|
subjectkey |
GUID |
|
Required |
The NDAR Global Unique Identifier (GUID) for research subject |
NDAR*
|
|
|
|
src_subject_id |
String |
20
|
Required |
Subject ID how it's defined in lab/project |
|
|
id |
|
interview_date |
Date |
|
Required |
Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY |
|
|
date |
|
interview_age |
Integer |
|
Required |
Age in months at the time of the interview/test/sampling/imaging. |
0 :: 1260
|
Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
|
|
|
sex |
String |
20
|
Required |
Sex of subject at birth |
M;F; O; NR
|
M = Male; F = Female; O=Other; NR = Not reported
|
gender |
Query
|
relationship |
Integer |
|
Recommended |
Relationship of respondent to individual |
|
1 = Biological mom; 2 = Biological dad; 3 = Grandparent; 4 = Special education (sped) teacher; 5 = General education teacher; 6 = Occupational therapist; 7 = Speech and language therapist; 8 = Behavioral therapist; 9 = Paraprofessional; 10 = Aide; 11 = Principal; 12 = Administrator; 14 = Content teacher; 15 = Parent center director; 16 = Self; 17=Adoptive mother; 18=Adoptive father; 19=Foster mother; 20 = Foster father; 21=Grandmother; 22=Grandfather; 23=Step-mother; 24 = Step-father; 25=Aunt; 26=Uncle; 28=Both parents;31= Grandmother from mother side; 32= Grandfather from mother side; 33= Grandmother from father side; 34= Grandfather from father side; 36= Brother; 37= Sister; 38= Cousin; 39= female caregiver; 40=male caregiver; 41=Female child; 42=Male child; 43=Spouse/Mate; 44=Friend; 45=Parent; 46=Significant other; 47=Sibling; 48=Son/Daughter; 49=Son-in-law/Daughter-in law; 50=Other Relative; 51=Paid caregiver; 52=Friends; 53=Roommate; 54=Supervisor; 55=mother's boyfriend; 56=other parental figure; 57=Summary; 58=counselor ; 59 = other female relative; 60 = other male relative; 61 = non-relative ; 62=Maternal Aunt; 63=Maternal Uncle; 64=Maternal Cousin; 65 = Paternal Aunt; 66=Paternal Uncle; 67=Paternal Cousin ; 68=Biological/Adoptive Mother and Grandmother; 69=Biological/Adoptive Mother and Stepmother and Grandmother; 70=Biological/Adoptive Mother and Grandmother and Foster Father; 71=Biological/Adoptive Mother and Stepmother and Foster Mother; 72=Biological/Adoptive Mother and Foster Mother; 73=Biological/Adoptive Mother and Biological/Adoptive Father; 74=Biological/Adoptive Mother and Stepmother and Biological/Adoptive Father; 75=Biological/Adoptive Mother and Other; 76=Biological/Adoptive Mother and Stepmother and Stepfather; 77=Biological/Adoptive Mother and Stepfather; 78=Biological/Adoptive Mother and Grandfather; 79=Biological/Adoptive Mother and Stepmother and Foster Father; 80=Biological/Adoptive Mother and Stepmother; 81=Guardian, female; 82=Other female; 83=Guardian, male; 84=Other male; 85=Other/Grandparent/Nanny; 86 = Mother, Father, Guardian; 87 = Daughter, son, grandchild; 88 = Professional (e.g., social worker, nurse, therapist, psychiatrist, or group home staff); -999=Missing; 89 = Biological parent; 90=Other; 91 = Stepparent; 92 = Adoptive parent; 93 = Foster parent; 94 = Co-worker
|
respondent |
Query
|
uclals1 |
Integer |
|
Recommended |
I am unhappy doing so many things alone |
0::3
|
0=I never feel this way; 1=I rarely feel this way; 2=I sometimes feel this way; 3= I often feel this way
|
uclals_1 |
Query
|
uclals2 |
Integer |
|
Recommended |
I have nobody to talk to |
0::3
|
