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Speech and Language Assessment

434 Shared Subjects

N/A
Clinical Assessments
Speech-Language
12/23/2015
sala01
11/15/2022
View Change History
01
Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR*
src_subject_id String 20 Required Subject ID how it's defined in lab/project
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0::1440 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY
sex String 20 Required Sex of subject at birth M;F; O; NR M = Male; F = Female; O=Other; NR = Not reported gender
Query changes_lang Integer Recommended Changes in speech/language since last visit? 1; 2; 9 1 = Yes; 2 = No; 9 = Not applicable p7902speechchangesinspeech
changes_lang_spec String 300 Recommended If yes specify any changes in speech language since the last visit p7902speechchangesinspeechspec
Query othmem_devdelay String 50 Recommended Developmental Delay Yes;No; NK NK = Not known p7902speechdevelopmentaldelays, p7902speechnewdevelopmentaldel
devdelay_det String 255 Recommended New diagnoses of developmental delay - Specify p7902speechdevelopmentdelaysot, p7902speechnewdevelopmentaldel2
Query diag_id Integer Recommended New diagnoses of intellectual disability/mental retardation? 1; 2; 9 1 = Yes; 2 = No; 9 = Not applicable p7902speechintellectualdisabil, p7902speechnewintellectualreta
diag_iddet String 255 Recommended New diagnoses of intellectual disability/mental retardation - Specify p7902speechintellectualdisabil2, p7902speechnewintellectualreta2
Query diag_learndis Integer Required Any new diagnoses of learning disabilities? 1; 2; 9 1 = Yes; 2 = No; 9 = Not applicable p7902speechlearningdisabilitie, p7902speechnewlearningdisabili
diag_learndis_det String 255 Recommended New diagnoses of learning disabilities - Specify p7902speechlearningdisabilitie2, p7902speechnewlearningdisabili2
q21_3p_s1 String 100 Recommended Speech delay requiring therapy: Other-Specify Detail should be filled out if YES or NOT SURE. p7902speechcharacterizeother
Query speech_cb String 50 Recommended If yes, other speech problem characterize the speech Fluent and spontaneous; Echolalic; Stereotyped; Other p7902speechcharacterizespeech
Query speech_eyegaze Integer Recommended Speech Non Verbal: Eye gaze 0;1 0=No; 1=Yes p7902speechnonverbals_eyegaze
Query speech_gestures Integer Recommended Speech Non Verbal: Gestures 0;1 0=No; 1=Yes p7902speechnonverbals_gestures
Query speech_otherdescr Integer Recommended Speech Non Verbal: Other 0;1 0=No; 1=Yes p7902speechnonverbals_otherdescr
Query speech_usingparen Integer Recommended Speech Non Verbal: Using parents' body 0;1 0=No; 1=Yes p7902speechnonverbals_usingparen
Query interv_speech Integer Recommended Treatment/Intervention - Speech 1; 2 1 = Yes; 2 = No p7902speechverbal
Query verb_words Integer Recommended If yes, how many words? 1::4 1 = <10 Single words; 2 = Speaks in 10 or more single words; 3 = Speaks in 2 word combinations; 4 = Speaks in 3 or more word combinations p7902speechnumwords
Query word10 Integer Recommended 10 or more single words 0;1 0=No; 1=Yes p7902speechnumwordsu10ormoresing
Query wordm10 Integer Recommended < 10 single words 0;1 0=No; 1=Yes p7902speechnumwordsu10singleword
Query word2com Integer Recommended 2-word combinations 0;1 0=No; 1=Yes p7902speechnumwordsu2wordcombina
Query word3com Integer Recommended 3 or more word combinations 0;1 0=No; 1=Yes p7902speechnumwordsu3ormorewordc
llgendiss1_t String 4,000 Recommended Please describe your childs first siblings genetic disorder
llgendiss2_t String 4,000 Recommended Please describe your childs second siblings genetic disorder
llldm_t String 4,000 Recommended Please describe your learning disability
llldf_t String 4,000 Recommended Please describe your childs biological fathers learning disability
lllds1_t String 4,000 Recommended Please describe your childs first siblings learning disability
lllds2_t String 4,000 Recommended Please describe your childs second siblings learning disability
llreadm Integer Recommended Level of difficulty with reading: You 1 :: 6 1= No difficulty with reading; 2= Had difficulty with reading as a child but no longer has reading problems because they got better on their own or with age; 3= Had difficulty with reading as a child but no longer has reading problems because they got better with extra help or intervention; 4= Has lifelong problems with reading slowly but can now read accurately; 5= Has lifelong problems with reading inaccurately (mistakes); 6= Has lifelong problems with reading slowly and inaccurately
llreadf Integer Recommended Level of difficulty with reading: Your childs biological father 1 :: 6 1= No difficulty with reading; 2= Had difficulty with reading as a child but no longer has reading problems because they got better on their own or with age; 3= Had difficulty with reading as a child but no longer has reading problems because they got better with extra help or intervention; 4= Has lifelong problems with reading slowly but can now read accurately; 5= Has lifelong problems with reading inaccurately (mistakes); 6= Has lifelong problems with reading slowly and inaccurately
llreads1 Integer Recommended Level of difficulty with reading: Your childs first sibling (please choose one option) 1 :: 6 1= No difficulty with reading; 2= Had difficulty with reading as a child but no longer has reading problems because they got better on their own or with age; 3= Had difficulty with reading as a child but no longer has reading problems because they got better with extra help or intervention; 4= Has lifelong problems with reading slowly but can now read accurately; 5= Has lifelong problems with reading inaccurately (mistakes); 6= Has lifelong problems with reading slowly and inaccurately
llreads2 Integer Recommended Level of difficulty with reading: Your childs second sibling (please choose one option) 1 :: 6 1= No difficulty with reading; 2= Had difficulty with reading as a child but no longer has reading problems because they got better on their own or with age; 3= Had difficulty with reading as a child but no longer has reading problems because they got better with extra help or intervention; 4= Has lifelong problems with reading slowly but can now read accurately; 5= Has lifelong problems with reading inaccurately (mistakes); 6= Has lifelong problems with reading slowly and inaccurately
lladd Integer Recommended Have any of your family members been diagnosed with any of the following conditions? ADD or ADHD 1 :: 6 1= You; 2= Your childs biological parent; 3= Your childs first sibling; 4= Your childs second sibling; 5= No One; 6=Other
llasd Integer Recommended Have any of your family members been diagnosed with any of the following conditions? Aspergers or Autism Spectrum 1 :: 6 1= You; 2= Your childs biological parent; 3= Your childs first sibling; 4= Your childs second sibling; 5= No One; 6=Other
llgendis Integer Recommended Have any of your family members been diagnosed with any of the following conditions? Genetic Disorder 1 :: 6 1= You; 2= Your childs biological parent; 3= Your childs first sibling; 4= Your childs second sibling; 5= No One; 6=Other
llsli Integer Recommended Have any of your family members been diagnosed with any of the following conditions? Language Disorder, Delay, or Specific Impairment 1 :: 6 1= You; 2= Your childs biological parent; 3= Your childs first sibling; 4= Your childs second sibling; 5= No One; 6=Other
llld Integer Recommended Have any of your family members been diagnosed with any of the following conditions? Learning Disability 1 :: 6 1= You; 2= Your childs biological parent; 3= Your childs first sibling; 4= Your childs second sibling; 5= No One; 6=Other
llgendism_t String 4,000 Recommended Please describe your genetic disorder
llgendisf_t String 4,000 Recommended Please describe your childs biological fathers genetic disorder
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

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