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Child Demographics

1,416 Shared Subjects

Child Demographics, defined by Dr. Tilford's group, University of Arkansas for Medical Sciences
Clinical Assessments
Demographics
10/05/2012
child_dem01
04/04/2024
View Change History
01
Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR* GUID
src_subject_id String 20 Required Subject ID how it's defined in lab/project
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY child_date, chrdemo_interview_date_2bfaf2, chrdemo_interview_date_2bfaf2_v2
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0::1440 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
sex String 20 Required Sex of subject at birth M;F; O; NR M = Male; F = Female; O=Other; NR = Not reported chi_gen, gender
comments_misc String 4,000 Recommended Miscellaneous comments on study, interview, methodology relevant to this form data cg_comments_misc
Query race String 30 Recommended Race of study subject
American Indian/Alaska Native; Asian; Hawaiian or Pacific Islander; Black or African American; White; More than one race; Unknown or not reported; Other Non-White; Other
Child_q5, chi_race, demo_race
Query fh13 Integer Recommended Birth order 0::13; 99 99 = Missing value Child_q6, chi_order
Query chi_living Integer Recommended child living arrangement 1::3 1 = At home; 2 = In an institution; 3 = Other Child_q7
chi_living_other String 255 Recommended child living arrangement_other Other living arrangement Child_other1
Query chi_livedcg Integer Recommended percent of time child lived with caregiver in previous year 1::4 1 = 0-25%; 2 = 25-50%; 3 = 50-75%; 4 = 75-100% Child_q8
Query chi_school Integer Recommended Highest grade of school child has completed / What is the highest level of education your child has completed? 1::22 1 = Preschool; 2 = Kindergarten; 3 = 1st grade; 4 = 2nd grade; 5 = 3rd grade; 6 = 4th grade; 7 = 5th grade; 8 = 6th grade; 9 = 7th grade; 10 = 8th grade; 11 = 9th grade; 12 = 10th grade; 13 = 11th grade; 14 = 12th grade; 15 = High school graduate / Other; 16 = GED; 17 = Some college credite but less than 1 year; 18 = One or more years of college at a 2-year program, no degree; 19 = Two years of college at a 4-year program, no degree; 20 = Three years or more of college at a 4-year, no degree; 21 = Associates degree; 22 = Bachelors degree Child_q9, sbf_8_parent
Query chi_school_other String 255 Recommended highest grade of school child has completed_other If 15 (other), what level of school is the highest the child has completed? Child_other2
Query chi_schtype Integer Recommended why type of school does your child attend? 1::7 1 = Non-specialized public; 2 = Specialized public school; 3 = Vocational public school; 4 = Private school; 5 = Home school; 6 = Special education school; 7 = Something else (specify) Child_q10
chi_schtype_other String 255 Recommended why type of school does your child attend_other If 7 (other), what is the type of school the child attends? Child_other3
comments String 4,000 Recommended Comments about assessment chi_finalcomment, child_comment
ethnicity String 30 Recommended Ethnicity of participant
Hispanic or Latino; Not Hispanic or Latino; Unknown
demo_ethnicity
m12_d_livewith05 Integer Recommended Who do you live with? Adoptive Parent(s) 0;1 0= No; 1= Yes d_livewith05
m12_d_livewith06 Integer Recommended Who do you live with? Grandparent(s) 0;1 0= No; 1= Yes d_livewith06
m12_d_livewith07 Integer Recommended Who do you live with? Other Relative(s) 0;1 0= No; 1= Yes d_livewith07
m12_d_livewith08 Integer Recommended Who do you live with? Other 0;1 0= No; 1= Yes d_livewith08
m12_d_livewith_specify String 100 Recommended If you live with Other, please specify: d_livewith_specify
m12_d_grade Integer Recommended What grade are you in? 3 :: 12 3= 3rd Grade; 4= 4th Grade; 5= 5th Grade; 6= 6th Grade; 7= 7th Grade; 8= 8th Grade; 9= 9th Grade; 10= 10th Grade; 11= 11th Grade; 12= 12th Grade d_grade, demo_childs_edu
m12_d_ladderc Float Recommended Where would you place yourself on this ladder? Fill in the circle that best represents where you would be on this ladder. 0 :: 9;999 9= 9; 8.5= 8.5; 8= 8; 7.5= 7.5; 7= 7; 6.5= 6.5; 6= 6; 5.5= 5.5; 5= 5; 4.5= 4.5; 4= 4; 3.5= 3.5; 3= 3; 2.5= 2.5; 2= 2; 1.5= 1.5; 1= 1; 0.5= 0.5; 0= 0; 999= NA or Prefer Not to Answer d_ladderc
d_race01 Integer Recommended What is your racial background? White, Caucasian 0;1 0= No; 1= Yes
d_race02 Integer Recommended What is your racial background? Black, African American 0;1 0= No; 1= Yes
d_race03 Integer Recommended What is your racial background? Native American, Alaskan Native 0;1 0= No; 1= Yes
