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NIMH Data Archive
NDA ABCD CCF OAI NIAAADA AMP SCZ HEAL

Neuropsychiatric Inventory

439 Shared Subjects

N/A
Clinical Assessments
Cognitive
05/29/2015
npi01
01/26/2023
View Change History
01
Definition
Submission Template
Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR*
src_subject_id String 20 Required Subject ID how it's defined in lab/project catieid
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0::1440 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
sex String 20 Required Sex of subject at birth M;F; O; NR M = Male; F = Female; O=Other; NR = Not reported gender
Query visitid Integer Recommended MetaTrial Visit ID System variable: unique code for each type of visit -use to merge files
Query vis_type Integer Recommended Visit type 0::2 1=Phone/remote; 0=doctor's office/In person; 2=No, not phone interview
Query npia00 Integer Recommended Does the subject have beliefs that you know are not true? For example, insisting that people are trying to harm him/her or steal from him/her? Has he/she said that family members are not who they say they are or that the house is not their home? 0;1;9 0 = No Proceed to section B. Hallucinations; 1 = Yes Proceed to subquestions A1-10; 9 = N.A. Not Applicable npi_del_0
Query npia01 Integer Recommended Does subject believe that he/she is in danger- that others are planning to hurt him/her? 0;1 0=No; 1=Yes npi_del_1
Query npia02 Integer Recommended Does subject believe that others are stealing from him/her? 0;1 0=No; 1=Yes npi_del_2
Query npia03 Integer Recommended Does subject believe that his/her spouse is having an affair? 0;1 0=No; 1=Yes npi_del_3
Query npia04 Integer Recommended Does subject believe that unwelcome guests are living in his/her house? 0;1 0=No; 1=Yes npi_del_4
Query npia05 Integer Recommended Does subject believe that his/her spouse or others are not who they claim to be? 0;1 0=No; 1=Yes npi_del_5
Query npia06 Integer Recommended Does subject believe that his/her house is not his/her home? 0;1 0=No; 1=Yes npi_del_6
Query npia07 Integer Recommended Does subject believe that family members plan to abandon him/her? 0;1 0=No; 1=Yes npi_del_7
Query npia08 Integer Recommended Does subject believe that television or magazine figures are actually present in the how? (Does he/she try to talk or interact with them?) 0;1 0=No; 1=Yes npi_del_8
Query npia09 Integer Recommended Does subject believe any other unusual things that I haven't asked about? 0;1 0=No; 1=Yes npi_del_9
Query npia10a Integer Recommended Frequency Ratings 1;2;3;4 1 = Occasionally; 2 = Often; 3 = Frequently; 4 = Very Frequently npi_del_10a
Query npia10b Integer Recommended Severity Ratings 1;2;3 1 = Mild; 2 = Moderate; 3 = Marked npi_del_10b
Query npia10c Integer Recommended Caregiver Distress 0;1;2;3;4;5 0 = Not at all; 1 = Minimally; 2 = Mildly; 3 = Moderately; 4 = Severely; 5 = Very Severely or extremely npi_del_10c
Query npib00 Integer Recommended Does the subject have hallucinations such as false visions or voices? Does he/she seem to see, hear or experience things that are not present? By this question we do not mean just mistaken beliefs such as stating that someone who had dies is still alive; rather we are asking if the subject actually has abnormal experiences of sounds or visions. 0;1;9 0 = No proceed to section C. Agitation/Aggr; 1 = Yes proceed to subquestions 1-8; 9 = N.A. Not Applicable npi_hal_0
Query bpib01 Integer Recommended Does subject describe hearing voices or act as if he/she hears voices? 0;1 0=No; 1=Yes npi_hal_1
Query npib02 Integer Recommended Does subject talk to people who are not there? 0;1 0=No; 1=Yes npi_hal_2
Query npib03 Integer Recommended Does subject describe seeing things not seen by others or behave as if he/she is seeing things not seen by others (people, animals, lights, etc.)? 0;1 0=No; 1=Yes npi_hal_3
Query npib04 Integer Recommended Does subject report smelling odors not smelled by others? 0;1 0=No; 1=Yes npi_hal_4
Query npib05 Integer Recommended Does subject describe feeling things on his/her skin or otherwise appear to be feeling things crawling or touching him/her? 0;1 0=No; 1=Yes npi_hal_5
Query npib06 Integer Recommended Does subject describe tastes that are without any known cause? 0;1 0=No; 1=Yes npi_hal_6
