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NIMH Data Archive
NDA ABCD CCF OAI NIAAADA AMP SCZ HEAL

Interval Medical History

155 Shared Subjects

Interval Medical History
Clinical Assessments
Med History
07/05/2013
int_medhist01
11/23/2021
View Change History
01
Definition
Submission Template
Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR*
src_subject_id String 20 Required Subject ID how it's defined in lab/project
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0::1440 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
sex String 20 Required Sex of subject at birth M;F; O; NR M = Male; F = Female; O=Other; NR = Not reported gender
Query diag_changes Integer Recommended Changes in diagnostic history since last visit? 0; 1 0 = No; 1 = Yes
Query age_concern Integer Recommended Age of first developmental concern (months) 0 :: 1200
Query concern_speech Integer Recommended First concerns related to diagnosis - Speech delay 0; 1 0 = No; 1 = Yes
Query concern_repbeh Integer Recommended First concerns related to diagnosis - Repetitive behaviors 0; 1 0 = No; 1 = Yes
Query concern_socdif Integer Recommended First concerns related to diagnosis - Social difficulty 0; 1 0 = No; 1 = Yes
Query concern_motdel Integer Recommended First concerns related to diagnosis - Motor delay 0; 1 0 = No; 1 = Yes
Query concern_learndis Integer Required First concerns related to diagnosis - Learning disabilities 0; 1;999 0 = No; 1 = Yes
Query concern_other Integer Recommended First concerns related to diagnosis - Other 0; 1 0 = No; 1 = Yes
Query aut_diag_new Integer Required Autism related diagnosis by physician or other professional since last visit? 0; 1;999 0 = No; 1 = Yes
Query child_aspergers String 50 Required Does the Child have Asperger's Syndrome?
Yes; No; NK; NS
NK= Not known; NS = Not sure
Query child_pddnos String 50 Required Does the Child have PDD-NOS (Pervasive Development Disorder-Not Otherwise Specified)?
Yes; No; NK; NS
NK= Not known; NS = Not sure
Query cfmh_chd_pddnos Integer Required Does the child have Autism Spectrum Disorder? 1;0;999 0 = No; 1 = Yes
Query child_autism String 50 Required Does the Child have Autism?
Yes; No; NK; NS
NK= Not known; NS = Not sure
Query aut_diag_other Integer Recommended Autism-related diagnosis - Other 0; 1 0 = No; 1 = Yes
Query diag_ageatdiag Integer Recommended Age at diagnosis(in months)
0 :: 1200
Query diag_diagnosismadeby String 50 Recommended Diagnosis made by Physician;Psychologist;Other; NK NK = Not known
Query devel_changes Integer Recommended Any changes in developmental history since last visit? 1; 2; 9 1 = Yes; 2 = No; 9 = Not applicable
Query walk10 Integer Recommended Walking 10 steps? 1; 2; 9 1 = Yes; 2 = No; 9 = Not applicable
Query walk10_age Integer Recommended Walking 10 steps - age 0 :: 1200
Query first_words Integer Recommended First words? 1; 2; 9 1 = Yes; 2 = No; 9 = Not applicable
Query ad016 Integer Recommended Age of first single words (months) 994 = Milestone not reached; 996 = N/K, but apparently normal; 997 = N/K, but apparently delayed; 998 = N/A; 999 = N/K or not asked
Query speak3word Integer Recommended Speaking 3-word sentences? 1; 2; 9 1 = Yes; 2 = No; 9 = Not applicable
Query age_3word Integer Recommended Age at 3-word sentences (in months)
Query changes_lang Integer Recommended Changes in speech/language since last visit? 1; 2; 9 1 = Yes; 2 = No; 9 = Not applicable
