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NIMH Data Archive
NDA ABCD CCF OAI NIAAADA AMP SCZ HEAL

Research Subject

485,444 Shared Subjects

Basic information about a study subject including demographics, pedigree, and diagnosis/phenotype
Clinical Assessments
Resolve Identifiers
04/06/2011
ndar_subject01
10/04/2023
View Change History
01
Definition
Submission Template
Query Element Name Data Type Size Required Condition Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR* CandidateGUID, candidateguid, guid, nihguid, plot_ndar_guid, pseudo_guid, subject_key
src_subject_id String 20 Required Subject ID how it's defined in lab/project IBISID, child_id_full, clinical_barcode, demo_study_id, hcpa_id, ibisid, participant_id, participantid, pid, plot_id, plotstudy_full_id, record_id, session_id, src_subject, subject_id, subjectid, subjectnumber, subjid_display
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY Date_taken, assessment_dt, bl_visit_date, consentdate, consented_study, datacollecteddate, date, date_demographics, date_interview_ses, date_of_interview_contact, date_taken, interviewdate, intvdate, plot_visit1_date, pp_date, profile_date, testing_date, visit_date
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0::1440 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month. Candidate_Age_in_Months, age, age_a, age_m_consent, ageateval, ch_age, demo_age, demqage, intvage, plot_age_totalmonths, profile_age, test_age, total_age_in_months
sex String 20 Required Sex of subject at birth
M;F; O; NR
M = Male; F = Female; O=Other; NR = Not reported ch_sex, demo_sex, demqsex, gender, genderid, plot_child_sex, sex, sex_a
Query race String 30 Required Race of study subject
American Indian/Alaska Native; Asian; Hawaiian or Pacific Islander; Black or African American; White; More than one race; Unknown or not reported; Other Non-White; Other
demo_race, demo_white, demqrea2, race_dem, raceid
ethnic_group String 255 Recommended Ethnic group demo_ethnicity, demqrea1, ethnicity_dem, ethnicityid, hispanic
Query phenotype String 200 Required Phenotype/diagnosis for the subject Cohort, SubprojectID, ados_scoresumm_adosdiag, cohort, diagnosis, genderid, group, p1selectdiagnosis, project_category, race_dem, scid_diagnosis, scoresumm_overalldiag, subprojectid
Query phenotype_description String 4,000 Required Description of the phenotype for the subject developmental_diff_sib_1, fmr1_status, p2whatisyourlevelofcertainty
Query twins_study String 100 Required Is this study of twins?
Yes;No
Query sibling_study String 50 Required Was it sibling study? Study of sibling(s) of autistic child.
Yes;No
Query family_study String 100 Required Was it family study? Study of biological mother, biological father and/or sibling of proband.
Yes;No
family_user_def_id String 25 Conditional family_study == 'Yes' Family Pedigree User-Defined ID familyid, id
subjectkey_mother GUID Recommended The NDAR Global Unique Identifier (GUID) for subject's biological mother NDAR* subject_key_mother
src_mother_id String 100 Conditional notNull(subjectkey_mother) site specific mother ID biomother, mat_id, motherid, src_subject_id_mother
subjectkey_father GUID Recommended The NDAR Global Unique Identifier (GUID) for subject's biological father NDAR* subject_key_father
src_father_id String 100 Conditional notNull(subjectkey_father) site specific father ID fatherid, pat_id, src_subject_id_father
subjectkey_sibling1 GUID Recommended The NDAR Global Unique Identifier (GUID) for subject's sibling NDAR* ProbandGUID