Query npib07 Integer Recommended Does subject describe any other unusual sensory experiences? 0;1 0=No; 1=Yes npi_hal_7
Query npib08a Integer Recommended Frequency Ratings 1;2;3;4 1 = Occasionally; 2 = Often; 3 = Frequently; 4 = Very Frequently npi_hal_8a
Query npib08b Integer Recommended Severity Ratings 1;2;3 1 = Mild; 2 = Moderate; 3 = Marked npi_hal_8b
Query npib08c Integer Recommended Caregiver Distress 0;1;2;3;4;5 0 = Not at all; 1 = Minimally; 2 = Mildly; 3 = Moderately; 4 = Severely; 5 = Very Severely or extremely npi_hal_8c
Query npic00 Integer Recommended Agitation/Aggression 0;1;9 0 = No Proceed to section D. Depression/Dys; 1 = Yes Proceed to subquestions 1-9; 9 = N.A. Not Applicable npi_agi_0
Query npic01 Integer Recommended Does subject get upset with those trying to care for him/her or resist activities such as bathing or changing clothes? 0;1 0=No; 1=Yes npi_agi_1
Query npic02 Integer Recommended Is subject stubborn, having to have things his/her way? 0;1 0=No; 1=Yes npi_agi_2
Query npic03 Integer Recommended Is subject uncooperative, resistive to help from others? 0;1 0=No; 1=Yes npi_agi_3
Query npic04 Integer Recommended Does subject have any other behaviors that make him/her hard to handle? 0;1 0=No; 1=Yes npi_agi_4
Query npic05 Integer Recommended Does subject shout or curse angrily? 0;1 0=No; 1=Yes npi_agi_5
Query npic06 Integer Recommended Does subject slam doors, kick furniture, throw things? 0;1 0=No; 1=Yes npi_agi_6
Query npic07 Integer Recommended Does subject attempt to hurt or hit others? 0;1 0=No; 1=Yes npi_agi_7
Query npic08 Integer Recommended Does subject have any other aggressive or agitated behaviors? 0;1 0=No; 1=Yes npi_agi_8
Query npic09a Integer Recommended Frequency Ratings 1;2;3;4 1 = Occasionally; 2 = Often; 3 = Frequently; 4 = Very Frequently npi_agi_9a
Query npic09b Integer Recommended Severity Ratings 1;2;3 1 = Mild; 2 = Moderate; 3 = Marked npi_agi_9b
Query npic09c Integer Recommended Caregiver Distress 0;1;2;3;4;5 0 = Not at all; 1 = Minimally; 2 = Mildly; 3 = Moderately; 4 = Severely; 5 = Very Severely or extremely npi_agi_9c
Query npid00 Integer Recommended Depression/Dysphoria 0;1;9 0 = No Proceed to section E. Anxiety; 1 = Yes Proceed to subquestions 1-9; 9 = N.A. Not Applicable npi_dep_0
Query npid01 Integer Recommended Does subject have periods of tearfulness or sobbing that seem to indicate sadness? 0;1 0=No; 1=Yes npi_dep_1
Query npid02 Integer Recommended Does subject say or act as if he/she is sad or in low spirits? 0;1 0=No; 1=Yes npi_dep_2
Query npid03 Integer Recommended Does subject put him/herself down or say that he/she feels like a failure? 0;1 0=No; 1=Yes npi_dep_3
Query npid04 Integer Recommended Does subject say that he/she is a bad person or deserves to be punished? 0;1 0=No; 1=Yes npi_dep_4
Query npid05 Integer Recommended Does subject seem very discouraged or say that he/she has no future? 0;1 0=No; 1=Yes npi_dep_5
Query npid06 Integer Recommended Does subject say he/she is a burden to the family or that the family would be better off without him/her? 0;1 0=No; 1=Yes npi_dep_6
Query npid07 Integer Recommended Does subject express a wish for death or talk about killing him/herself? 0;1 0=No; 1=Yes npi_dep_7
Query npid08 Integer Recommended Does subject show any other signs of depression or sadness? 0;1 0=No; 1=Yes npi_dep_8
Query npid09a Integer Recommended Frequency Ratings 1;2;3;4 1 = Occasionally; 2 = Often; 3 = Frequently; 4 = Very Frequently npi_dep_9a
Query npid09b Integer Recommended Severity Ratings 1;2;3 1 = Mild; 2 = Moderate; 3 = Marked npi_dep_9b
Query npid09c Integer Recommended Caregiver Distress 0;1;2;3;4;5 0 = Not at all; 1 = Minimally; 2 = Mildly; 3 = Moderately; 4 = Severely; 5 = Very Severely or extremely npi_dep_9c
Query npie00 Integer Recommended Anxiety 0;1;9 0 = No Proceed to section F. Elation/Euphor; 1 = Yes Proceed to subquestions E1-8; 9 = N.A. Not Applicable npi_anx_0
Query npie01 Integer Recommended Does subject say that he/she is worried about planned events? 0;1 0=No; 1=Yes npi_anx_1
Query npie02 Integer Recommended Does subject have periods of feeling shaky, unable to relax, or feeling excessively tense? 0;1 0=No; 1=Yes npi_anx_2
Query npie03 Integer Recommended Does subject have periods of (or complain of) shortness of breath, gasping, or sighing for no apparent reason other than nervousness? 0;1 0=No; 1=Yes npi_anx_3
