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NIMH Data Archive
NDA ABCD CCF OAI NIAAADA AMP SCZ HEAL

Family Outcomes in Autism Spectrum Disorder

340 Shared Subjects

N/A
Clinical Assessments
Med History
07/22/2016
foasd01
07/22/2016
View Change History
01
Definition
Submission Template
Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR*
src_subject_id String 20 Required Subject ID how it's defined in lab/project
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0::1440 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY
sex String 20 Required Sex of subject at birth M;F; O; NR M = Male; F = Female; O=Other; NR = Not reported gender
Query ch_anxiety_rep String 25 Recommended Has child been diagnosed with or experiencing symptoms of anxiety disorder? No; Experiencing Symptoms; Diagnosed Parent report child_anxiety
Query ch_ocd_rep String 25 Recommended Has child been diagnosed with or experiencing symptoms of obsessive compulsive disorder? No; Experiencing Symptoms; Diagnosed Parent report child_ocd
Query ch_bipolar_rep String 25 Recommended Has child been diagnosed with or experiencing symptoms of Bipolar disorder? No; Experiencing Symptoms; Diagnosed Parent report child_bipolar
Query child_cp String 25 Recommended Has child been diagnosed with or experiencing symptoms of cerebral palsy? No; Experiencing Symptoms; Diagnosed Parent report
Query child_cdd String 25 Recommended Has child been diagnosed with or experiencing symptoms of childhood disintegrative disorder? No; Experiencing Symptoms; Diagnosed Parent report
Query ch_depr_rep String 25 Recommended Has child been diagnosed with or experiencing symptoms of depression? No; Experiencing Symptoms; Diagnosed Parent report child_depression
Query child_ds String 25 Recommended Has child been diagnosed with or experiencing symptoms of Down syndrome? No; Experiencing Symptoms; Diagnosed Parent report
Query child_fxs String 25 Recommended Has child been diagnosed with or experiencing symptoms of fragile x syndrome? No; Experiencing Symptoms; Diagnosed Parent report
Query child_addadhd String 25 Recommended Has child been diagnosed with or experiencing symptoms of attention deficit disorder, with or without hyperactivity? No; Experiencing Symptoms; Diagnosed Parent report
Query child_odd String 25 Recommended Has child been diagnosed with or experiencing symptoms of oppositional defiant disorder? No; Experiencing Symptoms; Diagnosed Parent report
Query child_ld String 25 Recommended Has child been diagnosed with or experiencing symptoms of a learning disability? No; Experiencing Symptoms; Diagnosed Parent report
Query child_schizo String 25 Recommended Has child been diagnosed with or experiencing symptoms of schizophrenia? No; Experiencing Symptoms; Diagnosed Parent report
Query child_mutism String 25 Recommended Has child been diagnosed with or experiencing symptoms of selective or elective mutism? No; Experiencing Symptoms; Diagnosed Parent report
Query child_tourette String 25 Recommended Has child been diagnosed with or experiencing symptoms of Tourette syndrome? No; Experiencing Symptoms; Diagnosed Parent report
Query child_sensory String 25 Recommended Has child been diagnosed with or experiencing symptoms of sensory issues? No; Experiencing Symptoms; Diagnosed Parent report
Query child_speech String 25 Recommended Has child been diagnosed with or experiencing symptoms of speech problems? No; Experiencing Symptoms; Diagnosed Parent report
Query child_dysgraphia String 25 Recommended Has child been diagnosed with or experiencing symptoms of dysgraphia? No; Experiencing Symptoms; Diagnosed Parent report
Query child_theoryofmind String 25 Recommended Has child been diagnosed with or experiencing symptoms of theory of mind issues? No; Experiencing Symptoms; Diagnosed Parent report
Query child_epilepsy String 25 Recommended Has child been diagnosed with or experiencing symptoms of epilepsy? No; Experiencing Symptoms; Diagnosed Parent report
