|
subjectkey |
GUID |
|
Required |
The NDAR Global Unique Identifier (GUID) for research subject |
NDAR*
|
|
|
|
src_subject_id |
String |
20
|
Required |
Subject ID how it's defined in lab/project |
|
|
demo_study_id |
|
interview_date |
Date |
|
Required |
Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY |
|
|
visit_date |
|
interview_age |
Integer |
|
Required |
Age in months at the time of the interview/test/sampling/imaging. |
0 :: 1260
|
Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
|
|
|
sex |
String |
20
|
Required |
Sex of subject at birth |
M;F; O; NR
|
M = Male; F = Female; O=Other; NR = Not reported
|
gender, sex |
Query
|
gaitstation_ttl |
Integer |
|
Recommended |
Total Gaits and Stations |
0 :: 49
|
total axial+total Overflow+Total Miscellaneous & involuntary
|
pan_totgs |
Query
|
ttltovflw |
Integer |
|
Recommended |
Total Timed Overflow |
0 :: 25
|
Sum R Overflow +L Overflow +Tongue
|
tmd_totof |
Query
|
ttldys |
Integer |
|
Recommended |
Total Dysrhythmia |
0 :: 13
|
Sum R Dysrhythmia + L Dysrhythmia + Tongue
|
tmd_totdysr |
Query
|
ttltmisc |
Integer |
|
Recommended |
Total Timed Miscellaneous |
0 :: 6
|
|
tmd_totmisc |
Query
|
ttlsfa |
Integer |
|
Recommended |
Total SFA |
0 :: 26
|
Sum R SFA + L SFA + Tongue SFA
|
tmd_totsfa |
Query
|
ttlrovrflw |
Integer |
|
Recommended |
Total Right Overflow |
0 :: 15
|
Right Overflow + Timed Right Overflow
|
pan_rightof |
Query
|
ttllovrflw |
Integer |
|
Recommended |
Total Left Overflow |
0 :: 15
|
Left Overflow + Timed Left Overflow
|
pan_leftof |
Query
|
ttloverflow |
Integer |
|
Recommended |
Total Overflow |
0 :: 31
|
Total Overflow + Total Timed Overflow
|
pan_totof |
Query
|
ttlt |
Integer |
|
Recommended |
Total Timed |
0 :: 70
|
Total Timed Overflow + Total Dysrhythmia + Total Timed Misc + Total SFA
|
pan_tottmd |
Query
|
ttlpan |
Integer |
|
Required |
Total Paness |
0 :: 119
|
Total Gaits and Stations + Total Timed
|
pan_tot |
Query
|
neuro_106_front_foot_f_20t_rft |
Float |
|
Recommended |
Neurological Exam (4:6+ y:m): Right foot - tap front of foot fast 20 times, keeping heel on floor, following demonstration (Time in seconds) |
|
|
rsec_ft |
Query
|
neuro_108_heel_toe_f_10s_rfoot |
Float |
|
Recommended |
Neurological Exam (4:6+ y:m): Right foot - heel-toe - tap floor with ball of foot, then heel fast, 10 sets or 20 taps, following demonstration (Time in seconds) |
|
|
rsec_ht |
Query
|
neuro_102_palm_thigh_f_20t_rh |
Float |
|
Recommended |
Neurological Exam (4:6+ y:m): Right hand - pat palm on thigh fast 20 times, keeping heel of palm on thigh, following demonstration (Time in seconds) |
|
|
rsec_hp |
Query
|
neuro_104_altern_pd_pt_20t_rh |
Float |
|
Recommended |
Neurological Exam (4:6+ y:m): Right hand - Alternate palm-dorsum pat of thigh fast 20 times (10 sets of palm and dorsum pats) following demonstration (Time in seconds) |
|
|
rsec_hps |
Query
|
neuro_098_thmb_forefing_20t_rh |
Float |
|
Recommended |
Neurological Exam (4:6+ y:m): Right hand - tap thumb and forefinger together fast 20 times following demonstration (Time in seconds) |
|
|
rsec_fr |
Query
|
neuro_100_thumb_fing_op_5s_rh |
Float |
|
Recommended |
Neurological Exam (4:6+ y:m): thumb-finger opposition fast (index-middle-ring-little, 5 sets) following demonstration (Time in seconds) |
|
|
rsec_fs |
Query
|
neuro_107_front_foot_f_20t_lft |
Float |
|
Recommended |
Neurological Exam (4:6+ y:m): Left foot - tap front of foot fast 20 times, keeping heel on floor, following demonstration (Time in seconds) |
|
|
lsec_ft |
Query
|
neuro_109_heel_toe_f_10s_lfoot |
Float |
|
Recommended |
