|
subjectkey |
GUID |
|
Required |
The NDAR Global Unique Identifier (GUID) for research subject |
NDAR*
|
|
|
|
src_subject_id |
String |
20
|
Required |
Subject ID how it's defined in lab/project |
|
|
randid |
|
interview_date |
Date |
|
Required |
Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY |
|
|
|
|
interview_age |
Integer |
|
Required |
Age in months at the time of the interview/test/sampling/imaging. |
0::1440
|
Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
|
|
|
sex |
String |
20
|
Required |
Sex of subject at birth |
M;F; O; NR
|
M = Male; F = Female; O=Other; NR = Not reported
|
gender |
Query
|
hpl_01 |
Integer |
|
Recommended |
Age at first psychiatric illness |
|
in years
|
age_ill |
Query
|
hpl_02 |
Integer |
|
Recommended |
Age at first psychotic symptoms, e.g. delusions, hallucinations, thought disorder |
|
in years
|
age_sxs |
Query
|
hpl_04 |
Integer |
|
Recommended |
Number of hospitalizations for psychiatric illness include current hospitalization if patient is identified during an admission |
|
total
|
num_hosp |
Query
|
hpl_05 |
Float |
|
Recommended |
Total duration of psychiatric hospitalizations |
|
in months
|
dur_hosp |
Query
|
hpl_06 |
Float |
|
Recommended |
Time since last psychiatric hospitalization if patient is identified during an admission, record time since prior hospitalization (if less than one month, record 1 week as .25, 2 weeks as .50) |
|
in months
|
lst_hosp |
Query
|
hpl_07 |
Float |
|
Recommended |
How long had the patient been treated in an outpatient setting |
|
in months
|
|
|
txothsp |
String |
800
|
Recommended |
treatment other specify |
|
|
trt_oth |
Query
|
trt_set |
Integer |
|
Recommended |
Treatment setting, record the setting where patient was receiving treatment when first identified for screening |
1::5
|
1 = Inpatient ward; 2 = Day or partial hospital; 3 = Outpatient clinic; 4 = Other; 5=not in treatment
|
|
Query
|
trt_time |
Integer |
|
Recommended |
How long had the patient been treated in that setting? |
|
|
|
Query
|
bima26 |
Integer |
|
Recommended |
CURRENT ADHERENCE TO PSYCHOTROPIC MEDICATIONS - BEHAVIOR ESTIMATE |
1;2;3;4;5
|
1 = Took medication all or almost all of the time; 2 = Took medication much of the time and/or at lower dose than prescribed; 3 = Took medication about half the time; 4 = Took medication sporadically or less than half the time; 5 = Did not take medication at all
|
|
Query
|
bima27 |
Integer |
|
Recommended |
CURRENT ADHERENCE TO PSYCHOTROPIC MEDICATIONS - ASSISTANCE/ SUPPORT |
1;2;3;4
|
1 = None � took medication independently; 2 = Received urging, encouragement, or reminder;s 3 = Received supervision � e.g., medication is administered by someone else; 4 = Does not apply � did not take medication
|
|
Query
|
bima28 |
Integer |
|
Recommended |
Number of anti-psychotic medications prescribed. |
|
|
|
Query
|
bima29 |
Integer |
|
Recommended |
Number of other psychotropic medications prescribed. |
|
|
|
Query
|
bima30 |
Integer |
|
Recommended |
Number of other non-psychotropic medications prescribed. |
|
|
|
Query
|
bima31 |
Integer |
|
Recommended |
Number of times per day patient must take medications include all medications regardless of indication. |
|
|
|
Query
|
intrt |
Integer |
|
Recommended |
Treatment Status Code |
0::2
|
0=Baseline; 1=In Treatment; 2=In Follow-up
|
|
Query
|
trtgrp_p |
Integer |
|
Recommended |
Treatment Group |
1;2
|
1=Long-Acting Injectable Risperidone Microspheres; 2=Second Generation Oral Antipsychotic Medication
|
|
Query
|
days_visit1 |
Integer |
|
Recommended |
Days from Visit 1 |
|
|
dav1dhs |
Query
|
visnum |
Float |
|
Recommended |
Numeric Visit Number |
|
-1.5 = Pre-Screening; -1 = Screening; 0 = Baseline; ## = Visit ## (from 1 to 10); Whole numbers = standard monthly visits; #.001 - #.009 = Unscheduled; #.1 = End of Phase 1; #.2 = End of Phase 2; #.3 = End of Phase 3; #.4 = End of Open Choice Phase; #.5 = End of Study; #.6 = Genetic Analysis; 1000=all visits
|
|
Query
|
visit |
String |
60
|
Recommended |
Visit name |
|
|
vtypdhs |
|
site |
String |
101
|
Recommended |
Site |
|
Study Site
|
|
Query
|
age_1st_hosp |
Integer |
|
Recommended |
Age at first psychiatric hospitalization (years) |
|
|
age_hosp |