Query child_ptsd String 25 Recommended Has child been diagnosed with or experiencing symptoms of post-traumatic stress disorder? No; Experiencing Symptoms; Diagnosed Parent report
Query child_gdd String 25 Recommended Has child been diagnosed with or experiencing symptoms of global developmental delay? No; Experiencing Symptoms; Diagnosed Parent report
Query child_hypotonia String 25 Recommended Has child been diagnosed with or experiencing symptoms of hypotonia? No; Experiencing Symptoms; Diagnosed Parent report
Query child_otherconditions String 25 Recommended Has child been diagnosed with or experiencing symptoms of another medical, mental, or physical condition? No; Experiencing Symptoms; Diagnosed Parent report
Query relationship Integer Recommended Relationship of respondent to individual 1::94;-999 1 = Biological mom; 2 = Biological dad; 3 = Grandparent; 4 = Special education (sped) teacher; 5 = General education teacher; 6 = Occupational therapist; 7 = Speech and language therapist; 8 = Behavioral therapist; 9 = Paraprofessional; 10 = Aide; 11 = Principal; 12 = Administrator; 14 = Content teacher; 15 = Parent center director; 16 = Self; 17=Adoptive mother; 18=Adoptive father; 19=Foster mother; 20 = Foster father; 21=Grandmother; 22=Grandfather; 23=Step-mother; 24 = Step-father; 25=Aunt; 26=Uncle; 28=Both parents;31= Grandmother from mother side; 32= Grandfather from mother side; 33= Grandmother from father side; 34= Grandfather from father side; 36= Brother; 37= Sister; 38= Cousin; 39= female caregiver; 40=male caregiver; 41=Female child; 42=Male child; 43=Spouse/Mate; 44=Friend; 45=Parent; 46=Significant other; 47=Sibling; 48=Son/Daughter; 49=Son-in-law/Daughter-in law; 50=Other Relative; 51=Paid caregiver; 52=Friends; 53=Roommate; 54=Supervisor; 55=mother's boyfriend; 56=other parental figure; 57=Summary; 58=counselor ; 59 = other female relative; 60 = other male relative; 61 = non-relative ; 62=Maternal Aunt; 63=Maternal Uncle; 64=Maternal Cousin; 65 = Paternal Aunt; 66=Paternal Uncle; 67=Paternal Cousin ; 68=Biological/Adoptive Mother and Grandmother; 69=Biological/Adoptive Mother and Stepmother and Grandmother; 70=Biological/Adoptive Mother and Grandmother and Foster Father; 71=Biological/Adoptive Mother and Stepmother and Foster Mother; 72=Biological/Adoptive Mother and Foster Mother; 73=Biological/Adoptive Mother and Biological/Adoptive Father; 74=Biological/Adoptive Mother and Stepmother and Biological/Adoptive Father; 75=Biological/Adoptive Mother and Other; 76=Biological/Adoptive Mother and Stepmother and Stepfather; 77=Biological/Adoptive Mother and Stepfather; 78=Biological/Adoptive Mother and Grandfather; 79=Biological/Adoptive Mother and Stepmother and Foster Father; 80=Biological/Adoptive Mother and Stepmother; 81=Guardian, female; 82=Other female; 83=Guardian, male; 84=Other male; 85=Other/Grandparent/Nanny; 86 = Mother, Father, Guardian; 87 = Daughter, son, grandchild; 88 = Professional (e.g., social worker, nurse, therapist, psychiatrist, or group home staff); -999=Missing; 89 = Biological parent; 90=Other; 91 = Stepparent; 92 = Adoptive parent; 93 = Foster parent; 94 = Co-worker
family_id String 20 Recommended Family User-Defined ID
subjectkey_mother GUID Recommended The NDAR Global Unique Identifier (GUID) for subject's biological mother NDAR*
Query mother_age Integer Recommended Mother's age 0 :: 1200
Query mom_respiratory String 1 Recommended In the past 12 months, has mother experienced respiratory problems? N; Y N = No; Y = Yes; asthma, bronchitis, emphysema, sleep apnea, or other lung problems
Query mom_musculoskeletal String 1 Recommended In the past 12 months, has mother experienced musculoskeletal problems? N; Y N = No; Y = Yes; arthiritis, rheumatism, osteoporosis, sciatica, lumbargo, recurring backache or serious back trouble, and other bone or joint diseases
