|
subjectkey |
GUID |
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Required |
The NDAR Global Unique Identifier (GUID) for research subject |
NDAR*
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src_subject_id |
String |
20
|
Required |
Subject ID how it's defined in lab/project |
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interview_date |
Date |
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Required |
Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY |
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interview_age |
Integer |
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Required |
Age in months at the time of the interview/test/sampling/imaging. |
0 :: 1260
|
Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
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sex |
String |
20
|
Required |
Sex of subject at birth |
M;F; O; NR
|
M = Male; F = Female; O=Other; NR = Not reported
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gender |
Query
|
daysrz |
Integer |
|
Recommended |
days since randomization |
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Query
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visnum |
Float |
|
Recommended |
Numeric Visit Number |
|
-1.5 = Pre-Screening; -1 = Screening; 0 = Baseline; ## = Visit ## (from 1 to 10); Whole numbers = standard monthly visits; #.001 - #.009 = Unscheduled; #.1 = End of Phase 1; #.2 = End of Phase 2; #.3 = End of Phase 3; #.4 = End of Open Choice Phase; #.5 = End of Study; #.6 = Genetic Analysis; 1000=all visits
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site |
String |
101
|
Recommended |
Site |
|
Study Site
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Query
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treatmt |
Integer |
|
Recommended |
Do you have a preference for which treatment you receive in this study? |
1::3;999
|
1 = Medication only;2 = Combined medication and psychotherapy;3 = No preference ; 999=Skipped
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Query
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ptpq1 |
Integer |
|
Recommended |
If given the behavior intervention, my child's behavior will improve. |
1::6
|
1 = Strongly disagree; 2 = Moderately disagree; 3 = Disagree a little; 4 = Agree a little; 5 = Agree moderately; 6 = Agree a lot
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Query
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ptpq2 |
Integer |
|
Recommended |
The behavior intervention program is probably going to be a lot of work, but it's worth it. |
1::6
|
1 = Strongly disagree; 2 = Moderately disagree; 3 = Disagree a little; 4 = Agree a little; 5 = Agree moderately; 6 = Agree a lot
|
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Query
|
ptpq3 |
Integer |
|
Recommended |
The behavior intervention program is probably going to be a lot of work, and I doubt that it's worth it. |
1::6
|
1 = Strongly disagree; 2 = Moderately disagree; 3 = Disagree a little; 4 = Agree a little; 5 = Agree moderately; 6 = Agree a lot
|
|
Query
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ptpq4 |
Integer |
|
Recommended |
I feel confident that my family can pull this off (implement the behavior therapy). |
1::6
|
1 = Strongly disagree; 2 = Moderately disagree; 3 = Disagree a little; 4 = Agree a little; 5 = Agree moderately; 6 = Agree a lot
|
|
Query
|
ptpq5 |
Integer |
|
Recommended |
I have some difficulty giving my child rewards for what s/he should be doing. |
1::6
|
1 = Strongly disagree; 2 = Moderately disagree; 3 = Disagree a little; 4 = Agree a little; 5 = Agree moderately; 6 = Agree a lot
|
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Query
|
ptpq6 |
Integer |
|
Recommended |
I think that the behavior intervention may cramp my family's lifestyle. |
1::6
|
1 = Strongly disagree; 2 = Moderately disagree; 3 = Disagree a little; 4 = Agree a little; 5 = Agree moderately; 6 = Agree a lot
|
|
Query
|
ptpq7 |
Integer |
|
Recommended |
