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NIMH Data Archive
NDA ABCD CCF OAI NIAAADA AMP SCZ HEAL

Family Empowerment Form

239 Shared Subjects

N/A
Clinical Assessments
Questionnaire
06/23/2015
famempow01
11/14/2022
View Change History
01
Definition
Submission Template
Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR*
src_subject_id String 20 Required Subject ID how it's defined in lab/project
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0::1440 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY
sex String 20 Required Sex of subject at birth M;F; O; NR M = Male; F = Female; O=Other; NR = Not reported gender
Query pr_fam_empo1 Integer Recommended 1. I feel that I have a right to approve all the services my son/daughter receives 1::5;999 1 = Not True at all; 2 = Mostly Not True; 3 = Somewhat True; 4 = Mostly True; 5 = Very True; 999 = Missing
Query pr_fam_empo2 Integer Recommended 2. When problems arise with my son/daughter, I handle them pretty well 1::5;999 1 = Not True at all; 2 = Mostly Not True; 3 = Somewhat True; 4 = Mostly True; 5 = Very True; 999 = Missing
Query pr_fam_empo3 Integer Recommended 3. I feel I have a part in improving services for adults/children in my community 1::5;999 1 = Not True at all; 2 = Mostly Not True; 3 = Somewhat True; 4 = Mostly True; 5 = Very True; 999 = Missing
Query pr_fam_empo4 Integer Recommended 4. I feel confident in my ability to help my son/daughter grow and develop 1::5;999 1 = Not True at all; 2 = Mostly Not True; 3 = Somewhat True; 4 = Mostly True; 5 = Very True; 999 = Missing
Query pr_fam_empo5 Integer Recommended 5. I know the steps to take when I am concerned my son/daughter is receiving poor service 1::5;999 1 = Not True at all; 2 = Mostly Not True; 3 = Somewhat True; 4 = Mostly True; 5 = Very True; 999 = Missing
Query pr_fam_empo6 Integer Recommended 6. I make sure that professionals understand my opinions about what services my son/daughter needs 1::5;999 1 = Not True at all; 2 = Mostly Not True; 3 = Somewhat True; 4 = Mostly True; 5 = Very True; 999 = Missing
Query pr_fam_empo7 Integer Recommended 7. I know what to do when problems arise with my son/daughter 1::5;999 1 = Not True at all; 2 = Mostly Not True; 3 = Somewhat True; 4 = Mostly True; 5 = Very True; 999 = Missing
Query pr_fam_empo8 Integer Recommended 8. I get in touch with my legislators when important bills or issues concerning adults/children are pending 1::5;999 1 = Not True at all; 2 = Mostly Not True; 3 = Somewhat True; 4 = Mostly True; 5 = Very True; 999 = Missing
Query pr_fam_empo9 Integer Recommended 9. I feel my family life is under control 1::5;999 1 = Not True at all; 2 = Mostly Not True; 3 = Somewhat True; 4 = Mostly True; 5 = Very True; 999 = Missing
Query pr_fam_empo10 Integer Recommended 10. I understand how the service system for adults/children is organized 1::5;999 1 = Not True at all; 2 = Mostly Not True; 3 = Somewhat True; 4 = Mostly True; 5 = Very True; 999 = Missing
Query pr_fam_empo11 Integer Recommended 11. I am able to make good decisions about what services my son/daughter needs 1::5;999 1 = Not True at all; 2 = Mostly Not True; 3 = Somewhat True; 4 = Mostly True; 5 = Very True; 999 = Missing
Query pr_fam_empo12 Integer Recommended 12.I am able to work with agencies and professionals to decide what services my son/daughter needs 1::5;999 1 = Not True at all; 2 = Mostly Not True; 3 = Somewhat True; 4 = Mostly True; 5 = Very True; 999 = Missing
Query pr_fam_empo13 Integer Recommended 13. I make sure I stay in regular contact with professionals/agencies who are providing services to my son/daughter 1::5;999 1 = Not True at all; 2 = Mostly Not True; 3 = Somewhat True; 4 = Mostly True; 5 = Very True; 999 = Missing
Query pr_fam_empo14 Integer Recommended 14.I have ideas about the ideal service system for adults/children 1::5;999 1 = Not True at all; 2 = Mostly Not True; 3 = Somewhat True; 4 = Mostly True; 5 = Very True; 999 = Missing
Query pr_fam_empo15 Integer Recommended 15. I help other families and adults get the services they need 1::5;999 1 = Not True at all; 2 = Mostly Not True; 3 = Somewhat True; 4 = Mostly True; 5 = Very True; 999 = Missing
Query pr_fam_empo16 Integer Recommended 16. I am able to get the information to help me better understand my son/daughter 1::5;999 1 = Not True at all; 2 = Mostly Not True; 3 = Somewhat True; 4 = Mostly True; 5 = Very True; 999 = Missing