d_race04 Integer Recommended What is your racial background? Asian (including Middle Eastern) 0;1 0= No; 1= Yes
d_race05 Integer Recommended What is your racial background? Native Hawaiian, Pacific Islander 0;1;-900;-300 0= No; 1= Yes; -900 = Missing; -300 = N/A
d_race06 Integer Recommended What is your racial background? Other 0;1 0= No; 1= Yes
d_race_specify String 100 Recommended If you put Other for race, please specify:
d_hispanic Integer Recommended Are you Hispanic or Latina/Latino/Latinx? 0;1;-888 0 = No; 1 = Yes; -888 = Decline to Answer
d_language Integer Recommended What is the main language you speak at home? 1;2 1= English; 2= Other
d_language_specify String 100 Recommended If you put Other for main language spoken at home, please describe:
d_nativity Integer Recommended In which country were you born? 1;2 1= USA; 2= Other
d_nativity_specify String 100 Recommended If you put Other for where you were born, please describe:
d_handedness Integer Recommended Handedness - Are you: 1 :: 3 1= Right-handed; 2= Left-handed; 3= I use my right and left hands equally handedness
m12_d_gender Integer Recommended Whatis your preferred gender identity? 1 :: 5 1= Boy; 2= Girl; 3= Transgender; 4= Gender non-conforming, Non-binary; 5= Other d_gender
m12_d_gender_specify String 100 Recommended If Other for preferred gender identified: Please specify d_gender_specify
m12_d_sexuality Integer Recommended Which of the following best describes your sexual preferences? 1 :: 4 1= Heterosexual (Straight); 2= Homosexual (Gay or Lesbian); 3= Bisexual; 4= Not sure d_sexuality
m12_d_livewith01 Integer Recommended Who do you live with? Biological Mother 0;1 0= No; 1= Yes d_livewith01
m12_d_livewith02 Integer Recommended Who do you live with? Biological Father 0;1 0= No; 1= Yes d_livewith02
m12_d_livewith03 Integer Recommended Who do you live with? Stepmother 0;1 0= No; 1= Yes d_livewith03
m12_d_livewith04 Integer Recommended Who do you live with? Stepfather 0;1 0= No; 1= Yes d_livewith04
demo_patern_mari Integer Recommended Paternal Marital Status 1 :: 4 1= Married; 2= Divorced; 3= Single; 4= Widowed
demo_mat_edu Integer Recommended Maternal Highest Level of Education (years) 10;12;13;14;16;18;20;999 10= No formal educational credential; 12= High school diploma or equivalent; 13= Postsecondary non-degree award or Some college= no degree; 14= Associates degree; 16= Bachelors degree; 18= Masters degree; 20= Doctoral or professional degree (20 or more years); 999= Unknown
demo_pat_edu Integer Recommended Paternal Highest Level of Education (years) 10;12;13;14;16;18;20;999 10= No formal educational credential; 12= High school diploma or equivalent; 13= Postsecondary non-degree award or Some college= no degree; 14= Associates degree; 16= Bachelors degree; 18= Masters degree; 20= Doctoral or professional degree (20 or more years); 999= Unknown
demo_completed_by String 10 Recommended Who will be completing these questionnaires? (i.e. mother, father, etc.) Mother; Father; Aunt; Uncle; Grandma; Grandpa; Guardian; Sister; Brother; any relative
childs_age Integer Recommended Age in Years 10 :: 14 Age in Years between 10 to 14 years old
demo_gender Integer Recommended What is your childs current gender identity? 1::9 1= FEMALE; 2= MALE; 3= Trans male/Trans man; 4= Trans female/Trans woman; 5= Genderqueer/Gender no-conforming; 6= Different identity / Other; 7= REFUSED; 8= DO NOT KNOW; 9 = Transgender sbf_3_parent
demo_gender_diff String 25 Recommended Please state if your child has different identity: / If you selected Other, please explain here: sbf_3_other_parent
demo_prim_lang String 25 Recommended Primary Language spoken at home
demo_secondary_language String 25 Recommended Secondary Language
demo_maternal_mari Integer Recommended Maternal Marital Status 1 :: 4 1= Married; 2= Divorced; 3= Single; 4= Widowed
parent_rel07 Integer Recommended (Parent/Guardian Info): What is your current relationship status? Divorced 0;1 0= No; 1= Yes
parent_rel08 Integer Recommended (Parent/Guardian Info): What is your current relationship status? Widowed 0;1 0= No; 1= Yes
parent_rel09 Integer Recommended (Parent/Guardian Info): What is your current relationship status? Other 0;1 0= No; 1= Yes
parent_rel09a String 50 Recommended (Parent/Guardian Info): If other for relationship, please specify:
parent_race01 Integer Recommended (Parent/Guardian Info): How would you describe yourself? American Indian or Alaska Native 0;1 0= No; 1= Yes
parent_race02 Integer Recommended (Parent/Guardian Info): How would you describe yourself? Asian 0;1 0= No; 1= Yes
