|
subjectkey |
GUID |
|
Required |
The NDAR Global Unique Identifier (GUID) for research subject |
NDAR*
|
|
|
|
src_subject_id |
String |
20
|
Required |
Subject ID how it's defined in lab/project |
|
|
aid |
|
interview_age |
Integer |
|
Required |
Age in months at the time of the interview/test/sampling/imaging. |
0::1440
|
Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
|
v10_sds_age, v2_sds_age, v3_sds_age, v4_sds_age, v5_sds_age, v6_sds_age, v7_sds_age, v8_sds_age, v9_sds_age |
|
interview_date |
Date |
|
Required |
Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY |
|
|
v10_sds_date, v2_sds_date, v3_sds_date, v4_sds_date, v5_sds_date, v6_sds_date, v7_sds_date, v8_sds_date, v9_sds_date |
|
sex |
String |
20
|
Required |
Sex of subject at birth |
M;F; O; NR
|
M = Male; F = Female; O=Other; NR = Not reported
|
gender, sex |
Query
|
sds_1 |
Float |
|
Recommended |
The symptoms have disrupted your work/school |
0::10; -7
|
0=not at all; 1-3=mildly; 4-6=moderately; 7-9=markedly; 10=extremely; -7= I have not worked/studied at all during the past week for reasons unrelated to the disorder
|
cdsc_1_t1, cdsc_3_t1, disruptworkschool, q2, sds1, v10_sds_work, v2_sds_work, v3_sds_work, v4_sds_work, v5_sds_work, v6_sds_work, v7_sds_work, v8_sds_work, v9_sds_work |
Query
|
sds_2 |
Float |
|
Recommended |
The symptoms have disrupted your social life/leisure activities |
0::10
|
0=not at all; 1-3=mildly; 4-6=moderately; 7-9=markedly; 10=extremely
|
cdsc_2_t1, cdsc_4_t1, disruptsociallife, q3, sds2, v10_sds_social, v2_sds_social, v3_sds_social, v4_sds_social, v5_sds_social, v6_sds_social, v7_sds_social, v8_sds_social, v9_sds_social |
Query
|
sds_3 |
Float |
|
Recommended |
The symptoms have disrupted your family life/home responsibilities |
0::10
|
0=not at all; 1-3=mildly; 4-6=moderately; 7-9=markedly; 10=extremely
|
cdsc_5_t1, disruptfamilyhome, q4, sds3, v10_sds_familyhome, v2_sds_familyhome, v3_sds_familyhome, v4_sds_familyhome, v5_sds_familyhome, v6_sds_familyhome, v7_sds_familyhome, v8_sds_familyhome, v9_sds_familyhome |
Query
|
sds_4 |
Float |
|
Recommended |
On how many days in the last month did your symptoms cause you to miss school
or work or leave you unable to carry out your normal daily responsibilities |
|
|
daysphysicalemotinterfere, q6, v10_sds_economic_dayslost, v2_sds_economic_dayslost, v3_sds_economic_dayslost, v4_sds_economic_dayslost, v5_sds_economic_dayslost, v6_sds_economic_dayslost, v7_sds_economic_dayslost, v8_sds_economic_dayslost, v9_sds_economic_dayslost |
Query
|
sds_5 |
Float |
|
Recommended |
On how many days in the past month did you feel so impaired by your symptoms,
that even though you went to school or work, your productivity was reduced |
|
|
daysphysicalemotquality, v10_sds_economic_daysunderproductive, v2_sds_economic_daysunderproductive, v3_sds_economic_daysunderproductive, v4_sds_economic_daysunderproductive, v5_sds_economic_daysunderproductive, v6_sds_economic_daysunderproductive, v7_sds_economic_daysunderproductive, v8_sds_economic_daysunderproductive, v9_sds_economic_daysunderproductive |
|
site |
String |
101
|
Recommended |
Site |
|
Study Site
|
siteid, vistyp |
Query
|
clinicid |
Integer |
|
Recommended |
Clinic ID |
|
|
|
Query
|
interv |
Integer |
|
Recommended |
Intervention Status |
0;1
|
1=ITV, intervention; 0=TAU, treatment as usual
|
|
Query
|
visit |
String |
60
|
Recommended |
Visit name |
|
|
visitn |
Query
|
days_baseline |
Integer |
|
Recommended |
Days since baseline |
|
|
vdasds |
Query
|
sheen |
Float |
|
Recommended |
Sum of SDS 1-3 |
|
|
|
Query
|
isheen |
Integer |
|
Recommended |
Imputed SHEEN |
0;2
|
substitution for missing data
|
|
Query
|
interviewmonth |
Integer |
|
Recommended |
Interview Month |
|
|
|
Query
|
sds4 |
Integer |
|
Recommended |
Since your last visit, how much were you set back by stressful events or personal problems, such as work, home, social, health, or financial problems? |
0::10
|
0=not at all; 1-3=mildly; 4-6=moderately; 7-9=markedly; 10=extremely
|
|
Query
|
sds5 |
Integer |
|
Recommended |
In the past week, how much support have you received from friends, relatives, co-workers, etc. as a percentage of the amount you needed to cope? |
0::10
|
0=not support or 10%; 1-3=a little or 10-30%; 4-6=moderately or 40-60%; 7-9=considerable or 70-90%; 10=ideal support or 100%
