most of the time; 4=All or almost all of the time; -8=DON''T KNOW; -7=REFUSED; -5=Presented, not answered
|
|
|
pdi_physical_reactions |
Integer |
|
Recommended |
PDI: Physical Reactions |
0 :: 4; -5; -7; -8
|
0=None of the time; 1=A little of the time; 2=Some of the time; 3=Most of the time; 4=All or almost all of the time; -8=DON''T KNOW; -7=REFUSED; -5=Presented, not answered
|
|
|
pdi_might_pass_out |
Integer |
|
Recommended |
PDI: Might Pass Out |
0 :: 4; -5; -7; -8
|
0=None of the time; 1=A little of the time; 2=Some of the time; 3=Most of the time; 4=All or almost all of the time; -8=DON''T KNOW; -7=REFUSED; -5=Presented, not answered
|
|