|
subjectkey |
GUID |
|
Required |
The NDAR Global Unique Identifier (GUID) for research subject |
NDAR*
|
|
|
|
src_subject_id |
String |
20
|
Required |
Subject ID how it's defined in lab/project |
|
|
|
|
interview_age |
Integer |
|
Required |
Age in months at the time of the interview/test/sampling/imaging. |
0::1440
|
Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
|
|
|
interview_date |
Date |
|
Required |
Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY |
|
|
|
|
sex |
String |
20
|
Required |
Sex of subject at birth |
M;F; O; NR
|
M = Male; F = Female; O=Other; NR = Not reported
|
gender |
Query
|
changes_lang |
Integer |
|
Recommended |
Changes in speech/language since last visit? |
1; 2; 9
|
1 = Yes; 2 = No; 9 = Not applicable
|
p7902speechchangesinspeech |
|
changes_lang_spec |
String |
300
|
Recommended |
If yes specify any changes in speech language since the last visit |
|
|
p7902speechchangesinspeechspec |
Query
|
othmem_devdelay |
String |
50
|
Recommended |
Developmental Delay |
Yes;No; NK
|
NK = Not known
|
p7902speechdevelopmentaldelays, p7902speechnewdevelopmentaldel |
|
devdelay_det |
String |
255
|
Recommended |
New diagnoses of developmental delay - Specify |
|
|
p7902speechdevelopmentdelaysot, p7902speechnewdevelopmentaldel2 |
Query
|
diag_id |
Integer |
|
Recommended |
New diagnoses of intellectual disability/mental retardation? |
1; 2; 9
|
1 = Yes; 2 = No; 9 = Not applicable
|
p7902speechintellectualdisabil, p7902speechnewintellectualreta |
|
diag_iddet |
String |
255
|
Recommended |
New diagnoses of intellectual disability/mental retardation - Specify |
|
|
p7902speechintellectualdisabil2, p7902speechnewintellectualreta2 |
Query
|
diag_learndis |
Integer |
|
Required |
Any new diagnoses of learning disabilities? |
1; 2; 9
|
1 = Yes; 2 = No; 9 = Not applicable
|
p7902speechlearningdisabilitie, p7902speechnewlearningdisabili |
|
diag_learndis_det |
String |
255
|
Recommended |
New diagnoses of learning disabilities - Specify |
|
|
p7902speechlearningdisabilitie2, p7902speechnewlearningdisabili2 |
|
q21_3p_s1 |
String |
100
|
Recommended |
Speech delay requiring therapy: Other-Specify |
|
Detail should be filled out if YES or NOT SURE.
|
p7902speechcharacterizeother |
Query
|
speech_cb |
String |
50
|
Recommended |
If yes, other speech problem characterize the speech |
Fluent and spontaneous; Echolalic; Stereotyped; Other
|
|
p7902speechcharacterizespeech |
Query
|
speech_eyegaze |
Integer |
|
Recommended |
Speech Non Verbal: Eye gaze |
0;1
|
0=No; 1=Yes
|
p7902speechnonverbals_eyegaze |
Query
|
speech_gestures |
Integer |
|
Recommended |
Speech Non Verbal: Gestures |
0;1
|
0=No; 1=Yes
|
p7902speechnonverbals_gestures |
Query
|
speech_otherdescr |
Integer |
|
Recommended |
Speech Non Verbal: Other |
0;1
|
0=No; 1=Yes
|
p7902speechnonverbals_otherdescr |
Query
|
speech_usingparen |
Integer |
|
Recommended |
Speech Non Verbal: Using parents' body |
0;1
|
0=No; 1=Yes
|
p7902speechnonverbals_usingparen |
Query
|
interv_speech |
Integer |
|
Recommended |
Treatment/Intervention - Speech |
1; 2
|
1 = Yes; 2 = No
|
p7902speechverbal |
Query
|
verb_words |
Integer |
|
Recommended |
If yes, how many words? |
1::4
|
1 = <10 Single words; 2 = Speaks in 10 or more single words; 3 = Speaks in 2 word combinations; 4 = Speaks in 3 or more word combinations
|
p7902speechnumwords |
Query
|
word10 |
Integer |
|
Recommended |
10 or more single words |
0;1
|
0=No; 1=Yes
|
p7902speechnumwordsu10ormoresing |
Query
|
wordm10 |
Integer |
|
Recommended |
< 10 single words |
0;1
|
0=No; 1=Yes
|
p7902speechnumwordsu10singleword |
Query
|
word2com |
Integer |
|
Recommended |
2-word combinations |
0;1
|
0=No; 1=Yes
|
p7902speechnumwordsu2wordcombina |
Query
|
word3com |
Integer |
|
Recommended |
3 or more word combinations |
0;1
|
0=No; 1=Yes
|
p7902speechnumwordsu3ormorewordc |
|
llgendiss1_t |
String |
4,000
|
Recommended |
Please describe your childs first siblings genetic disorder |
|
|
|
|
llgendiss2_t |
String |
4,000
|
Recommended |
Please describe your childs second siblings genetic disorder |
|
|
|
|
llldm_t |
String |
4,000
|
Recommended |
Please describe your learning disability |
|
|
|
|
llldf_t |
String |
4,000
|
Recommended |
Please describe your childs biological fathers learning disability |
|
|
|
|
lllds1_t |
