|
subjectkey |
GUID |
|
Required |
The NDAR Global Unique Identifier (GUID) for research subject |
NDAR*
|
|
CandidateGUID, GUID, ProbandGUID, SCQ_SubjectKey |
|
src_subject_id |
String |
20
|
Required |
Subject ID how it's defined in lab/project |
|
|
IBISID, NDAR_SUBJECT_NUMBER, Scq_current_SRC_Subject_ID, SubjectID |
|
interview_date |
Date |
|
Required |
Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY |
|
|
DOE, Date_taken, Scq_current_interview_date, scqc_date |
|
interview_age |
Integer |
|
Required |
Age in months at the time of the interview/test/sampling/imaging. |
0::1440
|
Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
|
Age_proband_scq, Candidate_Age_in_Months, INTERVIEW_AGE_MONTHS, Proband_Age_in_Months, Scq_current_interview_age |
|
comments_misc |
String |
4,000
|
Recommended |
Miscellaneous comments on study, interview, methodology relevant to this form data |
|
|
Cohort, Scq_current_comments_misc, scq_diagnosis |
Query
|
header_1 |
String |
50
|
Recommended |
Relationship to Subject |
|
4= Biological mother; 5= Biological Father; 6= Non-biological female caregiver; 7= Non-biological male caregiver
|
Scq_current_Header_1, asd_respnum, respondent |
|
sex |
String |
20
|
Required |
Sex of subject at birth |
M;F; O; NR
|
M = Male; F = Female; O=Other; NR = Not reported
|
ProbandGender, SEX, Scq_current_gender, child_sex, gender |
Query
|
current_shortphrases |
String |
50
|
Required |
Talk in short phrases |
|
|
SCQ001L_AN, SCQ001_AN, SCQ_CURR_PHRASES, Scq_current_current_shortphrases, p_scq_1, q1_talk_short_phrases, scq_1, shortphrases, slevell |
Query
|
current_turns |
String |
50
|
Recommended |
Conversation |
|
|
SCQ002L_AN, SCQ002_AN, SCQ_CURR_CONVERSATN, Scq_current_current_turns, p_scq_2, q2_to_and_fro, sconve, scq_2, turns |
Query
|
current_oddphrases |
String |
50
|
Required |
Odd phrases or repetitions |
|
|
SCQ003L_AN, SCQ003_AN, SCQ_CURR_ODD_PHRASE, Scq_current_current_oddphrases, oddphrases, p_scq_3, q3_odd_phrases, scq_3, sstere |
Query
|
current_askiappques |
String |
50
|
Required |
Socially imappropriate questions or statements |
|
|
SCQ004L_AN, SCQ004_AN, SCQ_CURR_INAPPROP_QUESTN, Scq_current_current_askiappques, askiappques, p_scq_4, q4_socially_inappropriate, scq_4, sinapp |
Query
|
current_pronounsmix |
String |
50
|
Required |
Mixing up pronouns |
|
|
SCQ005_AN, SCQ_CURR_MIX_PRONOUN, Scq_current_current_pronounsmix, p_scq_5, pronounsmix, q5_pronouns_mixed, scq_5, spron |
Query
|
current_madeup |
String |
50
|
Required |
Made up words or odd metaphors |
|
|
SCQ006L_AN, SCQ006_AN, SCQ_CURR_INVENT_WORD, Scq_current_current_madeup, madeup, p_scq_6, q6_words_invented, scq_6, sneoid |
Query
|
current_sayagain |
String |
50
|
Required |
Repeating or insisting on repeating things |
|
|
SCQ007_AN, SCQ_CURR_SAY_SAME_THING, Scq_current_current_sayagain, p_scq_7, q7_said_same_thing, sayagain, scq_7, sverri |
Query
|
current_things |
String |
50
|
Recommended |
Insisting on very particular way or order or ritual |
|
|
SCQ008_AN, SCQ_CURR_PARTICULAR_ORDER, Scq_current_current_things, p_scq_8, q8_particular_way, scq_8, scrit, things |
Query
|
current_facialex |
String |
50
|
Required |