Query mom_skin String 1 Recommended In the past 12 months, has mother experienced skin problems? N; Y N = No; Y = Yes; persistent skin trouble
Query mom_thyroid String 1 Recommended In the past 12 months, has mother experienced thyroid problems? N; Y N = No; Y = Yes; thyroid disease
Query mom_allergies String 1 Recommended In the past 12 months, has mother experienced allergies? N; Y N = No; Y = Yes; hay fever or other allergies
Query mom_gastrointestinal String 1 Recommended In the past 12 months, has mother experienced gastrointestinal problems? N; Y N = No; Y = Yes; reoccurring stomach trouble, indigestion, diarrhea, constipation, gall bladder trouble, piles, hemorrhoids, swallowing problems, anemia, colitis
Query mom_urinary String 1 Recommended In the past 12 months, has mother experienced urinary problems? N; Y N = No; Y = Yes; urinary or bladder problems
Query mom_foot String 1 Recommended In the past 12 months, has mother experienced foot problems? N; Y N = No; Y = Yes; persistent foot trouble (bunions, ingrown toenails, etc.)
Query mom_migraine String 1 Recommended In the past 12 months, has mother experienced migraines? N; Y N = No; Y = Yes; migraine headaches
Query mom_sleep String 1 Recommended In the past 12 months, has mother experienced sleep problems? N; Y N = No; Y = Yes; chronic sleeping problems
Query mom_diabetes String 1 Recommended In the past 12 months, has mother experienced diabetes? N; Y N = No; Y = Yes; diabetes or high blood sugar
Query mom_neurological String 1 Recommended In the past 12 months, has mother experienced neurological issues? N; Y N = No; Y = Yes; multiple sclerosis, epilepsy, stroke, fibromyalgia, other neurological disorders
Query mom_ulcer String 1 Recommended In the past 12 months, has mother experienced ulcers? N; Y N = No; Y = Yes; ulcer
Query mom_hernia String 1 Recommended In the past 12 months, has mother experienced hernia? N; Y N = No; Y = Yes; hernia or rupture
Query mom_cancer String 1 Recommended In the past 12 months, has mother experienced cancer? N; Y N = No; Y = Yes; cancer
Query mom_autoimmune String 1 Recommended In the past 12 months, has mother experienced autoimmune disorders? N; Y N = No; Y = Yes; lupus or other autoimmune disorders
Query mom_mouth String 1 Recommended In the past 12 months, has mother experienced mouth problems? N; Y N = No; Y = Yes; persistent trouble with gums, mouth, or teeth
Query mom_mentalhealth String 1 Recommended In the past 12 months, has mother experienced mental health issues? N; Y N = No; Y = Yes; anxiety, depression, attention deficit disorder (hyperactivity), obsessive-compulsive disorder, eating disorders such as anorexia or bulimia, bipolar, schizophrenia, or another emotional disorder
Query mom_overweight String 1 Recommended In the past 12 months, has mother experienced being overweight or obese? N; Y N = No; Y = Yes; trouble with being overweight or obese
Query mom_ld String 1 Recommended In the past 12 months, has mother experienced a learning disability? N; Y N = No; Y = Yes; learning disability
Query mom_liver String 1 Recommended In the past 12 months, has mother experienced liver problems? N; Y N = No; Y = Yes; chronic liver problems
Query mom_cardio String 1 Recommended In the past 12 months, has mother experienced cardiovascular problems? N; Y N = No; Y = Yes; heart disease, trouble with varicose veins requiring medical treatment, high blood pressure or hypertension, high cholesterol
Query mom_reproductive String 1 Recommended In the past 12 months, has mother experienced problems with the reproductive system? N; Y N = No; Y = Yes; endometriosis or pelvic inflammatory disease
subjectkey_father GUID Recommended The NDAR Global Unique Identifier (GUID) for subject's biological father NDAR*
Query father_age Integer Recommended Father's age 0 :: 1200
Query dad_respiratory String 1 Recommended In the past 12 months, has father experienced respiratory problems? N; Y N = No; Y = Yes; asthma, bronchitis, emphysema, sleep apnea, or other lung problems
