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BSRC Intervention History Form

624 Shared Subjects

Baby Sibling Research Consortium Intervention History Form
Clinical Assessments
Treatment
01/03/2014
bsrc_intervention01
01/03/2014
View Change History
01
Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR*
src_subject_id String 20 Required Subject ID how it's defined in lab/project
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0::1440 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY
sex String 20 Required Sex of subject at birth M;F; O; NR M = Male; F = Female; O=Other; NR = Not reported gender
date_last_visit Date Recommended Date of last visit
Query prof_refer Integer Recommended Did a professional refer your child to an "early intervention" or "birth-to-three" program? 0;1 0 = No; 1 = Yes refer_birth_to_three
Query early_therapy Integer Recommended Did your child receive any "early intervention" or "birth to three" program service? 0;1 0 = No; 1 = Yes receive_birth_to_three
Query community_class Integer Recommended Did a professional recommend that your child attend any community based classes/activities? 0;1 0 = No; 1 = Yes recommend_community_classes
Query participate_class Integer Recommended Did your child participate in any classes/activities whether or not recommended by a professional? 0;1 0 = No; 1 = Yes
Query dev_services Integer Recommended Did your child receive services for developmental delays of any kind or concerns about delay? 0;1 0 = No; 1 = Yes receive_services_dev_delays
Query txhx1occtx1 Integer Recommended Did child participate in occupational therapy
0;1
0 = No; 1 = Yes occupational_therapy
txhxocctx1start Date Recommended occupational therapy start date date_started_occupational_therapy
Query txhxocctx1ong Integer Recommended occupational therapy ongoing?
0;1
0 = No; 1 = Yes still_receiving_occupational_therapy
txhxocctx1end Date Recommended occupational therapy end date if_no_date_stopped_occupational_therapy
Query txhxocctx1type String 10 Recommended occupational therapy type Individual; Group individual_or_group_occupational_therapy
Query ot_setting String 200 Recommended setting of OT setting_occupational_therapy
ot_other String 25 Recommended Other setting of Occupational Therapy other_setting_occupational_therapy
Query ot1_week_hrs Float Recommended Occupational Therapy Occurrence 1:For the following intervention, how many hours per week were provided? hours_per_week_occupational_therapy
Query service_physical String 5 Recommended Physical Therapy Yes; No physical_therapy
pt_start Date Recommended Date started Physical Therapy: date_started_physical_therapy
Query pt_ongoing Integer Recommended Still receiving Physical Therapy? 0;1 0 = No; 1 = Yes still_receiving_physical_therapy
pt_end Date Recommended date subject ended PT date_stopped_physical_therapy
Query pt_type Integer Recommended Individual or Group Physical Therapy? 0;1 0 = Group; 1 = Individual individual_group_physical_therapy
Query pt_setting String 200 Recommended setting of PT setting_physical_therapy
pt_other String 25 Recommended Other setting of Physical Therapy: other_setting_physical_therapy
Query pt_week_hrs Float Recommended Average hours per week at Physical Therapy: hours_per_week_physical_therapy
Query txhx1speechtx1 Integer Recommended Did child participate in speech therapy
0;1
0 = No; 1 = Yes speech_language_therapy
txhxspeechtx1start Date Recommended speech therapy start date date_started_speech_language
Query txhxspeechtx1ong Integer Recommended speech therapy ongoing?
