|
subjectkey |
GUID |
|
Required |
The NDAR Global Unique Identifier (GUID) for research subject |
NDAR*
|
|
|
|
src_subject_id |
String |
20
|
Required |
Subject ID how it's defined in lab/project |
|
|
subjectid, subjectnumber |
|
interview_date |
Date |
|
Required |
Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY |
|
|
datacollecteddate |
|
interview_age |
Integer |
|
Required |
Age in months at the time of the interview/test/sampling/imaging. |
0::1440
|
Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
|
|
|
sex |
String |
20
|
Required |
Sex of subject at birth |
M;F; O; NR
|
M = Male; F = Female; O=Other; NR = Not reported
|
gender |
Query
|
p1_sops |
Integer |
|
Recommended |
P1. Unusual Thought Content/ Delusional Ideas |
0::6
|
0=Never, Absent; 1=Questionably present; 2=Mild; 3=Moderate; 4=Moderately severe; 5=Severe but not psychotic; 6=Severe and Psychotic
|
|
Query
|
p1_onsetdatecode |
Integer |
|
Recommended |
P1: Onset date code |
1::3
|
1=NA; 2=Onset Date available; 3=Lifetime
|
|
|
p1_onset |
Date |
|
Recommended |
P1: Date of onset |
|
|
|
|
p1_dateofincrease |
Date |
|
Recommended |
P1: Date of increase |
|
|
|
Query
|
p2_sops |
Integer |
|
Recommended |
P2. Suspiciousness/Persecutory Ideas |
0::6
|
0=Never, Absent; 1=Questionably present; 2=Mild; 3=Moderate; 4=Moderately severe; 5=Severe but not psychotic; 6=Severe and Psychotic
|
|
Query
|
p2_onsetdatecode |
Integer |
|
Recommended |
P2: Onset date code |
1::3
|
1=NA (Severity < 3); 2=Onset Date available; 3=Lifetime
|
|
|
p2_onset |
Date |
|
Recommended |
P2: Date of onset |
|
|
|
|
p2_dateofincrease |
Date |
|
Recommended |
P2: Date of increase |
|
|
|
Query
|
p3_sops |
Integer |
|
Recommended |
P3. Grandiose Ideas |
0::6
|
0=Never, Absent; 1=Questionably present; 2=Mild; 3=Moderate; 4=Moderately severe; 5=Severe but not psychotic; 6=Severe and Psychotic
|
|
Query
|
p3_onsetdatecode |
Integer |
|
Recommended |
P3: Onset date code |
1::3
|
1=NA (Severity < 3); 2=Onset Date available; 3=Lifetime
|
|
|
p3_onset |
Date |
|
Recommended |
P3: Date of onset |
|
|
|
|
p3_dateofincrease |
Date |
|
Recommended |
P3: Date of increase |
|
|
|
Query
|
p4_sops |
Integer |
|
Recommended |
P4. Perceptual Abnormalities/ Hallucinations |
0::6
|
0=Never, Absent; 1=Questionably present; 2=Mild; 3=Moderate; 4=Moderately severe; 5=Severe but not psychotic; 6=Severe and Psychotic
|
|
Query
|
p4_onsetdatecode |
Integer |
|
Recommended |
P4: Onset date code |
1::3
|
1=NA (Severity < 3); 2=Onset Date available; 3=Lifetime
|
|
|
p4_onset |
Date |
|
Recommended |
P4: Date of onset |
|
|
|
|
p4_dateofincrease |
Date |
|
Recommended |
P4: Date of increase |
|
|
|
Query
|
p5_sops |
Integer |
|
Recommended |
P5. Disorganized Communication |
0::6
|
0=Never, Absent; 1=Questionably present; 2=Mild; 3=Moderate; 4=Moderately severe; 5=Severe but not psychotic; 6=Severe and Psychotic
|
|
Query
|
p5_onsetdatecode |
Integer |
|
Recommended |
P5: Onset date code |
1::3
|
1=NA (Severity < 3); 2=Onset Date available; 3=Lifetime
|
|
|
p5_onset |
Date |
|
Recommended |
P5: Date of onset |
|
|
|
|
p5_dateofincrease |
Date |
|
Recommended |
P5: Date of increase |
|
|
|
Query
|