src_sibling1_id String 100 Conditional notNull(subjectkey_sibling1) site specific sibling1 ID probandid
Query sibling_type1 String 255 Conditional notNull(subjectkey_sibling1) Type of Sibling
Full Brother FB; Half Mother Brother HMB; Half Father Brother HFB; Full Sister FS; Half Mother Sister HMS; Half Father Sister HFS; Adopted Brother AB; Adopted Sister AS; Unknown
ProbandGender, relationship_sib_1
subjectkey_sibling2 GUID Recommended The NDAR Global Unique Identifier (GUID) for subject's sibling NDAR*
src_sibling2_id String 100 Recommended site specific sibling2 ID
Query sibling_type2 String 255 Recommended sibling type
Full Brother FB; Half Mother Brother HMB; Half Father Brother HFB; Full Sister FS; Half Mother Sister HMS; Half Father Sister HFS; Adopted Brother AB; Adopted Sister AS; Unknown
subjectkey_sibling3 GUID Recommended The NDAR Global Unique Identifier (GUID) for subject's sibling NDAR*
src_sibling3_id String 100 Recommended site specific sibling3 ID
Query sibling_type3 String 255 Recommended sibling type
Full Brother FB; Half Mother Brother HMB; Half Father Brother HFB; Full Sister FS; Half Mother Sister HMS; Half Father Sister HFS; Adopted Brother AB; Adopted Sister AS; Unknown
subjectkey_sibling4 GUID Recommended The NDAR Global Unique Identifier (GUID) for subject's sibling NDAR*
src_sibling4_id String 100 Recommended site specific sibling4 ID
Query sibling_type4 String 255 Recommended sibling type
Full Brother FB; Half Mother Brother HMB; Half Father Brother HFB; Full Sister FS; Half Mother Sister HMS; Half Father Sister HFS; Adopted Brother AB; Adopted Sister AS; Unknown
Query zygosity String 255 Conditional twins_study == 'Yes' Zygosity
monozygous; dizygous; trizygotic; 999
999=unknown multibirthtypeid
Query sample_taken String 50 Required Was a sample taken at this interview/during this project time
Yes;No
dna_sample_collected
sample_id_original String 100 Conditional sample_taken == 'Yes' Original, user-defined Sample ID
Query sample_description String 3,500 Conditional sample_taken == 'Yes' Sample description: tissue type, i.e. blood, saliva, brain etc. whole blood; saliva; brain; urine; serum; plasma; CSF; IPS; Fibroblast; Neuronal Progenitor; skin biopsy; temporal cortex; lymphoblastoid cell line; unknown; semen; frontal cortex; parietal cortex; basal ganglia; Placenta; hair; occipital visual cortex; cerebellum; spleen; stool; muscle; kidney; liver; heart; cord blood; nasal swab; DNA; RNA; breastmilk; buccal; oral cells; rectal swab; cervicovaginal swab
Query biorepository_name String 100 Conditional sample_taken == 'Yes' Biorepository where sample is stored subjecttype
sample_id_biorepository String 100 Conditional sample_taken == 'Yes' Biorepository Sample ID biospc_rutgers_id, rucdrnum
patient_id_biorepository String 100 Conditional notNull(biorepository_name) Biorepository Patient ID dxsmryid
cell_id_original String 100 Recommended Original, user-defined cell line ID
cell_id_biorepository String 100 Recommended Biorepository cell line ID
agre_subject_id String 100 Recommended AGRE subject ID
sfari_subject_id String 100 Recommended SFARI subject ID
cpea_site String 100 Recommended CPEA/STAART site name
Query cpea_id String 100 Recommended CPEA/STAART subject ID
blood_id String 100 Recommended blood ID dna_sample_lab_id
Query adi_dx String 15 Recommended ADI: Diagnosis
ados_dx String 15 Recommended ADOS Diagnosis
agp_family_id String 100 Recommended AGP family ID