parent_race03 Integer Recommended (Parent/Guardian Info): How would you describe yourself? Black or African American 0;1 0= No; 1= Yes
parent_race04 Integer Recommended (Parent/Guardian Info): How would you describe yourself? Native Hawaiian or Other Pacific Islander 0;1 0= No; 1= Yes
parent_race05 Integer Recommended (Parent/Guardian Info): How would you describe yourself? White/Caucasian 0;1 0= No; 1= Yes
parent_race06 Integer Recommended (Parent/Guardian Info): How would you describe yourself? Other 0;1 0= No; 1= Yes
parent_race06a String 50 Recommended (Parent/Guardian Info): If other for ethnicity, please specify:
parent_hispanic Integer Recommended (Parent/Guardian Info): Are you Hispanic, Latino, or Spanish origin? 0;1 0= No; 1= Yes
child_race01 Integer Recommended (Child Info): How would you describe your child? American Indian or Alaska Native 0;1 0= No; 1= Yes
child_race02 Integer Recommended (Child Info): How would you describe your child? Asian 0;1 0= No; 1= Yes
child_race03 Integer Recommended (Child Info): How would you describe your child? Black or African American 0;1 0= No; 1= Yes
child_race04 Integer Recommended (Child Info): How would you describe your child? Native Hawaiian or Other Pacific Islander 0;1 0= No; 1= Yes
child_race05 Integer Recommended (Child Info): How would you describe your child? White/Caucasian 0;1 0= No; 1= Yes
child_race06 Integer Recommended (Child Info): How would you describe your child? Other 0;1 0= No; 1= Yes
child_race06a String 50 Recommended (Child Info): If other for ethnicity, please specify:
child_hispanic Integer Recommended (Child Info): Is your Hispanic, Latino, or Spanish origin? 0;1 0= No; 1= Yes
child_sex02 Integer Recommended Childs biological sex 1::2 1= Male; 2= Female
parent_job Integer Recommended (Parent/Guardian Info): Which of the following best describes your current work status? 1 :: 4 1= Full Time; 2= Part Time; 3= I am not working, and I am looking for work; 4= I am not working and I am not looking for work
parent_income01 Integer Recommended (Parent/Guardian Info): What is your total annual household income from all sources? In other words, how much does everyone in your household (combined) make per year before taxes? This should include income (before taxes) from all sources (e.g., wages, help from relatives, child support, rent from properties, unemployment, disability, etc.). 1 :: 13 1= Less than 5,000; 2= 5,000 through 11,999; 3= 12,000 through 15,999; 4= 16,000 through 24,999; 5= 25,000 through 34,999; 6= 35,000 through 49,999; 7= 50,000 through 74,999; 8= 75,000 through 99,999; 9= 100,000 through 149,999; 10= 150,000 through 199,999; 11= 200,000 through 249,999; 12= 250,000 through 299,999; 13= 300,000 or more
parent_income02 Integer Recommended (Parent/Guardian Info): How many people are supported by this household income? Include yourself and any other children or adults that depend on this money? Number of People
parent_edu Integer Recommended (Parent/Guardian Info): What is the highest level of education you completed? 0 :: 8 0= Did not attend high school; 1= Attended some high school, but did not earn a diploma; 2= Finished high school or earned a GED; 3= Vocational or training school after high school; 4= Attended college but did not earn a degree; 5= Attended college and earned an associate degree (AA); 6= Completed college and earned a bachelor?s degree (BA or BS); 7= Earned masters degree (MA or MS); 8= Earned doctoral degree (PhD, JD, MD)
parent_lang Integer Recommended (Parent/Guardian Info): What is your primary language spoken at home? 1 :: 3 1= English; 2= Spanish; 3= Other
parent_lang_a String 50 Recommended (Parent/Guardian Info): If other for spoken language, please specify:
parent_rel01 Integer Recommended (Parent/Guardian Info): What is your current relationship status? Single 0;1 0= No; 1= Yes
parent_rel02 Integer Recommended (Parent/Guardian Info): What is your current relationship status? Dating 0;1 0= No; 1= Yes
parent_rel03 Integer Recommended (Parent/Guardian Info): What is your current relationship status? In a committed relationship or engaged 0;1 0= No; 1= Yes
parent_rel04 Integer Recommended (Parent/Guardian Info): What is your current relationship status? Living as married 0;1 0= No; 1= Yes
parent_rel05 Integer Recommended (Parent/Guardian Info): What is your current relationship status? Married 0;1 0= No; 1= Yes
parent_rel06 Integer Recommended (Parent/Guardian Info): What is your current relationship status? Separated 0;1 0= No; 1= Yes
fi04 Integer Recommended 4. What is your age? chrdemo_dob_8a6430
chrdemo_firstlang String 50 Recommended 3. What is your first language (mother tongue)? chrdemo_firstlang_af297d
