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This is a U.S. Government computer system, which may be accessed and used only for authorized Government business by authorized personnel. Unauthorized access or use of this computer system may subject violators to criminal, civil, and/or administrative action. All information on this computer system may be intercepted, recorded, read, copied, and disclosed by and to authorized personnel for official purposes, including criminal investigations. Such information includes sensitive data encrypted to comply with confidentiality and privacy requirements. Access or use of this computer system by any person, whether authorized or unauthorized, constitutes consent to these terms. There is no right of privacy in this system.

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NIMH Data Archive
NDA ABCD CCF OAI NIAAADA AMP SCZ HEAL

Participation Survey

20 Shared Subjects

N/A
Clinical Assessments
Questionnaire
07/15/2016
partsurv01
07/15/2016
View Change History
01
Definition
Submission Template
Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR*
src_subject_id String 20 Required Subject ID how it's defined in lab/project
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0::1440 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY
sex String 20 Required Sex of subject at birth M;F; O; NR M = Male; F = Female; O=Other; NR = Not reported gender
version_form String 121 Required Form used/assessment name
Query studentvrsurvey_cp Integer Recommended Consultant prompt: percent student input 888 = not applicable; 999 = missing
Query studentvrsurvey_student Integer Recommended Was the student present at consultation 0;1; 888; 999 0 = no; 1 = yes; 888 = not applicable; 999 = missing
Query studentvrsurvey_percentpresent Float Recommended Percent student present at consultation 888 = not applicable; 999 = missing
Query studentvrsurvey_vrinvited Integer Recommended Was VR (Vocational Rehabilitation) invited 0;1; 888; 999 0 = no; 1 = yes; 888 = not applicable; 999 = missing
Query studentvrsurvey_vrattended Integer Recommended If invited, did they attend consultation 0;1; 888; 999 0 = no; 1 = yes; 888 = not applicable; 999 = missing
Query lop_item1 Integer Recommended Level of Participation item 1 Attention 1::3; 888; 999 1 = needs lots of repetition and visuals throughout; 2 = only needs a few reminders to pay attention/stay on task; 3 = Listens intently to instruction; 888 = not applicable; 999 = missing
Query lop_item2 Integer Recommended Level of Participation item 2 Motivation to complete tasks 1::3; 888; 999 1 = Gives up easily with a challenging task and doesn't respond to motivators; 2 = Gives up initially; but responds to encouragement; 3 = Persists with challenging tasks; 888 = not applicable; 999 = missing
Query lop_item3 Integer Recommended Level of Participation item 3 Verbal expression 1::4; 888; 999 1 = Is nonverbal; 2 = Has some phrases; 3 = Uses verbal communication; but below age equivalent; 4 = Fully fluent at expected age level; 888 = not applicable; 999 = missing
Query lop_item4 Integer Recommended Level of Participation item 4 Verbal comprehension 1::3; 888; 999 1 = Needs pictures / visuals to understand; 2 = Understands verbal words and can follow verbal instructions (can complete the things I like task); but below age level; 3 = Understand verbal language at expected age level; 888 = not applicable; 999 = missing.
Query lop_item5 Integer Recommended Level of Participation item 5 Affect 1::3; 888; 999 1 = Flat affect; no smiling despite attempts to establish rapport; 2 = Smiles slightly in response to social engagement; but is quiet overall; 3 = Easily smiles and shows a range of affect; 888 = not applicable; 999 = missing
Query lop_item6 Integer Recommended Level of Participation item 6 Energy level 1::3; 888; 999 1 = Lacks energy; lethargic; 2 = Average energy level; does not interfere with activity; 3 = Intense energy level; hard to contain and interferes with activity; 888 = not applicable; 999 = missing
Query lop_item7 Integer Recommended Level of Participation item 7 Repetitive behaviors 1::3; 888; 999 1 = None; 2 = Some; but doesn't interfere with the assessment; 3 = Intense and interfering with the assessment; 888 = not applicable; 999 = missing
Query lop_item8 Integer Recommended Level of Participation item 8 Completion of the things I like task 1::3; 888; 999 1 = Unable to understand the picture version to make choices (e.g.; picked the same response for each item); 2 = Used the picture version and clearly made choices; 3 = Used the word version and clearly made choices; 888 = not applicable; 999 = missing
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.

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