agp_subject_id String 100 Recommended AGP subject ID
Query site String 101 Recommended Site Study Site biorepository_site_id, fxs_site_name_other, siteid
comments_misc String 4,000 Recommended Miscellaneous comments on study, interview, methodology relevant to this form data demo_comments, dna_comments, fspgod, genderdescr, pi_staff
Query week Float Recommended Week in level/study 99=week 10-week 14
study String 100 Recommended Study; The code for each individual study biorepository_study_number, dna_sample_usable
Query reg_edu Integer Recommended Education 1::34; 999 1=None; 2=Preschool; 3=Kindergarten; 4=1st grade; 5=2nd grade; 6=3rd grade; 7=4th grade; 8=5th grade; 9=6th grade; 10=7th grade; 11=8th grade; 12=9th grade; 13=10th grade; 14=11th grade; 16=High School Graduate; 17=GED; 18=Some college credit but less than 1 year; 19= Some college, no degree; 20=Associates degree (e.g., AA, AS); 21=Bachelor's degree (e.g., BA, AB, BS); 22=Masters degree (e.g., MA, MS, MEng, MEd, MSW, MBA); 23=Professional degree (e.g., MD, DDS, DVM, LLB, JD); 24=Doctorate degree (e.g., PhD, EdD); 25=One or more years of college at a 2-year program, no degree; 26=One year of college at a 4-year program, no degree; 27=Two years of college at a 4-year program, no degree; 28=Three years or more of college at a 4-year program, no degree; 29= Trade or vocational school; 30=Eighth grade or less; 999=Unknown
Query reg_mother_edu Integer Recommended Mother Education 1::33; 999 1=None; 2=Preschool; 3=Kindergarten; 4=1st grade; 5=2nd grade; 6=3rd grade; 7=4th grade; 8=5th grade; 9=6th grade; 10=7th grade; 11=8th grade; 12=9th grade; 13=10th grade; 14=11th grade; 16=High School Graduate; 17=GED; 18=Some college credit but less than 1 year; 19= Some college, no degree; 20=Associates degree (e.g., AA, AS); 21=Bachelor's degree (e.g., BA, AB, BS); 22=Masters degree (e.g., MA, MS, MEng, MEd, MSW, MBA); 23=Professional degree (e.g., MD, DDS, DVM, LLB, JD); 24=Doctorate degree (e.g., PhD, EdD); 25=One or more years of college at a 2-year program, no degree; 26=One year of college at a 4-year program, no degree; 27=Two years of college at a 4-year program, no degree; 28=Three years or more of college at a 4-year program, no degree; 29= Trade or vocational school; 30=Eighth grade or less; 31 = Some High School (9th-11th grade); 32 = Did not complete high school; 33 = Postgraduate degree (MA, MBA, PhD, JD, MD); 999=Unknown demqmom2
Query ca243 Integer Recommended What handedness do you consider yourself? 1::3 1=Right; 2=Left; 3=Mixed overall_handedness, reg_handedness
Query ccc2english Integer Recommended Does the subject speak English as a primary language?
0;1;-9
0 = No; 1 = Yes; -9 = Missing value
primary_language String 255 Recommended Subject's Primary Language demqlangchild1
physiological_responses_type String 100 Recommended Description of monitored physiological responses
Query reg_father_edu Integer Recommended Father Education 1::33;999 1=None; 2=Preschool; 3=Kindergarten; 4=1st grade; 5=2nd grade; 6=3rd grade; 7=4th grade; 8=5th grade; 9=6th grade; 10=7th grade; 11=8th grade; 12=9th grade; 13=10th grade; 14=11th grade; 16=High School Graduate; 17=GED; 18=Some college credit but less than 1 year; 19= Some college, no degree; 20=Associates degree (e.g., AA, AS); 21=Bachelors degree (e.g., BA, AB, BS); 22=Masters degree (e.g., MA, MS, MEng, MEd, MSW, MBA); 23=Professional degree (e.g., MD, DDS, DVM, LLB, JD); 24=Doctorate degree (e.g., PhD, EdD); 25=One or more years of college at a 2-year program, no degree; 26=One year of college at a 4-year program, no degree; 27=Two years of college at a 4-year program, no degree; 28=Three years or more of college at a 4-year program, no degree; 29= Trade or vocational school; 30=Eighth grade or less; 31 = Some High School (9th-11th grade); 32 = Did not complete high school; 33 = Postgraduate degree (MA, MBA, PhD, JD, MD); 999=Unknown demqdad2