rays_demo03 Integer Recommended Were you born in the United States? 0;1 0= No; 1= Yes chrdemo_country_situation_6e36e8
born_out_us Integer Recommended If born out the U.S., which applies: 1;2 1=1st generation (you and your parents were born abroad and you came to the U.S. after age 5); 2=1st generation plus (you and your parents were born abroad, but you came to the U.S. before age 5) if_born_out_the_u_s_select
born_in_us Integer Recommended If born in the U.S., which applies: 0;1 0=Born in the U.S., parents born in the U.S.; 1=Born in the U.S., parents (one or both) not born in the U.S. if_born_in_the_u_s_select
chrdemo_refugee_status Integer Recommended 8. Do you have refugee status? 0;1;-99;-900;-300 0=No; 1=Yes; -99=Prefer not to say ;-900=Missing;-300=N/A chrdemo_refugee_status_ea7d2d
chrdemo_racial_back Integer Recommended 9. How would you describe your racial background (i.e., not necessarily your country of birth)? 1::12;99;-900;-300 1=Indigenous/Aboriginal Persons (e.g.=North American Indian=First Nation=Metis=Inuit=Aboriginal people=Torres Strait Islander); 2=East Asian (e.g.=China=Japan=Korea); 3=Southeast Asian (e.g.=Cambodia=Indonesia=Vietnam); 4=South Asian (e.g.=India=Pakistan=Sri Lanka); 5=Black/African/African American; 6=West/Central Asian and Middle Eastern (e.g.=Egypt=Lebanon=United Arab Emirates=Afghanistan=Iran); 7=White/European/North American/Australian; 8=Native Hawaiian or Pacific Islander; 9=Mexican American; 10=Two or more races/mixed race; 11=Prefer to self-describe; 12=Central / South American; 99=Prefer not to answer; -900=Missing;-300=N/A chrdemo_racial_back_b10df4
chrdemo_gender_identity Integer Recommended What is your gender identity? 1 :: 8;-99;99;-900;-300 1=Male; 2=Female; 3= Transgender male; 4=Non binary; 5= Transgender female; 6= Agender; 7= Gender Queer; 8= Other/Prefer to self-identify; -99=Prefer not to say; 99=Other ;-900=Missing;-300=N/A chrdemo_gender_identity_1b9aad_v2
describe_race String 50 Recommended Describe race:
hispanic_or_latino Integer Recommended Are you Hispanic or Latino? 0::2;4::9;-99 0=No, not of Hispanic/Latino/a/e or Spanish origin; 1=Yes, Mexican, Mexican American, Chicano/a; 2=Yes, Central American; 4=Yes, Puerto Rican; 5=Yes, Cuban; 6=Yes, Dominican; 7=Yes, South American; 8=Yes, Another Hispanic, Latino/a/e, or Spanish origin; 9=Prefer to self-describe; -99=Prefer not to say chrdemo_hispanic_latino_81cbb6
describe_latin String 50 Recommended Describe Latin background:
chrdemo_marital_status Integer Recommended 11. What is your current relationship/marital status? 1::6;99;-900;-300 1=Never married or Single; 2=In a relationship; 3=Married/Common law/de facto (two people who live together as partners); 4=Separated but not divorced; 5=Divorced; 6=Widowed; 99=Other ;-900=Missing;-300=N/A chrdemo_marital_status_9d9ba8, chrdemo_marital_status_9d9ba8_v2
chrdemo_marital_status_other String 50 Recommended If Other, please specify relationship/marital status: chrdemo_marital_status_other_facaf3, chrdemo_marital_status_other_facaf3_v2
sex_ori Integer Recommended What is your sexual orientation?
1::7
1=Straight or Heterosexual; 2= Homosexual or Lesbian or Gay; 3= Bisexual; 4= Asexual; 5= Prefer not to answer; 6= Prefer to self-describe; 7= Queer sex_o
counselor06 String 50 Recommended If sexual orientation is not listed, please specify describe_sexo
religion_identity Integer Recommended What is your Religion? 1::11;99 1= Christian; 2= Jewish; 3= Musli(m); 4= Buddhist; 5= Hindu; 6= Unaffiliated (Agnostic or Atheist); 7= Other; 8=Wicca/Pagan; 9=Prefer to self-describe; 10=Agnostic; 11=Atheist; 99=Prefer not to answer relig
describe_relig String 50 Recommended Describe the religion you identify with:
chrdemo_children Integer Recommended 12. How many children do you have? 0::5;-900;-300 0=0; 1=1; 2=2; 3=3; 4=4; 5=5 or more ;-900=Missing;-300=N/A chrdemo_children_ea1e7f, chrdemo_children_ea1e7f_v2
chrdemo_housing Integer Recommended 13. What is your current living situation? 1::7;99;-900;-300 1=House/flat/apartment with family of origin; 2=Rented room; 3=Rented flat/house/apartment; 4=Owned flat/house/apartment; 5=Boarding house/hostel; 6=Supported residential home; 7=Homeless or couch surfing; 99=Other ;-900=Missing;-300=N/A chrdemo_housing_fc7780, chrdemo_housing_fc7780_v2
chrdemo_housing_other String 50 Recommended If Other, please specify housing: chrdemo_housing_other_d0f49b, chrdemo_housing_other_d0f49b_v2
ampscz_entry_date Date Recommended Date of Data Entry MM/DD/YYYY chrdemo_entry_date_dd5cf7, chrdemo_entry_date_dd5cf7_v2