n1_sops |
Integer |
|
Recommended |
N1. Social Anhedonia |
0::6
|
0=Absent; 1=Questionably present; 2=Mild; 3=Moderate; 4=Moderately severe; 5=Severe; 6=Extreme
|
|
Query
|
n2_sops |
Integer |
|
Recommended |
N2. Avolition |
0::6
|
0=Absent; 1=Questionably present; 2=Mild; 3=Moderate; 4=Moderately severe; 5=Severe; 6=Extreme
|
|
Query
|
n3_sops |
Integer |
|
Recommended |
N3. Decreased Expression of Emotion |
0::6
|
0=Absent; 1=Questionably present; 2=Mild; 3=Moderate; 4=Moderately severe; 5=Severe; 6=Extreme
|
|
Query
|
n4_sops |
Integer |
|
Recommended |
N4. Decreased Experience of Emotions and Self |
0::6
|
0=Absent; 1=Questionably present; 2=Mild; 3=Moderate; 4=Moderately severe; 5=Severe; 6=Extreme
|
|
Query
|
n5_sops |
Integer |
|
Recommended |
N5. Decreased Ideational Richness |
0::6
|
0=Absent; 1=Questionably present; 2=Mild; 3=Moderate; 4=Moderately severe; 5=Severe; 6=Extreme
|
|
Query
|
n6_sops |
Integer |
|
Recommended |
N6. Occupational Functioning |
0::6
|
0=Absent; 1=Questionably present; 2=Mild; 3=Moderate; 4=Moderately severe; 5=Severe; 6=Extreme
|
|
Query
|
d1_sops |
Integer |
|
Recommended |
D1. Odd Behaviour or Appearance |
0::6
|
0=Absent; 1=Questionably present; 2=Mild; 3=Moderate; 4=Moderately severe; 5=Severe; 6=Extreme
|
|
Query
|
d2_sops |
Integer |
|
Recommended |
D2. Bizarre Thinking |
0::6
|
0=Absent; 1=Questionably present; 2=Mild; 3=Moderate; 4=Moderately severe; 5=Severe; 6=Extreme
|
|
Query
|
d3_sops |
Integer |
|
Recommended |
D3. Trouble with Focus and Attention |
0::6
|
0=Absent; 1=Questionably present; 2=Mild; 3=Moderate; 4=Moderately severe; 5=Severe; 6=Extreme
|
|
Query
|
d4_sops |
Integer |
|
Recommended |
D4. Impairment in Personal Hygiene |
0::6
|
0=Absent; 1=Questionably present; 2=Mild; 3=Moderate; 4=Moderately severe; 5=Severe; 6=Extreme
|
|
Query
|
g1_sops |
Integer |
|
Recommended |
G1. Sleep Disturbance |
0::6
|
0=Absent; 1=Questionably present; 2=Mild; 3=Moderate; 4=Moderately severe; 5=Severe; 6=Extreme
|
|
Query
|
g2_sops |
Integer |
|
Recommended |
G2. Dysphoric Mood |
0::6
|
0=Absent; 1=Questionably present; 2=Mild; 3=Moderate; 4=Moderately severe; 5=Severe; 6=Extreme
|
|
Query
|
g3_sops |
Integer |
|
Recommended |
G3. Motor Disturbances |
0::6
|
0=Absent; 1=Questionably present; 2=Mild; 3=Moderate; 4=Moderately severe; 5=Severe; 6=Extreme
|
|
Query
|
g4_sops |
Integer |
|
Recommended |
G4 Impaired Tolerance to Normal Stress |
0::6
|
0=Absent; 1=Questionably present; 2=Mild; 3=Moderate; 4=Moderately severe; 5=Severe; 6=Extreme
|
|
|
site |
String |
101
|
Recommended |
Site |
|
Study Site
|
sitenumber |
|
visit_name |
String |
20
|
Recommended |
session ID/screening ID |
|
|
visitnumber |
Query
|
visit |
String |
60
|
Recommended |
Visit name |
|
|
visitlabel |
Query
|
subjecttype |
String |
20
|
Recommended |
Subject Type |
Control;Prodromal; Enhanced; Non-Enhanced
|
|
|
Query
|
pops_1 |
Integer |
|
Recommended |
Criterion 1: At least one P1-P5 symptom is rated as 6=Extreme |
0;1
|
0=No; 1=Yes
|
pops_criterion_one |
Query
|
pops_2 |
Integer |
|
Recommended |
Criterion 2: Symptoms meeting criterion 1, occur at sufficient frequency and duration or urgency |
0;1
|