Query employ_status Integer Recommended Current employment status 1::13 1=Unemployed; 2=Unemployed Stay-at-home parent; 3=Part-Time Student; 4=Full-Time Student; 5=Disability/Unemployed; 6=Disability/Part-Time Employment; 7=Employed Part Time; 8=Employed Full Time; 9=Retired/Part-Time Employment; 10=Retired/Unemployed.; 11 = Student; 12 = Caring for children, elders and house; 13 = Unemployed, volunteer work
bkgrnd_med String 1,020 Recommended Medication information medication
Query demo_logfinc Float Recommended log of family income from wave one of the study
Query demo_wt_n_nr Float Recommended sampling weights used to account for sample design and non response rate
Query demo_stratum Float Recommended stratum
grade String 50 Recommended Current Grade
service_specialed String 5 Recommended Special Education
Yes; No
special_education
asisped String 200 Recommended Specify special education services special_education_spc
Query brain_injury Integer Recommended Brain Injury? 1::3 1=Yes; 2=No; 3=NA
trt_grp String 10 Recommended Treatment Group Assignment 1;1AO;1CT;2; 3;4;5;6;7;8;9;10;11;12; O; P; CCA; GCT; TCT; TAU; CGC; ESDM; NA; EG 1=Group 1 first 8 weeks; 2=Group 2; 3=Group 3; 4 =active; 5=sham; 6=none; 7=ESDM High intensity; 8=ESDM Low intensity; 9=EIBI High intensity; 10=EIBI Low intensity; ESDM = Early Start Denver Model; EIBI = Early and Intensive Behavioral Intervention; 11 = Navigator; 12 = Care manager; 13=Waitlist Control; 14=Treatment; 1AO=Group 1 8 week add on; 1CT=Group 1 8 week cross taper; O=Oxytocin; P=Placebo; CCA=Community Control Arm; GCT=Generalized Cognitive Training; TCT=Targeted Cognitive Training; TAU=Treatment as Usual; CGC = Computer Games Control; NA=not assigned to treatment group; EG= Experimental Group treatment
version_form String 121 Recommended Form used/assessment name redcap_event_name
Query visit String 60 Recommended Visit name eventname, visit_checklist, visits
reason_nint Integer Recommended Reason for not conducting interview 0::9 0=Conducted interview; 1=Withdrawn by CPI; 2=Withdrawn voluntarily; 3=Incoherent speech for any cause; 4=Poverty of content or too little speech; 5=Disturbance of consciousness; 6=Lost to follow-up; 7=Refused; 8=Other reasons [specify...] reason
reason_nint_other String 4,000 Recommended Reason Other - Please specify reason_other
liv_sit Integer Recommended Living Situation 1::3;-9 1=Hospital inpatient; 2=Supported housing; 3=Independent; -9 = Unknown/Not Reported living
height_met Float Recommended Height - Metric Unit 999 = Missing; -999 = No Data height
weight_met Float Recommended Weight - Metric Unit 999 = Missing; -999 = No Data weight
bmi Float Recommended body mass index of subject -9 = Missing
q013 Integer Recommended Adverse Events: assessment completed? 0; 1 0=no, 1=yes adverse
medchng Integer Recommended Changes made to meds 0;1;-7 0=No; 1=Yes; -7=Refused medication
capacity Integer Recommended Ongoing capacity to consent 0=No; 1=Yes
blood_1 Integer Recommended Consented to blood collection 0=No; 1=Yes