|
|
|
version_form |
String |
121
|
Recommended |
Form used/assessment name |
|
|
|
Query
|
respondent |
String |
20
|
Recommended |
Respondent |
Mother;Father;Parent;Guardian;Teacher;Child;Self;Caregiver;Partner;Other
|
|
|
Query
|
visnum |
Float |
|
Recommended |
Numeric Visit Number |
|
-1.5 = Pre-Screening; -1 = Screening; 0 = Baseline; ## = Visit ## (from 1 to 10); Whole numbers = standard monthly visits; #.001 - #.009 = Unscheduled; #.1 = End of Phase 1; #.2 = End of Phase 2; #.3 = End of Phase 3; #.4 = End of Open Choice Phase; #.5 = End of Study; #.6 = Genetic Analysis; 1000=all visits
|
|
|
comments_misc |
String |
4,000
|
Recommended |
Miscellaneous comments on study, interview, methodology relevant to this form data |
|
|
|
Query
|
timept |
Integer |
|
Recommended |
Time Point |
|
888 = not applicable; 999 = missing
|
timepoint |
Query
|
sds_roleimpair_rs |
Integer |
|
Recommended |
Sheehan Disability Scale [RAW SCORE]: Overall Role Impairment |
|
|
|
Query
|
sds_roleimpair_max |
Integer |
|
Recommended |
Sheehan Disability Scale [MAX SCORE]: Max Role Impairment |
|
|
|
Query
|
aescode |
Integer |
|
Recommended |
Staff code number of person completing this form |
|
999= Missing Data
|
|
Query
|
sds_parent3 |
Integer |
|
Recommended |
The symptoms have disrupted your work |
0::10
|
0 = Not at all extremely; 10 = Markedly
|
|
Query
|
sds_parent4 |
Integer |
|
Recommended |
The symptoms have disrupted your social life |
0::10
|
0 = Not at all extremely; 10 = Markedly
|
|
Query
|
sds_parent5 |
Integer |
|
Recommended |
The symptoms have disrupted your family life/home responsibilities |
0::10
|
0 = Not at all extremely; 10 = Markedly
|
|
|
primary_language |
String |
255
|
Recommended |
Subject's Primary Language |
|
|
userlanguage |
|
ihend |
Date |
|
Recommended |
date ended (today's date if still in progress) |
|
|
enddate |
|
restype |
Integer |
|
Recommended |
Response Type |
|
0 = IP Address; 1 = Survey Preview; 2 = Survey Test; 4 = Imported; 8 = Spam; 9 = Survey Preview Spam; 12 = Imported Spam; 16 = Offline; 17 = Offline Survey Preview; 32 = EX; 40 = EX Spam; 48 = EX Offline;
|
|
|
prog |
Integer |
|
Recommended |
Progress |
|
|
progress |
|
gml_dur |
Integer |
|
Recommended |
Trial 1 duration of task, seconds |
|
|
duration__in_seconds_ |
|
completed |
Integer |
|
Recommended |
Checks if completed |
0::3
|
0=No; 1=Yes; 2=Yes, lost; 3=Unverified
|
finished |
|
date_updated |
Date |
|
Recommended |
Date record updated |
|
|
recordeddate |
|
externalreference |
String |
255
|
Recommended |
External Data Reference |
|
|
|
|
sds_4_week |
Integer |
|
Recommended |
On how many days in the last week did your symptoms cause you to miss school or work or leave you unable to carry out your normal daily responsibilities. |
|
|
|
|
sds_5_week |
Integer |
|
Recommended |
On how many days in the past week did you feel so impaired by your symptoms that, even though you went to school or work, your productivity was reduced. |
|
|
|
|
disruptworkschool_30 |
Integer |
|
Recommended |
SDS: Symptoms Disrupt Work/School (30 days) |
0::10; -5; -7; -8
|
0=Not at all disruptive; 10=Extremely disruptive; -8=DON''T KNOW; -7=REFUSED; -5=Presented, not answered
|
|
|
disruptfamilyhome_30 |
Integer |
|
Recommended |
SDS: Symptoms Disrupt Family Life (30 days) |
0::10; -5; -7; -8
|
0=Not at all disruptive; 10=Extremely disruptive; -8=DON''T KNOW; -7=REFUSED; -5=Presented, not answered
|
|
|
disruptsociallife_30 |
Integer |
|
Recommended |
SDS: Symptoms Disrupt Social Life (30 days) |
0::10; -5; -7; -8
|
0=Not at all disruptive; 10=Extremely disruptive; -8=DON''T KNOW; -7=REFUSED; -5=Presented, not answered
|
|
|
sds_daysout |
Integer |
|
Recommended |
SDS: Sheehan Days out of role |
0::30
|
|
|
|
sds_daysreduce |
Integer |
|
Recommended |
SDS: Sheehan Days reduced work |
0::30
|
|
|
|
disability_description |
Integer |
|
Recommended |
Select the statement that best describes your disability |
1::5
|
1= No complaints, normal activity; 2= Symptoms mild, but not interfering with normal work or social activities; 3= Symptoms interfere with normal work or social activities in minor ways; 4= Symptoms interfere with normal work or social activities markedly, but they are not prevented or radically changed; 5= Symptoms radically change or prevent normal work or social activities
|
|