0=I never feel this way; 1=I rarely feel this way; 2=I sometimes feel this way; 3= I often feel this way
|
uclals_2 |
Query
|
uclals3 |
Integer |
|
Recommended |
I cannot tolerate being so alone |
0::3
|
0=I never feel this way; 1=I rarely feel this way; 2=I sometimes feel this way; 3= I often feel this way
|
uclals_3 |
Query
|
uclals4 |
Integer |
|
Recommended |
I lack companionship |
0::3
|
0=I never feel this way; 1=I rarely feel this way; 2=I sometimes feel this way; 3= I often feel this way
|
companionship, loneliness2, loneliness_q2, uclals04_1, uclals_4 |
Query
|
uclals5 |
Integer |
|
Recommended |
I feel as if nobody really understands me |
0::3
|
0=I never feel this way; 1=I rarely feel this way; 2=I sometimes feel this way; 3= I often feel this way
|
uclals_5, understand |
Query
|
uclals6 |
Integer |
|
Recommended |
I find myself waiting for people to call or write |
0::3
|
0=I never feel this way; 1=I rarely feel this way; 2=I sometimes feel this way; 3= I often feel this way
|
uclals_6 |
Query
|
uclals7 |
Integer |
|
Recommended |
There is no one I can turn to |
0::3
|
0=I never feel this way; 1=I rarely feel this way; 2=I sometimes feel this way; 3= I often feel this way
|
canturnto, loneliness3, loneliness_q3, nooneturnto, uclals_7 |
Query
|
uclals8 |
Integer |
|
Recommended |
I am no longer close to anyone |
0::3
|
0=I never feel this way; 1=I rarely feel this way; 2=I sometimes feel this way; 3= I often feel this way
|
close, loneliness7, loneliness_q7, uclals04_2, uclals_8 |
Query
|
uclals9 |
Integer |
|
Recommended |
My interests and ideas are not shared by those around me |
0::3
|
0=I never feel this way; 1=I rarely feel this way; 2=I sometimes feel this way; 3= I often feel this way
|
ideas, loneliness8, loneliness_q8, uclals_9 |
Query
|
uclals10 |
Integer |
|
Recommended |
I feel left out |
0::3
|
0=I never feel this way; 1=I rarely feel this way; 2=I sometimes feel this way; 3= I often feel this way
|
leftout, loneliness11, loneliness_q11, uclals04_3, uclals_10 |
Query
|
uclals11 |
Integer |
|
Recommended |
I feel completely alone |
0::3
|
0=I never feel this way; 1=I rarely feel this way; 2=I sometimes feel this way; 3= I often feel this way
|
loneliness4, loneliness_q4, uclals_11 |
Query
|
uclals12 |
Integer |
|
Recommended |
I am unable to reach out and communicate with those around me |
0::3
|
0=I never feel this way; 1=I rarely feel this way; 2=I sometimes feel this way; 3= I often feel this way
|
uclals_12 |
Query
|
uclals13 |
Integer |
|
Recommended |
My social relationships are superficial |
0::3
|
0=I never feel this way; 1=I rarely feel this way; 2=I sometimes feel this way; 3= I often feel this way
|
superficial, uclals_13 |
Query
|
uclals14 |
Integer |
|
Recommended |
I feel starved for company |
0::3
|
0=I never feel this way; 1=I rarely feel this way; 2=I sometimes feel this way; 3= I often feel this way
|
uclals_14 |
Query
|
uclals15 |
Integer |
|
Recommended |
No one really knows me well |
0::3
|
0=I never feel this way; 1=I rarely feel this way; 2=I sometimes feel this way; 3= I often feel this way
|
knowsme, loneliness13, loneliness_q13, uclals_15 |
Query
|
uclals16 |
Integer |
|
Recommended |
I feel isolated from others |
0::3
|
0=I never feel this way; 1=I rarely feel this way; 2=I sometimes feel this way; 3= I often feel this way
|
isolated, loneliness14, loneliness_q14, uclals04_4, uclals_16 |
Query
|
uclals17 |
Integer |
