|
subjectkey |
GUID |
|
Required |
The NDAR Global Unique Identifier (GUID) for research subject |
NDAR*
|
|
|
|
src_subject_id |
String |
20
|
Required |
Subject ID how it's defined in lab/project |
|
|
|
|
interview_age |
Integer |
|
Required |
Age in months at the time of the interview/test/sampling/imaging. |
0::1440
|
Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
|
|
|
interview_date |
Date |
|
Required |
Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY |
|
|
|
|
sex |
String |
20
|
Required |
Sex of subject at birth |
M;F; O; NR
|
M = Male; F = Female; O=Other; NR = Not reported
|
gender |
|
version_form |
String |
121
|
Required |
Form used/assessment name |
|
|
|
Query
|
timept |
Integer |
|
Recommended |
Time Point |
|
888 = not applicable; 999 = missing
|
qol_p_time, qol_s_time |
Query
|
qol_p_q1 |
Integer |
|
Recommended |
P: Your child's life in general?/ S: Your life in general? |
1::3; 888; 999
|
1 = Bad; 2 = OK; 3 = Good; 888 = not applicable; 999 = missing
|
qol_s_q1 |
Query
|
qol_p_q2 |
Integer |
|
Recommended |
P: How your child gets along with other people in general?/ S: How you get along with other people in general? |
1::3; 888; 999
|
1 = Bad; 2 = OK; 3 = Good; 888 = not applicable; 999 = missing
|
qol_s_q2 |
Query
|
qol_p_q3 |
Integer |
|
Recommended |
P: The amount of friendship in your child's life?/ S: The amount of friendship in your life? |
1::3; 888; 999
|
1 = Bad; 2 = OK; 3 = Good; 888 = not applicable; 999 = missing
|
qol_s_q3 |
Query
|
qol_p_q4 |
Float |
|
Recommended |
P: The amount of fun your child has?/ S: The amount of fun you have? |
1::3; 888; 999
|
1 = Bad; 2 = OK; 3 = Good; 888 = not applicable; 999 = missing
|
qol_s_q4 |
Query
|
qol_p_q5 |
Integer |
|
Recommended |
P: How comfortable and well-off your child is financially?/ S: How comfortable and well-off you are financially? |
1::3; 888; 999
|
1 = Bad; 2 = OK; 3 = Good; 888 = not applicable; 999 = missing
|
qol_s_q5 |
Query
|
qol_p_q6 |
Integer |
|
Recommended |
P: Are there survival needs (food, clothing, etc.) your child has to do without?/ S: Are there survival needs (food, clothing, etc.) you have to do without? |
1;2; 888; 999
|
1 = yes; 2 = no; 888 = not applicable; 999 = missing
|
qol_s_q6 |
Query
|
qol_p_q7 |
Integer |
|
Recommended |
P: The neighborhood where your child lives now?/ S: The neighborhood where you live now? |
1::3; 888; 999
|
1 = Bad; 2 = OK; 3 = Good; 888 = not applicable; 999 = missing
|
qol_s_q7 |
Query
|
qol_p_q8 |
Integer |
|
Recommended |
P: Your child's current type of housing?/ S: Your current type of housing? |
1::3; 888; 999
|
1 = Bad; 2 = OK; 3 = Good; 888 = not applicable; 999 = missing
|
qol_s_q8 |
Query
|
qol_p_q9 |
Integer |
|
Recommended |
P: The amount of privacy where your child lives/ S: The amount of privacy where you live |
1::3; 888; 999
|
1 = Bad; 2 = OK; 3 = Good; 888 = not applicable; 999 = missing
|
qol_s_q9 |
Query
|
qol_p_q10 |
Integer |
|
Recommended |
P: The amount of space your child has where he/she lives?/ S: The amount of space you have where you live? |
1::3; 888; 999
|
1 = Bad; 2 = OK; 3 = Good; 888 = not applicable; 999 = missing
|
qol_s_q10 |
Query
|
qol_p_q11 |
Integer |
|
Recommended |
P: The amount of freedom your child has?/ S: The amount of freedom you have? |
1::3; 888; 999
|
1 = Bad; 2 = OK; 3 = Good; 888 = not applicable; 999 = missing
|
qol_s_q11 |
Query
|
qol_p_q12 |
Integer |
|
Recommended |
P: The food your child usually eats?/ S: The food you usually eat? |
1::3; 888; 999
|
1 = Bad; 2 = OK; 3 = Good; 888 = not applicable; 999 = missing
|
qol_s_q12 |
Query
|
qol_p_q13 |
Integer |
|
Recommended |
P: How your child is getting along with the family?/ S: How you are getting along with your family? |
1::3; 888; 999
|
1 = Bad; 2 = OK; 3 = Good; 888 = not applicable; 999 = missing
|
qol_s_q13 |
Query
|
qol_p_q14 |
Integer |
|
Recommended |
P: The way your child spends his/her days?/ S: The way you spend your days? |
