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NIMH Data Archive
NDA ABCD CCF OAI NIAAADA AMP SCZ HEAL

Sensory Experiences Questionnaire

1,132 Shared Subjects

Sensory Experiences Questionnaire
Clinical Assessments
Sensory
08/21/2012
seq01
08/21/2012
View Change History
01
Definition
Submission Template
Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR* CandidateGUID, GUID
src_subject_id String 20 Required Subject ID how it's defined in lab/project IBISID, SEQSS_ID
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY Date_taken, SEDate, SEQSS_date
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0::1440 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month. Candidate_Age, Candidate_Age_in_Months, SEQSS_age
sex String 20 Required Sex of subject at birth M;F; O; NR M = Male; F = Female; O=Other; NR = Not reported gender
Query sepers Integer Recommended Person completing form
1::5; -9
1 = Mother; 2 = Father; 3 = Both parents; 4 = Teacher; 5 = Other; -9 = Missing value SEQSS_completed_by, person_completing
Query sedesc String 200 Recommended Describe other person -9 = Missing value SEQSS_other, person_completing_other
Query seso1a Integer Recommended Does your child startle easily to sounds?
1::5; -9
1 = Almost never; 2 = Once in a while; 3 = Sometimes; 4 = Frequently; 5 = Almost always; -9 = Missing value q1_react_sensitively
Query seso1b Integer Recommended Do you try to change this behavior?
0;1;-9
0 = No; 1 = Yes; -9 = Missing value q1_react_sensitively_change
Query seso1c String 200 Recommended If yes, what do you do? -9 = Missing value q1_react_sensitively_what_do
Query seso2a Integer Recommended Does your child enjoy listening to music?
1::5; -9
1 = Almost never; 2 = Once in a while; 3 = Sometimes; 4 = Frequently; 5 = Almost always; -9 = Missing value q2_enjoy_music
Query seso2b Integer Recommended Do you try to change this behavior?
0;1;-9
0 = No; 1 = Yes; -9 = Missing value q2_enjoy_music_change
seso2c String 200 Recommended If yes, what do you do? -9 = Missing value q2_enjoy_music_what_do
Query seso3a Integer Recommended Does your child ignore you when called?
1::5; -9
1 = Almost never; 2 = Once in a while; 3 = Sometimes; 4 = Frequently; 5 = Almost always; -9 = Missing value q3_ignore_call
Query seso3b Integer Recommended Do you try to change this behavior?
0;1;-9
0 = No; 1 = Yes; -9 = Missing value q3_ignore_call_change
Query seso3c String 200 Recommended If yes, what do you do? -9 = Missing value q3_ignore_call_what_do
Query seso4a Integer Recommended Does your child seem to ignore loud noises?
1::5; -9
1 = Almost never; 2 = Once in a while; 3 = Sometimes; 4 = Frequently; 5 = Almost always; -9 = Missing value q4_ignore_tune_out
Query seso4b Integer Recommended Do you try to change this behavior?
0;1;-9
0 = No; 1 = Yes; -9 = Missing value q4_ignore_tune_out_change
seso4c String 200 Recommended If yes, what do you do? -9 = Missing value q4_ignore_tune_out_what_do
Query seso5a Integer Recommended Does your child notice sounds in the environment before other people?
1::5; -9
1 = Almost never; 2 = Once in a while; 3 = Sometimes; 4 = Frequently; 5 = Almost always; -9 = Missing value q5_notive_sounds
Query seso5b Integer Recommended Do you try to change this behavior?
0;1;-9
0 = No; 1 = Yes; -9 = Missing value q5_notive_sounds_change
seso5c String 200 Recommended If yes, what do you do? -9 = Missing value q5_notive_sounds_what_do
Query seso6a Integer Recommended Does your child show distress during loud conversations?
1::5; -9
1 = Almost never; 2 = Once in a while; 3 = Sometimes; 4 = Frequently; 5 = Almost always; -9 = Missing value q6_show_distress_loud
Query seso6b Integer Recommended Do you try to change this behavior?
