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NIMH Data Archive
NDA ABCD CCF OAI NIAAADA AMP SCZ HEAL

STAND Demographics Battery

278 Shared Subjects

N/A
Clinical Assessments
Demographics
09/21/2016
stand_demographics01
12/05/2018
View Change History
01
Definition
Submission Template
Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR* guid
src_subject_id String 20 Required Subject ID how it's defined in lab/project con_id, record_id
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY auth_date, con_date, con_date_en, demo_date, pp_date
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0::1440 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month. age_a, demo_age_a
sex String 20 Required Sex of subject at birth
M;F; O; NR
M = Male; F = Female; O=Other; NR = Not reported demo_sex_a, gender, sex_a
version_form String 121 Required Form used/assessment name
Query visnum Float Recommended Numeric Visit Number -1.5 = Pre-Screening; -1 = Screening; 0 = Baseline; ## = Visit ## (from 1 to 10); Whole numbers = standard monthly visits; #.001 - #.009 = Unscheduled; #.1 = End of Phase 1; #.2 = End of Phase 2; #.3 = End of Phase 3; #.4 = End of Open Choice Phase; #.5 = End of Study; #.6 = Genetic Analysis; 1000=all visits
Query aescode Integer Recommended Staff code number of person completing this form 999= Missing Data pi_staff
Query dayscons Integer Recommended days since consent con_date_en
Query consent Integer Required Consent at screening 0;1 0=No; 1=Yes; con_name_print_en
grade String 50 Recommended Current Grade demo_grade_a
ethnicity String 30 Recommended Ethnicity of participant
Hispanic or Latino; Not Hispanic or Latino; Unknown
demo_ethn_a
race String 30 Recommended Race of study subject
American Indian/Alaska Native; Asian; Hawaiian or Pacific Islander; Black or African American; White; More than one race; Unknown or not reported; Other Non-White; Other
demo_race_a
otherrace String 100 Recommended specify other race The following questions are about you or the child's family. demo_race_oth_a
Query cg1_age Integer Recommended Parent/Caregiver 1 Age, months 0::1200 demo_age_p1
cg1_relationship String 100 Recommended Caregiver/Parent 1's Relationship to Participant Parent;Step-parent;Foster parent;Grandparent;Other family member;Other; Biological Mother; Biological Father; Biological Parent; Adoptive Parent; Adoptive/Foster Parent; I do not wish to disclose; Step-father; Step-mother demo_rela_p1
cg1_relationship_specify String 100 Recommended Caregiver/Parent 1's Relationship to Participant Other Specify demo_rela_oth_p1
cg1_ethnicity String 30 Recommended Caregiver/Parent 1's ethnicity
Hispanic or Latino; Not Hispanic or Latino
demo_ethn_p1
cg1_race String 100 Recommended Race of the Caregiver/Parent 1
American Indian/Alaska Native; Asian; Hawaiian or Pacific Islander; Black or African American; White; More than one race; Unknown or not reported
demo_race_p1
cg1_race_specify String 100 Recommended Race of the Caregiver/Parent 1 Other Specify demo_race_oth_p1
edfirst_scid String 100 Recommended Education first person (intervewee/first parent) demo_edu_p1
cg1_occupation String 100 Recommended Caregiver/Parent 1's Occupation demo_occu_p1
cg1_guardian String 10 Recommended Caregiver/Parent 1. Is this the Participant's Custodian/Legal Guardian?
Yes;No
demo_custody_p1
cg1_relation_status String 100 Recommended Caregiver/Parent 1's Relationship Status
Married;Never married;Widowed;Divorced and remarried;Separated;Divorced;Widowed and remarried;Other; Living with Partner
demo_mar_p1
cg1_cohabitate String 10 Recommended Caregiver/Parent 1. Does the participant live with this custodian?
Yes;No
demo_live_p1
cg1_visit String 50 Recommended If Caregiver1 and Adolescent do not live together, how often do they see each other?: demo_often_p1
Query cg2_age Integer Recommended Parent/Caregiver 2 Age, months 0::1200 demo_age_p2
cg2_relationship String 100 Recommended Caregiver/Parent 2's Relationship to Participant Parent;Step-parent;Foster parent;Grandparent;Other family member;Other; Biological Mother; Biological Father; Biological Parent; Adoptive Parent; Adoptive/Foster Parent; I do not wish to disclose; Step-father; Step-mother demo_rela_p2