|
Recommended |
I am unhappy being so withdrawn |
0::3
|
0=I never feel this way; 1=I rarely feel this way; 2=I sometimes feel this way; 3= I often feel this way
|
uclals_17, withdraw |
Query
|
uclals18 |
Integer |
|
Recommended |
It is difficult for me to make friends |
0::3
|
0=I never feel this way; 1=I rarely feel this way; 2=I sometimes feel this way; 3= I often feel this way
|
uclals_18 |
Query
|
uclals19 |
Integer |
|
Recommended |
I feel shut out and excluded by others |
0::3
|
0=I never feel this way; 1=I rarely feel this way; 2=I sometimes feel this way; 3= I often feel this way
|
uclals_19 |
Query
|
uclals20 |
Integer |
|
Recommended |
People are around me but not with me |
0::3
|
0=I never feel this way; 1=I rarely feel this way; 2=I sometimes feel this way; 3= I often feel this way
|
aroundme, loneliness18, loneliness_q18, uclals_20 |
Query
|
uls1 |
Integer |
|
Recommended |
How often do you feel you are "in tune" with the people around you? |
|
0=Never; 1=Rarely; 2=Sometimes; 3=Always
|
intune, loneliness1, loneliness_q1, uclalsv3_01 |
Query
|
uls5 |
Integer |
|
Recommended |
How often do you feel part of a group of friends? |
|
0=Never; 1=Rarely; 2=Sometimes; 3=Always
|
group, loneliness5, loneliness_q5, uclalsv3_05 |
Query
|
uls6 |
Integer |
|
Recommended |
How often do you feel that you have a lot in common with the people around you? |
|
0=Never; 1=Rarely; 2=Sometimes; 3=Always
|
common, loneliness6, loneliness_q6, uclalsv3_06 |
Query
|
uls9 |
Integer |
|
Recommended |
How often do you feel outgoing and friendly? |
|
0=Never; 1=Rarely; 2=Sometimes; 3=Always
|
loneliness9, loneliness_q9, uclalsv3_09 |
Query
|
uls10 |
Integer |
|
Recommended |
How often do you feel close to people? |
|
0=Never; 1=Rarely; 2=Sometimes; 3=Always
|
loneliness10, loneliness_q10, uclalsv3_10 |
Query
|
uls12 |
Integer |
|
Recommended |
How often do you feel that your relationships with others are not meaningful? |
|
0=Never; 1=Rarely; 2=Sometimes; 3=Always
|
loneliness12, loneliness_q12, uclalsv3_12 |
Query
|
uls15 |
Integer |
|
Recommended |
How often do you feel you can find companionship when you want it? |
|
0=Never; 1=Rarely; 2=Sometimes; 3=Always
|
loneliness15, loneliness_q15, uclalsv3_15, wantit |
Query
|
uls16 |
Integer |
|
Recommended |
How often do you feel that there are people who really understand you? |
|
0=Never; 1=Rarely; 2=Sometimes; 3=Always
|
loneliness16, loneliness_q16, uclalsv3_16 |
Query
|
uls17 |
Integer |
|
Recommended |
How often do you feel shy? |
|
0=Never; 1=Rarely; 2=Sometimes; 3=Always
|
loneliness17, loneliness_q17, uclalsv3_17 |
Query
|
uls19 |
Integer |
|
Recommended |
How often do you feel there are people you can talk to? |
|
0=Never; 1=Rarely; 2=Sometimes; 3=Always
|
loneliness19, loneliness_q19, talkto, uclalsv3_19 |
Query
|
uls20 |
Integer |
|
Recommended |
How often do you feel that there are people you can turn to? |
|
0=Never; 1=Rarely; 2=Sometimes; 3=Always
|
loneliness20, loneliness_q20, uclalsv3_20 |
Query
|
uls_total |
Integer |
|
Recommended |
UCLA Loneliness Scale Total Score |
|
|
uclalsv3_total |
|
version_form |
String |
121
|
Recommended |
Form used/assessment name |
|
|
|
|
alone |
Integer |
|
Recommended |
Could go it alone |
1::7
|
1= Strongly Disagree;2 = Somewhat Disagree;3 = Disagree;4 = Neutral or Undecided;5 = Agree;6 = Somewhat Agree;7 = Strongly Agree; I set my personal goals and standards as high as possible