Neurological Exam (4:6+ y:m): Left foot - heel-toe - tap floor with ball of foot, then heel fast, 10 sets or 20 taps, following demonstration (Time in seconds) |
|
|
lsec_ht |
Query
|
neuro_103_palm_thigh_f_20t_lh |
Float |
|
Recommended |
Neurological Exam (4:6+ y:m): Left hand - pat palm on thigh fast 20 times, keeping heel of palm on thigh, following demonstration (Time in seconds) |
|
|
lsec_hp |
Query
|
neuro_105_altern_pd_pt_20t_lh |
Float |
|
Recommended |
Neurological Exam (4:6+ y:m): Left hand - Alternate palm-dorsum pat of thigh fast 20 times (10 sets of palm and dorsum pats) following demonstration (Time in seconds) |
|
|
lsec_hps |
Query
|
neuro_099_thmb_forefing_20t_lh |
Float |
|
Recommended |
Neurological Exam (4:6+ y:m): tap thumb and forefinger together fast 20 times following demonstration (Time in seconds) |
|
|
lsec_fr |
Query
|
neuro_101_thumb_fing_op_5s_lh |
Float |
|
Recommended |
Neurological Exam (4:6+ y:m): Left hand - thumb-finger opposition fast (index-middle-ring-little, 5 sets) following demonstration (Time in seconds) |
|
|
lsec_fs |
Query
|
incform |
Integer |
|
Recommended |
Visit took place, one or more forms missing or incomplete |
0;1
|
0=Not checked; 1=Checked
|
pan_incompl |
|
bprs_notes14 |
String |
2,000
|
Recommended |
Uncooperativeness-Additional Comments |
|
|
pan_inc_desc |
|
comments_misc |
String |
4,000
|
Recommended |
Miscellaneous comments on study, interview, methodology relevant to this form data |
|
|
pan_oth_descr |
Query
|
nncncho |
Integer |
|
Recommended |
CNS: Choreiform movements |
0;1
|
0 = No; 1 = Yes
|
pan_chorea |
Query
|
da_nystagmus |
Integer |
|
Recommended |
DescriptAbnormal: Nystagmus |
0;1
|
0 = unchecked box; 1 = checked box
|
pan_nystagmus |
Query
|
nnvistr |
Integer |
|
Recommended |
Visual: Strabismus |
0;1
|
0 = No; 1 = Yes
|
pan_strabismus |
Query
|
lat_eye |
Integer |
|
Recommended |
Eye Preference |
-1;1
|
-1 = Left ; 1 = Right
|
|
Query
|
lat_kick |
Integer |
|
Recommended |
Foot Preference: Kick Ball |
-1;1;0
|
-1 = Left ; 1 = Right ; 0 = Mixed/Both
|
|
Query
|
lat_stamp |
Integer |
|
Recommended |
Foot Preference: Stamp Fire (or squash bug) |
-1;1;0
|
-1 = Left ; 1 = Right ; 0 = Mixed/Both
|
|
Query
|
lat_foot |
Integer |
|
Recommended |
Foot Preference: Overall Foot Preference |
-1;1;0
|
-1 = Left ; 1 = Right ; 0 = Mixed/Both
|
|
Query
|
lat_comb |
Integer |
|
Recommended |
Hand Preference: Comb Hair |
-1;1;0
|
-1 = Left ; 1 = Right ; 0 = Mixed/Both
|
|
Query
|
lat_teeth |
Integer |
|
Recommended |
Hand Preference: Brush Teeth |
-1;1;0
|
-1 = Left ; 1 = Right ; 0 = Mixed/Both
|
|
Query
|
lat_scissors |
Integer |
|
Recommended |
Hand Preference: Cut with Scissors |
-1;1;0
|
-1 = Left ; 1 = Right ; 0 = Mixed/Both
|
|
Query
|
lat_throw |
Integer |
|
Recommended |
Hand Preference: Throw Ball |
-1;1;0
|
-1 = Left ; 1 = Right ; 0 = Mixed/Both
|
|
Query
|
lat_bat |
Integer |
|
Recommended |
Hand Preference: Hit Ball with Bat |
-1;1;0
|
-1 = Left ; 1 = Right ; 0 = Mixed/Both
|
|
Query
|
lat_racket |
Integer |
|
Recommended |
Hand Preference: Hit Ball with Racket |
-1;1;0
|
-1 = Left ; 1 = Right ; 0 = Mixed/Both
|
|
Query
|
lat_hammer |
Integer |
|
Recommended |
Hand Preference: Hammer |
-1;1;0
|
-1 = Left ; 1 = Right ; 0 = Mixed/Both
|
|
Query
|
lat_screw |
Integer |
|
Recommended |
Hand Preference: Screwdriver |
-1;1;0
|
-1 = Left ; 1 = Right ; 0 = Mixed/Both
|
|
Query
|
lat_saw |
Integer |
|
Recommended |
Hand Preference: Saw |
-1;1;0
|
-1 = Left ; 1 = Right ; 0 = Mixed/Both
|
|
Query
|
lat_coin |
Integer |
|
Recommended |
Hand Preference: Flip Coin |
-1;1;0
|
-1 = Left ; 1 = Right ; 0 = Mixed/Both
|
|
Query
|
lat_key |
Integer |
|
Recommended |
Hand Preference: Open Door with Key |
-1;1;0
|