Query changes_langhow Integer Recommended Changes in speech/language - how verbal? 1 :: 3 1 = Verbal; 2 = Minimally verbal; 3 = Non-verbal
Query diag_learndis Integer Required Any new diagnoses of learning disabilities? 1; 2; 9 1 = Yes; 2 = No; 9 = Not applicable
Query diag_learndis_det String 255 Recommended New diagnoses of learning disabilities - Specify
Query othmem_devdelay String 50 Recommended Developmental Delay
Yes;No; NK
NK = Not known
Query devdelay_det String 255 Recommended New diagnoses of developmental delay - Specify
Query diag_id Integer Recommended New diagnoses of intellectual disability/mental retardation? 1; 2; 9 1 = Yes; 2 = No; 9 = Not applicable
Query diag_iddet String 255 Recommended New diagnoses of intellectual disability/mental retardation - Specify
Query changes_treat Integer Recommended Any changes in treatment/intervention history? 1; 2; 9 1 = Yes; 2 = No; 9 = Not applicable
Query interv_speech Integer Recommended Treatment/Intervention - Speech 1; 2 1 = Yes; 2 = No
Query interv_speech_age Integer Recommended Treatment/Intervention - Speech - Age at start of treatment 0 :: 1200
Query interv_speech_often Integer Recommended Treatment/Intervention - Speech - How Often 1; 2; 3; 4; 9 1 = Daily; 2 = Once weekly; 3 = Multiple times/week; 4 = Monthly; 9 = Unknown
Query interv_octher Integer Recommended Treatment/Intervention - Occupational Therapy 1; 2 1 = Yes; 2 = No
Query interv_octher_age Integer Recommended Treatment/Intervention - Occupational Therapy - Age at start of treatment 0 :: 1200
Query interv_octher_often Integer Recommended Treatment/Intervention - Occupational Therapy - How Often 1; 2; 3; 4; 9 1 = Daily; 2 = Once weekly; 3 = Multiple times/week; 4 = Monthly; 9 = Unknown
Query interv_physther Integer Recommended Treatment/Intervention - Physical Therapy 1; 2 1 = Yes; 2 = No
Query interv_physther_age Integer Recommended Treatment/Intervention - Physical Therapy - Age at start of treatment 0 :: 1200
Query interv_physther_often Integer Recommended Treatment/Intervention - Physical Therapy - How Often 1; 2; 3; 4; 9 1 = Daily; 2 = Once weekly; 3 = Multiple times/week; 4 = Monthly; 9 = Unknown
Query interv_earlyint Integer Recommended Treatment/Intervention - Early Intervention 1; 2 1 = Yes; 2 = No
Query interv_earlyint_age Integer Recommended Treatment/Intervention - Early Intervention - Age at start of treatment 0 :: 1200
Query interv_earlyint_often Integer Recommended Treatment/Intervention - Early Intervention - How Often 1; 2; 3; 4; 9 1 = Daily; 2 = Once weekly; 3 = Multiple times/week; 4 = Monthly; 9 = Unknown
Query interv_aba Integer Recommended Treatment/Intervention - Applied Behavioral Analysis 1; 2 1 = Yes; 2 = No
Query interv_aba_age Integer Recommended Treatment/Intervention - Applied Behavioral Analysis - Age at start of treatment 0 :: 1200
Query interv_aba_often Integer Recommended Treatment/Intervention - Applied Behavioral Analysis - How Often 1; 2; 3; 4; 9 1 = Daily; 2 = Once weekly; 3 = Multiple times/week; 4 = Monthly; 9 = Unknown
Query interv_other Integer Recommended Treatment/Intervention - Other Options 1; 2 1 = Yes; 2 = No
Query interv_other_age Integer Recommended Treatment/Intervention - Other Options - Age at start of treatment 0 :: 1200