0;1;-9
0 = No; 1 = Yes; -9 = Missing value q6_show_distress_loud_change
seso6c String 200 Recommended If yes, what do you do? -9 = Missing value q6_show_distress_loud_what_do
Query sesi1a Integer Recommended Does your child enjoy looking at picture books?
1::5; -9
1 = Almost never; 2 = Once in a while; 3 = Sometimes; 4 = Frequently; 5 = Almost always; -9 = Missing value q7_enjoy_picture_books
Query sesi1b Integer Recommended Do you try to change this behavior?
0;1;-9
0 = No; 1 = Yes; -9 = Missing value q7_enjoy_picture_books_change
Query sesi1c String 200 Recommended If yes, what do you do? -9 = Missing value q7_enjoy_picture_books_what_do
Query sesi2a Integer Recommended Is your child disturbed by too much light?
1::5; -9
1 = Almost never; 2 = Once in a while; 3 = Sometimes; 4 = Frequently; 5 = Almost always; -9 = Missing value q8_disturbed_by_light
Query sesi2b Integer Recommended Do you try to change this behavior?
0;1;-9
0 = No; 1 = Yes; -9 = Missing value q8_disturbed_by_light_change
Query sesi2c String 200 Recommended If yes, what do you do? -9 = Missing value q8_disturbed_by_light_what_do
Query sesi3a Integer Recommended Does your child stare at lights or moving objects?
1::5; -9
1 = Almost never; 2 = Once in a while; 3 = Sometimes; 4 = Frequently; 5 = Almost always; -9 = Missing value q9_stare_at_lights
Query sesi3b Integer Recommended Do you try to change this behavior?
0;1;-9
0 = No; 1 = Yes; -9 = Missing value q9_stare_at_lights_change
sesi3c String 200 Recommended If yes, what do you do? -9 = Missing value q9_stare_at_lights_what_do
Query sesi4a Integer Recommended Is your child slow to notice new objects?
1::5; -9
1 = Almost never; 2 = Once in a while; 3 = Sometimes; 4 = Frequently; 5 = Almost always; -9 = Missing value q10_slow_to_notice
Query sesi4b Integer Recommended Do you try to change this behavior?
0;1;-9
0 = No; 1 = Yes; -9 = Missing value q10_slow_to_notice_change
sesi4c String 200 Recommended If yes, what do you do? -9 = Missing value q10_slow_to_notice_what_do
Query sesi5a Integer Recommended Does your child avoid looking at your face during play?
1::5; -9
1 = Almost never; 2 = Once in a while; 3 = Sometimes; 4 = Frequently; 5 = Almost always; -9 = Missing value q11_avoid_looking
Query sesi5b Integer Recommended Do you try to change this behavior?
0;1;-9
0 = No; 1 = Yes; -9 = Missing value q11_avoid_looking_change
Query sesi5c String 200 Recommended If yes, what do you do? -9 = Missing value q11_avoid_looking_what_do
Query sesi6a Integer Recommended Does your child seem to ignore when someone new enters the room?
1::5; -9
1 = Almost never; 2 = Once in a while; 3 = Sometimes; 4 = Frequently; 5 = Almost always; -9 = Missing value q12_seem_to_ignore
Query sesi6b Integer Recommended Do you try to change this behavior?
0;1;-9
0 = No; 1 = Yes; -9 = Missing value q12_seem_to_ignore_change
sesi6c String 200 Recommended If yes, what do you do? -9 = Missing value q12_seem_to_ignore_what_do
Query sesi7a Integer Recommended Does your child enjoy watching videos or TV?
1::5; -9
1 = Almost never; 2 = Once in a while; 3 = Sometimes; 4 = Frequently; 5 = Almost always; -9 = Missing value q13_enjoy_watching_videos
Query sesi7b Integer Recommended Do you try to change this behavior?