Query npie04 Integer Recommended Does subject complain of butterflies in his/her stomach, or of racing or pounding of the heart in association with nervousness? 0;1 0=No; 1=Yes npi_anx_4
Query npie05 Integer Recommended Does subject avoid certain places or situations that make him/her more nervous such as riding in the car, meting with friends, or being in crowds? 0;1 0=No; 1=Yes npi_anx_5
Query npie06 Integer Recommended Does subject become nervous or upset when seperated from you (or his/her caregiver)? [Does he/she cling to you to keep from being seperated?] 0;1 0=No; 1=Yes npi_anx_6
Query npie07 Integer Recommended Does subject show any other signs of anxiety? 0;1 0=No; 1=Yes npi_anx_7
Query npie08a Integer Recommended Frequency Ratings 1;2;3;4 1 = Occasionally; 2 = Often; 3 = Frequently; 4 = Very Frequently npi_anx_8a
Query npie8b Integer Recommended Severity Ratings 1;2;3 1 = Mild; 2 = Moderate; 3 = Marked npi_anx_8b
Query npie08c Integer Recommended Caregiver Distress 0;1;2;3;4;5 0 = Not at all; 1 = Minimally; 2 = Mildly; 3 = Moderately; 4 = Severely; 5 = Very Severely or extremely npi_anx_8c
Query npif00 Integer Recommended Elation/Euphoria 0;1;9 0 = No Proceed to section F. Elation/Euphor; 1 = Yes Proceed to subquestions E1-8; 9 = N.A. Not Applicable npi_ela_0
Query npif01 Integer Recommended Does subject appear to feel too good or to be too happy, different from his/her usual self? 0;1 0=No; 1=Yes npi_ela_1
Query npif02 Integer Recommended Does subject find humor and laugh at things that others do not find funny? 0;1 0=No; 1=Yes npi_ela_2
Query npif03 Integer Recommended Does subject seem to have a childish sense of humor with a tendency to giggle or laugh inappropriately (such as when something unfortunate happens to others)? 0;1 0=No; 1=Yes npi_ela_4
Query npif04 Integer Recommended Does subject tell jokes or make remarks that have little humor for others but seem funny to him/her? 0;1 0=No; 1=Yes npi_ela_5
Query npif05 Integer Recommended Does he/she play childish pranks such as pinching or playing keep away for the fun of it? 0;1 0=No; 1=Yes npi_ela_6
Query npif06 Integer Recommended Does subject talk big or claim to have more abilities or wealth than is true? 0;1 0=No; 1=Yes npi_ela_7
Query npif07 Integer Recommended Does subject show any other signs of signs of feeling too good or being too happy? 0;1 0=No; 1=Yes npi_ela_8
Query npif08a Integer Recommended Frequency Ratings 1;2;3;4 1 = Occasionally; 2 = Often; 3 = Frequently; 4 = Very Frequently npi_ela_8a
Query npif08b Integer Recommended Severity Ratings 1;2;3 1 = Mild; 2 = Moderate; 3 = Marked npi_ela_8b
Query npif08c Integer Recommended Caregiver Distress 0;1;2;3;4;5 0 = Not at all; 1 = Minimally; 2 = Mildly; 3 = Moderately; 4 = Severely; 5 = Very Severely or extremely npi_ela_8c
Query npig00 Integer Recommended Apathy/Indifference 0;1;9 0 = No Proceed to section H. Disinhibition; 1 = Yes Proceed to subquestions 1-9; 9 = N.A. Not Applicable npi_apa_0
Query npig01 Integer Recommended Does subject seem less spontaneous and less active than usual? 0;1 0=No; 1=Yes npi_apa_1
Query npig02 Integer Recommended Is subject less likely to initiate a conversation? 0;1 0=No; 1=Yes npi_apa_2
Query npig03 Integer Recommended Is subject less affectionate or lacking in emotions when compared to his/her usual self? 0;1 0=No; 1=Yes npi_apa_3
Query npig04 Integer Recommended Does subject contribute less to houshold chores? 0;1 0=No; 1=Yes npi_apa_4
Query npig05 Integer Recommended Does subject seem less interested in the activities and plans of others? 0;1 0=No; 1=Yes npi_apa_5
Query npig06 Integer Recommended Has subject lost interest in friends and family members? 0;1 0=No; 1=Yes npi_apa_6
Query npig07 Integer Recommended Is subject less enthusiastic about his/her usual interists? 0;1 0=No; 1=Yes npi_apa_7
Query npig08 Integer Recommended Does subject show any other signs that he/she doesn't care about doing new things? 0;1 0=No; 1=Yes npi_apa_8
Query npig09a Integer Recommended Frequency Ratings 1;2;3;4 1 = Occasionally; 2 = Often; 3 = Frequently; 4 = Very Frequently npi_apa_9a
Query npig09b Integer Recommended Severity Ratings 1;2;3 1 = Mild; 2 = Moderate; 3 = Marked npi_apa_9b
Query npig09c Integer Recommended Caregiver Distress 0;1;2;3;4;5 0 = Not at all; 1 = Minimally; 2 = Mildly; 3 = Moderately; 4 = Severely; 5 = Very Severely or extremely npi_apa_9c
