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NIMH Data Archive
NDA ABCD CCF OAI NIAAADA AMP SCZ HEAL

WHO Quality of Life

3,315 Shared Subjects

N/A
Clinical Assessments
Quality of Life
02/05/2016
whoqol01
08/29/2023
View Change History
01
Definition
Submission Template
Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR* guid, ndar_whoqol
src_subject_id String 20 Required Subject ID how it's defined in lab/project record_id, subjectid
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY ap_date, date9, interview_date_whoqol, pp_date
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0::1440 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month. age_a, age_whoqol
sex String 20 Required Sex of subject at birth
M;F; O; NR
M = Male; F = Female; O=Other; NR = Not reported gender, gender_whoqol, sex_a, whoqol_gender
Query whoqol1 Integer Recommended How would you rate your quality of life? 1::5 1=Very poor 2=Poor; 3=Neither poor nor good; 4=Good; 5=Very good qol, whoqol_1
Query whoqol2 Integer Recommended How satisfied are you with your health? 1::5 1=Very dissatisfied; 2=Dissatisfied; 3=Neither satisfied nor dissatisfied; 4=Satisfied; 5=Very satisfied satisfiedwhealth, whoqol_2
Query whoqol3 Integer Recommended To what extent do you feel that physical pain prevents you from doing what you need to do? 1::5 5=Not at all; 4=A little; 3=A moderate amount; 2=Very much; 1=An extreme amount physicalpain, whoqol3bs, whoqol_3
Query whoqol4 Integer Recommended How much do you need any medical treatment to function in your daily life? 1::5 5=Not at all; 4=A little; 3=A moderate amount; 2=Very much; 1=An extreme amount medicaltreatment, whoqol4bs, whoqol_4
Query whoqol5 Integer Recommended How much do you enjoy life? 1::5 1=Not at all; 2=A little; 3=A moderate amount; 4=Very much; 5=An extreme amount enjoylife, whoqol5bs, whoqol_5
Query whoqol6 Integer Recommended To what extent do you feel your life to be meaningful? 1::5 1=Not at all; 2=A little; 3=A moderate amount; 4=Very much; 5=An extreme amount meaningfullife, whoqol6bs, whoqol_6
Query whoqol7 Integer Recommended How well are you able to concentrate? 1::5 1=Not at all; 2=A little; 3=A moderate amount; 4=Very much; 5=Extremely concentrate, whoqol_7
Query whoqol8 Integer Recommended How safe do you feel in your daily life? 1::5 1=Not at all; 2=A little; 3=A moderate amount; 4=Very much; 5=Extremely safe, whoqol_8
Query whoqol9 Integer Recommended How healthy is your physical environment? 1::5 1=Not at all; 2=A little; 3=A moderate amount; 4=Very much; 5=Extremely physicalenviron, whoqol_9
Query whoqol10 Integer Recommended Do you have enough energy for everyday life? 1::5 1=Not at all; 2=A little; 3=Moderately; 4=Mostly; 5=Completely energy, whoqol_10
Query whoqol11 Integer Recommended Are you able to accept your bodily appearance? 1::5 1=Not at all; 2=A little; 3=Moderately; 4=Mostly; 5=Completely bodilyapp, whoqol_11
Query whoqol12 Integer Recommended Have you enough money to meet your needs? 1::5 1=Not at all; 2=A little; 3=Moderately; 4=Mostly; 5=Completely money, whoqol_12
Query whoqol13 Integer Recommended How available to you is the information that you need in your day-to-day life? 1::5 1=Not at all; 2=A little; 3=Moderately; 4=Mostly; 5=Completely info, whoqol13bs, whoqol_13
Query whoqol14 Integer Recommended To what extent do you have the opportunity for leisure activities? 1::5 1=Not at all; 2=A little; 3=Moderately; 4=Mostly; 5=Completely whoqol_14
Query whoqol15 Integer Recommended How well are you able to get around? 1::5 1=Very poor 2=Poor; 3=Neither poor nor good; 4=Good; 5=Very good getaround, whoqol_15
Query whoqol16 Integer Recommended How satisfied are you with your sleep? 1::5 1=Very dissatisfied; 2=Dissatisfied; 3=Neither satisfied nor dissatisfied; 4=Satisfied; 5=Very satisfied sleep, whoqol_16
Query whoqol17 Integer Recommended How satisfied are you with your ability to perform your daily living activities? 1::5 1=Very dissatisfied; 2=Dissatisfied; 3=Neither satisfied nor dissatisfied; 4=Satisfied; 5=Very satisfied performactivities, whoqol_17