blood_2 Integer Recommended Taken for blood collection 0=No; 1=Yes
country Integer Recommended Personal details. Country of origin 1::6 1=UK; 2=West Indies; 3=India and Asia; 4=Africa; 5=Other European; 6=Other demo_5a
country_origin String 100 Recommended Country of Origin demo_5b
demo_6 Integer Recommended Are you currently employed or in school? 0;1; 9999 1= Yes; 0= No; 9999= no data
year_mta Integer Recommended Year in study visit_year, visit_year�
chronic_ticdisorder_motor Integer Recommended DSM-IV-tr Chronic motor tic disorder 0;1;9 0=Unaffected; 1=Definite; 9=Unratable
chronic_ticdisorder_vocal Integer Recommended DSM-IV-tr Chronic vocal tic disorder 0;1;9 0=Unaffected; 1=Definite; 9=Unratable
chronicticdisorder_combined Integer Recommended Chronic tic disorder- combined type (one motor and one vocal tic) 0;1;9 0=Unaffected; 1=Definite; 9=Unratable
provisional_ticdisorder Integer Recommended Provisional Tic Disorder (DSM-V) 0;1;9 0=Unaffected; 1=Definite; 9=Unratable
transient_ticdisorder Integer Recommended DSM-IV-tr Transient Tic Disorder 0;1;9 0=Unaffected; 1=Definite; 9=Unratable
tic_disorder_nos Integer Recommended DSM-IV-tr Tic Disorder NOS 0;1;9 0=Unaffected; 1=Definite; 9=Unratable
p53i3 Integer Recommended Transient Tic Disorder - Age at onset of first episode (months) ticageonset
ticsxcur Integer Recommended Current tic symptoms (past week) 0;1;9 0=No; 1=Yes; 9=Unratable
ticdxoverride Integer Recommended Tic disorder override- clinician override of algorithm 0;1 0=False=No override; 1=True=Override
ocddiagnoisid Integer Recommended DSM-IV-tr OC disorders 0::3;9 0=No OC disorder; 1=OCD; 2=OC subclinical; 3=OC symptoms; 9=Unratable
ocddiagnois String 50 Recommended OC disorder descriptions
hxocdage Integer Recommended Onset of OCD ocageonset
ocsxcur Integer Recommended Current OC symptoms (past week) 0;1;9 0=No; 1=Yes; 9=Unratable
ocdxoverride Integer Recommended OC disorder override- clinician override of algorithm 0;1 0=False=No override; 1=True=Override
trichid Integer Recommended DSM-IV-tr Trichotillomania 0;1;9 0=Unaffected; 1=Definite; 9=Unratable
trichage Integer Recommended Trichotillomania (hairpulling) Onset Age months trichageonset
trichsxcur Integer Recommended Current Trich symptoms (past week) 0;1;9 0=No; 1=Yes; 9=Unratable
adhd_combined Integer Recommended ADHD: Combined type present in past 6 months 0;1; 9 0 = No; 1 = Yes; 9=unable to rate
adhd_predom_inattent Integer Recommended DSM-IV-tr ADHD predominantly inattentive subtype 0;1;9 0=Unaffected; 1=Definite; 9=Unratable
adhd_predom_hyperimpul Integer Recommended DSM-IV-tr ADHD predominantly hyperactive-Impulusive subtype 0;1;9 0=Unaffected; 1=Definite; 9=Unratable
grantnum Integer Recommended Grant number (1st or 2nd) 1;2 1=grant1 (2011); 2=grant2 (2018)
adhd_subclinical Integer Recommended Subclinical ADHD 0;1;9 0=Unaffected; 1=Definite; 9=Unratable
ksads_adhd_age Integer Recommended ADHD Age of Onset, months adhd_ageonset
adhdsxcur Integer Recommended Current ADHD symptoms (past week) 0;1;9 0=No; 1=Yes; 9=Unratable
adhddxoverride String 20 Recommended ADHD disorder override- clinician override of algorithm 0;1 0=False=No override; 1=True=Override
flag_atypical Integer Recommended Flagged for Atypical presentation 0;1 0=No flag; 1=Flag
flag_psychosis Integer Recommended Flagged for Psychosis 0;1 0=No flag; 1=Flag
flag_pdd_asd Integer Recommended Flagged for PDD or Autism Spectrum 0;1 0=No flag; 1=Flag
