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subjectkey |
GUID |
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Required |
The NDAR Global Unique Identifier (GUID) for research subject |
NDAR*
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src_subject_id |
String |
20
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Required |
Subject ID how it's defined in lab/project |
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interview_date |
Date |
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Required |
Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY |
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interview_age |
Integer |
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Required |
Age in months at the time of the interview/test/sampling/imaging. |
0::1440
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Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
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sex |
String |
20
|
Required |
Sex of subject at birth |
M;F; O; NR
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M = Male; F = Female; O=Other; NR = Not reported
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gender |
Query
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dubowitz_neuro |
Integer |
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Recommended |
Dubowitz Score - Neurological Signs |
0::5
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Query
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dubowitz_posture |
Integer |
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Recommended |
Dubowitz Score - Posture |
0::4
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0 = Wrists, arms, hips, and legs straight; 1 = Wrists bent and legs slightly bent; 2 = Elbows, hips, and legs bent but do not reach 90 degrees; 3 = Elbows, hips, and legs bent to 90 degrees; 4 = Elbow and legs drawn close to body
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Query
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dubowitz_wrist |
Integer |
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Recommended |
Dubowitz Score - Square Window (Wrist) |
0::4
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0 = 90 degrees; 1 = 60 degrees; 2 = 45 degrees; 3 = 30 degrees; 4 = 0 degrees
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Query
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dubowitz_ankle |
Integer |
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Recommended |
Dubowitz Score - Ankle Dorsiflexion |
0::4
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0 = 90 degrees; 1 = 75 degrees; 2 = 45 degrees; 3 = 30 degrees; 4 = 0 degrees
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Query
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dubowitz_arm |
Integer |
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Recommended |
Dubowitz Score - Arm Recoil |
0::2
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0 = 180 degrees; 1 = 90-180 degrees; 2 = Less than 90 degrees
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Query
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dubowitz_leg |
Integer |
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Recommended |
Dubowitz Score - Leg Recoil |
0::2
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0 = 180 degrees; 1 = 90-180 degrees; 2 = Less than 90 degrees
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Query
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dubowitz_popliteal |
Integer |
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Recommended |
Dubowitz Score - Popliteal Angle |
0::5
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0 = 180 degrees; 1 = 160 degrees; 2 = 130 degrees; 3 = 110 degrees; 4 = 90 degrees; 5 = Less than 90 degrees
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Query
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dubowitz_heel_ear |
Integer |
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Recommended |
Dubowitz Score - Heel to Ear |
0::4
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0 = Leg straight, toes reach ear; 1 = Legs straight, toes reach chin; 2 = Knee slightly bent, heel reaches 140 degrees from prone; 3 = Knee bent, heel reaches 120 degrees from prone; 4 = Knee bent to 90 degrees, heel reaches 90 degrees from prone
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Query
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dubowitz_scarf |
Integer |
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Recommended |
Dubowitz Score - Scarf Sign |
0::3
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0 = Elbow to opposite axillary line; 1 = Elbow to opposite midclavicular line; 2 = Elbow to midline; 3 = Axillary line
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Query
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dubowitz_head |
Integer |
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Recommended |
Dubowitz Score - Head Lag |
0::3
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0 = Head lags without forward movement at 90 degrees to body axis; 1 = Head slightly forward but does not reach body axis; 2 = Head in line with body axis; 3 = Head bent forward beyond body axis
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Query
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dubowitz_ventral |
Integer |
|
Recommended |
Dubowitz Score - Ventral Suspension |
0::5
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0 = Head droops down and back greatly arched, arms and legs straight; 1 = Head slightly raised and back less curved; 2 = Head raised but not to body axis, back slightly curved; 3 = Head in line with body axis, back straight; 4 = Head raised above body axis, back straight
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Query
