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NIMH Data Archive
NDA ABCD CCF OAI NIAAADA AMP SCZ HEAL

Questionnaire on Resources and Stress

175 Shared Subjects

The measurement of stress in families of developmentally delayed or mentally retarded children as defined by Sally Rogers' lab at UC, Davis
Clinical Assessments
Stress
05/24/2012
q_resources_stress01
05/24/2012
View Change History
01
Definition
Submission Template
Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR*
src_subject_id String 20 Required Subject ID how it's defined in lab/project
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY Addate
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0::1440 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month. ADagemos
Query interview_chrono_age Integer Recommended Interview Chronological Age 0 :: 1200
Query interview_adj_age Integer Recommended Interview Adjusted Age 0 :: 1200
sex String 20 Required Sex of subject at birth M;F; O; NR M = Male; F = Female; O=Other; NR = Not reported SEX, gender
comments_misc String 4,000 Recommended Miscellaneous comments on study, interview, methodology relevant to this form data
Query respondent String 20 Recommended Respondent
Mother;Father;Parent;Guardian;Teacher;Child;Self;Caregiver;Partner;Other
Query hol101 String 20 Recommended 1. (child) demands that others do things for him/her more Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
Query hol102 String 20 Recommended 2. (child) understands the idea of time. Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
Query hol103 String 20 Recommended 3. I have had to give up education (or a job) because of Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
Query hol104 String 20 Recommended 4. Members of the family share in the care of (child). Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
Query hol105 String 20 Recommended 5. Even if people don't look at (child), I am always wond Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
Query hol106 String 20 Recommended 6. (child) does not have problems with seeing or hearing Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
Query hol107 String 20 Recommended 7. I take on responsibility for (child) because I know h Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
Query hol108 String 20 Recommended 8. (child) has some unusual habits which draw attention. Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
Query hol109 String 20 Recommended 9. A physician sees (child) at least once a month. Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
Query hol110 String 20 Recommended 10. The special opportunities needed by (child) are avai Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
Query hol111 String 20 Recommended 11. I watch (child) to make sure he/she does not do physi Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
Query hol112 String 20 Recommended 12. (child) would be in no danger if he/she could get out Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
Query hol113 String 20 Recommended 13. I feel that our family situation will get better. Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
Query hol114 String 20 Recommended 14. Medicine does not have to be given to (child) . Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
Query hol115 String 20 Recommended 15. (child) doesn't communicate with others of his/her a Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
Query hol116 String 20 Recommended 16. Other members of the family have to do without things Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
Query hol117 String 20 Recommended 17. (child)'s problems or illness do not stand in the way Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
Query hol118 String 20 Recommended 18. When others are around (child) I cannot relax; I am a Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
Query hol119 String 20 Recommended 19. Professionals (nurses, etc.) in an institution would Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
Query hol120 String 20 Recommended 20. I worry about what will happen to (child) when I can Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
Query hol121 String 20 Recommended 21. I would rather be caring for (child) than doing some Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
Query hol122 String 20 Recommended 22. I have given up things I have really wanted to do in Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
Query hol123 String 20 Recommended 23. (child) is able to fit into the family social group. Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
Query hol124 String 20 Recommended 24. Some members of my family don't like the way I do thi Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
Query hol125 String 20 Recommended 25. It appears to me that it doesn't make any difference Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
Query hol126 String 20 Recommended 26. (child) knows the difference between strangers and fr Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
Query hol127 String 20 Recommended 27. I am afraid that other members of the family will be Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
Query hol128 String 20 Recommended 28. I avoid (child) taking out in public. Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
Query hol129 String 20 Recommended 29. People simply don't understand what it is like to liv Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
Query hol130 String 20 Recommended 30. (child) can feed himself/herself. Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
Query hol131 String 20 Recommended 31. There have been no emotional problems for anyone in o Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
Query hol132 String 20 Recommended 32. Our relatives have been helpful. Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
Query hol133 String 20 Recommended 33. It is easier for me to do something for (child) than Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
Query hol134 String 20 Recommended 34. (child) is easy to manage. Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