flag_other_neurolog Integer Recommended Flagged for Other Neurological condition 0;1 0=No flag; 1=Flag
flag_congenital_anom Integer Recommended Flagged for Congenital anomalies 0;1 0=No flag; 1=Flag
flag_genetic_chromosomal Integer Recommended Flagged for Genetic Syndrome/ Chromosomal abnormality 0;1 0=No flag; 1=Flag
dxsmrysubmitted Integer Recommended Data submitted to coordinating center 0;1 0=False=Not submitted; 1=True=Submitted
flag_other_psych Integer Recommended Flagged for Other significant PSYCHIATRIC history 0;1 0=No flag; 1=Flag
flag_other_medical Integer Recommended Flagged for Other significant MEDICAL history 0;1 0=No flag; 1=Flag
flag_other_desc String 100 Recommended Flagged for Other flagotherdescr
othergeneticstudy Integer Recommended If participated in another genetic study 0;1;9 0=No; 1=Yes; 9=Unknown
othergeneticstudydescr String 75 Recommended Name of other genetic study
subsiteid String 20 Recommended Subsite ID
evaluated Integer Recommended Subject evaluated (Y/N) 0;1 0=No; 1=Yes
evaldate Date Recommended Evaluation date
multibirthid Integer Recommended Code for multiple birth 0::2 0=No; 1=Twin; 2=Multiple (>twin)
tourettes_disorder Integer Recommended DSM-IV-tr Tourette's disorder 0;1;9 0=Unaffected; 1=Definite; 9=Unratable
sample Integer Recommended Training or randomized case 1::5 1 = randomized; 2 = training; 3=randomized-control; 4=randomized-intervention; 5=concurrent cohort-intervention
race_other String 100 Recommended Race of Respondent Specify
respond Integer Recommended Respondent
1::7;999
1 = Parent; 2 = Teacher; 3=Self; 4= Other; 5= Significant other; 6 = Parent 1; 7 = Parent 2; 999 = Not available form_ext
date_confirmed_phenotype Date Recommended Date when subject was diagnosed
pos_years Integer Recommended Number of years at position 0::100;-9;999 -9 = Unknown/Not Reported; 999 = N/A
position1 String 150 Recommended Title of Employment Position -9 = Unknown/Not Reported
timepoint_label String 50 Recommended Timepoint/visit label
trt_grp_desc String 2,000 Recommended Treatment Group Assignment - Description -9 = Unknown/Not Reported
longform_id String 50 Recommended Long form of Subject ID
src_sibling6_id String 100 Recommended site specific sibling6 ID
sibling_type6 String 255 Recommended sibling type Full Brother FB; Half Mother Brother HMB; Half Father Brother HFB; Full Sister FS; Half Mother Sister HMS; Half Father Sister HFS; Adopted Brother AB; Adopted Sister AS; Unknown
subjectkey_sibling7 GUID Recommended The NDAR Global Unique Identifier (GUID) for subject's sibling NDAR*
src_sibling7_id String 100 Recommended site specific sibling7 ID
sibling_type7 String 255 Recommended sibling type Full Brother FB; Half Mother Brother HMB; Half Father Brother HFB; Full Sister FS; Half Mother Sister HMS; Half Father Sister HFS; Adopted Brother AB; Adopted Sister AS; Unknown
subjectkey_sibling8 GUID Recommended The NDAR Global Unique Identifier (GUID) for subject's sibling NDAR*
src_sibling8_id String 100 Recommended site specific sibling8 ID
sibling_type8 String 255 Recommended sibling type Full Brother FB; Half Mother Brother HMB; Half Father Brother HFB; Full Sister FS; Half Mother Sister HMS; Half Father Sister HFS; Adopted Brother AB; Adopted Sister AS; Unknown
subjectkey_sibling9 GUID Recommended The NDAR Global Unique Identifier (GUID) for subject's sibling NDAR*
src_sibling9_id String 100 Recommended site specific sibling9 ID