Facial expression appropriate to particular situation |
|
|
SCQ009_AN, SCQ_CURR_APPROPRIATE_EXPRESS, Scq_current_current_facialex, facialex, p_scq_9, q9_facial_expressions, scq_9, sinapf |
Query
|
current_handtool |
String |
50
|
Required |
Using parent's hand like tool or as if part of own body |
|
|
SCQ010_AN, SCQ_CURR_USE_HAND, Scq_current_current_handtool, handtool, p_scq_10, q10_hand_like_tool, scq_10, susebo |
Query
|
current_oddinterest |
String |
50
|
Required |
Preoccupation with odd interests |
|
|
SCQ011_AN, SCQ_CURR_ODD_INTEREST, Scq_current_current_oddinterest, oddinterest, p_scq_11, q11_interests_that_preoccupy, scq_11, sunpro |
Query
|
current_interestobjpart |
String |
50
|
Required |
Interested in part of toys or object rather than whole |
|
|
SCQ012_AN, SCQ_CURR_TOY_INTEREST, Scq_current_current_interestobjpart, interestobjpart, p_scq_12, q12_interested_in_parts, scq_12, suseob |
Query
|
current_unusual |
String |
50
|
Required |
Unusually intense but otherwise normal interests |
|
|
SCQ013_AN, SCQ_CURR_SPECIAL_INTEREST, Scq_current_current_unusual, p_scq_13, q13_intense_interests, scirin, scq_13, unusual |
Query
|
current_unusualint |
String |
50
|
Required |
Interested in sight, feel, sound, taste or smell of things or people |
|
|
SCQ014_AN, SCQ_CURR_SENSE_INTEREST, Scq_current_current_unusualint, p_scq_14, q14_sight_feel_sound, scq_14, sunsen, unusualint |
Query
|
current_manner |
String |
50
|
Required |
Mannerisms or odd ways of moving hands or fingers |
|
|
SCQ015_AN, SCQ_CURR_ODD_MANNERISMS, Scq_current_current_manner, manner, p_scq_15, q15_mannerisms, scq_15, shfman |
Query
|
current_movement |
String |
50
|
Required |
Complicated movements of the whole body |
|
|
SCQ016_AN, SCQ_CURR_COMPLICATE_MOVE, Scq_current_current_movement, movement, p_scq_16, q16_complicated_movements, scq_16, sothma |
Query
|
current_injure |
String |
50
|
Required |
Delibarate self-injuring |
|
|
SCQ017_AN, SCQ_CURR_INJURE_SELF, Scq_current_current_injure, injure, p_scq_17, q17_deliberate_injury, scq_17, sslfin |
Query
|
current_objcarry |
String |
50
|
Required |
Carrying around objects other than soft toy or blanket |
|
|
SCQ018_AN, SCQ_CURR_OBJECT_CARRY, Scq_current_current_objcarry, objcarry, p_scq_18, q18_carry_objects, scq_18, sunatt |
Query
|
current_bestfrnd |
String |
50
|
Required |
Having any particular friends or best friend |
|
|
SCQ019_AN, SCQ_CURR_BEST_FRND, Scq_current_current_bestfrnd, bestfrnd, p_scq_19, q19_particular_friends, scq_19, sfrend |
Query
|
current_talkfrndly |
String |
50
|
Required |
Talking to parent just to be friendly rather than to get something |
|
|
SCQ020_AN, SCQ_CURR_FRND_TALK, Scq_current_current_talkfrndly, p_scq_20, q20_talk_friendly, schat, scq_20, talkfrndly |
Query
|
current_copyyou |
String |
50
|
Required |
Spontaneously copying what others are doing |
|
|
SCQ021_AN, SCQ_CURR_COPY, Scq_current_current_copyyou, copyyou, p_scq_21, q21_spontaneously_copy, scq_21, simit |
Query
|
current_ptthings |
String |
50
|
Required |
Spontaneously pointing at things to show them |
|
|
SCQ022_AN, SCQ_CURR_POINT, Scq_current_current_ptthings, p_scq_22, ptthings, q22_spontaneously_point, scq_22, spoint |
Query