Query npih00 Integer Recommended Disinhibition 0;1;9 0 = No Proceed to section I. Irritability/L; 1 = Yes Proceed to subquestions 1-8; 9 = N.A. Not Applicable npi_dis_0
Query npih01 Integer Recommended Does subject act impulsively without appearing to consider the consequences? 0;1 0=No; 1=Yes npi_dis_1
Query npih02 Integer Recommended Does subject talk to total strangers as if he/she knew them? 0;1 0=No; 1=Yes npi_dis_2
Query npih03 Integer Recommended Does subject say things to people that are insensitive or hurt feelings? 0;1 0=No; 1=Yes npi_dis_3
Query npih04 Integer Recommended Does subject say crude things or make sexual remarks that they would not usually have said? 0;1 0=No; 1=Yes npi_dis_4
Query npih05 Integer Recommended Does subject talk openly about very personal or private matters not usually discussed in public? 0;1 0=No; 1=Yes npi_dis_5
Query npih06 Integer Recommended Does subject take liberties or touch or hug others in a way that is out of character for him/her? 0;1 0=No; 1=Yes npi_dis_6
Query npih07 Integer Recommended Does subject show any other signs of loss of control of his/her impulses? 0;1 0=No; 1=Yes npi_dis_7
Query npih08a Integer Recommended Frequency Ratings 1;2;3;4 1 = Occasionally; 2 = Often; 3 = Frequently; 4 = Very Frequently npi_dis_8a
Query npih08b Integer Recommended Severity Ratings 1;2;3 1 = Mild; 2 = Moderate; 3 = Marked npi_dis_8b
Query npih08c Integer Recommended Caregiver Distress 0;1;2;3;4;5 0 = Not at all; 1 = Minimally; 2 = Mildly; 3 = Moderately; 4 = Severely; 5 = Very Severely or extremely npi_dis_8c
Query npii00 Integer Recommended Irritability/Lability 0;1;9 0 = No Proceed to section J. Aberrant Motor; 1 = Yes Proceed to subquestions I1-8; 9 = N.A. Not applicable npi_irr_0
Query npii01 Integer Recommended Does subject have a bad temper, flying off the handle easily over little things? 0;1 0=No; 1=Yes npi_irr_1
Query npii02 Integer Recommended Does subject rapidly change moods from one to another, being fine one minute and angry the next? 0;1 0=No; 1=Yes npi_irr_2
Query npii03 Integer Recommended Does subject have sudden flashes of anger? 0;1 0=No; 1=Yes npi_irr_3
Query npii04 Integer Recommended Is subject impatient, having trouble coping with delays or waiting for planned activities? 0;1 0=No; 1=Yes npi_irr_4
Query npii05 Integer Recommended Is subject cranky and irritable? 0;1 0=No; 1=Yes npi_irr_5
Query npii06 Integer Recommended Is subject argumentative and difficult to get along with? 0;1 0=No; 1=Yes npi_irr_6
Query npii07 Integer Recommended Does subject show any other signs of irritability? 0;1 0=No; 1=Yes npi_irr_7
Query npii08a Integer Recommended Frequency Ratings 1;2;3;4 1 = Occasionally; 2 = Often; 3 = Frequently; 4 = Very Frequently npi_irr_8a
Query npii08b Integer Recommended Severity Ratings 1;2;3 1 = Mild; 2 = Moderate; 3 = Marked npi_irr_8b
Query npii08c Integer Recommended Caregiver Distress 0;1;2;3;4;5 0 = Not at all; 1 = Minimally; 2 = Mildly; 3 = Moderately; 4 = Severely; 5 = Very Severely or extremely npi_irr_8c
Query npij00 Integer Recommended Aberrant Motor Behavior 0;1;9 0 = No Proceed to section K. Sleep; 1 = Yes Proceed to subquestions 1-8; 9 = N.A. Not applicable npi_mot_0
Query npij01 Integer Recommended Does subject pace around the house without apparent purpose? 0;1 0=No; 1=Yes npi_mot_1
Query npij02 Integer Recommended Does subject rummage around opening and unpacking drawers or closets? 0;1 0=No; 1=Yes npi_mot_2
Query npij03 Integer Recommended Does subject repeatedly put on and take off clothing? 0;1 0=No; 1=Yes npi_mot_3
Query npij04 Integer Recommended Does subject have repetitive activities or bad habits that he/she performs over and over? 0;1 0=No; 1=Yes npi_mot_4
Query npij05 Integer Recommended Does subject engage in repetitive activities such as handling buttons, picking, wrapping string, etc? 0;1 0=No; 1=Yes npi_mot_5
Query npij06 Integer Recommended Does subject fidget excessively, seem unable to sit still, or bounce his/her feet or tap his/her fingers a lot? 0;1 0=No; 1=Yes npi_mot_6
Query npij07 Integer Recommended Does subject do any other activities over and over? 0;1 0=No; 1=Yes npi_mot_7
Query npij08a Integer Recommended Frequency Ratings 1;2;3;4 1 = Occasionally; 2 = Often; 3 = Frequently; 4 = Very Frequently npi_mot_8a