Query hol135 String 20 Recommended 35. I feel that I must protect (child) from the remarks o Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
Query hol136 String 20 Recommended 36. I have difficulty in leaving the house because of (ch Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
Query hol137 String 20 Recommended 37. The community is used to people like (child). Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
Query hol138 String 20 Recommended 38. Some friends are helpful when it comes to (child). Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
Query hol139 String 20 Recommended 39. The family does as many things together now as we eve Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
Query hol140 String 20 Recommended 40. (child) knows his/her address. Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
Query hol141 String 20 Recommended 41. (child) is aware of who he/she is (for example, male, Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
Query hol142 String 20 Recommended 42. My spouse's poor understanding of (child)'s difficult Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
Query hol143 String 20 Recommended 43. I feel embarrassed because of (child) . Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
Query hol144 String 20 Recommended 44. Having to care for has enriched our family life. Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
Query hol145 String 20 Recommended 45. It makes me feel good to know I can take care of (chi Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
Query hol146 String 20 Recommended 46. (child) does not interfere with our family's enjoyme Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
Query hol147 String 20 Recommended 47. I do not have enough time to give the other members o Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
Query hol148 String 20 Recommended 48. There are places where we can enjoy ourselves as a fa Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
Query hol149 String 20 Recommended 49. It is not hard to think of enough things to keep (ch Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
Query hol150 String 20 Recommended 50. (child) is over-protected. Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
Query hol151 String 20 Recommended 51. Some of our family do not bring friends into the home Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
Query hol152 String 20 Recommended 52. I participate in an organization for families who sha Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
Query hol153 String 20 Recommended 53. If I were healthier it would be easier to care for (c Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
Query hol154 String 20 Recommended 54. People in public places indicate they don't want (chi Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
Query hol155 String 20 Recommended 55. (child) can get around the neighborhood quite nicely Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
Query hol156 String 20 Recommended 56. I have enough time to myself. Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
Query hol157 String 20 Recommended 57. I have too much responsibility. Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
Query hol158 String 20 Recommended 58. I am afraid that as (child) gets older it will be ha Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
Query hol159 String 20 Recommended 59. It is easy to keep (child) entertained. Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
Query hol160 String 20 Recommended 60. (child) wants to do things for himself/herself. Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
Query hol161 String 20 Recommended 61. I feel sad when I think of (child). Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
Query hol162 String 20 Recommended 62. The demands to care for (child) limit my growth and d Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
Query hol163 String 20 Recommended 63. I have become more understanding in my relationships Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
Query hol164 String 20 Recommended 64. Our family should do more together. Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
Query hol165 String 20 Recommended 65. Caring for (child) puts a strain on me. Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
Query hol166 String 20 Recommended 66. Members of our family get to do the same kinds of thi Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
Query hol167 String 20 Recommended 67. (child) embarrasses others in our family. Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
Query hol168 String 20 Recommended 68. The demands (child) makes drives me out of my mind. Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
Query hol169 String 20 Recommended 69. My family understands the problems I have. Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
Query hol170 String 20 Recommended 70. I often have the desire to protect (child). Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
Query hol171 String 20 Recommended 71. (child)'s care falls on me. Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
Query hol172 String 20 Recommended 72. No one can understand what I go through. Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
Query hol173 String 20 Recommended 73. All members of the family are involved in household c Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
Query hol174 String 20 Recommended 74. (child) is irritable. Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
Query hol175 String 20 Recommended 75. We have lost friends because of (child). Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
Query hol176 String 20 Recommended 76. I am worried much of the time. Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
Query hol177 String 20 Recommended 77. (child) 's needs come first. Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
Query hol178 String 20 Recommended 78. My spouse has a great deal of insight into (child)'s Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

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