chrdemo_living_situtation String 50 Recommended 14. Who do you currently live with? (tick all that apply) 1=Alone; 2=Both parents; 3=Mother/step-mother/foster mother only; 4=Father/step-father/foster father only; 5=Sibling(s); 6=Partner; 7=Son(s)/daughter(s); 8=Friend(s); 9=Housemate; 10=Grandparents or extended family; 11=Support workers; 99=Other;-900=Missing;-300=N/A ;-900=Missing;-300=N/A chrdemo_living_situtation_a86418, chrdemo_living_situtation_a86418_v2
chrdemo_living_situtationother String 50 Recommended If other, please specify: chrdemo_living_situtation_other_a41f43, chrdemo_living_situtation_other_a41f43_v2
chrdemo_education Integer Recommended 16. How many years of education have you completed after preschool/ kindergarten ? (Select your choice) 0::20;-900;-300 0=0; 1=1; 2=2; 3=3; 4=4; 5=5; 6=6; 7=7; 8=8; 9=9; 10=10; 11=11; 12=12; 13=13; 14=14; 15=15; 16=16; 17=17; 18=18; 19=19; 20=20 plus ;-900=Missing;-300=N/A chrdemo_education_2df23b, chrdemo_education_2df23b_v2
chrdemo_edu_max_fb08d7 Integer Recommended What is the appropriate option regarding education? 1;2 1=Has not yet completed High School; 2=Has completed High School
chrdemo_student Integer Recommended 18. Are you currently enrolled or were you enrolled as a student within the past 6 months? 0;1;-900;-300 0=No; 1=Yes ;-900=Missing;-300=N/A chrdemo_student_0fbb14, chrdemo_student_0fbb14_v2
chrdemo_working Integer Recommended 19. Are you currently working in paid employment? 0::2;-900;-300 0=No; 1=Yes,working full-time; 2=Yes,working part-time ;-900=Missing;-300=N/A chrdemo_working_71770e, chrdemo_working_71770e_v2
gfsr_19 String 25 Recommended Where do you work? What are your job responsibilities? where_do_you_work, where_do_you_work_v2
chrdemo_volwork Integer Recommended 20. Are you currently volunteering? 0;1;-900;-300 0=No; 1=Yes ;-900=Missing;-300=N/A chrdemo_volwork_56ec2f, chrdemo_volwork_56ec2f_v2
voc_hs_notes String 500 Recommended Volunteering Notes or What volunteer work do you do? what_volunteer_work_do_you, what_volunteer_work_do_you_v2
bio_sib Integer Recommended Do you have any biological siblings? 0;1 0=No; 1=Yes
about_yourself String 500 Recommended Tell me about yourself. (Ex: What are your hobbies? How are things going for you? What are your strengths?) tell_me_about_yourself_wha_a71190
chrdemo_sibling Integer Recommended 21. Do you have a biological sibling in the study? 1::6;-900;-300 1=No; 2=An identical twin; 3=A brother; 4=A sister; 5=A half-brother; 6=A half-sister ;-900=Missing;-300=N/A chrdemo_sibling_5581b8, chrdemo_sibling_5581b8_v2
chrdemo_sibling_id String 50 Recommended Please enter the sibling''s Study ID chrdemo_sibling_id_b297b3, chrdemo_sibling_id_b297b3_v2
chrdemo_mom_edu Integer Recommended What is the highest level of formal education that your mother achieved (biological)? 1::8;-3 1=Less than seven years of school; 2=Junior high school (up to and including 8th grade); 3=Some high school/secondary school (grade 9-11); 4=Completed high school/secondary school (12th grade); 5=Partial college training; 6=College or university education; 7=Graduate or professional training; 8=I don't know; -3=N/A - I did not have a primary caregiver chrdemo_parent_edu_first_ccad53
chrdemo_dad_edu Integer Recommended What is the highest level of formal education that your father achieved (biological)? 1::8;-3 1=Less than seven years of school; 2=Junior high school (up to and including 8th grade); 3=Some high school/secondary school (grade 9-11); 4=Completed high school/secondary school (12th grade); 5=Partial college training; 6=College or university education; 7=Graduate or professional training; 8=I don't know; -3=N/A - I was raised by only one parent or did not have a primary caregiver chrdemo_parent_edu_other_886506
meds_detials String 100 Recommended Do you take any medications? If so, list: meds
med_cond Integer Recommended Do you have any medical condition? 0;1 0=No; 1=Yes do_you_have_any_medical_co_b25d3c, do_you_have_any_medical_co_b25d3c_v2
name_of_med_cond String 100 Recommended Name of medical condition: name_of_medical_condition_e895ab, name_of_medical_condition_e895ab_v2
date_of_onset String 100 Recommended Date of Onset: date_of_onset_7a9495, date_of_onset_7a9495_v2
any_other_med_cond1 Integer Recommended Do you have any other medical conditions 1? 0;1 0=No; 1=Yes do_you_have_any_other_medi_bfffe2, do_you_have_any_other_medi_bfffe2_v2
name_of_other_med_cond1 String 100 Recommended Name of other medical condition 1: name_of_medical_condition_2_6b4cda, name_of_medical_condition_2_6b4cda_v2
change_life String 100 Recommended If you could wave a magic wand and change three things about your life, what would you change? if_you_could_wave_a_magic_0f7e0c