Query npij08b Integer Recommended Severity Ratings 1;2;3 1 = Mild; 2 = Moderate; 3 = Marked npi_mot_8b
Query npij08c Integer Recommended Caregiver Distress 0;1;2;3;4;5 0 = Not at all; 1 = Minimally; 2 = Mildly; 3 = Moderately; 4 = Severely; 5 = Very Severely or extremely npi_mot_8c
Query npik00 Integer Recommended Sleep 0;1;9 0 = No Proceed to section L. Appetite and e; 1 = Yes Proceed to subquesions 1-9; 9 = N.A. Not applicable npi_sle_0
Query npik01 Integer Recommended Does subject have difficulty falling asleep? 0;1 0=No; 1=Yes npi_sle_1
Query npik02 Integer Recommended Does subject get up during the night (do not count if the patient gets up once or twice per night only to go to the bathroom and falls nack asleep immediately) 0;1 0=No; 1=Yes npi_sle_2
Query npik03 Integer Recommended Does subject wander, pace, or get involved in inappropriate activities at night? 0;1 0=No; 1=Yes npi_sle_3
Query npik04 Integer Recommended Does subject awaken you during the night? 0;1 0=No; 1=Yes npi_sle_4
Query npik05 Integer Recommended Does subject awaken at night, dress, and plan to go out thinking that it is morning and time to start the day? 0;1 0=No; 1=Yes npi_sle_5
Query npik06 Integer Recommended Does subject awaken too early in the morning (earlier than was his/her habit)? 0;1 0=No; 1=Yes npi_sle_6
Query npik07 Integer Recommended Does subject sleep excessively during the day? 0;1 0=No; 1=Yes npi_sle_7
Query npik08 Integer Recommended Does subject have any other night-time behaviors that bother you that we haven't talked about? 0;1 0=No; 1=Yes npi_sle_8
Query npik09a Integer Recommended Frequency Ratings 1;2;3;4 1 = Occasionally; 2 = Often; 3 = Frequently; 4 = Very Frequently npi_sle_9a
Query npik09b Integer Recommended Severity Ratings 1;2;3 1 = Mild; 2 = Moderate; 3 = Marked npi_sle_9b
Query npik09c Integer Recommended Caregiver Distress 0;1;2;3;4;5 0 = Not at all; 1 = Minimally; 2 = Mildly; 3 = Moderately; 4 = Severely; 5 = Very Severely or extremely npi_sle_9c
Query npil00 Integer Recommended Appetite and eating disorders 0;1;9 0 = No; 1 = Yes Proceed to subquestions 1-9; 9 = N.A. Not applicable npi_app_0
Query npil01 Integer Recommended Has he/she had a loss of appetite? 0;1 0=No; 1=Yes npi_app_1
Query npil02 Integer Recommended Has he/she had an increase in appetite? 0;1 0=No; 1=Yes npi_app_2
Query npil03 Integer Recommended Has he/she had a loss of weight? 0;1 0=No; 1=Yes npi_app_3
Query npil04 Integer Recommended Has he/she gained weight? 0;1 0=No; 1=Yes npi_app_4
Query npil05 Integer Recommended Has he/she had a change in eating behavior such as putting too much food in his/her mouth at once? 0;1 0=No; 1=Yes npi_app_5
Query npil06 Integer Recommended Has he/she had a change in the kind of food he/she likes such as eating too many sweets or other specific types of food? 0;1 0=No; 1=Yes npi_app_6
Query npil07 Integer Recommended Has he/she developed eating behaviors such as eating exactly the same types of food each day or eating the food in exactly the same order? 0;1 0=No; 1=Yes npi_app_7
Query npil08 Integer Recommended Have there been any other changes in appetite or eating that I haven't asked about? 0;1 0=No; 1=Yes npi_app_8
Query npil09a Integer Recommended Frequency Ratings 1;2;3;4 1 = Occasionally; 2 = Often; 3 = Frequently; 4 = Very Frequently npi_app_9a
Query npil09b Integer Recommended Severity Ratings 1;2;3 1 = Mild; 2 = Moderate; 3 = Marked npi_app_9b
Query npil09c Integer Recommended Caregiver Distress 0;1;2;3;4;5 0 = Not at all; 1 = Minimally; 2 = Mildly; 3 = Moderately; 4 = Severely; 5 = Very Severely or extremely npi_app_9c
Query npi_ts Integer Recommended NPI Total Score Calculated by adding the frequency x severity scores of the first 10 domains (A. Delusions � J. Aberrant Motor Behavior) together. Domains K. Night-time Behavior and L. Appetite/Eating Change are not included in the total score. Note if symptoms of a particular domain are absent, the frequency x severity score for that domain would be 0.
Query care_ts Integer Recommended Caregiver Distress Total Score Calculated by adding together the scores of the individual NPI caregiver distress questions together for the first 10 domains. Note if symptoms of a particular domain are absent, the caregiver distress score for that domain would be 0.
