|
subjectkey |
GUID |
|
Required |
The NDAR Global Unique Identifier (GUID) for research subject |
NDAR*
|
|
|
|
src_subject_id |
String |
20
|
Required |
Subject ID how it's defined in lab/project |
|
|
|
|
interview_date |
Date |
|
Required |
Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY |
|
|
InterviewYear |
|
interview_age |
Integer |
|
Required |
Age in months at the time of the interview/test/sampling/imaging. |
0 :: 1260
|
Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
|
adi_age |
|
sex |
String |
20
|
Required |
Sex of subject at birth |
M;F; O; NR
|
M = Male; F = Female; O=Other; NR = Not reported
|
gender |
|
relationship |
Integer |
|
Recommended |
Relationship of respondent to individual |
|
1 = Biological mom; 2 = Biological dad; 3 = Grandparent; 4 = Special education (sped) teacher; 5 = General education teacher; 6 = Occupational therapist; 7 = Speech and language therapist; 8 = Behavioral therapist; 9 = Paraprofessional; 10 = Aide; 11 = Principal; 12 = Administrator; 14 = Content teacher; 15 = Parent center director; 16 = Self; 17=Adoptive mother; 18=Adoptive father; 19=Foster mother; 20 = Foster father; 21=Grandmother; 22=Grandfather; 23=Step-mother; 24 = Step-father; 25=Aunt; 26=Uncle; 28=Both parents;31= Grandmother from mother side; 32= Grandfather from mother side; 33= Grandmother from father side; 34= Grandfather from father side; 36= Brother; 37= Sister; 38= Cousin; 39= female caregiver; 40=male caregiver; 41=Female child; 42=Male child; 43=Spouse/Mate; 44=Friend; 45=Parent; 46=Significant other; 47=Sibling; 48=Son/Daughter; 49=Son-in-law/Daughter-in law; 50=Other Relative; 51=Paid caregiver; 52=Friends; 53=Roommate; 54=Supervisor; 55=mother's boyfriend; 56=other parental figure; 57=Summary; 58=counselor ; 59 = other female relative; 60 = other male relative; 61 = non-relative ; 62=Maternal Aunt; 63=Maternal Uncle; 64=Maternal Cousin; 65 = Paternal Aunt; 66=Paternal Uncle; 67=Paternal Cousin ; 68=Biological/Adoptive Mother and Grandmother; 69=Biological/Adoptive Mother and Stepmother and Grandmother; 70=Biological/Adoptive Mother and Grandmother and Foster Father; 71=Biological/Adoptive Mother and Stepmother and Foster Mother; 72=Biological/Adoptive Mother and Foster Mother; 73=Biological/Adoptive Mother and Biological/Adoptive Father; 74=Biological/Adoptive Mother and Stepmother and Biological/Adoptive Father; 75=Biological/Adoptive Mother and Other; 76=Biological/Adoptive Mother and Stepmother and Stepfather; 77=Biological/Adoptive Mother and Stepfather; 78=Biological/Adoptive Mother and Grandfather; 79=Biological/Adoptive Mother and Stepmother and Foster Father; 80=Biological/Adoptive Mother and Stepmother; 81=Guardian, female; 82=Other female; 83=Guardian, male; 84=Other male; 85=Other/Grandparent/Nanny; 86 = Mother, Father, Guardian; 87 = Daughter, son, grandchild; 88 = Professional (e.g., social worker, nurse, therapist, psychiatrist, or group home staff); -999=Missing; 89 = Biological parent; 90=Other; 91 = Stepparent; 92 = Adoptive parent; 93 = Foster parent; 94 = Co-worker
|
|
|