|
|
|
outgoing |
Integer |
|
Recommended |
I am an outgoing person |
0::3
|
0=Never; 1=Rarely; 2=Sometimes; 3=Often
|
|
|
closeto |
Integer |
|
Recommended |
I often think about the danger of losing someone who is close to me |
1::7
|
1= Strongly Disagree;2 = Somewhat Disagree;3 = Disagree;4 = Neutral or Undecided;5 = Agree;6 = Somewhat Agree;7 = Strongly Agree; I set my personal goals and standards as high as possible
|
|
|
timept |
Integer |
|
Recommended |
Time Point |
|
888 = not applicable; 999 = missing
|
|
|
site |
String |
101
|
Recommended |
Site |
|
Study Site
|
|
|
uls14 |
Integer |
|
Recommended |
How often do you feel isolated from others? |
|
0=Never; 1=Rarely; 2=Sometimes; 3=Always
|
uclalsv3_14 |
|
uls18 |
Integer |
|
Recommended |
How often do you feel that people are around you but not with you? |
|
0=Never; 1=Rarely; 2=Sometimes; 3=Always
|
uclalsv3_18 |
|
ls_comment |
String |
1,000
|
Recommended |
Comments |
|
|
|
|
uls2 |
Integer |
|
Recommended |
How often do you feel that you lack companionship? |
|
0=Never; 1=Rarely; 2=Sometimes; 3=Always
|
uclalsv3_02 |
|
uls3 |
Integer |
|
Recommended |
How often do you feel that there is no one you can turn to? |
|
0=Never; 1=Rarely; 2=Sometimes; 3=Always
|
uclalsv3_03 |
|
uls4 |
Integer |
|
Recommended |
How often do you feel alone? |
|
0=Never; 1=Rarely; 2=Sometimes; 3=Always
|
uclalsv3_04 |
|
uls7 |
Integer |
|
Recommended |
How often do you feel that you are no longer close to anyone? |
|
0=Never; 1=Rarely; 2=Sometimes; 3=Always
|
uclalsv3_07 |
|
uls8 |
Integer |
|
Recommended |
How often do you feel that your interests and ideas are not shared by those around you? |
|
0=Never; 1=Rarely; 2=Sometimes; 3=Always
|
uclalsv3_08 |
|
uls11 |
Integer |
|
Recommended |
How often do you feel left out? |
|
0=Never; 1=Rarely; 2=Sometimes; 3=Always
|
uclalsv3_11 |
|
uls13 |
Integer |
|
Recommended |
How often do you feel that no one really knows you well? |
|
0=Never; 1=Rarely; 2=Sometimes; 3=Always
|
uclalsv3_13 |
|
uclalsnew01 |
Integer |
|
Recommended |
How often do you feel isolated from others? |
1::3; 94::98; -99; -98; -97
|
1= Hardly ever; 2= Some of the time; 3= Often; 94=Refused to answer; 95=Do not know; 96=Missing; 97=Accidentally skipped; 98=Purposely skipped; -99= N/A or Refused; -97=Missing online; -98=Purposely skipped online
|
ylnm01 |
|
uclalsnew02 |
Integer |
|
Recommended |
How often do you feel that you lack companionship? |
1::3; 94::98; -99; -98; -97
|
1= Hardly ever; 2= Some of the time; 3= Often; 94=Refused to answer; 95=Do not know; 96=Missing; 97=Accidentally skipped; 98=Purposely skipped; -99= N/A or Refused; -97=Missing online; -98=Purposely skipped online
|
ylnm02 |
|
uclalsnew03 |
Integer |
|
Recommended |
How often do you feel left out? |
1::3; 94::98; -99; -98; -97
|
1= Hardly ever; 2= Some of the time; 3= Often; 94=Refused to answer; 95=Do not know; 96=Missing; 97=Accidentally skipped; 98=Purposely skipped; -99= N/A or Refused; -97=Missing online; -98=Purposely skipped online
|
ylnm03 |
|
lonely_area |
Integer |
|
Recommended |
I feel lonely living in the area where I live in. [adapted based on doi:10.1186/s12889-020-08703-8] |
0::3;888;999
|
0=I never feel this way; 1=I rarely feel this way; 2=I sometimes feel this way; 3= I often feel this way; 888= Don''t know; 999= No answer
|
|
|
uclals17_4pt |
Integer |
|
Recommended |
