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ABCD Parent Acculturation Survey Modified from PhenX (ACC)

0 Shared Subjects

Cultural factors
Clinical Assessments
Questionnaire
11/30/2017
pacc01
10/27/2020
View Change History
01
Query Element Name Data Type Size Required Condition Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR*
src_subject_id String 20 Required Subject ID how it's defined in lab/project
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0::1440 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
sex String 20 Required Sex of subject at birth M;F; O; NR M = Male; F = Female; O=Other; NR = Not reported gender
eventname String 60 Required The event name for which the data was collected
Query accult_select_language___1 Integer Recommended ¿Español? (1, Sí) 0 ; 1 0 = No; 1 = Yes accult_phenx_select_language_p
accult_p_intro String 30 Recommended The next set of questions are about what languages you know and how often you speak them with friends and family. La siguiente serie de preguntas se refieren a los idiomas que usted conoce y la frecuencia con la cual usted habla en esos idiomas con amigos y familiares. Descriptive field accult_phenx_intro_p
Query accult_q1_p Integer Recommended How well do you speak English? ¿Qué tan bien habla usted el inglés? 1 ::4 ; 777;999 1-Poor/Mal; 2-Fair/Regular; 3-Good/Bien; 4-Excellent/Excelente; 999-Don't know/No se; 777-Refused/Niego contestar accult_phenx_q1_p
Query accult_q2_p Integer Recommended Besides English, do you speak or understand another language or dialect? ¿Además del inglés, habla o entiende otro idioma o dialecto? 0;1 0=No; 1=Yes accult_phenx_q2_p
Query accult_q3_dropdwn_p Integer Recommended accult_q2_p ==1 What other language or dialect do you speak or understand (besides English)? ¿Cuál es el dialecto o idioma que mejor habla o entiende (además del inglés)? 1::57 1 = American Sign Language (ASL); 2 = Arabic; 3 = Arawak; 4 = Bangla; 5 = Bosnian; 6 = Cantonese; 7 = Cham; 8 = An American Indian or Alaska Native language; 9 = Creole; 10 = Croatian; 11 = Dutch; 12 = Filipino; 13 = Finnish; 14 = Flemish; 15 = French; 16 = Frisian; 17 = Gaelic; 18 = Garifuna; 19 = German; 20 = Greek; 21 = Hakka; 22 = Hebrew; 23 = Hindi; 24 = Hokkien; 25 = Hungarian; 26 = Italian; 27 = Japanese; 28 = Jarai; 29 = Khmer; 30 = Korean; 31 = Kuy; 32 = Luganda; 33 = Mandarin; 34 = Nepali; 35 = Papiamento; 36 = Patois; 37 = Persian; 38 = Polish; 39 = Portuguese; 40 = Punjabi; 41 = Romanian; 42 = Russian; 43 = Samoan; 44 = Serbian; 45 = Sinhala; 46 = Sourashtra; 47 = Spanish (Español); 48 = Stieng; 49 = Swahili; 50 = Tagalog; 51 = Tamil; 52 = Telugu; 53 = Thai; 54 = Turkish; 55 = Urdu; 56 = Vietnamese; 57 = Other accult_phenx_q3_dropdwn_p
accult_q3_other_p String 30 Recommended accult_q3_dropdwn_p == 57 What other language or dialect do you speak or understand (besides English)? ¿Cuál es el dialecto o idioma que mejor habla o entiende (además del inglés)? accult_phenx_q3_other_p
Query accult_q4_p Integer Recommended accult_q2_p == 1 What language do you speak with most of your friends? ¿En qué idioma habla con la mayoría de sus amistades? 1 ; 2 ; 3 ; 4 ; 5 ; 777 ; 999 1 = (Other language) all the time (Otro idioma) todo el tiempo; 2 = (Other language) most of the time (Otro idioma) la mayor parte del tiempo; 3 = (Other language) and English equally (Otro idioma) e inglés igualmente; 4 = English most of the time Inglés la mayor parte del tiempo; 5 = English all the time Inglés todo el tiempo; 777 = Refused Niego contestar; 999 = Don't Know No se accult_phenx_q4_p
Query accult_q5_p Integer Recommended accult_q2_p == 1 What language do you speak with most of your family? ¿En qué idioma habla con la mayoría de su familia? 1 ; 2 ; 3 ; 4 ; 5 ; 777 ; 999 1 = (Other language) all the time (Otro idioma) todo el tiempo; 2 = (Other language) most of the time (Otro idioma) la mayor parte del tiempo; 3 = (Other language) and English equally (Otro idioma) e inglés igualmente; 4 = English most of the time Inglés la mayor parte del tiempo; 5 = English all the time Inglés todo el tiempo; 777 = Refused Niego contestar; 999 = Don't Know No se accult_phenx_q5_p
accult_q3b_p Integer Recommended accult_q2_p == 1 && event_name_number!= 11 How well do you speak [accult_q3_dropdwn_p]? ?Qu? tan bien habla usted el [accult_q3_dropdwn_p]? 1 ; 2 ; 3 ; 4 ; 5 ; 777 ; 999 1 = Poor / Mal ; 2 = Fair/ Regular ; 3 = Good / Bien ; 4 = Excellent/ Excelente ; 999 = Don't Know / No se ; 777 = Refused / Niego contestar accult_phenx_q3b_p
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
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