|
subjectkey |
GUID |
|
Required |
The NDAR Global Unique Identifier (GUID) for research subject |
NDAR*
|
|
|
|
src_subject_id |
String |
20
|
Required |
Subject ID how it's defined in lab/project |
|
|
|
|
interview_date |
Date |
|
Required |
Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY |
|
|
Addate |
|
interview_age |
Integer |
|
Required |
Age in months at the time of the interview/test/sampling/imaging. |
0::1440
|
Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
|
ADagemos |
Query
|
interview_chrono_age |
Integer |
|
Recommended |
Interview Chronological Age |
0 :: 1200
|
|
|
Query
|
interview_adj_age |
Integer |
|
Recommended |
Interview Adjusted Age |
0 :: 1200
|
|
|
|
sex |
String |
20
|
Required |
Sex of subject at birth |
M;F; O; NR
|
M = Male; F = Female; O=Other; NR = Not reported
|
SEX, gender |
|
comments_misc |
String |
4,000
|
Recommended |
Miscellaneous comments on study, interview, methodology relevant to this form data |
|
|
|
Query
|
respondent |
String |
20
|
Recommended |
Respondent |
|
|
|
Query
|
ps1 |
Integer |
|
Recommended |
How easy was it for you to conduct ESDM intervention with your child? (Rate 1=not easy; 5=very easy) |
|
|
|
Query
|
ps2 |
Integer |
|
Recommended |
How much do you think the ESDM intervention helps your child use spontaneous speech? (5= very much) |
|
|
|
Query
|
ps3 |
Integer |
|
Recommended |
How easily is ESDM intervention incorporated into your daily routine? |
|
|
|
Query
|
ps4 |
Integer |
|
Recommended |
How much does this intervention affect the speed of learning spontaneous speech for your child? |
|
|
|
Query
|
ps5 |
Integer |
|
Recommended |
Overall, my feelings about the ESDM intervention project are that I am: |
|
|
|
Query
|
ps6 |
Integer |
|
Recommended |
My feelings about my child's progress since beginning ESDM intervention are that my child has: |
|
|
|
Query
|
ps7 |
Integer |
|
Recommended |
Would you recommend this intervention to other parents? |
|
|
|
Query
|
ps8 |
Integer |
|
Recommended |
I feel that the paperwork is being done in a timely manner (data collection, binder updates)? |
|
|
|
Query
|
ps9 |
Integer |
|
Recommended |
I feel that the program provided adequate training to the intervention staff working with us. |
|
|
|
Query
|
ps10 |
Integer |
|
Recommended |
I feel that my questions and concerns are brought to the intervention staff's attention and are answ |
|
|
|
Query
|
ps11 |
Integer |
|
Recommended |
In terms of promptness and attendance, I feel that the intervention staff is: |
|
|
|
Query
|
ps12 |
Integer |
|
Recommended |
In dealing with my family, I feel that the intervention staff have acted: (professionally?) |
|
|
|
Query
|
ps13 |
Integer |
|
Recommended |
In dealing with my family, I feel that the intervention staff have acted:(respectfully?) |
|
|
|
Query
|
ps14 |
Integer |
|
Recommended |
I feel that the intervention staff have a warm and caring attitude toward my family. |
|
|
|
Query
|
ps15a |
Integer |
|
Recommended |
Was the time commitment a barrier to your participation in this program? |
|
|
|
Query
|
ps15ac |
String |
100
|
Recommended |
Notes (regarding the time commitment of the program) |
|
|
|
Query
|
ps15b |
Integer |
|
Recommended |
Was scheduling a barrier to your participation in this program? |
|
|
|
Query
|
ps15bc |
String |
100
|
Recommended |
Notes (regarding scheduling of the program) |
|
|
|
Query
|
ps15c |
Integer |
|
Recommended |
Were associated costs a barrier to your participation in this program? |
|
|
|
Query
|
ps15cc |
String |
100
|
Recommended |
Notes (regarding associated costs of the program) |
|
|
|
Query
|
ps15d |
Integer |
|
Recommended |
Were the needs of an older child with autism a barrier to your participation in this program? |
|
|
|
Query
|
ps15dc |
String |
100
|
Recommended |
Notes (reagrding the needs of an older child with autism) |
|
|
|
Query
|
ps15e |
Integer |
|
Recommended |
well matched to my own style of interacting with and parenting my child |
|
|
|
Query
|
ps15ec |
String |
100
|
Recommended |
Notes (regarding matching to parent's style of interaction with child) |
|
|
|
Query
|
ps15fs |
String |
100
|
Recommended |
Other, specify (barrier to your participation in the program) |
|
|
|
Query
|
ps15f |
Integer |
|
Recommended |
Other (barrier to your participation in the program) |
|
|
|
|
ps15fc |
String |
100
|
Recommended |
Notes (regarding other barriers to program participation) |
|
|
|
|
ps15gs |
String |
100
|
Recommended |
Other #2, specify (barrier to your participation in the program) |
|
|
|
Query
|
ps15g |
Integer |
|
Recommended |
Other #2 (barrier to your participation in the program) |
|
|
|
|
ps15gc |
String |
100
|
Recommended |
Notes (regarding other barriers to program participation) |
|
|
|
Query
|
ps16 |
String |
255
|
Recommended |
Are there any other comments or concerns about you or your child's participation in Early Steps Stud |
|
|
|