Query visit String 60 Recommended Visit name
Query visnum Float Recommended Numeric Visit Number -1.5 = Pre-Screening; -1 = Screening; 0 = Baseline; ## = Visit ## (from 1 to 10); Whole numbers = standard monthly visits; #.001 - #.009 = Unscheduled; #.1 = End of Phase 1; #.2 = End of Phase 2; #.3 = End of Phase 3; #.4 = End of Open Choice Phase; #.5 = End of Study; #.6 = Genetic Analysis; 1000=all visits
Query phase_ct String 20 Recommended Current Phase. Phase patient was in at the time of the assessment Phase 4 refers to the follow-up phase. Pre-Rand; Phase 1/1A; Phase 2; Phase 3; Phase 4; Phase 1B; Open-Choice Phase; Screening; Phase 1 phase
Query last1 Integer Recommended Flag Last Phase 1/1A Visit 1=Yes for all records meeting this criteria
Query base1 Integer Recommended Flag Baseline Phase 1/1A Visit 1=Yes for all records meeting this criteria
Query base_ts Float Recommended Baseline Total Score Scare at Phase 1 baselline
Query c_ts Float Recommended Changed from Baseline ADAS Total Score Change from Phase 1 baseline
niss_08 Integer Recommended Does the patient pace, do things over and over such as opening closets or drawers, or repeatedly pick at things or wind string or threads? 0::2 0=No; 1=Yes; 2=Not applicable
niss_09 Integer Recommended Does the patient have difficulty sleeping (do not count as present if the patient simply gets up once or twice per night only to go to the bathroom and falls back asleep immediately)? Is he/she up at night? Does he/she wander at night, get dressed, or disturb your sleep? 0::2 0=No; 1=Yes; 2=Not applicable
niss_10 Integer Recommended Has he/she had any change in appetite, weight, or eating habits (count as NA if the patient is incapacitated and has to be fed)? Has there been any change in type of food he/she prefers? 0::2 0=No; 1=Yes; 2=Not applicable
niss_11 Integer Recommended Frequency x Severity(Sleep)
niss_12 Integer Recommended Total Score Frequency x Severity
niss_13 Integer Recommended Frequency x Severity(Appetite and Eating Disorders)
niss_14 Integer Recommended Frequency x Severity(Aberrant Motor Behavior)
niss_15 Integer Recommended Frequency x Severity(Irritability/Lability)
niss_16 Integer Recommended Frequency x Severity(Disinhibition)
niss_17 Integer Recommended Frequency x Severity(Apathy/indifference)
niss_18 Integer Recommended Frequency x Severity(Elation/Euphoria)
niss_19 Integer Recommended Frequency x Severity(Anxiety)
niss_20 Integer Recommended Frequency x Severity(depression/dysphoria)
niss_21 Integer Recommended Frequency x Severity(Agitation/aggression)
niss_22 Integer Recommended Frequency x Severity(Delusion)
niss_23 Integer Recommended Was this assessment/procedure conducted? 0;1 0=No; 1=Yes
niss_24 Integer Recommended Reason assessment not conducted 0::4 0=Physical Problem; 1=Cognitive/behavioral problem; 2=Verbal refusal; 3=Other problem; 4=Not applicable
niss_25 Integer Recommended If other problem, describe
niss_26 Integer Recommended Select language version 0;1 0=English; 1=Spanish
niss_01 Integer Recommended Is the subject uncooperative, resistive to help from others? 0;1 0=No; 1=Yes
niss_02 Integer Recommended Does the patient seem sad or depressed? Does he/she say that he/she feels sad or depressed? 0::2 0=No; 1=Yes; 2=Not applicable
niss_03 Integer Recommended Is the patient very nervous, worried, or frightened for no apparent reason? Does he/she seem very tense or fidgety? Is the patient afraid to be apart from you? 0::2 0=No; 1=Yes; 2=Not applicable
niss_04 Integer Recommended Does the patient seem too cheerful or too happy for no reason? I don't mean the normal happiness that comes from seeing friends, receiving presents, or spending time with family members. I am asking if the patient has a persistent and abnormally good mood or finds humor where others do not. 0::2 0=No; 1=Yes; 2=Not applicable
niss_05 Integer Recommended Has the patient lost interest in the world around him/her? Has he/she lost interest in doing things or does he/she lack motivation for starting new activities? Is he/she more difficult to engage in conversation or in doing chores? Is the patient apathetic or indifferent? 0::2 0=No; 1=Yes; 2=Not applicable
niss_06 Integer Recommended Does the patient seem to act impulsively without thinking? Does he/she do or say things that are not usually done or said in public? Does he/she do things that are embarassing to you or others? 0::2 0=No; 1=Yes; 2=Not applicable
niss_07 Integer Recommended Does the patient get irritated and easily disturbed? Are his/her moods very changeable? Is he/she abnormally impatient? We do not mean frustration over memory loss or inability to perform usual tasks; we are interested to know if the patient has abnormal irrability, impatience, or rapid emotional changes different from his/her usual self. 0::2 0=No; 1=Yes; 2=Not applicable
ca10 Float Recommended Age (years) subject_age
ccc2datecomp Date Recommended Date Completed npi_interview_date
npig_08 Integer Recommended Does subject sit quietly without paying attention to things going on around him/her? 0; 1 0=No; 1=Yes
npig_09 Integer Recommended Has subject reduced participation in social activities even when stimulated? 0; 1 0=No; 1=Yes
