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Quality of Life Measure

20 Shared Subjects

Parent, Student
Clinical Assessments
Quality of Life
07/14/2016
qlm01
07/14/2016
View Change History
01
Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR*
src_subject_id String 20 Required Subject ID how it's defined in lab/project
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0::1440 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY
sex String 20 Required Sex of subject at birth M;F; O; NR M = Male; F = Female; O=Other; NR = Not reported gender
version_form String 121 Required Form used/assessment name
Query timept Integer Recommended Time Point 888 = not applicable; 999 = missing qol_p_time, qol_s_time
Query qol_p_q1 Integer Recommended P: Your child's life in general?/ S: Your life in general? 1::3; 888; 999 1 = Bad; 2 = OK; 3 = Good; 888 = not applicable; 999 = missing qol_s_q1
Query qol_p_q2 Integer Recommended P: How your child gets along with other people in general?/ S: How you get along with other people in general? 1::3; 888; 999 1 = Bad; 2 = OK; 3 = Good; 888 = not applicable; 999 = missing qol_s_q2
Query qol_p_q3 Integer Recommended P: The amount of friendship in your child's life?/ S: The amount of friendship in your life? 1::3; 888; 999 1 = Bad; 2 = OK; 3 = Good; 888 = not applicable; 999 = missing qol_s_q3
Query qol_p_q4 Float Recommended P: The amount of fun your child has?/ S: The amount of fun you have? 1::3; 888; 999 1 = Bad; 2 = OK; 3 = Good; 888 = not applicable; 999 = missing qol_s_q4
Query qol_p_q5 Integer Recommended P: How comfortable and well-off your child is financially?/ S: How comfortable and well-off you are financially? 1::3; 888; 999 1 = Bad; 2 = OK; 3 = Good; 888 = not applicable; 999 = missing qol_s_q5
Query qol_p_q6 Integer Recommended P: Are there survival needs (food, clothing, etc.) your child has to do without?/ S: Are there survival needs (food, clothing, etc.) you have to do without? 1;2; 888; 999 1 = yes; 2 = no; 888 = not applicable; 999 = missing qol_s_q6
Query qol_p_q7 Integer Recommended P: The neighborhood where your child lives now?/ S: The neighborhood where you live now? 1::3; 888; 999 1 = Bad; 2 = OK; 3 = Good; 888 = not applicable; 999 = missing qol_s_q7
Query qol_p_q8 Integer Recommended P: Your child's current type of housing?/ S: Your current type of housing? 1::3; 888; 999 1 = Bad; 2 = OK; 3 = Good; 888 = not applicable; 999 = missing qol_s_q8
Query qol_p_q9 Integer Recommended P: The amount of privacy where your child lives/ S: The amount of privacy where you live 1::3; 888; 999 1 = Bad; 2 = OK; 3 = Good; 888 = not applicable; 999 = missing qol_s_q9
Query qol_p_q10 Integer Recommended P: The amount of space your child has where he/she lives?/ S: The amount of space you have where you live? 1::3; 888; 999 1 = Bad; 2 = OK; 3 = Good; 888 = not applicable; 999 = missing qol_s_q10
Query qol_p_q11 Integer Recommended P: The amount of freedom your child has?/ S: The amount of freedom you have? 1::3; 888; 999 1 = Bad; 2 = OK; 3 = Good; 888 = not applicable; 999 = missing qol_s_q11
Query qol_p_q12 Integer Recommended P: The food your child usually eats?/ S: The food you usually eat? 1::3; 888; 999 1 = Bad; 2 = OK; 3 = Good; 888 = not applicable; 999 = missing qol_s_q12
Query qol_p_q13 Integer Recommended P: How your child is getting along with the family?/ S: How you are getting along with your family? 1::3; 888; 999 1 = Bad; 2 = OK; 3 = Good; 888 = not applicable; 999 = missing qol_s_q13
Query qol_p_q14 Integer Recommended P: The way your child spends his/her days?/ S: The way you spend your days? 1::3; 888; 999 1 = Bad; 2 = OK; 3 = Good; 888 = not applicable; 999 = missing qol_s_q14