early_intervent |
String |
5
|
Recommended |
Does your child attend an early intervention, center-based preschool program |
|
NA = Not applicable
|
Service_Preschool |
|
service_regulared |
String |
5
|
Recommended |
Regular Education |
Yes; No
|
|
|
|
service_specialed |
String |
5
|
Recommended |
Special Education |
Yes; No
|
|
|
|
service_occupation |
String |
5
|
Recommended |
Occupational Therapy |
Yes; No
|
|
|
|
service_physical |
String |
5
|
Recommended |
Physical Therapy |
Yes; No
|
|
|
|
service_speech |
String |
5
|
Recommended |
Speech Therapy |
Yes; No
|
|
|
|
service_other |
String |
5
|
Recommended |
Other |
Yes; No
|
|
|
|
service_otherx |
String |
50
|
Recommended |
If other please specify |
|
|
|
|
child_mentalret |
String |
50
|
Recommended |
Does (did) the Child have Mental Retardation? |
|
|
Condition_Retardation |
|
othmem_learndis |
String |
50
|
Recommended |
Learning Disability |
|
|
Condition_Learning |
|
condition_speech |
String |
5
|
Recommended |
Speech or Lanuage Impairment |
Yes; No
|
Y = Checked
|
|
|
child_pddnos |
String |
50
|
Required |
Does the Child have PDD-NOS (Pervasive Development Disorder-Not Otherwise Specified)? |
|
NK= Not known; NS = Not sure
|
Condition_PDD |
|
child_aspergers |
String |
50
|
Required |
Does the Child have Asperger's Syndrome? |
|
NK= Not known; NS = Not sure
|
Condition_Asperger |
|
condition_emotion |
String |
5
|
Recommended |
Emotional Disturbance or Serious Behavioral Difficulities |
|
|
|
Query
|
attentiondisorder |
Integer |
|
Recommended |
Does (did) the subject have Attention Deficit Disorder +/- Hyperactivity? |
|
0 = No/False; 1 = Yes/True; 2 = Unknown
|
Condition_ADHD |
|
vis_blind |
String |
10
|
Recommended |
Significant visual loss or congenital blindness |
Yes; No; NK
|
NK = Not known
|
Condition_Visual |
|
hear_loss |
String |
10
|
Required |
Deafness or significant hearing loss |
|
NK = Not known
|
Condition_Hearing |
|
child_cerpalsy |
String |
50
|
Required |
Does (did) the Child have Cerebral Palsy? |
|
NK= Not known; NS = Not sure
|
Condition_Cerebral |
|
child_fragilex |
String |
50
|
Required |
Does (did) the Child have Fragile X? |
|
999=NA/missing
|
Condition_FragileX |
|
touret |
String |
10
|
Required |
Tourette Syndrome |
|
NK= Not known; NS = Not sure
|
Condition_Tic |
|
condition_disabilities |
String |
5
|
Recommended |
Multiple Disabilities |
Yes; No
|
Y = Checked
|
|
|
condition_traumatic |
String |
5
|
Recommended |
traumatic Brain Injury |
Yes; No
|
Y = Checked
|
|
|
condition_neurological |
String |
5
|
Recommended |
Other Neurological Disorder |
Yes; No
|
Y = Checked
|
|
|
condition_health |
String |
5
|
Required |
Other Health Conditions (e.g., cardiac disorder, asthma) |
Yes; No;999
|
Y = Checked
|
|
|
condition_other |
String |
5
|
Recommended |
Other |
Yes; No
|
Y = Checked
|
|
|
condition_otherx |
String |
50
|
Recommended |
If other please specify |
|
|
|
Query
|
sensory_i_1 |
Integer |
|
Recommended |
1. My child is active throughout the day. |
1 :: 5
|
1 = Almost always; 2 = Frequently; 3 = Occasionally; 4 = Seldom; 5 = Almost never