0;1
0 = No; 1 = Yes still_receiving_speech_language_therapy
txhxspeechtx1end Date Recommended speech therapy end date date_stopped_speech_language
Query txhxspeechtx1type String 10 Recommended speech therapy type Individual; Group individual_or_group_speech_language
Query speech_setting Integer Recommended Setting of Speech-Lanugage Therapy: 0::3 0 = Daycare/preschool; 1 = Home; 2 = Office/Clinic; 3= Other setting_speech_lanugage_therapy
speech_other String 25 Recommended Other setting of Speech-Lanugage Therapy other_setting_speech_lanugage_therapy
Query speech_week_hrs Float Recommended Average hours per week at Speech-Language Therapy: hours_per_week_speech_language
Query cbe_interv Integer Recommended Comprehensive Behavioral/Educational Interventions 0;1 0 = No; 1 = Yes comp_behavioral_educational_interventions
cbe_start Date Recommended Date Started Comprehensive Behavioral/Educational Interventions date_started_comprehensive_behavioral
Query cbe_ongoing Integer Recommended Still receiving Comprehensive Behavioral/Educational Interventions? 0;1 0 = No; 1 = Yes still_receiving_comprehensive_behavioral
cbe_end Date Recommended If, No, date stopped Comprehensive Behavioral/Educational Interventions date_stopped_comprehensive
Query sbe_type Integer Recommended Individual or Group Comprehensive Behavioral/Educational Interventions? 0;1 0 = Group; 1 = Individual individual_or_group_comprehensive_behavioral
Query cbe_setting Integer Recommended Setting of Comprehensive Behavioral/Educational Interventions 0::3 0 = Daycare/preschool; 1 = Home; 2 = Office/Clinic; 3= Other setting_comprehensive_behavioral
cbe_other String 25 Recommended Other setting of Comprehensive Behavioral/Educational Interventions other_setting_comprehensive_behavioral
Query cbe_week_hrs Float Recommended Average hours per week at Comprehensive Behavioral/Educational Interventions: average_hours_per_week_comp_behavioral
Query other_intervention Integer Recommended Other Intervention 0;1 0 = No; 1 = Yes
other_start Date Recommended date subject began other therapy date_started_other_intervention
Query other_ongoing Integer Recommended Still receiving Other Intervention? 0;1 0 = No; 1 = Yes still_receiving_other_intervention
other_end Date Recommended date subject ended other therapy if_no_date_stopped_other_intervention
Query othertherapy1_group_ind String 50 Recommended Other Therapy Occurrence 1: For the following intervention, how was it provided? Individual;Group;Both individual_or_group_other_intervention
other_setting String 200 Recommended setting of other therapy setting_other_intervention
other_other String 50 Recommended Other Setting of Other Intervention: other_setting_other_intervention
Query othertherapy1_week_hrs Float Recommended Other Therapy Occurrence 1:For the following intervention, how many hours per week were provided? average_hours_per_week_other_intervention
Query intervention_average Float Recommended On average, how many hours per week has your child been in intervention since your last visit to our research program? hours_per_week_since_last_visit
Query intervention_average_year Float Recommended On average, how many hours per week has your child been in intervention in the past year? hours_per_week_in_past_year
Query alternative_therapies Integer Recommended Did your child receive complementory or alternative therapies used to treat symptoms of autism? 0;1 0 = No; 1 = Yes receive_alternative_therapies
Query alternative_specify String 50 Recommended If Yes, please specify: please_specify_alternative_therapy
Query pharma_int Integer Recommended 8. Did your child receive medical or pharmacological interventions? 0;1 0 = No; 1 = Yes medical_pharmacological_intervention
pharma_specify String 50 Recommended If, Yes, please specify: specify_pharm_intervention
Query assess_36m Integer Recommended Is this your child's 36-month assessment? 0;1 0 = No; 1 = Yes this_your_childs_36_month_assessment
Query intervention_plan Integer Recommended Do you plan to continue your child's enrollment in intervention during the next year? 0;1 0 = No; 1 = Yes plan_continue_childs_enrollment_intervention
future_intervention String 100 Recommended Plan to continue following interventions
Query program_week_hrs Float Recommended Average hours per week (of early intervention or birth to three programs). average_hours_per_week
Query total_hrs Float Recommended Total hours since last visit (of early intervention or birth to three programs). total_hours_since_last_visit
comments_misc String 4,000 Recommended Miscellaneous comments on study, interview, methodology relevant to this form data anything_tell_us_about_services
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.