0=No; 1=Yes
|
pops_criterion_two |
Query
|
pops_conv |
Integer |
|
Recommended |
Subject meets criterion 1 and 2 and has converted |
0;1
|
0=No; 1=Yes
|
pops_criteria_met |
|
pops_date |
Date |
|
Recommended |
Date subject converted |
|
|
|
Query
|
pops_days |
Integer |
|
Recommended |
Number of days from baseline SOPS until date of conversion |
|
|
days_from_baseline |
Query
|
pops_days2 |
Integer |
|
Recommended |
Number of days from date of conversion until date conversion assessment began |
|
|
days_since_conversion |
Query
|
conversion |
Integer |
|
Recommended |
Conversion and diagnosis was determined by: |
1::7
|
1=The SCID/SOPS was administered by a NAPLS rater or clinician; 2=The SCID/SOPS was administered reliably by another clinician; 3=A non-NAPLS clinician and NAPLS rater or clinician reviewed the case; 4=Chart review by a NAPLS rater or clinician; 5=Phone discussion between subject and clinician or rater; 6=Word of mouth; 7=Medication being prescribed
|
diagnosis_determination |
Query
|
n1_onsetdatecode |
Integer |
|
Recommended |
N1: Onset date code |
1::3
|
1=NA (Severity < 3); 2=Onset Date available; 3=Lifetime
|
|
|
n1_onset |
Date |
|
Recommended |
N1: Date of onset |
|
|
|
|
n1_dateofincrease |
Date |
|
Recommended |
N1: Date of increase |
|
|
|
Query
|
n2_onsetdatecode |
Integer |
|
Recommended |
N2: Onset date code |
1::3
|
1=NA (Severity < 3); 2=Onset Date available; 3=Lifetime
|
|
|
n2_onset |
Date |
|
Recommended |
N2: Date of onset |
|
|
|
|
n2_dateofincrease |
Date |
|
Recommended |
N2: Date of increase |
|
|
|
Query
|
n3_onsetdatecode |
Integer |
|
Recommended |
N3: Onset date code |
1::3
|
1=NA (Severity < 3); 2=Onset Date available; 3=Lifetime
|
|
|
n3_onset |
Date |
|
Recommended |
N3: Date of onset |
|
|
|
|
n3_dateofincrease |
Date |
|
Recommended |
N3: Date of increase |
|
|
|
Query
|
n4_onsetdatecode |
Integer |
|
Recommended |
N4: Onset date code |
1::3
|
1=NA (Severity < 3); 2=Onset Date available; 3=Lifetime
|
|
|
n4_onset |
Date |
|
Recommended |
N4: Date of onset |
|
|
|
|
n4_dateofincrease |
Date |
|
Recommended |
N4: Date of increase |
|
|
|
Query
|
n5_onsetdatecode |
Integer |
|
Recommended |
N5: Onset date code |
1::3
|
1=NA (Severity < 3); 2=Onset Date available; 3=Lifetime
|
|
|
n5_onset |
Date |
|
Recommended |
N5: Date of onset |
|
|
|
|
n5_dateofincrease |
Date |
|
Recommended |
N5: Date of increase |
|
|
|
Query
|
n6_onsetdatecode |
Integer |
|
Recommended |
N6: Onset date code |
1::3
|
1=NA (Severity < 3); 2=Onset Date available; 3=Lifetime
|
|
|
n6_onset |
Date |
|
Recommended |
N6: Date of onset |
|
|
|
|
n6_dateofincrease |
Date |
|
Recommended |
N6: Date of increase |
|
|
|
Query
|
d1_onsetdatecode |
Integer |
|
Recommended |
D1: Onset date code |
1::3
|
1=NA (Severity < 3); 2=Onset Date available; 3=Lifetime
|
|
|
d1_onset |
Date |
|
Recommended |
D1: Date of onset |
|
|
|
|
d1_dateofincrease |
Date |
|
Recommended |
D1: Date of increase |
|
|
|
Query
|
d2_onsetdatecode |
Integer |
|
Recommended |
D2: Onset date code |
1::3
|
1=NA (Severity < 3); 2=Onset Date available; 3=Lifetime
|
|
|
d2_onset |
Date |
|
Recommended |
D2: Date of onset |
|
|
|
|
d2_dateofincrease |