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dubowitz_edema |
Integer |
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Recommended |
Dubowitz Score - Edema |
0::2
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0 = Obvious edema of hands and feet pitting over tibia; 1 = No obvious edema of hands and feet pitting over tibia; 2 = No edema
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Query
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dubowitz_skin_texture |
Integer |
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Recommended |
Dubowitz Score - Skin Texture |
0::4
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0 = Very thin, gelatinous; 1 = Thin and smooth; 2 = Smooth, medium thickness, rash or superficial peeling; 3 = Slight thickening, superficial cracking, and peeling especially of hands and feet; 4 = Thick and parchment-like superficial or deep cracking
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Query
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dubowitz_skin_color |
Integer |
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Recommended |
Dubowitz Score - Skin Color |
0::3
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0 = Dark red; 1 = Uniformly pink; 2 = Pale pink, variable over body; 3 = Pale, only pink over ears lips palms or soles
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Query
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dubowitz_skin_opacity |
Integer |
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Recommended |
Dubowitz Score - Skin Opacity |
0::4
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0 = Numerous veins/venules seen especially over abdomen; 1 = Veins and tibutaries seen; 2 = Few large vessels seen over the abdomen; 3 = Few large vessels indistinctly over the abdomen; 4 = No blood vessels seen
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Query
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dubowitz_skin_lanugo |
Integer |
|
Recommended |
Dubowitz Score - Lanugo |
0::4
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0 = None; 1 = Abundant, long and thick over whole back; 2 = Hair thinning especially over lower back; 3 = Small amount of lanugo and bald areas; 4 = At least half of back devoid of lanugo
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Query
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dubowitz_plantar |
Integer |
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Recommended |
Dubowitz Score - Plantar Creases |
0::4
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0 = No skin creases; 1 = Faint red marks over anterior half of sole; 2 = Definite red marks over more than anterior 1/3; 2 = Indentations over more than anterior 1/3; 4 = Definite deep indentations over more than anterior 1/3
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Query
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dubowitz_nipple |
Integer |
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Recommended |
Dubowitz Score - Nipple Formation |
0::3
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0 = Nipple barely visible, no areola; 1 = Nipple well defined and areola smooth and flat; 2 = Areola stippled edge, not raised; 3 = Areola stippled edge, raised diameter
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Query
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dubowitz_breast |
Integer |
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Recommended |
Dubowitz Score - Breast Size |
0::3
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0 = No breast tissue palpable; 1 = Breast tissue more than half cm diameter; 2 = Breast tissue 1/2 to 1 cm; 3 = Breast tissue greater than 1 cm
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Query
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dubowitz_ear_form |
Integer |
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Recommended |
Dubowitz Score - Ear Form |
0::3
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0 = Pinna flat and shapeless; 1 = Incurving of part of edge of pinna; 2 = Partial incurving whole of upper pinna; 3 = Well-defined incurving of whole of upper pinna
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Query
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dubowitz_ear_firmness |
Integer |
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Recommended |
Dubowitz Score - Ear Firmness |
0::3
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0 = Pinna soft easily folded no recoil; 1 = Pinna soft easily folded slow recoil; 2 = Cartilage to edge of pinna but soft in places, ready recoil; 3 = Pinna firm cartilage to edge instant recoil
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Query
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dubowitz_genitals_f |
Integer |
|
Recommended |
Dubowitz Score - Genitals Female |
0::2
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0 = Labia majora widely separated, labia minora protruding; 1 = Labia majora almost cover labia minora; 2 = Labia majora completely cover labia minora
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Query
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dubowitz_genitals_m |
Integer |
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Recommended |
Dubowitz Score - Genitals Male |
0::2
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0 = Neither testis in scrotum; 1 = At least one testis high in scrotum; 2 = At least one testis right down
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Query
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dubowitz_sum |
Integer |
|
Required |
Dubowitz Score - Total |
0 :: 72
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info_gest |
String |
50
|
Recommended |
No. Weeks Gestation (G.A.) |
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