date_of_onset1 String 100 Recommended Date of Onset 1: date_of_onset_2_f32c10, date_of_onset_2_f32c10_v2
any_other_med_cond2 Integer Recommended Do you have any other medical conditions 2? 0;1 0=No; 1=Yes do_you_have_any_other_medi_2_25dbe2, do_you_have_any_other_medi_2_25dbe2_v2
name_of_other_med_cond2 String 100 Recommended Name of other medical condition 2: name_of_medical_condition_3_b5b62b, name_of_medical_condition_3_b5b62b_v2
date_of_onset2 String 100 Recommended Date of Onset 2: date_of_onset_3_47a5df, date_of_onset_3_47a5df_v2
allother_med_cond_details String 500 Recommended Please list any other medical condition(s) and date(s) of onset: please_list_any_other_medi_c1deca, please_list_any_other_medi_c1deca_v2
med_cond_notes String 100 Recommended Medical Condition Notes: medical_condition_notes_8f865d, medical_condition_notes_8f865d_v2
fam_mental_tx Integer Recommended Has any of your immediate family been treated for mental health? 0::2 0=Unknown; 1=Yes; 2=No has_any_of_your_immediate_dd9d50
fam_mental_dx Integer Recommended Does any of your immediate family have any diagnosed psychiatric disorders? 0::2 0=Unknown; 1=Yes; 2=No do_either_of_your_biologic_f9271b
fam_psych_dx Integer Recommended Which of your family members have a psychiatric diagnosis? 1::3 1=Father; 2=Mother; 3=Full-Sibling which_of_your_family_membe_3691fc
fam_psych_dx_spec String 100 Recommended What are their psychiatric diagnoses? what_are_their_psychiatric_676240
gender_identity Integer Recommended Gender identity: Do you identify as: 1::12 1 = Female; 2 = Male; 3 = Other; 4 = Agender; 5 = Nonbinary/Fluid; 6 = Transgender female; 7 = Transgender male; 8 = Genderqueer; 9 = Do not wish to report; 10 = Multiple Identities Listed; 11 = Non-binary; 12 = Genderfluid chrdemo_gender_identity_1b9aad
fam_treated Integer Recommended Were they treated for this? 0;1 0=No; 1=Yes were_they_treated_for_this_747483
fam_txtype Integer Recommended What type of treatment did they receive? 1::5 1=Counseling/Therapy; 2=Psychiatry; 3=Inpatient Hospitalization; 4=Partial Hospitalization; 5=Other - Specify what_type_of_treatment_did_8d8498
fam_txduration String 100 Recommended How long were they receiving this treatment? Please list who, type of treatment and duration. how_long_were_they_receivi_85fd36
other_rel_psych_dx Integer Recommended Do you have any other relatives with psychiatric diagnoses? (aunt, uncle, grandpa, half-sibling, etc.) 0;1 0=No; 1=Yes do_you_have_any_other_rela_41238e
other_rel_spec String 500 Recommended Who are they to you and what are their diagnoses? who_are_they_to_you_and_wh_7cb495
curr_mental_tx Integer Recommended Are you currently receiving mental health treatment? 1::6 1=Therapy/Counseling; 2=Psychiatry; 3=Group Therapy; 4=Residential; 5=Partial Hospitalization; 6=Other - Specify what_kind_of_mental_health_ec0c5a, what_kind_of_mental_health_ec0c5a_v2
curr_mental_tx_type String 100 Recommended Type of treatment - current: Other type_of_treatment_currentl_a2623c, type_of_treatment_currentl_a2623c_v2
curr_mental_tx_spec String 100 Recommended When did you start treatment? list every treatment type and approx. date when_did_you_start_treatme, when_did_you_start_treatme_v2
curr_mental_tx_feel String 100 Recommended How do you feel about the treatment you are currently receiving? how_do_you_feel_about_the_307df9, how_do_you_feel_about_the_307df9_v2
curr_mental_tx_rate Integer Recommended If you could rate your feelings about current treatment on a scale from 1 to 5, with 5 being very good and 1 being terrible, what would you rate it? 1::5 1=Terrible; 5=Very good if_you_could_rate_your_fee_978a18, if_you_could_rate_your_fee_978a18_v2
chrdemo_gender_other String 50 Recommended If Other, please specify gender: chrdemo_gender_other_baa856, chrdemo_gender_other_baa856_v2
curr_mental_dx Integer Recommended Do you currently have any mental health diagnoses? 0;1 0=No; 1=Yes do_you_currently_have_any_0e34bc, do_you_currently_have_any_0e34bc_v2
curr_mental_dx_spec String 100 Recommended What are your current mental health diagnoses? what_are_your_current_ment_72715a, what_are_your_current_ment_72715a_v2
curr_mental_dx_feel String 100 Recommended How do you feel about this/these diagnoses? how_do_you_feel_about_this_0551a2, how_do_you_feel_about_this_0551a2_v2
curr_mental_dx_rate Integer Recommended If you could rate your feelings on a scale from 1 to 5, with 5 being good/accurate and 1 being wrong/bad about your current diagnoses, what would you rate it? 1::5 1=Wrong/bad; 5=Good/accurate if_you_could_4a9546, if_you_could_4a9546_v2