Date |
|
Recommended |
D2: Date of increase |
|
|
|
Query
|
d3_onsetdatecode |
Integer |
|
Recommended |
D3: Onset date code |
1::3
|
1=NA (Severity < 3); 2=Onset Date available; 3=Lifetime
|
|
|
d3_onset |
Date |
|
Recommended |
D3: Date of onset |
|
|
|
|
d3_dateofincrease |
Date |
|
Recommended |
D3: Date of increase |
|
|
|
Query
|
d4_onsetdatecode |
Integer |
|
Recommended |
D4: Onset date code |
1::3
|
1=NA (Severity < 3); 2=Onset Date available; 3=Lifetime
|
|
|
d4_onset |
Date |
|
Recommended |
D4: Date of onset |
|
|
|
|
d4_dateofincrease |
Date |
|
Recommended |
D4: Date of increase |
|
|
|
Query
|
g1_onsetdatecode |
Integer |
|
Recommended |
G1: Onset date code |
1::3
|
1=NA (Severity < 3); 2=Onset Date available; 3=Lifetime
|
|
|
g1_onset |
Date |
|
Recommended |
G1: Date of onset |
|
|
|
|
g1_dateofincrease |
Date |
|
Recommended |
G1: Date of increase |
|
|
|
Query
|
g2_onsetdatecode |
Integer |
|
Recommended |
G2: Onset date code |
1::3
|
1=NA (Severity < 3); 2=Onset Date available; 3=Lifetime
|
|
|
g2_onset |
Date |
|
Recommended |
G2: Date of onset |
|
|
|
|
g2_dateofincrease |
Date |
|
Recommended |
G2: Date of increase |
|
|
|
Query
|
g3_onsetdatecode |
Integer |
|
Recommended |
G3: Onset date code |
1::3
|
1=NA (Severity < 3); 2=Onset Date available; 3=Lifetime
|
|
|
g3_onset |
Date |
|
Recommended |
G3: Date of onset |
|
|
|
|
g3_dateofincrease |
Date |
|
Recommended |
G3: Date of increase |
|
|
|
Query
|
g4_onsetdatecode |
Integer |
|
Recommended |
G4: Onset date code |
1::3
|
1=NA (Severity < 3); 2=Onset Date available; 3=Lifetime
|
|
|
g4_onset |
Date |
|
Recommended |
G4: Date of onset |
|
|
|
|
g4_dateofincrease |
Date |
|
Recommended |
G4: Date of increase |
|
|
|
Query
|
csopsnegative |
Integer |
|
Recommended |
Total SOPS Negative Severity |
|
|
|
Query
|
csopspositive |
Integer |
|
Recommended |
Total SOPS Positive Severity |
|
|
|
Query
|
csopsgeneral |
Integer |
|
Recommended |
Total SOPS General Severity |
|
|
|
Query
|
csopsdisorganization |
Integer |
|
Recommended |
Total SOPS Disorganization Severity |
|
|
|
Query
|
dataquality |
Integer |
|
Recommended |
Data quality |
0::5
|
0=No data (cancelled); 1=Data entered but only once, has missing data; 2=Data entered but only once, no missing data; 3=Double entered; 4=Data frozen for cleaning; 5=Data clean/locked
|
|
Query
|
elig_inclusion_check |
Integer |
|
Recommended |
Checks for a pass/fail on Elig for Inclusion |
0::3
|
0=Failed (Ineligible); 1=Passed (Eligible); 2=In screening; 3=NA
|
|
Query
|
visit_num |
Integer |
|
Recommended |
Visit number |
1::3
|
1=Baseline, 2=12 Month, 3=24 Month
|
|
|
p1_sops_reas |
String |
50
|
Recommended |
P1. Unusual Thought Content/ Delusional Ideas. Reason |
|
|
|
|
p2_sops_reas |
String |
50
|
Recommended |
P2. Suspiciousness/Persecutory Ideas. Reason |
|
|
|
|
p3_sops_reas |
String |
50
|
Recommended |
P3. Grandiose Ideas. Reason |
|
|
|
|
p4_sops_reas |
String |
50
|
Recommended |
P4. Perceptual Abnormalities/ Hallucinations. Reason |
|
|
|
|
p5_sops_reas |
String |
50
|
Recommended |
P5. Disorganized Communication. Reason |
|
|
|
|
n1_sops_reas |
String |
50
|
Recommended |