Query dad_musculoskeletal String 1 Recommended In the past 12 months, has father experienced musculoskeletal problems? N; Y N = No; Y = Yes; arthiritis, rheumatism, osteoporosis, sciatica, lumbargo, recurring backache or serious back trouble, and other bone or joint diseases
Query dad_skin String 1 Recommended In the past 12 months, has father experienced skin problems? N; Y N = No; Y = Yes; persistent skin trouble
Query dad_thyroid String 1 Recommended In the past 12 months, has father experienced thyroid problems? N; Y N = No; Y = Yes; thyroid disease
Query dad_allergies String 1 Recommended In the past 12 months, has father experienced allergies? N; Y N = No; Y = Yes; hay fever or other allergies
Query dad_gastrointestinal String 1 Recommended In the past 12 months, has father experienced gastrointestinal problems? N; Y N = No; Y = Yes; reoccurring stomach trouble, indigestion, diarrhea, constipation, gall bladder trouble, piles, hemorrhoids, swallowing problems, anemia, colitis
Query dad_urinary String 1 Recommended In the past 12 months, has father experienced urinary problems? N; Y N = No; Y = Yes; urinary or bladder problems
Query dad_foot String 1 Recommended In the past 12 months, has father experienced foot problems? N; Y N = No; Y = Yes; persistent foot trouble (bunions, ingrown toenails, etc.)
Query dad_migraine String 1 Recommended In the past 12 months, has father experienced migraines? N; Y N = No; Y = Yes; migraine headaches
Query dad_sleep String 1 Recommended In the past 12 months, has father experienced sleep problems? N; Y N = No; Y = Yes; chronic sleeping problems
Query dad_diabetes String 1 Recommended In the past 12 months, has father experienced diabetes? N; Y N = No; Y = Yes; diabetes or high blood sugar
Query dad_neurological String 1 Recommended In the past 12 months, has father experienced neurological issues? N; Y N = No; Y = Yes; multiple sclerosis, epilepsy, stroke, fibromyalgia, other neurological disorders
Query dad_ulcer String 1 Recommended In the past 12 months, has father experienced ulcers? N; Y N = No; Y = Yes; ulcer
Query dad_hernia String 1 Recommended In the past 12 months, has father experienced hernia? N; Y N = No; Y = Yes; hernia or rupture
Query dad_cancer String 1 Recommended In the past 12 months, has father experienced cancer? N; Y N = No; Y = Yes; cancer
Query dad_autoimmune String 1 Recommended In the past 12 months, has father experienced autoimmune disorders? N; Y N = No; Y = Yes; lupus or other autoimmune disorders
Query dad_mouth String 1 Recommended In the past 12 months, has father experienced mouth problems? N; Y N = No; Y = Yes; persistent trouble with gums, mouth, or teeth
Query dad_mentalhealth String 1 Recommended In the past 12 months, has father experienced mental health issues? N; Y N = No; Y = Yes; anxiety, depression, attention deficit disorder (hyperactivity), obsessive-compulsive disorder, eating disorders such as anorexia or bulimia, bipolar, schizophrenia, or another emotional disorder
Query dad_overweight String 1 Recommended In the past 12 months, has father experienced being overweight or obese? N; Y N = No; Y = Yes; trouble with being overweight or obese
Query dad_ld String 1 Recommended In the past 12 months, has father experienced a learning disability? N; Y N = No; Y = Yes; learning disability
Query dad_liver String 1 Recommended In the past 12 months, has father experienced liver problems? N; Y N = No; Y = Yes; chronic liver problems
Query dad_cardio String 1 Recommended In the past 12 months, has father experienced cardiovascular problems? N; Y N = No; Y = Yes; heart disease, trouble with varicose veins requiring medical treatment, high blood pressure or hypertension, high cholesterol
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

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