|
|
Query
|
sensory_i_2 |
Integer |
|
Recommended |
2. My child stays quiet and calm in an active environment when compared to same age children. |
1 :: 5
|
1 = Almost always; 2 = Frequently; 3 = Occasionally; 4 = Seldom; 5 = Almost never
|
|
Query
|
sensory_i_3 |
Integer |
|
Recommended |
3. My child is unaware of people coming in and going out of the room. |
1 :: 5
|
1 = Almost always; 2 = Frequently; 3 = Occasionally; 4 = Seldom; 5 = Almost never
|
|
Query
|
sensory_i_4 |
Integer |
|
Recommended |
4. My child's behavior deteriorates when the schedule changes. |
1 :: 5; 999
|
1 = Almost always; 2 = Frequently; 3 = Occasionally; 4 = Seldom; 5 = Almost never; 999 = NA
|
|
Query
|
sensory_i_5 |
Integer |
|
Recommended |
5. My child has difficulty getting to sleep and is easily awakened. |
1 :: 5
|
1 = Almost always; 2 = Frequently; 3 = Occasionally; 4 = Seldom; 5 = Almost never
|
|
Query
|
sensory_i_6 |
Integer |
|
Recommended |
6. My child is irritable when compared to same age children. |
1 :: 5
|
1 = Almost always; 2 = Frequently; 3 = Occasionally; 4 = Seldom; 5 = Almost never
|
|
Query
|
sensory_i_7 |
Integer |
|
Recommended |
7. I have to speak loudly to get my child's attention. |
1 :: 5; 999
|
1 = Almost always; 2 = Frequently; 3 = Occasionally; 4 = Seldom; 5 = Almost never; 999 = NA
|
|
Query
|
sensory_i_8 |
Integer |
|
Recommended |
8. My child remains calm even with sudden everyday sounds (for example dog barking phone). |
1 :: 5
|
1 = Almost always; 2 = Frequently; 3 = Occasionally; 4 = Seldom; 5 = Almost never
|
|
Query
|
sensory_i_9 |
Integer |
|
Recommended |
9. I have to touch my child to gain attention. |
1 :: 5; 999
|
1 = Almost always; 2 = Frequently; 3 = Occasionally; 4 = Seldom; 5 = Almost never; 999 = NA
|
|
Query
|
sensory_i_10 |
Integer |
|
Recommended |
10. My child seems unaware of continuous noise in the environment (for example TV stereo). |
1 :: 5
|
1 = Almost always; 2 = Frequently; 3 = Occasionally; 4 = Seldom; 5 = Almost never
|
|
Query
|
sensory_i_11 |
Integer |
|
Recommended |
11. My child enjoys making sounds with his/her mouth. |
1 :: 5; 999
|
1 = Almost always; 2 = Frequently; 3 = Occasionally; 4 = Seldom; 5 = Almost never; 999 = NA
|
|
Query
|
sensory_i_12 |
Integer |
|
Recommended |
12. My child takes a long time to respond even to familiar voices. |
1 :: 5; 999
|
1 = Almost always; 2 = Frequently; 3 = Occasionally; 4 = Seldom; 5 = Almost never; 999 = NA
|
|
Query
|
sensory_i_13 |
Integer |
|
Recommended |
13. My child startles easily at sound compared to other children the same age. |
1 :: 5; 999
|
1 = Almost always; 2 = Frequently; 3 = Occasionally; 4 = Seldom; 5 = Almost never; 999 = NA
|
|
Query
|
sensory_i_14 |
Integer |
|
Recommended |
14. My child is distracted and/or has difficulty eating in noisy environments. |
1 :: 5; 999
|
1 = Almost always; 2 = Frequently; 3 = Occasionally; 4 = Seldom; 5 = Almost never; 999 = NA
|
|
Query
|
sensory_i_15 |
Integer |
|
Recommended |
15. My child ignores me when I am talking. |
1 :: 5; 999
|