I am unhappy being so withdrawn |
1::4
|
1=I never feel this way; 2=I hardly ever feel this way; 3=I sometimes feel this way; 4= I often feel this way
|
|
|
uclals4_4pt |
Integer |
|
Recommended |
I lack companionship |
1::4
|
1=I never feel this way; 2=I hardly ever feel this way; 3=I sometimes feel this way; 4= I often feel this way
|
|
|
uclals7_4pt |
Integer |
|
Recommended |
There is no one I can turn to |
1::4
|
1=I never feel this way; 2=I hardly ever feel this way; 3=I sometimes feel this way; 4= I often feel this way
|
|
|
outgoing_4pt |
Integer |
|
Recommended |
I am an outgoing person |
1::4
|
1=I never feel this way; 2=I hardly ever feel this way; 3=I sometimes feel this way; 4= I often feel this way
|
|
|
uclals10_4pt |
Integer |
|
Recommended |
I feel left out |
1::4
|
1=I never feel this way; 2=I hardly ever feel this way; 3=I sometimes feel this way; 4= I often feel this way
|
|
|
uclals16_4pt |
Integer |
|
Recommended |
I feel isolated from others |
1::4
|
1=I never feel this way; 2=I hardly ever feel this way; 3=I sometimes feel this way; 4= I often feel this way
|
|
|
uls15_4pt |
Integer |
|
Recommended |
How often do you feel you can find companionship when you want it? |
1::4
|
1=I never feel this way; 2=I hardly ever feel this way; 3=I sometimes feel this way; 4= I often feel this way
|
|
|
uclals20_4pt |
Integer |
|
Recommended |
People are around me but not with me |
1::4
|
1=I never feel this way; 2=I hardly ever feel this way; 3=I sometimes feel this way; 4= I often feel this way
|
|
|
loneliness_8 |
Integer |
|
Recommended |
How often do you feel that your interests and ideas are not shared by those around you? |
1::4;9999
|
1 = Never; 2 = Rarely; 3 = Sometimes; 4 = Always; 9999 = Unknown (not answered)
|
|
|
loneliness_9 |
Integer |
|
Recommended |
How often do you feel outgoing and friendly? |
1::4;9999
|
4 = Never; 3 = Rarely; 2 = Sometimes; 1 = Always; 9999 = Unknown (not answered)
|
|
|
loneliness_10 |
Integer |
|
Recommended |
How often do you feel close to people? |
1::4;9999
|
4 = Never; 3 = Rarely; 2 = Sometimes; 1 = Always; 9999 = Unknown (not answered)
|
|
|
loneliness_11 |
Integer |
|
Recommended |
How often do you feel left out? |
1::4;9999
|
1 = Never; 2 = Rarely; 3 = Sometimes; 4 = Always; 9999 = Unknown (not answered)
|
|
|
loneliness_12 |
Integer |
|
Recommended |
How often do you find that your relationships with others are not meaningful? |
1::4;9999
|
1 = Never; 2 = Rarely; 3 = Sometimes; 4 = Always; 9999 = Unknown (not answered)
|
|
|
loneliness_13 |
Integer |
|
Recommended |
How often do you feel that no one really knows you well? |
1::4;9999
|
1 = Never; 2 = Rarely; 3 = Sometimes; 4 = Always; 9999 = Unknown (not answered)
|
|
|
loneliness_14 |
Integer |
|
Recommended |
How often do you feel isolated from others? |
1::4;9999
|
1 = Never; 2 = Rarely; 3 = Sometimes; 4 = Always; 9999 = Unknown (not answered)
|
|
|
loneliness_15 |
Integer |
|
Recommended |
Can you find companionship when you want it? |
1::4;9999
|
4 = Never; 3 = Rarely; 2 = Sometimes; 1 = Always; 9999 = Unknown (not answered)
|
|
|
loneliness_16 |
Integer |
|
Recommended |
How often do you feel that there are people who really understand you? |
1::4;9999
|
4 = Never; 3 = Rarely; 2 = Sometimes; 1 = Always; 9999 = Unknown (not answered)
|
|
|
loneliness_17 |
Integer |
|
Recommended |
How often do you feel shy? |
1::4;9999
|