-1 = Left ; 1 = Right ; 0 = Mixed/Both
|
|
Query
|
lat_hand |
Integer |
|
Recommended |
Hand Preference: Overall Hand Preference (mixed requires 3 or more tasks done with nondominant hand) |
-1;1;0
|
-1 = Left ; 1 = Right ; 0 = Mixed/Both
|
|
Query
|
lat_write |
Integer |
|
Recommended |
Hand Preference: Preferred Writing Hand |
-1;1;0
|
-1 = Left ; 1 = Right ; 0 = Used Equally (no preference)
|
|
Query
|
lat_handscore |
Float |
|
Recommended |
Hand Preference: Hand Laterality Score |
|
postitive indicates higher right preference
|
|
Query
|
lat_sg_err |
Integer |
|
Recommended |
Skilled Gesture Errors |
0::4
|
0 = NORMAL ; 1 = MINIMAL DIFFICULTIES ; 2 = MILD DIFFICULTIES ; 3 = MODERATE DIFFICULTIES ; 4 = SEVERE DIFFICULTIES
|
|
Query
|
gs_rightaxial |
Integer |
|
Recommended |
Gaits & Stations: Right Axial |
0::10
|
|
|
Query
|
gs_leftaxial |
Integer |
|
Recommended |
Gaits & Stations: Left Axial |
0::10
|
|
|
Query
|
gs_totaxial |
Integer |
|
Recommended |
Gaits & Stations: Total Axial |
0::28
|
|
|
Query
|
gs_rightof |
Integer |
|
Recommended |
Gaits & Stations: Right Overflow |
0::3
|
|
|
Query
|
gs_leftof |
Integer |
|
Recommended |
Gaits & Stations: Left Overflow |
0::3
|
|
|
Query
|
gs_totof |
Integer |
|
Recommended |
Gaits & Stations: Total Overflow |
0::6
|
|
|
Query
|
gs_rightinvol |
Integer |
|
Recommended |
Gaits & Stations: Right Miscellaneous & Involuntary |
0::7
|
|
|
Query
|
gs_leftinvol |
Integer |
|
Recommended |
Gaits & Stations: Left Miscellaneous & Involuntary |
0::7
|
|
|
Query
|
gs_totinvol |
Integer |
|
Recommended |
Gaits & Stations: Total Miscellaneous & Involuntary |
0::15
|
|
|
Query
|
tmd_rightof |
Integer |
|
Recommended |
Timed: Right Overflow |
0::12
|
|
|
Query
|
tmd_leftof |
Integer |
|
Recommended |
Timed: Left Overflow |
0::12
|
|
|
Query
|
tmd_rightdysr |
Integer |
|
Recommended |
Timed: Right Dysrhythmia |
0::6
|
|
|
Query
|
tmd_leftdysr |
Integer |
|
Recommended |
Timed: Left Dysrhythmia |
0::6
|
|
|
Query
|
tmd_rightmisc |
Integer |
|
Recommended |
Timed: Right Miscellaneous Observations |
0::3
|
|
|
Query
|
tmd_leftmisc |
Integer |
|
Recommended |
Timed: Left Miscellaneous Observations |
0::3
|
|
|
Query
|
tmd_rightsfa |
Integer |
|
Recommended |
Timed: Right SFA (Standard deviation From Average) |
0::12
|
|
|
Query
|
tmd_leftsfa |
Integer |
|
Recommended |
Timed: Left SFA (Standard deviation From Average) |
0::12
|
|
|
Query
|
naa_gs_rightof |
Integer |
|
Recommended |
Right Overflow-Gaits, Not Accounting for Age (NAA) |
0::3
|
|
|
Query
|
naa_gs_leftof |
Integer |
|
Recommended |
Left Overflow-Gaits, Not Accounting for Age (NAA) |
0::3
|
|
|
Query
|
naa_gs_totof |
Integer |
|
Recommended |
Total Overflow-Gaits, Not Accounting for Age (NAA) |
0::6
|
|
|
Query
|
naa_tmd_rightof |
Integer |
|
Recommended |
Right Overflow-Timed, Not Accounting for Age (NAA) |
0::12
|
|
|
Query
|
naa_tmd_leftof |
Integer |
|
Recommended |
Left Overflow-Timed, Not Accounting for Age (NAA) |
0::12
|
|
|
Query
|
naa_tmd_totof |
Integer |
|
Recommended |
Total Overflow-Timed, Not Accounting for Age (NAA) |
0::25
|
|
|
Query
|
naa_pan_totof |
Integer |
|
Recommended |
Total Overflow, Not Accounting for Age (NAA) - (Total Gaits OF plus Total Timed OF, not accounting for age) |
0::31
|
|
|
Query
|
pan_tics |
Integer |
|
Recommended |
Any notes regarding observed tics (or likely/possible tics)? |
0;1
|
0 = No; 1 = Yes
|
|
Query
|
pan_dystonia |
Integer |
|
Recommended |
Any evidence of dystonia noted? |
0;1
|
0 = No; 1 = Yes
|
|
Query
|
pan_hemiparetic |
Integer |
|
Recommended |
Any hemiparetic postures? |
0;1
|
0 = No; 1 = Yes
|
|
Query
|
visit |
String |
60
|
Recommended |
Visit name |
|
|
|