0;1;-9
0 = No; 1 = Yes; -9 = Missing value q13_enjoy_watching_videos_change
Query sesi7c String 200 Recommended If yes, what do you do? -9 = Missing value q13_enjoy_watching_videos_what_do
Query seto1a Integer Recommended Does your child dislike cuddling or being held?
1::5; -9
1 = Almost never; 2 = Once in a while; 3 = Sometimes; 4 = Frequently; 5 = Almost always; -9 = Missing value q14_dislike_cuddling
Query seto1b Integer Recommended Do you try to change this behavior?
0;1;-9
0 = No; 1 = Yes; -9 = Missing value q14_dislike_cuddling_change
Query seto1c String 200 Recommended If yes, what do you do? -9 = Missing value q14_dislike_cuddling_what_do
Query seto2a Integer Recommended Does your child show distress during grooming?
1::5; -9
1 = Almost never; 2 = Once in a while; 3 = Sometimes; 4 = Frequently; 5 = Almost always; -9 = Missing value q15_show_distress_grooming
Query seto2b Integer Recommended Do you try to change this behavior?
0;1;-9
0 = No; 1 = Yes; -9 = Missing value q15_show_distress_grooming_change
Query seto2c String 200 Recommended If yes, what do you do? -9 = Missing value q15_show_distress_grooming_what_do
Query seto3a Integer Recommended Does your child avoid touching certain textures?
1::5; -9
1 = Almost never; 2 = Once in a while; 3 = Sometimes; 4 = Frequently; 5 = Almost always; -9 = Missing value q16_avoid_touching
Query seto3b Integer Recommended Do you try to change this behavior?
0;1;-9
0 = No; 1 = Yes; -9 = Missing value q16_avoid_touching_change
seto3c String 200 Recommended If yes, what do you do? -9 = Missing value q16_avoid_touching_what_do
Query seto4a Integer Recommended Does your child pull away when touched by a person?
1::5; -9
1 = Almost never; 2 = Once in a while; 3 = Sometimes; 4 = Frequently; 5 = Almost always; -9 = Missing value q17_react_negatively
Query seto4b Integer Recommended Do you try to change this behavior?
0;1;-9
0 = No; 1 = Yes; -9 = Missing value q17_react_negatively_change
Query seto4c String 200 Recommended If yes, what do you do? -9 = Missing value q17_react_negatively_what_do
Query seto5a Integer Recommended Does your child dislike being in water?
1::5; -9
1 = Almost never; 2 = Once in a while; 3 = Sometimes; 4 = Frequently; 5 = Almost always; -9 = Missing value q18_trouble_adjusting
Query seto5b Integer Recommended Do you try to change this behavior?
0;1;-9
0 = No; 1 = Yes; -9 = Missing value q18_trouble_adjusting_change
Query seto5c String 200 Recommended If yes, what do you do? -9 = Missing value q18_trouble_adjusting_what_do
Query seto6a Integer Recommended Does your child seem slow to react to pain?
1::5; -9
1 = Almost never; 2 = Once in a while; 3 = Sometimes; 4 = Frequently; 5 = Almost always; -9 = Missing value q19_slow_to_react
Query seto6b Integer Recommended Do you try to change this behavior?
0;1;-9
0 = No; 1 = Yes; -9 = Missing value q19_slow_to_react_change
seto6c String 200 Recommended If yes, what do you do? -9 = Missing value q19_slow_to_react_what_do
Query seto7a Integer Recommended Does your child dislike being tickled?
1::5; -9
1 = Almost never; 2 = Once in a while; 3 = Sometimes; 4 = Frequently; 5 = Almost always; -9 = Missing value q20_dislike_tickled
Query seto7b Integer Recommended Do you try to change this behavior?
0;1;-9
0 = No; 1 = Yes; -9 = Missing value q20_dislike_tickled_change
seto7c String 200 Recommended If yes, what do you do? -9 = Missing value q20_dislike_tickled_what_do
Query seto8a Integer Recommended Does your child ignore when you tap on the shoulder for attention?