I feel confident that the school will be able to implement the behavior intervention program. |
1::6
|
1 = Strongly disagree; 2 = Moderately disagree; 3 = Disagree a little; 4 = Agree a little; 5 = Agree moderately; 6 = Agree a lot
|
|
Query
|
ptpq8 |
Integer |
|
Recommended |
I feel that the other adult caregivers in my child's life (other than those at school) will handle the behavior intervention program pretty well. |
1::6
|
1 = Strongly disagree; 2 = Moderately disagree; 3 = Disagree a little; 4 = Agree a little; 5 = Agree moderately; 6 = Agree a lot
|
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Query
|
ptpq9 |
Integer |
|
Recommended |
My first choice for treatment assignment would be behavior therapy without medication. |
1::6
|
1 = Strongly disagree; 2 = Moderately disagree; 3 = Disagree a little; 4 = Agree a little; 5 = Agree moderately; 6 = Agree a lot
|
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Query
|
ptpq10 |
Integer |
|
Recommended |
If given the medicine, my child's behavior will improve. |
1::6
|
1 = Strongly disagree; 2 = Moderately disagree; 3 = Disagree a little; 4 = Agree a little; 5 = Agree moderately; 6 = Agree a lot
|
|
Query
|
ptpq11 |
Integer |
|
Recommended |
I have serious concerns about possible side effects with risperidone or aripiprazole. |
1::6
|
1 = Strongly disagree; 2 = Moderately disagree; 3 = Disagree a little; 4 = Agree a little; 5 = Agree moderately; 6 = Agree a lot
|
|
Query
|
ptpq12 |
Integer |
|
Recommended |
The medicine will allow my child to lead a more normal life. |
1::6
|
1 = Strongly disagree; 2 = Moderately disagree; 3 = Disagree a little; 4 = Agree a little; 5 = Agree moderately; 6 = Agree a lot
|
|
Query
|
ptpq13 |
Integer |
|
Recommended |
Even though I know that risperidone is not "habit forming," I still worry about that. |
1::6
|
1 = Strongly disagree; 2 = Moderately disagree; 3 = Disagree a little; 4 = Agree a little; 5 = Agree moderately; 6 = Agree a lot
|
|
Query
|
ptpq14 |
Integer |
|
Recommended |
I am afraid that one of my other children will get the medicine by mistake. |
1::6
|
1 = Strongly disagree; 2 = Moderately disagree; 3 = Disagree a little; 4 = Agree a little; 5 = Agree moderately; 6 = Agree a lot
|
|
Query
|
ptpq15 |
Integer |
|
Recommended |
If the medicine works, I will be willing to use it as long as it helps, even if that is for five years. |
1::6
|
1 = Strongly disagree; 2 = Moderately disagree; 3 = Disagree a little; 4 = Agree a little; 5 = Agree moderately; 6 = Agree a lot
|
|
Query
|
ptpq16 |
Integer |
|
Recommended |
I feel guilty about considering a medical solution to my child's problems. |
1::6
|
1 = Strongly disagree; 2 = Moderately disagree; 3 = Disagree a little; 4 = Agree a little; 5 = Agree moderately; 6 = Agree a lot
|
|
Query
|
ptpq17 |
Integer |
|
Recommended |
I will be able to give my child the medicine exactly as prescribed. |
1::6
|
1 = Strongly disagree; 2 = Moderately disagree; 3 = Disagree a little; 4 = Agree a little; 5 = Agree moderately; 6 = Agree a lot
|
|
Query
|
ptpq18 |
Integer |
|
Recommended |
Medicine is over-used in today's society. |
1::6
|
1 = Strongly disagree; 2 = Moderately disagree; 3 = Disagree a little; 4 = Agree a little; 5 = Agree moderately; 6 = Agree a lot
|
|
Query
|
ptpq19 |
Integer |
|
Recommended |
It is not important to give medicine exactly as prescribed. |
1::6
|
1 = Strongly disagree; 2 = Moderately disagree; 3 = Disagree a little; 4 = Agree a little; 5 = Agree moderately; 6 = Agree a lot
|
|
Query
|
ptpq20 |
Integer |
|
Recommended |
I cannot recall anyone in my family having a bad reaction to medicine. |
1::6
|
1 = Strongly disagree; 2 = Moderately disagree; 3 = Disagree a little; 4 = Agree a little; 5 = Agree moderately; 6 = Agree a lot
|
|
Query
|
ptpq21 |
Integer |
|
Recommended |
My first choice for treatment would be medication without behavior therapy. |
1::6
|
1 = Strongly disagree; 2 = Moderately disagree; 3 = Disagree a little; 4 = Agree a little; 5 = Agree moderately; 6 = Agree a lot
|
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