npig_10 Integer Recommended Is subject less interested in or curious about routine or new events in his/her environment? 0; 1 0=No; 1=Yes
npig_11 Integer Recommended Does subject express less emotion in response to positive or negative events? 0; 1 0=No; 1=Yes
npiq_hallsev Integer Recommended Hallucinations severity 1 :: 3;9 1 = Mild (noticeable, but not a significant change); 2 = Moderate (significant, but not a dramatic change); 3 = Severe (very marked or prominent a dramatic change); 9 = Unknown hallsev
npiq_agitgen Integer Recommended Agitation/aggression: Is the patient resistive to help from others at times, or hard to handle? 0;1;9 0 = No; 1 = Yes; 9 = Unknown agitgen
npiq_agit Integer Recommended Agitation or aggression in the last month 0;1;9 0 = No; 1 = Yes; 9 = Unknown agit
npiq_agitsev Integer Recommended Agitation or aggression severity 1 :: 3;9 1 = Mild (noticeable, but not a significant change); 2 = Moderate (significant, but not a dramatic change); 3 = Severe (very marked or prominent a dramatic change); 9 = Unknown agitsev
npiq_depgen Integer Recommended Depression/dysphoria: Does the patient seem sad or say that he/she is depressed? 0;1;9 0 = No; 1 = Yes; 9 = Unknown depgen
npiq_depd Integer Recommended Depression in the last month 0;1;9 0 = No; 1 = Yes; 9 = Unknown depd
npiq_depdsev Integer Recommended Depression severity 1 :: 3;9 1 = Mild (noticeable, but not a significant change); 2 = Moderate (significant, but not a dramatic change); 3 = Severe (very marked or prominent a dramatic change); 9 = Unknown depdsev
npiq_anxgen Integer Recommended Anxiety: Does the patient become upset when separated from you? Does he/she have any other signs of nervousness such as shortness of breath, sighing, being unable to relax, or feeling excessively tense? 0;1;9 0 = No; 1 = Yes; 9 = Unknown anxgen
npiq_anx Integer Recommended Anxiety in the last month 0;1;9 0 = No; 1 = Yes; 9 = Unknown anx
npiq_anxsev Integer Recommended Anxiety severity 1 :: 3;9 1 = Mild (noticeable, but not a significant change); 2 = Moderate (significant, but not a dramatic change); 3 = Severe (very marked or prominent a dramatic change); 9 = Unknown anxsev
npiq_elatgen Integer Recommended Elation/euphoria: Does the patient appear to feel too good or act excessively happy? 0;1;9 0 = No; 1 = Yes; 9 = Unknown elatgen
npiq_elat Integer Recommended Elation or euphoria in the last month 0;1;9 0 = No; 1 = Yes; 9 = Unknown elat
npiq_elatsev Integer Recommended Elation or euphoria severity 1 :: 3;9 1 = Mild (noticeable, but not a significant change); 2 = Moderate (significant, but not a dramatic change); 3 = Severe (very marked or prominent a dramatic change); 9 = Unknown elatsev
npiq_apagen Integer Recommended Apathy/ indifference: Does the patient seem less interested in his/her usual activities or in the activities and plans of others? 0;1;9 0 = No; 1 = Yes; 9 = Unknown apagen
npiq_apa Integer Recommended Apathy or indifference in the last month 0;1;9 0 = No; 1 = Yes; 9 = Unknown apa
npiq_apasev Integer Recommended Apathy or indifference severity 1 :: 3;9 1 = Mild (noticeable, but not a significant change); 2 = Moderate (significant, but not a dramatic change); 3 = Severe (very marked or prominent a dramatic change); 9 = Unknown apasev
npiq_disngen Integer Recommended Disinhibition: Does the patient seem to act impulsively, for example, talking to strangers as if he/she knows them, or saying things that may hurt people?s feelings? 0;1;9 0 = No; 1 = Yes; 9 = Unknown disngen
npiq_disn Integer Recommended Disinhibition in the last month 0;1;9 0 = No; 1 = Yes; 9 = Unknown disn
npiq_disnsev Integer Recommended Disinhibition severity 1 :: 3;9 1 = Mild (noticeable, but not a significant change); 2 = Moderate (significant, but not a dramatic change); 3 = Severe (very marked or prominent a dramatic change); 9 = Unknown disnsev
npiq_irrgen Integer Recommended Irritability/lability: Is the patient impatient and cranky? Does he/she have difficulty coping with delays or waiting for planned activities? 0;1;9 0 = No; 1 = Yes; 9 = Unknown irrgen
npiqinf Integer Recommended NPI Q CoParticipant 0 :: 2 0 = Other; 1 = Spouse; 2 = Child
npiq_irr Integer Recommended Irritability or lability in the last month 0;1;9 0 = No; 1 = Yes; 9 = Unknown irr
npiq_irrsev Integer Recommended Irritability or lability severity 1 :: 3;9 1 = Mild (noticeable, but not a significant change); 2 = Moderate (significant, but not a dramatic change); 3 = Severe (very marked or prominent a dramatic change); 9 = Unknown irrsev
npiq_motgen Integer Recommended Motor disturbance: Does the patient engage in repetitive activities such as pacing around the house, handling buttons, wrapping string, or doing other things repeatedly? 0;1;9 0 = No; 1 = Yes; 9 = Unknown motgen
npiq_mot Integer Recommended Motor disturbance in the last month 0;1;9 0 = No; 1 = Yes; 9 = Unknown mot
npiq_motsev Integer Recommended Motor disturbance severity 1 :: 3;9 1 = Mild (noticeable, but not a significant change); 2 = Moderate (significant, but not a dramatic change); 3 = Severe (very marked or prominent a dramatic change); 9 = Unknown motsev
npiq_nitegen Integer Recommended Nighttime behaviors: Does the patient awaken you during the night, rise too early in the morning, or take excessive naps during the day? 0;1;9 0 = No; 1 = Yes; 9 = Unknown nitegen