1::5; -9
1 = Almost never; 2 = Once in a while; 3 = Sometimes; 4 = Frequently; 5 = Almost always; -9 = Missing value q21_ignore_tap
Query seto8b Integer Recommended Do you try to change this behavior?
0;1;-9
0 = No; 1 = Yes; -9 = Missing value q21_ignore_tap_change
Query seto8c String 200 Recommended If yes, what do you do? -9 = Missing value q21_ignore_tap_what_do
Query seta1a Integer Recommended Does your child refuse to try new foods?
1::5; -9
1 = Almost never; 2 = Once in a while; 3 = Sometimes; 4 = Frequently; 5 = Almost always; -9 = Missing value q22_refuse_new_foods
Query seta1b Integer Recommended Do you try to change this behavior?
0;1;-9
0 = No; 1 = Yes; -9 = Missing value q22_refuse_new_foods_change
Query seta1c String 200 Recommended If yes, what do you do? -9 = Missing value q22_refuse_new_foods_what_do
Query seta2a Integer Recommended Does your child smell objects during play?
1::5; -9
1 = Almost never; 2 = Once in a while; 3 = Sometimes; 4 = Frequently; 5 = Almost always; -9 = Missing value q23_smell_objects
Query seta2b Integer Recommended Do you try to change this behavior?
0;1;-9
0 = No; 1 = Yes; -9 = Missing value q23_smell_objects_change
Query seta2c String 200 Recommended If yes, what do you do? -9 = Missing value q23_smell_objects_what_do
Query seta3a Integer Recommended Does your child seem interested in the way people smell?
1::5; -9
1 = Almost never; 2 = Once in a while; 3 = Sometimes; 4 = Frequently; 5 = Almost always; -9 = Missing value q24_interested_smell
Query seta3b Integer Recommended Do you try to change this behavior?
0;1;-9
0 = No; 1 = Yes; -9 = Missing value q24_interested_smell_change
seta3c String 200 Recommended If yes, what do you do? -9 = Missing value q24_interested_smell_what_do
Query seta4a Integer Recommended Does your child put objects in his/her mouth?
1::5; -9
1 = Almost never; 2 = Once in a while; 3 = Sometimes; 4 = Frequently; 5 = Almost always; -9 = Missing value q25_put_objects
Query seta4b Integer Recommended Do you try to change this behavior?
0;1;-9
0 = No; 1 = Yes; -9 = Missing value q25_put_objects_change
Query seta4c String 200 Recommended If yes, what do you do? -9 = Missing value q25_put_objects_what_do
Query semo1a Integer Recommended Does your child enjoy riding in a car?
1::5; -9
1 = Almost never; 2 = Once in a while; 3 = Sometimes; 4 = Frequently; 5 = Almost always; -9 = Missing value q26_enjoy_riding
Query semo1b Integer Recommended Do you try to change this behavior?
0;1;-9
0 = No; 1 = Yes; -9 = Missing value q26_enjoy_riding_change
Query semo1c String 200 Recommended If yes, what do you do? -9 = Missing value q26_enjoy_riding_what_do
Query semo2a Integer Recommended Does your child like to jump, rock, or spin?
1::5; -9
1 = Almost never; 2 = Once in a while; 3 = Sometimes; 4 = Frequently; 5 = Almost always; -9 = Missing value q27_like_jump
Query semo2b Integer Recommended Do you try to change this behavior?
0;1;-9
0 = No; 1 = Yes; -9 = Missing value q27_like_jump_change
Query semo2c String 200 Recommended If yes, what do you do? -9 = Missing value q27_like_jump_what_do
Query semo3a Integer Recommended Does your child seek out physical rough-housing play?
1::5; -9
1 = Almost never; 2 = Once in a while; 3 = Sometimes; 4 = Frequently; 5 = Almost always; -9 = Missing value q28_seek_physical
Query semo3b Integer Recommended Do you try to change this behavior?