cg2_relationship_specify String 100 Recommended Caregiver/Parent 2's Relationship to Participant Other Specify demo_rela_oth_p2
cg2_ethnicity String 30 Recommended Caregiver/Parent 2's ethnicity
Hispanic or Latino; Not Hispanic or Latino
demo_ethn_p2
cg2_race String 100 Recommended Race of the Caregiver/Parent 2
American Indian/Alaska Native; Asian; Hawaiian or Pacific Islander; Black or African American; White; More than one race; Unknown or not reported
demo_race_p2
cg2_race_specify String 50 Recommended Caregiver2: Specify Other Race demo_race_oth_p2
educsecondpers_scid String 50 Recommended Education second person (other parent) demo_edu_p2
cg2_occupation String 100 Recommended Caregiver/Parent 2's Occupation demo_occu_p2
cg2_guardian String 10 Recommended Caregiver/Parent 2. Is this the Participant's Custodian/Legal Guardian?
Yes;No
demo_custody_p2
cg2_relation_status String 100 Recommended Caregiver/Parent 2's Relationship Status
Married;Never married;Widowed;Divorced and remarried;Separated;Divorced;Widowed and remarried;Other; Living with Partner
demo_mar_p2
cg2_cohabitate String 10 Recommended Caregiver/Parent 2: Does the adolescent live with this custodian?
Yes; No
demo_live_p2
cg2_visit String 50 Recommended If Caregiver2 and Adolescent do not live together, how often do they see each other?: demo_often_p2
Query demo_siblingscount Integer Recommended Number of siblings 888 = not applicable; 999 = missing demo_sib_no
rid_sa String 20 Recommended If sibling, what age was he/she demo_sib_age
hs_classroom String 250 Recommended High School Type of classroom Inclusion Classroom; Special Ed Classroom; Mixed Inclusion and Special Ed Classroom demo_sch
Query cbfrepeatheldback Integer Recommended Has the child/subject ever repeated a grade or been held back? 0;1; 888; 999 0 = no; 1 = yes; 888 = not applicable; 999 = missing demo_held
wn60a String 20 Recommended Which grades were 'Repeated'? demo_held_grade
asisped String 200 Recommended Specify special education services demo_iep
schoolotr_classroom String 500 Recommended Other specify Type of classroom
Inclusion Classroom; Special Ed Classroom; Mixed Inclusion and Special Ed Classroom; Home schooled; Not applicable; Regular ESE; Gifted/Advanced; Other
demo_class
schoolotr_school_otr String 100 Recommended Other specify Type of school or day program Other specify demo_class_oth
Query cdiag_adhd Integer Recommended Child current diagnosis: ADHD 0;1 0=No; 1=Yes demo_adhd
Query cdiag_ld Integer Recommended Child current diagnosis: Learning Disorder 0;1 0=No; 1=Yes demo_ld
Query cdiag_asd Integer Recommended Child current diagnosis: Autism Spectrum Disorder 0;1 0=No; 1=Yes demo_autism
Query anypdd Integer Recommended Any Pervasive Developmental Disorder 0;1 (1 = present;0 = absent);By Parent (PDX): 1-Pervasive Developmental D/O if PDD_PDX = 1 then ANYPDD = 1;else ANYPDD = 0; demo_pdd
Query cfmh_chd_aspergers Integer Recommended Does the Child have Asperger's Syndrome? 1;0;999 0 = No; 1 = Yes demo_as
Query se14 Integer Recommended Does the adolescent take meds for ADHD? And/or for attention, behavior, mood, and emotions 0;1 0=No; 1=Yes demo_rx
medication_name String 255 Recommended Name of medication demo_rx_note
Query child_services4 Integer Recommended Has your child ever participated in Therapy 0;1 0=No; 1=Yes demo_tx
child_services4sp String 100 Recommended Has your child ever participated in Therapy: specify demo_tx_note
site String 101 Recommended Site Study Site con_ccf_name_en
org_address String 4,000 Recommended Lines of the adddress are separated by a semi-colon, for example: Street Address; City, State; Zip Code con_ccf_add_en
comments_misc String 4,000 Recommended Miscellaneous comments on study, interview, methodology relevant to this form data con_tdesc_en
auth_besttime String 8 Recommended Best Time to Reach Parent
Query visit String 60 Recommended Visit name
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

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