N1. Social Anhedonia. Reason |
|
|
|
|
n2_sops_reas |
String |
50
|
Recommended |
N2. Avolition. Reason |
|
|
|
|
n3_sops_reas |
String |
50
|
Recommended |
N3. Decreased Expression of Emotion. Reason |
|
|
|
|
n4_sops_reas |
String |
50
|
Recommended |
N4. Decreased Experience of Emotions and Self. Reason |
|
|
|
|
n5_sops_reas |
String |
50
|
Recommended |
N5. Decreased Ideational Richness. Reason |
|
|
|
|
n6_sops_reas |
String |
50
|
Recommended |
N6. Occupational Functioning. Reason |
|
|
|
|
d1_sops_reas |
String |
50
|
Recommended |
D1. Odd Behaviour or Appearance. Reason |
|
|
|
|
d2_sops_reas |
String |
50
|
Recommended |
D2. Bizarre Thinking. Reason |
|
|
|
|
d3_sops_reas |
String |
50
|
Recommended |
D3. Trouble with Focus and Attention. Reason |
|
|
|
|
d4_sops_reas |
String |
50
|
Recommended |
D4. Impairment in Personal Hygiene. Reason |
|
|
|
|
g1_sops_reas |
String |
50
|
Recommended |
G1. Sleep Disturbance. Reason |
|
|
|
|
g2_sops_reas |
String |
50
|
Recommended |
G2. Dysphoric Mood. Reason |
|
|
|
|
g3_sops_reas |
String |
50
|
Recommended |
G3. Motor Disturbances. Reason |
|
|
|
|
g4_sops_reas |
String |
50
|
Recommended |
G4 Impaired Tolerance to Normal Stress. Reason |
|
|
|
Query
|
gafrat |
Float |
|
Recommended |
GAF rating |
1::100; -9
|
Rating Notes: 1-10: Persistent danger of severely hurting self or others; 11-20: Some danger of hurting self or others; 21-30: Inability to function in almost all areas; 31-40: Major impairment in several areas; 41-50: Serious symptoms; 51-60: Moderate symptoms 61-70: Some mild symptoms; 71-80: No more than slight impairment; 81-90: Absent or minimal symptoms; 91 100: Superior functioning;-9=missing
|
|
Query
|
gafyear |
Integer |
|
Recommended |
GAF score past year |
0::100
|
Rating Notes: 1-10: Persistent danger of severely hurting self or others; 11-20: Some danger of hurting self or others; 21-30: Inability to function in almost all areas; 31-40: Major impairment in several areas; 41-50: Serious symptoms; 51-60: Moderate symptoms 61-70: Some mild symptoms; 71-80: No more than slight impairment; 81-90: Absent or minimal symptoms; 91 100: Superior functioning;
|
|
Query
|
grd_c1 |
Integer |
|
Recommended |
C1: The person has met criteria for Schizotypal Personality Disorder, now or in the past |
0::2
|
0=No; 1=Yes; 2=NA
|
|
Query
|
sops_ill |
Integer |
|
Recommended |
SIPS/SOPS criteria met |
0;1
|
0=No; 1=Yes
|
|
Query
|
sops_crit |
Integer |
|
Recommended |
Family history of psychotic illness |
0;1
|
0=No; 1=Yes
|
|
|
sops_rel_dis |
Integer |
|
Recommended |
First degree relative with psychotic disorder |
0;1
|
0=No; 1=Yes
|
|
|
sops_relation |
String |
50
|
Recommended |
Relationship to first degree relative |
|
|
|
|
sops_rel_diag |
String |
50
|
Recommended |
First degree relative's diagnosis |
|
|
|
|
name_study |
String |
50
|
Recommended |
Name of initial study |
|
|
|
|
date_first_treatment |
Date |
|
Recommended |
Date of First Treatment of Psychosis |
|
MM/DD/YYYY
|
|
|
dup |
Integer |
|
Recommended |
Duration of Untreated Psychosis at Study Entry (weeks) |
|
|
|
|
date_of_conversion |
Date |
|
Recommended |
Date of conversion to psychosis |
|
MM/DD/YYYY
|
|