curr_psych_meds_spec Integer Recommended Do you take any psychiatric medication currently? 0;1 0=No; 1=Yes do_you_take_any_psychiatri_40a7f1, do_you_take_any_psychiatri_40a7f1_v2
curr_psych_meds String 100 Recommended What psychiatric medications do you take? what_medications_do_you_ta_8d67a5, what_medications_do_you_ta_8d67a5_v2
past_mental_tx Integer Recommended Were you receiving any mental health treatment in the past? 0;1 0=No; 1=Yes what_kind_of_mental_969198
past_mental_tx_type Integer Recommended Type of treatment - past: 1::6 1=Therapy/Counseling; 2=Psychiatry; 3=Group Therapy; 4=Residential; 5=Partial Hospitalization; 6=Other - Specify type_of_treatment_past_c9133c
past_mental_tx_spec String 100 Recommended When did you start treatment? When did you stop treatment? list every treatment type and approx. date when_did_you_start_treatme_2
past_mental_tx_feel String 100 Recommended How did you feel about the treatment you were receiving before? how_did_you_feel_about_the_4dbb50
pronouns Integer Recommended What are your pronouns? 1::4 1=he/him; 2=she/her; 3=they/them; 4=other b_what_are_your_pronouns, b_what_are_your_pronouns_v2
past_mental_tx_rate Integer Recommended If you could rate your feelings about your past treatment on a scale from 1 to 5, with 5 being very good and 1 being terrible, what would you rate it? 1::5 1=Terrible; 5=Very good if_you_could_rate_c09495
past_mental_dx Integer Recommended Did you have any past mental health diagnoses that you no longer have? 0;1 0=No; 1=Yes did_you_have_any_past_ment_56d992
past_mental_dx_spec String 100 Recommended What are your past diagnoses? what_are_your_past_diagnos_19b876
past_mental_dx_feel String 100 Recommended How did you feel about past diagnoses? how_did_you_feel_about_pas_1ea84d
past_mental_dx_rate Integer Recommended And if you could rate your feelings at the time about your past diagnoses on a scale from 1 to 5, what would you rate it? 1::5 1=Wrong/bad; 5=Good/accurate and_if_you_could_rate_your_7258ec
past_psych_meds_spec Integer Recommended Did you take any psychiatric medications in the past? 0;1 0=No; 1=Yes did_you_take_any_psychiatr_b645c4
past_psych_meds String 100 Recommended What medications did you take? what_medications_did_you_t_d06b38
psqdcom String 1,000 Recommended Additional comments additional_comments_070ef2, additional_comments_070ef2_v2
how_are_things_now String 100 Recommended How are things going for you right now? how_are_things_going_for_y_b4338b_v2
things_now_rating Integer Recommended On a scale from 1-5, how would you say your life is going? With 1 being terrible and 5 being everything is going the way you would like. 1::5 1=Terrible; 5=Everything is going the way you would like on_a_scale_from_1_5_how_wo_f58f9a_v2
chrdemo_sexassigned Integer Recommended 1b. What sex were you assigned at birth, what was on your original birth certificate? 1::3;-900;-300; -5; -999 1=Male; 2=Female; 3=Intersex; -900=Missing;-300=N/A; -999 =data not submitted (incomplete); -5=item seen but not answered chrdemo_sexassigned_7398b5
now_vs_p6mths Integer Recommended How is your life going now versus six months ago? 1::3 1=Same; 2=Worse; 3=Better how_is_your_life_going_now_8033c6_v2
demo_siblings Integer Recommended Do you have siblings? 1;2;9 1=Yes; 2=No; 9=Unknown/Missing sibs_f
med_cond_p6mths Integer Recommended Are any of these medical conditions new within the last 6 months? 0;1 0=No; 1=Yes are_any_of_these_medical_c
mentaltx_vs_p6mths Integer Recommended Is this new mental health treatment than you were receiving 6 months ago? 0;1 0=No; 1=Yes is_this_new_mental_health
mentaldx_vs_p6mths Integer Recommended Is this diagnosis new from when we last saw you 6 months ago? 0;1 0=No; 1=Yes is_this_diagnosis_new_from
med_cond_vs_p6mths Integer Recommended Are these new medications than you were taking 6 months ago? 0;1 0=No; 1=Yes are_these_new_medications
chrdemo_parent_edu_first Integer Recommended 24. What is the highest level of formal education that your first mentioned (child-rearing) parent/guardian achieved?
1::7;-900;-300
1=Less than seven years of school; 2=Junior high school (up to and including 8th grade); 3=Some high school/secondary school (grade 9-11); 4=Completed high school/secondary school (12th grade); 5=Partial college training; 6=College or university education; 7=Graduate or professional training; -300=N/A or I did not have a primary caregiver; -900=Missing chrdemo_parent_edu_first_ccad53_v2
chrdemo_parent_edu_other Integer Recommended 25. What is the highest level of formal education that your other (child-rearing) parent/guardian achieved?