sibling_type9 String 255 Recommended sibling type Full Brother FB; Half Mother Brother HMB; Half Father Brother HFB; Full Sister FS; Half Mother Sister HMS; Half Father Sister HFS; Adopted Brother AB; Adopted Sister AS; Unknown
subjectkey_sibling10 GUID Recommended The NDAR Global Unique Identifier (GUID) for subject's sibling NDAR*
src_sibling10_id String 100 Recommended site specific sibling10 ID
sibling_type10 String 255 Recommended sibling type Full Brother FB; Half Mother Brother HMB; Half Father Brother HFB; Full Sister FS; Half Mother Sister HMS; Half Father Sister HFS; Adopted Brother AB; Adopted Sister AS; Unknown
subjectkey_sibling5 GUID Recommended The NDAR Global Unique Identifier (GUID) for subject's sibling NDAR*
src_sibling5_id String 100 Recommended site specific sibling5 ID
sibling_type5 String 255 Recommended sibling type Full Brother FB; Half Mother Brother HMB; Half Father Brother HFB; Full Sister FS; Half Mother Sister HMS; Half Father Sister HFS; Adopted Brother AB; Adopted Sister AS; Unknown Full Brother FB; Half Mother Brother HMB; Half Father Brother HFB; Full Sister FS; Half Mother Sister HMS; Half Father Sister HFS; Adopted Brother AB; Adopted Sister AS; Unknown
subjectkey_sibling6 GUID Recommended The NDAR Global Unique Identifier (GUID) for subject's sibling NDAR*
subjectkey_femalecaregiver GUID Recommended The NDAR Global Unique Identifier (GUID) for non-biological mother or female caregiver
subjectkey_malecaregiver GUID Recommended The NDAR Global Unique Identifier (GUID) for non-biological father or male caregiver
src_femalecaregiver_id String 20 Recommended Subject ID for non-biological mother or female caregiver how it is defined in lab/project
src_malecaregiver_id String 20 Recommended Subject ID for non-biological father or male caregiver how it is defined in lab/project
ref_child_id String 50 Recommended Referencing Child ID how it is defined in lab/project
child_subjectkey GUID Recommended Original GUID
screen_randomization Integer Recommended Screening group assignment 0;1 0 = Experimental (pediatric practice randomized to early screening group); 1 = Usual Care (pediatric practice randomized to usual care)
fetal_age Integer Recommended Age of the fetus (i.e., gestational age) in days 0::322
fetal_age_type Integer Recommended Type of gestational age used for fetal_age 1;2 1 = Postovulatory gestational age, defined as days since the last ovulation, expected term of 266 days; 2 = Postmenstrual gestational age, days since the last menstrual period, expected term of 280 days
studyphase Integer Recommended Study Phase 1::6; -888; -999 1=Phase 1: Treatment as Usual(TAU); 2=Phase 2: Screening Only; 3=Phase 3: Intervention; 4=Focus Groups; 5=Open Trial; 6=Randomized Trial; -888=Not Applicable; -999=Missing;
gender_identity Integer Recommended Gender identity: Do you identify as: 1::12 1 = Female; 2 = Male; 3 = Other; 4 = Agender; 5 = Nonbinary/Fluid; 6 = Transgender female; 7 = Transgender male; 8 = Genderqueer; 9 = Do not wish to report; 10 = Multiple Identities Listed; 11 = Non-binary; 12 = Genderfluid
demo_sex_tgender Integer Recommended Transgender 0;1;2 0=No;1=Yes;2=Maybe
teen_subject_id String 20 Recommended Teen subject ID the parent is reporting on
trtarm String 200 Recommended Treatment arm
custom_src_id String 30 Recommended Subject ID how it's defined in lab/project (used for source IDs that change depending on timepoint/visit/etc.)
pin_id String 6 Recommended PIN ID
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.

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