1 = Almost always; 2 = Frequently; 3 = Occasionally; 4 = Seldom; 5 = Almost never; 999 = NA
|
|
Query
|
sensory_i_16 |
Integer |
|
Recommended |
16. My child enjoys looking at moving or spinning objects (for example ceiling fans toys with wheels floor fans). |
1 :: 5; 999
|
1 = Almost always; 2 = Frequently; 3 = Occasionally; 4 = Seldom; 5 = Almost never; 999 = NA
|
|
Query
|
sensory_i_17 |
Integer |
|
Recommended |
17. My child enloys looking at shiny objects. |
1 :: 5; 999
|
1 = Almost always; 2 = Frequently; 3 = Occasionally; 4 = Seldom; 5 = Almost never; 999 = NA
|
|
Query
|
sensory_i_18 |
Integer |
|
Recommended |
18. My child reacts to all faces the same way (for example to strangers parents caregivers grandparents siblings). |
1 :: 5
|
1 = Almost always; 2 = Frequently; 3 = Occasionally; 4 = Seldom; 5 = Almost never
|
|
Query
|
sensory_i_19 |
Integer |
|
Recommended |
19. My child gets fussy when exposed to bright Iights. |
1 :: 5
|
1 = Almost always; 2 = Frequently; 3 = Occasionally; 4 = Seldom; 5 = Almost never
|
|
Query
|
sensory_i_20 |
Integer |
|
Recommended |
20. My child avoids eye contact with me. |
1 :: 5; 999
|
1 = Almost always; 2 = Frequently; 3 = Occasionally; 4 = Seldom; 5 = Almost never; 999 = NA
|
|
Query
|
sensory_i_21 |
Integer |
|
Recommended |
21. My child startles at own reflection in the mirror. |
1 :: 5
|
1 = Almost always; 2 = Frequently; 3 = Occasionally; 4 = Seldom; 5 = Almost never
|
|
Query
|
sensory_i_22 |
Integer |
|
Recommended |
22. My child avoids looking at toys. |
1 :: 5
|
1 = Almost always; 2 = Frequently; 3 = Occasionally; 4 = Seldom; 5 = Almost never
|
|
Query
|
sensory_i_23 |
Integer |
|
Recommended |
23. My child seems unaware of wet or dirty diapers. |
1 :: 5
|
1 = Almost always; 2 = Frequently; 3 = Occasionally; 4 = Seldom; 5 = Almost never
|
|
Query
|
sensory_i_24 |
Integer |
|
Recommended |
24. My child resists being held. |
1 :: 5; 999
|
1 = Almost always; 2 = Frequently; 3 = Occasionally; 4 = Seldom; 5 = Almost never; 999 = NA
|
|
Query
|
sensory_i_25 |
Integer |
|
Recommended |
25. My child becomes agitated when having hair washed. |
1 :: 5; 999
|
1 = Almost always; 2 = Frequently; 3 = Occasionally; 4 = Seldom; 5 = Almost never; 999 = NA
|
|
Query
|
sensory_i_26 |
Integer |
|
Recommended |
26. My child avoids getting face/nose wiped. |
1 :: 5; 999
|
1 = Almost always; 2 = Frequently; 3 = Occasionally; 4 = Seldom; 5 = Almost never; 999 = NA
|
|
Query
|
sensory_i_27 |
Integer |
|
Recommended |
27. My child is distressed when having nails trimmed. |
1 :: 5; 999
|
1 = Almost always; 2 = Frequently; 3 = Occasionally; 4 = Seldom; 5 = Almost never; 999 = NA
|
|
Query
|
sensory_i_28 |
Integer |
|
Recommended |
28. My child resists being cuddled. |
1 :: 5; 999
|
1 = Almost always; 2 = Frequently; 3 = Occasionally; 4 = Seldom; 5 = Almost never; 999 = NA
|
|
Query
|
sensory_i_29 |
Integer |
|
Recommended |
29. My child requires more support for sitting than other children the same age (for example infant seat piliows towel roll). |
1 :: 5; 999
|
1 = Almost always; 2 = Frequently; 3 = Occasionally; 4 = Seldom; 5 = Almost never; 999 = NA