Query whoqol18 Integer Recommended How satisfied are you with your capacity for work? 1::5 1=Very dissatisfied; 2=Dissatisfied; 3=Neither satisfied nor dissatisfied; 4=Satisfied; 5=Very satisfied capacityforwork, whoqol_18
Query whoqol19 Integer Recommended How satisfied are you with yourself? 1::5 1=Very dissatisfied; 2=Dissatisfied; 3=Neither satisfied nor dissatisfied; 4=Satisfied; 5=Very satisfied satisfied, whoqol_19
Query whoqol20 Integer Recommended How satisfied are you with your personal relationships? 1::5 1=Very dissatisfied; 2=Dissatisfied; 3=Neither satisfied nor dissatisfied; 4=Satisfied; 5=Very satisfied relationships, whoqol_20
Query whoqol21 Integer Recommended How satisfied are you with your sex life? 1::5 1=Very dissatisfied; 2=Dissatisfied; 3=Neither satisfied nor dissatisfied; 4=Satisfied; 5=Very satisfied sexlife, whoqol_21
Query whoqol22 Integer Recommended How satisfied are you with the support you get from your friends? 1::5 1=Very dissatisfied; 2=Dissatisfied; 3=Neither satisfied nor dissatisfied; 4=Satisfied; 5=Very satisfied supportfromfriends, whoqol_22
Query whoqol23 Integer Recommended How satisfied are you with the conditions of your living place? 1::5 1=Very dissatisfied; 2=Dissatisfied; 3=Neither satisfied nor dissatisfied; 4=Satisfied; 5=Very satisfied livingconditions, whoqol_23
Query whoqol24 Integer Recommended How satisfied are you with your access to health services? 1::5 1=Very dissatisfied; 2=Dissatisfied; 3=Neither satisfied nor dissatisfied; 4=Satisfied; 5=Very satisfied healthservices, whoqol_24
Query whoqol25 Integer Recommended How satisfied are you with your transport? 1::5 1=Very dissatisfied; 2=Dissatisfied; 3=Neither satisfied nor dissatisfied; 4=Satisfied; 5=Very satisfied transport, whoqol_25
Query whoqol26 Integer Recommended How often do you have negative feelings such as blue mood, despair, anxiety, depression? 1::5 5=Never; 4=Seldom; 3=Quite often; 2=Very often; 1=Always negfeelings, whoqol_26
comments String 4,000 Recommended Comments about assessment
Query whoqol_d1 Integer Recommended Domain 1 Raw score (6-Q3) + (6-Q4) + Q10 + Q15 + Q16 + Q17 + Q18
Query whoqol_d2 Integer Recommended Domain 2 Raw score Q5 + Q6 + Q7 + Q11 + Q19 + (6-Q26)
Query whoqol_d3 Integer Recommended Domain 3 Raw score Q20 + Q21 + Q22
Query whoqol_d4 Integer Recommended Domain 4 Raw score Q8 + Q9 + Q12 + Q13 + Q14 + Q23 + Q24 + Q25
Query whoqol_ts Integer Recommended WHO-QOL Total score
version_form String 121 Recommended Form used/assessment name
curreducompleted String 50 Recommended Current grade education level completed whoqol_edu
Query cg_relation_status String 50 Recommended Caregiver's relationship status
married; widowed;separated;widowed, remarried;divorced, neither remarried;unmarried;divorced, both remarried;other;divorced, one remarried; living as though married; divorced
whoqol_marital
Query demosam_042 Integer Recommended Are you currently sick? 0;1;-999; 9 1=Yes; 0=No; -999=NA/Missing Data; 9=DK ill, whoqol_ill
ae String 4,000 Recommended Adverse event Description whoqol_problem
Query whoqol_helpwform Integer Recommended Did someone help you to fill out this form 0;1 0 = No; 1 = Yes helpwform
whoqol_time String 50 Recommended How long did it take to fill out this form?
subject_description String 4,000 Recommended Subject related information (e.g the affection, phenotype, disease information, etc.).
site String 101 Recommended Site Study Site
Query week Float Recommended Week in level/study 99=week 10-week 14
Query days_baseline Integer Recommended Days since baseline
Query aescode Integer Recommended Staff code number of person completing this form 999= Missing Data pi_staff
Query visit String 60 Recommended Visit name
study String 100 Recommended Study; The code for each individual study
whoqol15bs Integer Recommended How well are you able to get around physically? 1::5 1=Not at all; 2=A little; 3=Moderately; 4=Mostly; 5=Completely
whoqol26bs Integer Recommended How often do you have negative feelings such as blue mood, despair, anxiety or depression? 1::5 1 = Never; 2 = Infrequently; 3 = Sometimes; 4 = Frequently; 5 = Always
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

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