Query interv_other_often Integer Recommended Treatment/Intervention - Other Options - How Often 1; 2; 3; 4; 9 1 = Daily; 2 = Once weekly; 3 = Multiple times/week; 4 = Monthly; 9 = Unknown
Query changes_any Integer Recommended Any changes in the history of any medical problems/conditions in the following body systems or in status of genetic testing since last study visit? 1; 2; 9 1 = Yes; 2 = No; 9 = Unknown
Query rev_headmeningitis String 50 Recommended Meningitis Yes; No; NK; NS NK= Not known; NS = Not sure
rev_headmeningitisorg String 255 Recommended Meningitis: Organism
Query rev_headencephalitis String 50 Recommended Encephalitis
Yes; No; NK; NS
NK= Not known; NS = Not sure
rev_headencephalitisorg String 255 Recommended Encephalitis: Organism
Query rev_headfebseiz String 50 Recommended Febrile Seizures
Yes; No; NK; NS
NK= Not known; NS = Not sure
Query febseiz_eeg Integer Recommended Head/Brain - Febrile Seizures - EEG done? 1; 2; 9 1 = Yes; 2 = No; 9 = Unknown
Query febseiz_eeg_res Integer Recommended Head/Brain - Febrile Seizures - EEG results 1; 2 1 = Normal; 2 = Abnormal
Query nonfebseiz Integer Recommended Head/Brain - Non-Febrile Seizures 1; 2; 9 1 = Yes; 2 = No; 9 = Unknown
Query nonfebseiz_eeg Integer Recommended Head/Brain - Non-Febrile Seizures - EEG done? 1; 2; 9 1 = Yes; 2 = No; 9 = Unknown
Query nonfebseiz_eeg_res Integer Recommended Head/Brain - Non-Febrile Seizures - EEG results 1; 2 1 = Normal; 2 = Abnormal
Query fhxcp String 5 Required Cerebral Palsy
Yes;No; NK
NK = Not known
Query hist_trauma String 10 Recommended History of head trauma
Yes; No; NK; NS
NK= Not known; NS = Not sure
Query rev_headimagestudy String 50 Recommended Imaging Studies
Yes;No;NK
NK = Not known
rev_headimagestudytype String 50 Recommended Imaging Studies: Type US;CT;MR;PET;EEG; MR; any combinations of these types
rev_headimagestudyresult String 255 Recommended Imaging Studies: Results Normal; Abnormal
Query brain_mri Integer Recommended Head/Brain - Brain MRI performed? 1; 2; 9 1 = Yes; 2 = No; 9 = Unknown
Query brain_mri_corttub Integer Recommended Head/Brain - Brain MRI - Cortical tuber 0; 1 0 = No; 1 = Yes
Query brain_mri_subnod Integer Recommended Head/Brain - Brain MRI - Subependymal Nodule 0; 1 0 = No; 1 = Yes
Query brain_mri_astroc Integer Recommended Head/Brain - Brain MRI - Subependymal giant cell - Astrocytoma 0; 1 0 = No; 1 = Yes
Query vis_blind String 10 Recommended Significant visual loss or congenital blindness Yes; No; NK NK = Not known
Query eyes_tsc Integer Recommended Eyes - TSC-related findings 1; 2; 9 1 = Yes; 2 = No; 9 = Unknown
Query eyes_tsc_det String 255 Recommended Eyes - TSC-related findings - Specify
Query rev_eartest String 50 Recommended Hearing Testing:
Yes;No;NK
NK = Not known
Query rev_eartestresult String 50 Recommended Hearing Testing: Result Normal;Abnormal;Unknown
Query hear_loss String 10 Required Deafness or significant hearing loss
Yes;No;NK
NK = Not known
Query othmem_hearingcor String 50 Recommended Hearing corrected?
Yes;No; NK
NK = Not known
Query rev_earrecuotitis String 50 Required Recurrent Otitis Media
Yes; No; NK; NS
NK= Not known; NS = Not sure
Query rev_earrecuotitisyear Integer Recommended Recurrent Otitis Media: #Year
Query rev_earpetube String 50 Recommended PE Tubes
Yes;No;NK
NK = Not known
Query rev_mouthcleftlip String 50 Recommended Is there a cleft lip and/or cleft palate?