0;1;-9
0 = No; 1 = Yes; -9 = Missing value q28_seek_physical_change
semo3c String 200 Recommended If yes, what do you do? -9 = Missing value q28_seek_physical_what_do
Query semo4a Integer Recommended Does your child seem uneasy in a swing or rocking chair?
1::5; -9
1 = Almost never; 2 = Once in a while; 3 = Sometimes; 4 = Frequently; 5 = Almost always; -9 = Missing value q29_uneasy_dizzy
Query semo4b Integer Recommended Do you try to change this behavior?
0;1;-9
0 = No; 1 = Yes; -9 = Missing value q29_uneasy_dizzy_change
Query semo4c String 200 Recommended If yes, what do you do? -9 = Missing value q29_uneasy_dizzy_what_do
Query semo5a Integer Recommended Does your child flap his arms repeatedly?
1::5; -9
1 = Almost never; 2 = Once in a while; 3 = Sometimes; 4 = Frequently; 5 = Almost always; -9 = Missing value q30_flap_arms
Query semo5b Integer Recommended Do you try to change this behavior?
0;1;-9
0 = No; 1 = Yes; -9 = Missing value q30_flap_arms_change
semo5c String 200 Recommended If yes, what do you do? q30_flap_arms_what_do
Query segq1 String 500 Recommended How does your child occupy his/her free time? q31_free_time
Query segq2 String 500 Recommended When does your child seem happiest at play? q32_seem_happiest
Query segq3 String 500 Recommended When does your child appear to enjoy social interaction with you the most? q33_enjoy_interaction
Query segq4 String 500 Recommended What works best to get your child to interact or play with you? q34_works_best
Query segq5 String 500 Recommended Other comments -9 = Missing value q35_other_comments
Query sead01a Integer Recommended How often is your child extremely fascinated with sounds?
1::5; -9
1 = Almost never; 2 = Once in a while; 3 = Sometimes; 4 = Frequently; 5 = Almost always; -9 = Missing value q36_a_sounds
Query sead01b Integer Recommended How often is your child extremely fascinated with lights?
1::5; -9
1 = Almost never; 2 = Once in a while; 3 = Sometimes; 4 = Frequently; 5 = Almost always; -9 = Missing value q36_b_lights
Query sead01c Integer Recommended How often is your child extremely fascinated with smells?
1::5; -9
1 = Almost never; 2 = Once in a while; 3 = Sometimes; 4 = Frequently; 5 = Almost always; -9 = Missing value q36_c_smells
Query sead01d Integer Recommended How often is your child extremely fascinated with tastes?
1::5; -9
1 = Almost never; 2 = Once in a while; 3 = Sometimes; 4 = Frequently; 5 = Almost always; -9 = Missing value q36_d_tastes
Query sead01e Integer Recommended How often is your child extremely fascinated with textures?
1::5; -9
1 = Almost never; 2 = Once in a while; 3 = Sometimes; 4 = Frequently; 5 = Almost always; -9 = Missing value q36_e_textures
Query sead01f Integer Recommended How often is your child extremely fascinated with touch?
1::5; -9
1 = Almost never; 2 = Once in a while; 3 = Sometimes; 4 = Frequently; 5 = Almost always; -9 = Missing value q36_f_touch
Query sead02 String 500 Recommended Does your child seek particular sensory experiences? -9 = Missing value q37_seek_or_crave
Query sead03 Integer Recommended Would you describe your child as a picky eater?
0::2; -9
0 = No; 1 = Yes; 2 = Maybe; -9 = Missing value q38_pick_eater
Query sead04 Integer Recommended Is your child selective in food preferences?
1::5; -9
1 = Almost never; 2 = Once in a while; 3 = Sometimes; 4 = Frequently; 5 = Almost always; -9 = Missing value q38_selective
Query sead05 String 500 Recommended Please describe your favorite foods of your child and qualities about these foods. q39_favourite_food_qualities
Query sead06 String 250 Recommended Why do you think your child likes these foods? -9 = Missing value q40_why_foods
Query sead07a Integer Recommended Have you ever wondered if your child experiences sounds differently from others?