String |
4,000
|
Recommended |
Please describe your childs first siblings learning disability |
|
|
|
|
lllds2_t |
String |
4,000
|
Recommended |
Please describe your childs second siblings learning disability |
|
|
|
|
llreadm |
Integer |
|
Recommended |
Level of difficulty with reading: You |
1 :: 6
|
1= No difficulty with reading; 2= Had difficulty with reading as a child but no longer has reading problems because they got better on their own or with age; 3= Had difficulty with reading as a child but no longer has reading problems because they got better with extra help or intervention; 4= Has lifelong problems with reading slowly but can now read accurately; 5= Has lifelong problems with reading inaccurately (mistakes); 6= Has lifelong problems with reading slowly and inaccurately
|
|
|
llreadf |
Integer |
|
Recommended |
Level of difficulty with reading: Your childs biological father |
1 :: 6
|
1= No difficulty with reading; 2= Had difficulty with reading as a child but no longer has reading problems because they got better on their own or with age; 3= Had difficulty with reading as a child but no longer has reading problems because they got better with extra help or intervention; 4= Has lifelong problems with reading slowly but can now read accurately; 5= Has lifelong problems with reading inaccurately (mistakes); 6= Has lifelong problems with reading slowly and inaccurately
|
|
|
llreads1 |
Integer |
|
Recommended |
Level of difficulty with reading: Your childs first sibling (please choose one option) |
1 :: 6
|
1= No difficulty with reading; 2= Had difficulty with reading as a child but no longer has reading problems because they got better on their own or with age; 3= Had difficulty with reading as a child but no longer has reading problems because they got better with extra help or intervention; 4= Has lifelong problems with reading slowly but can now read accurately; 5= Has lifelong problems with reading inaccurately (mistakes); 6= Has lifelong problems with reading slowly and inaccurately
|
|
|
llreads2 |
Integer |
|
Recommended |
Level of difficulty with reading: Your childs second sibling (please choose one option) |
1 :: 6
|
1= No difficulty with reading; 2= Had difficulty with reading as a child but no longer has reading problems because they got better on their own or with age; 3= Had difficulty with reading as a child but no longer has reading problems because they got better with extra help or intervention; 4= Has lifelong problems with reading slowly but can now read accurately; 5= Has lifelong problems with reading inaccurately (mistakes); 6= Has lifelong problems with reading slowly and inaccurately
|
|
|
lladd |
Integer |
|
Recommended |
Have any of your family members been diagnosed with any of the following conditions? ADD or ADHD |
1 :: 6
|
1= You; 2= Your childs biological parent; 3= Your childs first sibling; 4= Your childs second sibling; 5= No One; 6=Other
|
|
|
llasd |
Integer |
|
Recommended |
Have any of your family members been diagnosed with any of the following conditions? Aspergers or Autism Spectrum |
1 :: 6
|
1= You; 2= Your childs biological parent; 3= Your childs first sibling; 4= Your childs second sibling; 5= No One; 6=Other
|
|
|
llgendis |
Integer |
|
Recommended |
Have any of your family members been diagnosed with any of the following conditions? Genetic Disorder |
1 :: 6
|
1= You; 2= Your childs biological parent; 3= Your childs first sibling; 4= Your childs second sibling; 5= No One; 6=Other
|
|
|
llsli |
Integer |
|
Recommended |
Have any of your family members been diagnosed with any of the following conditions? Language Disorder, Delay, or Specific Impairment |
1 :: 6
|
1= You; 2= Your childs biological parent; 3= Your childs first sibling; 4= Your childs second sibling; 5= No One; 6=Other
|
|
|
llld |
Integer |
|
Recommended |
Have any of your family members been diagnosed with any of the following conditions? Learning Disability |
1 :: 6
|
1= You; 2= Your childs biological parent; 3= Your childs first sibling; 4= Your childs second sibling; 5= No One; 6=Other
|
|
|
llgendism_t |
String |
4,000
|
Recommended |
Please describe your genetic disorder |
|
|
|
|
llgendisf_t |
String |
4,000
|
Recommended |
Please describe your childs biological fathers genetic disorder |
|
|
|