1::3; 888; 999
|
1 = Bad; 2 = OK; 3 = Good; 888 = not applicable; 999 = missing
|
qol_s_q14 |
Query
|
qol_p_q15 |
Integer |
|
Recommended |
P: How your child is doing at school?/ S: How your are doing at school? |
1::3; 888; 999
|
1 = Bad; 2 = OK; 3 = Good; 888 = not applicable; 999 = missing
|
qol_s_q15 |
Query
|
qol_p_q16 |
Integer |
|
Recommended |
P: Your child's current employment status?/ S: Your current employment status? |
1::3; 888; 999
|
1 = Bad; 2 = OK; 3 = Good; 888 = not applicable; 999 = missing
|
qol_s_q16 |
Query
|
qol_p_q17 |
Integer |
|
Recommended |
P: Does he/she currently have a job?/ S: Do you currently have a job? |
1::3; 888; 999
|
1 = yes; 2 = no; 888 = not applicable; 999 = missing
|
qol_s_q17 |
Query
|
qol_p_q18 |
Integer |
|
Recommended |
P: Your child's health in general?/ S: Your health in general? |
1::3; 888; 999
|
1 = Bad; 2 = OK; 3 = Good; 888 = not applicable; 999 = missing
|
qol_s_q18 |
Query
|
qol_p_q19 |
Integer |
|
Recommended |
P: Does he/she have any specific health problems (e.g., dental work that needs to be done, sore feet, stomach problems)?/ S: Do you have any specific health problems (e.g., dental work that needs to be done, sore feet, stomach problems)? |
|
1 = yes; 2 = no; 888 = not applicable; 999 = missing
|
qol_s_q19 |
Query
|
qol_p_q20 |
Integer |
|
Recommended |
P: Are physical problems a worry for your child?/ S: Are physical problems a worry for you? |
1::3; 888; 999
|
1 = constantly; 2 = occasionally; 3 = never; 888 = not applicable; 999 = missing
|
qol_s_q20 |
Query
|
qol_p_q21 |
Integer |
|
Recommended |
P: In the last six months has your child been bullied, assaulted, or physically attacked?/ S: In the last six months have you been bullied, assaulted, or physically attacked? |
1;2; 888; 999
|
1 = yes; 2 = no; 888 = not applicable; 999 = missing
|
qol_s_q21 |
Query
|
qol_p_q22 |
Integer |
|
Recommended |
P: Is your child worried about being able to buy the things he/she will need in the future?/ S: Are you worried about being able to buy the things you will need in the future? |
|
1 = very worried; 2 = somewhat worried; 3 = not at all worried; 888 = not applicable; 999 = missing
|
qol_s_q22 |
Query
|
qol_p_q23 |
Integer |
|
Recommended |
P: In all, considering your child's life situation now, how bothered is he/she by his/her problems?/ S: In all, considering your life situation now, how bothered are you by your problems? |
|
1 = extremely bothered; 2 = somewhat bothered; 3 = not at all bothered; 888 = not applicable; 999 = missing
|
qol_s_q23 |
Query
|
qol_p_q24 |
Integer |
|
Recommended |
P: How often does his/her problems prevent he/she from doing the things he/she would like to do?/ S: How often do your problems prevent you from doing the things you would like to do? |
1::3; 888; 999
|
1 = almost always; 2 = sometimes; 3 = never; 888 = not applicable; 999 = missing
|
qol_s_q24 |
Query
|
qol_p_q25 |
Integer |
|
Recommended |
P: How satisfied is he/she with himself/herself on the whole?/ S: How satisfied are you with yourself on the whole? |
1::3; 888; 999
|
1 = not at all; 2 = average/OK; 3 = a great deal; 888 = not applicable; 999 = missing
|
qol_s_q25 |
Query
|
qol_p_q26 |
Integer |
|
Recommended |
P: How satisfied is he/she with his/her current psychological condition?/ S: How satisfied are you with your current psychological condition? |
1::3; 888; 999
|
1 = not at all; 2 = average/OK; 3 = a great deal; 888 = not applicable; 999 = missing
|
qol_s_q26 |
Query
|
qol_p_q27 |
Integer |
|
Recommended |
P: Does he/she feel he/she gets as much enjoyment from life as most people do?/ S: Do you feel you get as much enjoyment from life as most people do? |
1::3; 888; 999
|
1 = not at all; 2 = average/OK; 3 = a great deal; 888 = not applicable; 999 = missing
|
qol_s_q27 |
Query
|
qol_p_total |
Integer |
|
Required |
Quality of life total score |
|
888 = not applicable; 999 = missing
|
qol_s_total |