Yes;No;NK
NK = Not known
Query rev_mouthcleftpalate String 50 Recommended Cleft Palate
Yes;No;NK
NK = Not known
Query neonat_teeth Integer Recommended Teeth - Neonatal teeth 1; 2; 9 1 = Yes; 2 = No; 9 = Unknown
Query rev_teethdentalab String 50 Recommended Dental abnormalities
Yes;No;NK
NK = Not known
Query rev_neckspinalab String 50 Recommended Spinal abnormalities
Yes;No;NK
NK = Not known
Query rev_skineczema String 50 Recommended Eczema
Yes;No;NK
NK = Not known
Query skin_tsc1 Integer Recommended Skin - TSC skin manifestations 1; 2; 9 1 = Yes; 2 = No; 9 = Unknown
Query skin_tsc2 Integer Recommended Skin - TSC skin manifestations - Hypopigmented macules 0; 1 0 = No; 1 = Yes
Query skin_tsc3 Integer Recommended Skin - TSC skin manifestations - Shagreen patch 0; 1 0 = No; 1 = Yes
Query skin_tsc4 Integer Recommended Skin - TSC skin manifestations - Facial angiofibromas 0; 1 0 = No; 1 = Yes
Query skin_tsc5 Integer Recommended Skin - TSC skin manifestations - Forehead plaque 0; 1 0 = No; 1 = Yes
Query skin_tsc_other Integer Recommended Skin - TSC skin manifestations - Other 0; 1 0 = No; 1 = Yes
Query rev_skinabcesses String 50 Required Skin Infections/Abcesses
Yes;No;NK
NK = Not known
Query rev_skinbirthmark String 50 Recommended Birthmarks (e.g., cafe-au-lait spots, white spots)
Yes;No;NK
NK = Not known
Query rev_pulbreathab String 50 Recommended Abnormal Breathing
Yes;No;NK
NK = Not known
Query rev_pulasthma String 50 Required Asthma
Yes;No;NK
NK = Not known
Query rev_pullungmalfunc String 50 Recommended Lung Malformations
Yes;No;NK;NA
NK = Not known
Query rev_pulaspiration String 50 Recommended Aspiration
Yes;No;NK
NK = Not known
Query cardio_tsc Integer Required Cardiovascular - TSC-related cardiac lesions 1; 2; 9 1 = Yes; 2 = No; 9 = Unknown
Query cardio_tsc_det Integer Recommended Cardiovascular - TSC-related cardiac lesions - Specify 1; 2 1 = Single rhabdomyomas; 2 = Multiple rhabdomyomas
Query rev_cardiocyanosis String 50 Recommended Cyanosis
Yes;No;NK
NK = Not known
Query rev_rythm String 10 Recommended Abnormal rhythm or heart rate Yes;No;NK NK = Not known
Query rev_gastrodysphagia String 50 Recommended Dysphagia
Yes;No;NK
NK = Not known
Query rev_gastroreflux String 50 Required Reflux
Yes; No; NK; NS
NK= Not known; NS = Not sure
Query rev_gastroother String 50 Recommended Other feeding difficulties
Yes;No;NK
NK = Not known
Query renal_angiom Integer Recommended Renal - Renal angiomyolipoma 1; 2; 9 1 = Yes; 2 = No; 9 = Unknown
Query renal_cyst Integer Recommended Renal - Renal cyst 1; 2; 9 1 = Yes; 2 = No; 9 = Unknown
Query rev_endoprecocious String 50 Recommended Precocious Puberty
Yes;No;NK
NK = Not known
Query rev_endohypothyroidism String 50 Required Hypothyroidism
Yes;No;NK
NK = Not known
Query rev_endohyperthyroidism String 50 Required Hyperthyroidism
Yes;No;NK
NK = Not known
Query rev_endoobesity String 50 Recommended Obesity
Yes;No;NK
NK = Not known
Query rev_endodiabetes String 50 Required Diabetes
Yes;No;NK
NK = Not known
Query rev_endodiabetestype String 50 Required Diabetes: Type I;II;NA
Query rev_endohypoglycemia String 50 Recommended Hypoglycemia
Yes;No;NK
NK = Not known
Query rev_hemanemia String 50 Recommended Anemia
Yes;No;NK
NK = Not known
Query rev_hembleeddisorder String 50 Recommended Bleeding disorder
Yes;No;NK
NK = Not known
Query rev_immunorecurinfection String 50 Required Recurrent Infections((>2 pneum or sinus infect/yr, >8 OM /yr, absesses))
Yes;No;NK
NK = Not known
Query rev_immunoigdeficiency String 50 Recommended Ig Deficiency
Yes;No;NK
NK = Not known
Query rev_immunocellimmunedef String 50 Recommended Cell Mediated Immune Def.