|
current_gesture |
String |
50
|
Required |
Gestures other than pointing or puling hand |
|
|
SCQ023_AN, SCQ_CURR_GESTURE, Scq_current_current_gesture, gesture, p_scq_23, q23_gestures, scq_23, sinsge |
Query
|
current_nodheady |
String |
50
|
Required |
Nodding head to indicate yes |
|
|
SCQ024_AN, SCQ_CURR_HEAD_YES, Scq_current_current_nodheady, nodheady, p_scq_24, q24_nod_yes, scq_24, snod |
Query
|
current_nodheadn |
String |
50
|
Required |
Shaking head to indicate no |
|
|
SCQ025_AN, SCQ_CURR_HEAD_NO, Scq_current_current_nodheadn, nodheadn, p_scq_25, q25_shake_no, scq_25, shshak |
Query
|
current_facelook |
String |
50
|
Required |
Looking directly in the face |
|
|
SCQ026_AN, SCQ_CURR_LOOK_DIRECT, Scq_current_current_facelook, facelook, p_scq_26, q26_look_directly, scq_26, sgaze |
Query
|
current_smileback |
String |
50
|
Required |
Smiling back when smiled at |
|
|
SCQ027_AN, SCQ_CURR_SMILE_BACK, Scq_current_current_smileback, p_scq_27, q27_smile_back, scq_27, smileback, sssmil |
Query
|
current_attn |
String |
50
|
Required |
Showing things to engage parent's attention |
|
|
SCQ028_AN, SCQ_CURR_SHOW_THING, Scq_current_current_attn, attn, p_scq_28, q28_show_things, scq_28, sshow |
Query
|
current_share |
String |
50
|
Required |
Offering to share things other than food |
|
|
SCQ029_AN, SCQ_CURR_SHARE, Scq_current_current_share, p_scq_29, q29_offer_share, scq_29, share, soshar |
Query
|
current_joinenjoy |
String |
50
|
Required |
Wanting parent to join in enjoyment of something |
|
|
SCQ030_AN, SCQ_CURR_JOIN_ENJOY, Scq_current_current_joinenjoy, joinenjoy, p_scq_30, q30_join_enjoyment, scq_30, sshare |
Query
|
current_comfort |
String |
50
|
Required |
Trying to comfort sad or hurt parent |
|
|
SCQ031_AN, SCQ_CURR_COMFORT, Scq_current_current_comfort, comfort, p_scq_31, q31_comfort, scq_31, socomf |
Query
|
current_help |
String |
50
|
Required |
Looking at or using words or gestures to get parent's attention |
|
|
SCQ032_AN, SCQ_CURR_HELP_GESTURE, Scq_current_current_help, help, p_scq_32, q32_wanted_something, scq_32, squalo |
Query
|
current_normalfacialexp |
String |
50
|
Required |
Normal range of facial expressions |
|
|
SCQ033_AN, SCQ_CURR_RANGE_EXPRESS, Scq_current_current_normalfacialexp, normalfacialexp, p_scq_33, q33_facial_expressions, scq_33, srface |
Query
|
current_copyaction |
String |
50
|
Required |
Spontaneously joining in or trying to copy actions in social games |
|
|
SCQ034_AN, SCQ_CURR_SOCIAL_GAME, Scq_current_current_copyaction, copyaction, p_scq_34, q34_spontaneously_join, scq_34, ssopla |
Query
|
current_makebelievegame |
String |
50
|
Required |
Playing pretend or make-believe games |
|
|
SCQ035_AN, SCQ_CURR_PLAY_PRETEND, Scq_current_current_makebelievegame, makebelievegame, p_scq_35, q35_play_pretend, scq_35, splay |
Query
|
current_childinterest |
String |
50
|
Required |
Interested in other same-age children |
|
|
SCQ036_AN, SCQ_CURR_CHILD_INTEREST, Scq_current_current_childinterest, childinterest, p_scq_36, q36_seem_interested, scq_36, sintch |
Query
|
current_positiveapp |
String |
50
|
Required |
Positively responding when approached by another child |
|
|