1::7;-900;-300
1=Less than seven years of school; 2=Junior high school (up to and including 8th grade); 3=Some high school/secondary school (grade 9-11); 4=Completed high school/secondary school (12th grade); 5=Partial college training; 6=College or university education; 7=Graduate or professional training; -300=N/A or I was raised by only one parent or did not have a primary caregiver; -900=Missing chrdemo_parent_edu_other_886506_v2
chrdemo_edu_max Integer Recommended 17. What is the highest level of formal education that you have achieved? 1::7;-900;-300 1=Less than seven years of school; 2=Junior high school (up to and including 8th grade); 3=Some high school/secondary school (grade 9-11); 4=Completed high school/secondary school (12th grade); 5=Partial college training; 6=College or university education; 7=Graduate or professional training ;-900=Missing;-300=N/A chrdemo_edu_max_fb08d7_v2
curr_mental_tx_6 Integer Recommended Type of treatment - current: Other, Specify Below 0;1 0= No; 1= Yes
now_vs_p6mths_notes String 1,000 Recommended How is your life going now versus six months ago?
b_pronouns String 50 Recommended What are your pronouns?
curr_mental_tx_yn Integer Recommended Are you currently receiving mental health treatment? 0;1 0= No; 1= Yes
curr_mental_tx_1 Integer Recommended Type of treatment - current: Behavioral/Therapy/Counseling 0;1 0= No; 1= Yes
curr_mental_tx_2 Integer Recommended Type of treatment - current: Psychiatry 0;1 0= No; 1= Yes
curr_mental_tx_3 Integer Recommended Type of treatment - current: Group Therapy 0;1 0= No; 1= Yes
curr_mental_tx_4 Integer Recommended Type of treatment - current: Residential 0;1 0= No; 1= Yes
curr_mental_tx_5 Integer Recommended Type of treatment - current: Partial Hospitalization 0;1 0= No; 1= Yes
sbf_15a_parent Integer Recommended What is the highest level of education the child's mother has completed? 1::12 1 = Some grade school; 2 = Some high school; 3 = High school graduate; 4 = GED or equivalent; 5 = Some college; 6 = Associate's degree; 7 = Occupational = technical or vocational program; 8 = Bachelor's degree; 9 = Master's degree; 10 = Professional school degree; 11 = Doctoral degree; 12 = Refuse/don't know
sbf_15b_parent Integer Recommended What is the highest level of education the child's father has completed? 1::12 1 = Some grade school; 2 = Some high school; 3 = High school graduate; 4 = GED or equivalent; 5 = Some college; 6 = Associate's degree; 7 = Occupational = technical or vocational program; 8 = Bachelor's degree; 9 = Master's degree; 10 = Professional school degree; 11 = Doctoral degree; 12 = Refuse/don't know
sbf_16a_parent String 20 Recommended Mother's most recent or current employment? (For example: Nurse, Accountant, etc.)
sbf_16b_parent String 20 Recommended Father's most recent or current employment? (For example: Nurse, Accountant, etc.)
sbf_17_parent Integer Recommended Which category best describes your total household income in the last year? Household income means your income plus that of anyone else living with you. 1::6 1 = less than $25,000; 2 = $25,000-$49,000; 3 = $50,000-$74,000; 4 = $75,000 or more; 5 = Don't know; 6 = Prefer not to answer
sbf_19_parent Integer Recommended How many people are living in your home including you? 0::99
scrn_intdisab Integer Recommended Has your child been diagnosed with... Intellectual disability /Discapacidad intelectual 1 ; 0 1 = Yes - GO TO END; 0 = No (Continue) sbf_12_parent
sbf_6_parent Integer Recommended Is your child right-handed or left-handed? 1::5 1 = Right-handed; 2 = Left-handed; 3 = Ambidextrous; 4 = Other; 5 = Don't know
sbf_6_other_parent String 20 Recommended If you selected Other, please explain here:
sbf_7_parent Integer Recommended What is your child's grade level? 1::6 1 = Freshman; 2 = Sophomore; 3 = Junior; 4 = Senior; 5 = Adult Transitional; 6 = Don't know
sbf_9_parent Integer Recommended When will your child be searching for a job? 1::7 1 = Currently; 2 = 1-2 months from now; 3 = 3-4 months from now; 4 = 5-6 months from now; 5 = 7-12 months from now; 6 = More than a year from now; 7 = Don't know
sbf_11_parent Integer Recommended Does your child have a medical illness that affects the ability to learn and remember? 1;2 1 = Yes; 2 = No
sbf_13_parent Integer Recommended Does your child have vision problems that prevent him/her from reading a computer screen? 1;2 1 = Yes; 2 = No
sbf_14_parent Integer Recommended Does your child have hearing problems that prevent him/her from listening to audio from a computer? 1;2 1 = Yes; 2 = No
et2a Integer Recommended Highest Level of Education Achieved. Biological mother 1::12; 99; 77 99=Don't know; 77=Refused; 1=8th grade or less; 2=9th grade or above, not a high school graduate; 3= high school graduate or GED; 4= post high school education, no college degree; 5=vocational-technical = degree or certificate; 6=2-year college degree/associate degree; 7= 4-year college degree/BA, BS degree; 8= some BA/BS work, no degree; 9=master degree, e.g. MSW, MA, MFA, MPH, MBA; 10=PHD, MD, JD, LLB, or other professional graduate degree; 11=other; 12=Less than high school diploma/GED
dem_08a Integer Recommended Mother current employment 1::11;99 1=Working full time(35hrs or more a week at one or more jobs) ; 2=Working part time; 3=Keeping house ; 4=Unemployed, looking for work; 5=Unemployed, not looking for work; 6=Disabled; 7=Retired; 8=Student, full time; 9=Student, part time; 10=Other; 11 =Unemployed; 99=Not in household
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
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