Query qol_p_q15 Integer Recommended P: How your child is doing at school?/ S: How your are doing at school? 1::3; 888; 999 1 = Bad; 2 = OK; 3 = Good; 888 = not applicable; 999 = missing qol_s_q15
Query qol_p_q16 Integer Recommended P: Your child's current employment status?/ S: Your current employment status? 1::3; 888; 999 1 = Bad; 2 = OK; 3 = Good; 888 = not applicable; 999 = missing qol_s_q16
Query qol_p_q17 Integer Recommended P: Does he/she currently have a job?/ S: Do you currently have a job? 1::3; 888; 999 1 = yes; 2 = no; 888 = not applicable; 999 = missing qol_s_q17
Query qol_p_q18 Integer Recommended P: Your child's health in general?/ S: Your health in general? 1::3; 888; 999 1 = Bad; 2 = OK; 3 = Good; 888 = not applicable; 999 = missing qol_s_q18
Query qol_p_q19 Integer Recommended P: Does he/she have any specific health problems (e.g., dental work that needs to be done, sore feet, stomach problems)?/ S: Do you have any specific health problems (e.g., dental work that needs to be done, sore feet, stomach problems)? 1 = yes; 2 = no; 888 = not applicable; 999 = missing qol_s_q19
Query qol_p_q20 Integer Recommended P: Are physical problems a worry for your child?/ S: Are physical problems a worry for you? 1::3; 888; 999 1 = constantly; 2 = occasionally; 3 = never; 888 = not applicable; 999 = missing qol_s_q20
Query qol_p_q21 Integer Recommended P: In the last six months has your child been bullied, assaulted, or physically attacked?/ S: In the last six months have you been bullied, assaulted, or physically attacked? 1;2; 888; 999 1 = yes; 2 = no; 888 = not applicable; 999 = missing qol_s_q21
Query qol_p_q22 Integer Recommended P: Is your child worried about being able to buy the things he/she will need in the future?/ S: Are you worried about being able to buy the things you will need in the future? 1 = very worried; 2 = somewhat worried; 3 = not at all worried; 888 = not applicable; 999 = missing qol_s_q22
Query qol_p_q23 Integer Recommended P: In all, considering your child's life situation now, how bothered is he/she by his/her problems?/ S: In all, considering your life situation now, how bothered are you by your problems? 1 = extremely bothered; 2 = somewhat bothered; 3 = not at all bothered; 888 = not applicable; 999 = missing qol_s_q23
Query qol_p_q24 Integer Recommended P: How often does his/her problems prevent he/she from doing the things he/she would like to do?/ S: How often do your problems prevent you from doing the things you would like to do? 1::3; 888; 999 1 = almost always; 2 = sometimes; 3 = never; 888 = not applicable; 999 = missing qol_s_q24
Query qol_p_q25 Integer Recommended P: How satisfied is he/she with himself/herself on the whole?/ S: How satisfied are you with yourself on the whole? 1::3; 888; 999 1 = not at all; 2 = average/OK; 3 = a great deal; 888 = not applicable; 999 = missing qol_s_q25
Query qol_p_q26 Integer Recommended P: How satisfied is he/she with his/her current psychological condition?/ S: How satisfied are you with your current psychological condition? 1::3; 888; 999 1 = not at all; 2 = average/OK; 3 = a great deal; 888 = not applicable; 999 = missing qol_s_q26
Query qol_p_q27 Integer Recommended P: Does he/she feel he/she gets as much enjoyment from life as most people do?/ S: Do you feel you get as much enjoyment from life as most people do? 1::3; 888; 999 1 = not at all; 2 = average/OK; 3 = a great deal; 888 = not applicable; 999 = missing qol_s_q27
Query qol_p_total Integer Required Quality of life total score 888 = not applicable; 999 = missing qol_s_total
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

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