|
|
Query
|
sensory_i_30 |
Integer |
|
Recommended |
30. My child enjoys physical activity (for example bouncing being held up high in the air). |
1 :: 5; 999
|
1 = Almost always; 2 = Frequently; 3 = Occasionally; 4 = Seldom; 5 = Almost never; 999 = NA
|
|
Query
|
sensory_i_31 |
Integer |
|
Recommended |
31. My child doesn't seem to notice position changes and can be moved about with ease. |
1 :: 5
|
1 = Almost always; 2 = Frequently; 3 = Occasionally; 4 = Seldom; 5 = Almost never
|
|
Query
|
sensory_i_32 |
Integer |
|
Recommended |
32. My child enjoys rhythmical activities (for example swinging rocking car rides). |
1 :: 5
|
1 = Almost always; 2 = Frequently; 3 = Occasionally; 4 = Seldom; 5 = Almost never
|
|
Query
|
sensory_i_33 |
Integer |
|
Recommended |
33. My child becomes upset when placed on back to change diapers. |
1 :: 5; 999
|
1 = Almost always; 2 = Frequently; 3 = Occasionally; 4 = Seldom; 5 = Almost never; 999 = NA
|
|
Query
|
sensory_i_34 |
Integer |
|
Recommended |
34. Riding in the car upsets my child. |
1 :: 5
|
1 = Almost always; 2 = Frequently; 3 = Occasionally; 4 = Seldom; 5 = Almost never
|
|
Query
|
sensory_i_35 |
Integer |
|
Recommended |
35. My child resists having head tipped back during bathing. |
1 :: 5; 999
|
1 = Almost always; 2 = Frequently; 3 = Occasionally; 4 = Seldom; 5 = Almost never; 999 = NA
|
|
Query
|
sensory_i_36 |
Integer |
|
Recommended |
36. My child cries or fusses whenever I try to move him/her. |
1 :: 5; 999
|
1 = Almost always; 2 = Frequently; 3 = Occasionally; 4 = Seldom; 5 = Almost never; 999 = NA
|
|
Query
|
sensory_i_qg1 |
Integer |
|
Required |
Quadrant 1: Low Registration (2,3,7,8,9,10,12,15,18,20,23,29,31) |
0 :: 65
|
0 to 65
|
|
Query
|
sensory_i_qg1c |
Integer |
|
Required |
Quadrant 1: Low Registration (Classfication) |
1 :: 3
|
1 = Less than others; 2 = Typical performance; 3 = More than others
|
|
Query
|
sensory_i_qg2 |
Integer |
|
Required |
Quadrant 2: Sensation Seeking (1,11,16,17,30,32) |
0 :: 30
|
0 to 30
|
|
Query
|
sensory_i_qg2c |
Integer |
|
Required |
Quadrant 2: Sensation Seeking (Classfication) |
1 :: 3
|
1 = Less than others; 2 = Typical performance; 3 = More than others
|
|
Query
|
sensory_i_qg3 |
Integer |
|
Required |
Quadrant 3: Sensory Sensitivity (4,5,6,13,14,19,21,25,27,33,34,36) |
0 :: 60
|
0 to 60
|
|
Query
|
sensory_i_qg3c |
Integer |
|
Required |
Quadrant 3: Sensory Sensitivity (Classfication) |
1 :: 3
|
1 = Less than others; 2 = Typical performance; 3 = More than others
|
|
Query
|
sensory_i_qg4 |
Integer |
|
Required |
Quadrant 4: Sensation Avoiding (22,24,26,28,35) |
0 :: 25
|
0 to 25
|
|
Query
|
sensory_i_qg4c |
Integer |
|
Required |
Quadrant 4: Sensation Avoiding (Classfication) |
1 :: 3
|
1 = Less than others; 2 = Typical performance; 3 = More than others
|
|
Query
|
sensory_i_qglt |
Integer |
|
Required |
Low Threshold (Quadrant 3 + Quadrant 4) |
0 :: 85
|
0 to 85
|
|
Query
|
sensory_i_qgltc |
Integer |
|
Required |
Low Threshold (Classfication) |
1 :: 3
|
1 = Less than others; 2 = Typical performance; 3 = More than others
|
|