1::5; -9
1 = Almost never; 2 = Once in a while; 3 = Sometimes; 4 = Frequently; 5 = Almost always; -9 = Missing value q41_a_sounds
Query sead07b Integer Recommended Have you ever wondered if your child experiences lights differently from others?
1::5; -9
1 = Almost never; 2 = Once in a while; 3 = Sometimes; 4 = Frequently; 5 = Almost always; -9 = Missing value q41_b_lights
Query sead07c Integer Recommended Have you ever wondered if your child experiences smells differently from others?
1::5; -9
1 = Almost never; 2 = Once in a while; 3 = Sometimes; 4 = Frequently; 5 = Almost always; -9 = Missing value q41_c_smells
Query sead07d Integer Recommended Have you ever wondered if your child experiences tastes differently from others?
1::5; -9
1 = Almost never; 2 = Once in a while; 3 = Sometimes; 4 = Frequently; 5 = Almost always; -9 = Missing value q41_d_tastes
Query sead07e Integer Recommended Have you ever wondered if your child experiences textures differently from others?
1::5; -9
1 = Almost never; 2 = Once in a while; 3 = Sometimes; 4 = Frequently; 5 = Almost always; -9 = Missing value q41_e_textures
Query sead07f Integer Recommended Have you ever wondered if your child experiences touch differently from others?
1::5; -9
1 = Almost never; 2 = Once in a while; 3 = Sometimes; 4 = Frequently; 5 = Almost always; -9 = Missing value q41_f_touch
Query sead08 Integer Recommended Have sensory preferences or aversions changed over time?
0::2; -9
0 = No; 1 = Yes; 2 = Maybe; -9 = Missing value q42_sensory_change
Query sead09 String 500 Recommended If yes or maybe, how have they changed? -9 = Missing value q42_sensory_change_how
Query sead10 String 500 Recommended When did you first notice any difference in the sensory experiences of your child? q43_notice_change
seqss_tactile_mean String 50 Recommended Tactile Mean Score
Query seqss_tactile_raw String 50 Recommended Tactile Raw Score Sum Total
Query seqss_auditory_raw String 50 Recommended Auditory Raw Score Sum Total
seqss_auditory_mean String 50 Recommended Auditory Mean Score
Query seqss_visual_raw String 50 Recommended Visual Raw Score Sum Total
seqss_visual_mean String 50 Recommended Visual Mean Score
Query seqss_gusta_olfa_raw String 50 Recommended Gustatory/Olfactory Raw Score Sum Total
seqss_gusta_olfa_mean String 50 Recommended Gustatory/Olfactory Mean Score
Query seqss_vestib_prop_raw String 50 Recommended Vestib./Proprio. Raw Score Sum Total
seqss_vestib_prop_mean String 50 Recommended Vestib./Proprio Mean Score
seqss_item_raw_score_raw String 50 Recommended Item Raw Score
seqss_item_raw_score_mean String 50 Recommended Item Mean score
seqss_seeking_raw String 50 Recommended Seeking Raw Score Sum Total
seqss_seeking_mean String 50 Recommended Seeking Mean score
Query seqss_hypo_raw String 50 Recommended Hypo Raw Score Sum Total
seqss_hypo_mean String 50 Recommended Hypo Mean Score
seqss_hyper_raw String 50 Recommended Hyper Raw Score Sum Total
seqss_hyper_mean String 50 Recommended Hyper Mean Score
Query seqss_social_raw String 50 Recommended Social Raw Score Sum Total
seqss_social_mean String 50 Recommended Social Mean Score
seqss_nonsocial_raw String 50 Recommended Nonsocial Raw Score Sum Total
seqss_nonsocial_mean String 50 Recommended Nonsocial Mean Score
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

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