Query pr_fam_empo17 Integer Recommended 17. I believe that other parents and I can have an influence on services for adults/children 1::5;999 1 = Not True at all; 2 = Mostly Not True; 3 = Somewhat True; 4 = Mostly True; 5 = Very True; 999 = Missing
Query pr_fam_empo18 Integer Recommended 18. My opinion is just as important as professionals opinions in deciding what services my son/daughter needs 1::5;999 1 = Not True at all; 2 = Mostly Not True; 3 = Somewhat True; 4 = Mostly True; 5 = Very True; 999 = Missing
Query pr_fam_empo19 Integer Recommended 19. I tell professionals what I think about services being provided to my son/daughter 1::5;999 1 = Not True at all; 2 = Mostly Not True; 3 = Somewhat True; 4 = Mostly True; 5 = Very True; 999 = Missing
Query pr_fam_empo20 Integer Recommended 20. I tell people in agencies and government how services for adults/children can be improved 1::5;999 1 = Not True at all; 2 = Mostly Not True; 3 = Somewhat True; 4 = Mostly True; 5 = Very True; 999 = Missing
Query pr_fam_empo21 Integer Recommended 21 .I believe I can solve problems with my son/daughter when they happen 1::5;999 1 = Not True at all; 2 = Mostly Not True; 3 = Somewhat True; 4 = Mostly True; 5 = Very True; 999 = Missing
Query pr_fam_empo22 Integer Recommended 22. I know how to get agency administrators or legislators to listen to me 1::5;999 1 = Not True at all; 2 = Mostly Not True; 3 = Somewhat True; 4 = Mostly True; 5 = Very True; 999 = Missing
Query pr_fam_empo23 Integer Recommended 23. I know what services my son/daughter needs 1::5;999 1 = Not True at all; 2 = Mostly Not True; 3 = Somewhat True; 4 = Mostly True; 5 = Very True; 999 = Missing
Query pr_fam_empo24 Integer Recommended 24. I know what the rights of parents and children are under the laws. 1::5;999 1 = Not True at all; 2 = Mostly Not True; 3 = Somewhat True; 4 = Mostly True; 5 = Very True; 999 = Missing
Query pr_fam_empo25 Integer Recommended 25. I feel that my knowledge and experiences as a parent can be used to improve services for adults/children and other families 1::5;999 1 = Not True at all; 2 = Mostly Not True; 3 = Somewhat True; 4 = Mostly True; 5 = Very True; 999 = Missing
Query pr_fam_empo26 Integer Recommended 26. When I need help with problems in my family, I am able to ask for help from others 1::5;999 1 = Not True at all; 2 = Mostly Not True; 3 = Somewhat True; 4 = Mostly True; 5 = Very True; 999 = Missing
Query pr_fam_empo27 Integer Recommended 27. I make efforts to learn new ways to help my son/daughter grow and develop 1::5;999 1 = Not True at all; 2 = Mostly Not True; 3 = Somewhat True; 4 = Mostly True; 5 = Very True; 999 = Missing
Query pr_fam_empo28 Integer Recommended 28. When necessary, I take the initiative in looking for services for my child and family / for my son/daughter 1::5;999 1 = Not True at all; 2 = Mostly Not True; 3 = Somewhat True; 4 = Mostly True; 5 = Very True; 999 = Missing
Query pr_fam_empo29 Integer Recommended 29. When dealing with my son/daughter, I focus on the good things as well as the problems 1::5;999 1 = Not True at all; 2 = Mostly Not True; 3 = Somewhat True; 4 = Mostly True; 5 = Very True; 999 = Missing
Query pr_fam_empo30 Integer Recommended 30. I have a good understanding of the service system that my son/daughter is involved in 1::5;999 1 = Not True at all; 2 = Mostly Not True; 3 = Somewhat True; 4 = Mostly True; 5 = Very True; 999 = Missing
Query pr_fam_empo31 Integer Recommended 31. When faced with problems involving my son/daughter, I decide what to do and then do it 1::5;999 1 = Not True at all; 2 = Mostly Not True; 3 = Somewhat True; 4 = Mostly True; 5 = Very True; 999 = Missing
Query pr_fam_empo32 Integer Recommended 32. Professionals should ask me what services I want for my son/daughter 1::5;999 1 = Not True at all; 2 = Mostly Not True; 3 = Somewhat True; 4 = Mostly True; 5 = Very True; 999 = Missing
Query pr_fam_empo33 Integer Recommended 33. I have a good understanding of my son/daughter's disorders 1::5;999 1 = Not True at all; 2 = Mostly Not True; 3 = Somewhat True; 4 = Mostly True; 5 = Very True; 999 = Missing
Query pr_fam_empo34 Integer Recommended 34. I feel I am a good parent 1::5;999 1 = Not True at all; 2 = Mostly Not True; 3 = Somewhat True; 4 = Mostly True; 5 = Very True; 999 = Missing
comments_misc String 4,000 Recommended Miscellaneous comments on study, interview, methodology relevant to this form data pr_fam_empo35
timepoint_label String 50 Recommended Timepoint/visit label
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.

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