SCQ037_AN, SCQ_CURR_RESPOND_POSITIVE, Scq_current_current_positiveapp, p_scq_37, positiveapp, q37_respond_positively, scq_37, srespc |
Query
|
current_talknoname |
String |
50
|
Required |
Attentive when talked to without being addressed by name |
|
|
SCQ038_AN, SCQ_CURR_PAY_ATTNTN, Scq_current_current_talknoname, current_talknoNome, p_scq_38, q38_came_into_room, savoic, scq_38, talknoname |
Query
|
current_imaginegame |
String |
50
|
Required |
Imaginative pretend games with another child |
|
|
SCQ039_AN, SCQ_CURR_OTHR_PRETEND, Scq_current_current_imaginegame, imaginegame, p_scq_39, q39_play_imaginative, scq_39, speerp |
Query
|
current_playcoop |
String |
50
|
Required |
Cooperative in group games |
|
|
SCQ040_AN, SCQ_CURR_COOPERATIVE_PLAY, Scq_current_current_playcoop, p_scq_40, playcoop, q40_play_cooperatively, scq_40, sgrply |
Query
|
scq_subtotal_1 |
Integer |
|
Recommended |
scq subtotal items 1-19 |
|
|
scq_current_subtotal_1 |
Query
|
scq_subtotal_2 |
Integer |
|
Recommended |
Subtotal Items 1-19: Yes Responses |
|
|
scq_current_subtotal_2 |
Query
|
scq_subtotal_3 |
Integer |
|
Recommended |
subtotals for scq 3 |
|
|
scq_current_subtotal_3 |
Query
|
scq_subtotal_4 |
Integer |
|
Recommended |
scq subtotal 4 |
|
|
|
Query
|
scq_total_score |
Integer |
|
Required |
SCQ total score |
|
|
ASQ_total, SCQ_CURR_SCORE, score, scq_current_total_score, total_score |
Query
|
test_type |
String |
50
|
Recommended |
Type of event (Pre-Test or Post-Test) |
Pre-Test;Post-Test
|
|
|
Query
|
validity_of_data |
Integer |
|
Recommended |
Validity of data |
|
0= raw; 1 = Valid or clean; 2 = Question validity; 3 = Invalid data; 4 = Not answered; 999= missing
|
clean |
Query
|
visit |
String |
60
|
Recommended |
Visit name |
|
|
scqc_apt |
Query
|
missing |
Integer |
|
Recommended |
Number of responses missing (left blank). Greater than 6 is considered unscorable by the publisher. If record was scored by SCANTRON, missing values were recoded and might be missing on the form. Non-SCANTRON records have a (-1) for missing values. |
|
|
cs_number_unanswered, nbr_missing |
Query
|
phenotype |
String |
200
|
Recommended |
Phenotype/diagnosis for the subject |
|
|
diagnosis |
Query
|
cs_total_score |
Integer |
|
Recommended |
Total Score - Calculated in the following way: For Verbal children - Questions 2 - 40 are used For non-verbal children Questions 8 - 40 are used In those, a Yes = 0 and No = 1 for the following questions (2,9,19,20,21,22,23,24,25,26,27,28,29,30,31,32,33,34,35,36,37,38,39,40) and a Yes = 1 and a No = 0 for the following questions (3,4,5,6,7,8,10,11,12,13,14,15,16,17,18) Blank on Form should be scored -1. The total score is summed across items 2 - 40 for verbal and 8 - 40 for non-verbal. |
-1::40
|
|
|
Query
|
cs_scqresult |
Integer |
|
Recommended |
SCQ Result - Using the total score.Negative (0) if CS_Total_Score < 11, Positive (1) if CS_Total_Score >= 11. -1 in this field indicates scoring has been invalidated because one or more responses were not completed or completed incorrectly. |
0;1;-1
|
0=Negative Screen (SCQ Total < 11); 1=Positive Screen (SCQ Total >= 11); -1=Scoring not valid;
|
|
|
year_mta |
Integer |
|
Recommended |
Year in study |
|
|
visit_year |