Yes;No;NK
NK = Not known
Query rev_immunoenvallergy String 50 Required Environmental Allergies
Yes;No;NK
NK = Not known
Query rev_immunomedallergy String 50 Required Medication Allergies
Yes;No;NK;NA
NK = Not known; NA=Not Applicable
Query rev_immunomedallergy_det String 255 Recommended Immunologic - Medication allergies - Specify
Query immuninfluenza Integer Required Immunologic - Influenza vaccine 1; 2; 9 1 = Yes; 2 = No; 9 = Unknown
Query rev_immunoimmunization String 50 Recommended Immunizations
Up to date;Behind;None;NK
NK = Not known
Query immundtap Integer Recommended Immunologic - Immunizations up to date - Dtap 0; 1 0 = No; 1 = Yes
Query rev_immunoimmunizipv String 255 Recommended Immunizations: IPV
Up to date;Behind;None;NK
NK = Not known
Query rev_immunoimmunizhib String 255 Recommended Immunizations: HIB
Up to date;Behind;None;NK
NK = Not known
Query rev_immunoimmunizmmr String 255 Recommended Immunizations: MMR
Up to date;Behind;None;NK
NK = Not known
Query rev_immunoimmunizhepa String 255 Recommended Immunizations: HepA
Up to date;Behind;None;NK
NK = Not known
Query rev_immunoimmunizhepb String 255 Recommended Immunizations: HepB
Up to date;Behind;None;NK
NK = Not known
Query rev_immunoimmunizvari String 255 Recommended Immunizations: Varicella
Up to date;Behind;None;NK
NK = Not known
Query rev_immunoimmunizprev String 255 Recommended Immunizations: Prevnar
Up to date;Behind;None;NK
NK = Not known
Query other_tsc1 Integer Recommended Other TSC-Related Conditions - Bone cysts 1; 2; 9 1 = Yes; 2 = No; 9 = Unknown
Query other_tsc2 Integer Recommended Other TSC-Related Conditions - Non-renal hamartoma 1; 2; 9 1 = Yes; 2 = No; 9 = Unknown
Query other_tsc3 Integer Recommended Other TSC-Related Conditions - Other? 1; 2; 9 1 = Yes; 2 = No; 9 = Unknown
Query other_tsc4 String 255 Recommended Other TSC-Related Conditions - Other - Specify
Query gentest_tsc Integer Recommended Genetics - Genetic testing results known? 1 :: 3 1 = Yes; 2 = No; 3 = Never tested
Query gentest_tsc_res Integer Recommended Genetics - Genetic testing results 1 :: 5 1 = TSC1, known disease causing; 2 = TSC1, uncertain significance; 3 = TSC2, known disease causing; 4 = TSC2, uncertain significance; 5 = No mutations identified
gentest_tsc_det String 600 Recommended Genetics - Detailed Genetic Test Results
custom_src_id String 30 Recommended Subject ID how it's defined in lab/project (used for source IDs that change depending on timepoint/visit/etc.)
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

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