npiq_nite Integer Recommended Nighttime behaviors in the last month 0;1;9 0 = No; 1 = Yes; 9 = Unknown nite
npiq_nitesev Integer Recommended Nighttime behaviors severity 1 :: 3;9 1 = Mild (noticeable, but not a significant change); 2 = Moderate (significant, but not a dramatic change); 3 = Severe (very marked or prominent a dramatic change); 9 = Unknown nitesev
npiq_appgen Integer Recommended Appetite/eating: Has the patient lost or gained weight, or had a change in the type of food he/she likes? 0;1;9 0 = No; 1 = Yes; 9 = Unknown appgen
npiq_app Integer Recommended Appetite and eatining problems in the last month 0;1;9 0 = No; 1 = Yes; 9 = Unknown app
npiqinfx String 60 Recommended NPI Q CoParticipant, other: specify
npiq_appsev Integer Recommended Appetite and eatining problems severity 1 :: 3;9 1 = Mild (noticeable, but not a significant change); 2 = Moderate (significant, but not a dramatic change); 3 = Severe (very marked or prominent a dramatic change); 9 = Unknown appsev
npiq_delgen Integer Recommended Delusions: Does the patient have false beliefs, such as thinking that others are stealing from him/her or planning to harm him/her in some way? 0;1;9 0 = No; 1 = Yes; 9 = Unknown delgen
npiq_del Integer Recommended Delusions in the last month 0;1;9 0 = No; 1 = Yes; 9 = Unknown del
npiq_delsev Integer Recommended Delusions severity 1 :: 3;9 1 = Mild (noticeable, but not a significant change); 2 = Moderate (significant, but not a dramatic change); 3 = Severe (very marked or prominent a dramatic change); 9 = Unknown delsev
npiq_hallgen Integer Recommended Hallucinations: Does the patient have hallucinations such as false visions or voices? Does he or she seem to hear or see things that are not present? 0;1;9 0 = No; 1 = Yes; 9 = Unknown hallgen
npiq_hall Integer Recommended Hallucinations in the last month 0;1;9 0 = No; 1 = Yes; 9 = Unknown hall
npi_dep_distress Integer Recommended Subject Distress - dysphoria/depression 0::5 0 = Not at all; 1 = Minimally; 2 = Mildly; 3 = Moderately; 4 = Severely; 5 = Very Severely or extremely
npi_anx_distress Integer Recommended Subject Distress - anxiety 0::5 0 = Not at all; 1 = Minimally; 2 = Mildly; 3 = Moderately; 4 = Severely; 5 = Very Severely or extremely
npi_ela_distress Integer Recommended Subject Distress - euphoria/elation 0::5 0 = Not at all; 1 = Minimally; 2 = Mildly; 3 = Moderately; 4 = Severely; 5 = Very Severely or extremely
npi_apa_distress Integer Recommended Subject Distress - apathy/indifference 0::5 0 = Not at all; 1 = Minimally; 2 = Mildly; 3 = Moderately; 4 = Severely; 5 = Very Severely or extremely
npi_dis_distress Integer Recommended Subject Distress - disinhibition 0::5 0 = Not at all; 1 = Minimally; 2 = Mildly; 3 = Moderately; 4 = Severely; 5 = Very Severely or extremely
npi_irr_distress Integer Recommended Subject Distress - irritability/liability 0::5 0 = Not at all; 1 = Minimally; 2 = Mildly; 3 = Moderately; 4 = Severely; 5 = Very Severely or extremely
npi_mot_distress Integer Recommended Subject Distress - aberrant motor 0::5 0 = Not at all; 1 = Minimally; 2 = Mildly; 3 = Moderately; 4 = Severely; 5 = Very Severely or extremely
npi_sle_distress Integer Recommended Subject Distress - nighttime behavior 0::5 0 = Not at all; 1 = Minimally; 2 = Mildly; 3 = Moderately; 4 = Severely; 5 = Very Severely or extremely
npi_app_distress Integer Recommended Subject Distress - appetite/eating 0::5 0 = Not at all; 1 = Minimally; 2 = Mildly; 3 = Moderately; 4 = Severely; 5 = Very Severely or extremely
npi_contact Integer Recommended How frequently did the respondent have contact with the subject? 1::8 1 = Less than 1 hour per week; 2 = 1-2 hours per week; 3 = 2-3 hours per week; 4 = 3-4 hours per week; 5 = 4-5 hours per week; 6 = 5-6 hours per week; 7 = 6-7 hours per week; 8 = More than 7 hours per week
completed_by String 100 Recommended Who completed the form? RA; Self-Report; Informant
distress_ts Integer Recommended Subject Distress Total Score 0::60 Calculated by adding together the scores of the individual NPI distress questions across domains. Note if symptoms of a particular domain are absent, the distress score for that domain would be 0.
severity_ts Integer Recommended Severity Total Score 0::36 Calculated by adding together the scores of the individual NPI severity questions across domains. Note if symptoms of a particular domain are absent, the severity score for that domain would be 0.
domain_summary_score Integer Recommended Domain Total Score 0::12 Calculated by adding a 1 for all present domains.
npi_del_distress Integer Recommended Subject Distress - delusions 0::5 0 = Not at all; 1 = Minimally; 2 = Mildly; 3 = Moderately; 4 = Severely; 5 = Very Severely or extremely
npi_hal_distress Integer Recommended Subject Distress - hallucinations 0::5 0 = Not at all; 1 = Minimally; 2 = Mildly; 3 = Moderately; 4 = Severely; 5 = Very Severely or extremely
npi_agi_distress Integer Recommended Subject Distress - agitation/aggression 0::5 0 = Not at all; 1 = Minimally; 2 = Mildly; 3 = Moderately; 4 = Severely; 5 = Very Severely or extremely
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
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