1 = Never; 2 = Rarely; 3 = Sometimes; 4 = Always; 9999 = Unknown (not answered)
|
|
|
loneliness_18 |
Integer |
|
Recommended |
How often do you feel that people are around you but not with you? |
1::4;9999
|
1 = Never; 2 = Rarely; 3 = Sometimes; 4 = Always; 9999 = Unknown (not answered)
|
|
|
loneliness_19 |
Integer |
|
Recommended |
How often do you feel that there are people you can talk to? |
1::4;9999
|
4 = Never; 3 = Rarely; 2 = Sometimes; 1 = Always; 9999 = Unknown (not answered)
|
|
|
loneliness_20 |
Integer |
|
Recommended |
How often do you feel that there are people you can turn to for help? |
1::4;9999
|
4 = Never; 3 = Rarely; 2 = Sometimes; 1 = Always; 9999 = Unknown (not answered)
|
|
|
loneliness_total |
Integer |
|
Recommended |
Total Loneliness Score |
|
Sum([loneliness_1] to [loneliness_20])
|
|
|
loneliness_1 |
Integer |
|
Recommended |
How often do you feel that you are ''in tune'' (in synch; feeling similar feelings) with the people around you? |
1::4;9999
|
4 = Never; 3 = Rarely; 2 = Sometimes; 1 = Always; 9999 = Unknown (not answered)
|
|
|
loneliness_2 |
Integer |
|
Recommended |
How often do you feel that you lack companionship? |
1::4;9999
|
1 = Never; 2 = Rarely; 3 = Sometimes; 4 = Always; 9999 = Unknown (not answered)
|
|
|
loneliness_3 |
Integer |
|
Recommended |
How often do you feel that there is no one you can turn to? |
1::4;9999
|
1 = Never; 2 = Rarely; 3 = Sometimes; 4 = Always; 9999 = Unknown (not answered)
|
|
|
loneliness_4 |
Integer |
|
Recommended |
How often do you feel alone? |
1::4;9999
|
1 = Never; 2 = Rarely; 3 = Sometimes; 4 = Always; 9999 = Unknown (not answered)
|
|
|
loneliness_5 |
Integer |
|
Recommended |
How often do you feel like you are part of a group of friends? |
1::4;9999
|
4 = Never; 3 = Rarely; 2 = Sometimes; 1 = Always; 9999 = Unknown (not answered)
|
|
|
loneliness_6 |
Integer |
|
Recommended |
How often do you feel that you have a lot in common with the people around you? |
1::4;9999
|
4 = Never; 3 = Rarely; 2 = Sometimes; 1 = Always; 9999 = Unknown (not answered)
|
|
|
loneliness_7 |
Integer |
|
Recommended |
How often do you feel that you are no longer close to anyone? |
1::4;9999
|
1 = Never; 2 = Rarely; 3 = Sometimes; 4 = Always; 9999 = Unknown (not answered)
|
|
|
timepoint_label |
String |
50
|
Recommended |
Timepoint/visit label |
|
|
|
|
uls1_r |
Integer |
|
Recommended |
I felt in tune with the people around me. |
1::4
|
1=Extremely true; 2 = Somewhat true; 3 = A little bit true; 4 = Not at all true
|
|
|
uls15_r |
Integer |
|
Recommended |
I could find companionship when I wanted it. |
1::4
|
1=Extremely true; 2 = Somewhat true; 3 = A little bit true; 4 = Not at all true
|
|
|
x74ne_b_4 |
Integer |
|
Recommended |
How often do you feel alone? |
0::2; 94::98; -97; -98
|
0 = Hardly ever; 1 = Some of the time; 2 = Often; 94=Refused to answer; 95=Do not know; 96=Missing; 97=Accidentally skipped; 98=Purposely skipped; -97=Missing online; -98=Purposely skipped online
|
|
|
x74ne_b_5 |
Integer |
|
Recommended |
How often have you felt lonely in the past week? |
0::2; 94::98; -97; -98
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0 = Hardly ever; 1 = Some of the time; 2 = Often; 94=Refused to answer; 95=Do not know; 96=Missing; 97=Accidentally skipped; 98=Purposely skipped; -97=Missing online; -98=Purposely skipped online
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