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NIMH Data Archive
NDA ABCD CCF OAI NIAAADA AMP SCZ HEAL

Participant Adherence Questionnaire

915 Shared Subjects

N/A
Clinical Assessments
Treatment
02/27/2015
paq01
07/19/2023
View Change History
01
Definition
Submission Template
Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR*
src_subject_id String 20 Required Subject ID how it's defined in lab/project id, subject_id
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0::1440 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
sex String 20 Required Sex of subject at birth M;F; O; NR M = Male; F = Female; O=Other; NR = Not reported gender
Query paq_01 Integer Recommended Que 1 checks how often patient taken anti depressant medication the last week 1::5 1=Has taken no antidepressant medication (missed all 7 days); 2=Has taken antidepressant medication about 25% of the time (missed 5-6 days); 3=Has taken antidepressant medication about 50% of the time (missed 3-4 days); 4=Has taken antidepressant medication about 75% of the time (missed 1-2 days); 5=Has taken antidepressant medication everyday
Query paq_02 Integer Recommended Que 2 record changes 0;1 0=No; 1=Yes
Query paq_02_a Integer Recommended Que 2a stopped taking 0;1 0=No; 1=Yes l_stop
Query paq_02_a1 Integer Recommended stopped meds days ago l_days
Query paq_02_a10 Integer Recommended Reason stopped meds: symptom increase 0;1 0=No; 1=Yes l_stsi
Query paq_02_a11 Integer Recommended Reason stopped meds: symptom decrease 0;1 0=No; 1=Yes l_stsd
Query paq_02_a12 Integer Recommended Reason stopped meds: out of meds 0;1 0=No; 1=Yes l_stout
Query paq_02_a13 Integer Recommended Reason stopped meds: forgot 0;1;-99 0 = No; 1 = Yes; -99 = Missing l_stfg
Query paq_02_a14 Integer Recommended Reason stopped meds: other 0;1 0=No; 1=Yes l_stoth
Query paq_02_a16 Integer Recommended Reason stopped meds: side effects 0;1 0=No; 1=Yes l_stse
Query paq_02_a17 Integer Recommended Reason skipped meds: symptom increase 0;1 0=No; 1=Yes l_sksi
Query paq_02_a18 Integer Recommended Reason skipped meds: symptom decrease 0;1 0=No; 1=Yes l_sksd
Query paq_02_a19 Integer Recommended Reason skipped meds: out of meds 0;1 0=No; 1=Yes l_skout
Query paq_02_a2 Integer Recommended Reason skipped meds: side effects 0;1 0=No; 1=Yes l_skse
Query paq_02_a20 Integer Recommended Reason skipped meds: other 0;1 0=No; 1=Yes l_skoth
Query paq_02_a21 Integer Recommended Reason reduced meds: side effects 0;1 0=No; 1=Yes l_rese
Query paq_02_a22 Integer Recommended Reason reduced meds: symptom increase 0;1 0=No; 1=Yes l_resi
Query paq_02_a23 Integer Recommended Reason reduced meds: symptom decrease 0;1 0=No; 1=Yes l_resd
Query paq_02_a24 Integer Recommended Reason reduced meds: other 0;1 0=No; 1=Yes l_reoth
Query paq_02_a3 Integer Recommended Reason increased meds: symptom increase 0;1 0=No; 1=Yes l_insi
Query paq_02_a4 Integer Recommended Reason increased meds: symptom decrease 0;1 0=No; 1=Yes l_insd
Query paq_02_a5 Integer Recommended Reason increased meds: out of meds 0;1 0=No; 1=Yes
Query paq_02_a6 Integer Recommended Reason increased meds: forgot 0;1 0=No; 1=Yes
Query paq_02_a7 Integer Recommended Reason increased meds: other 0;1 0=No; 1=Yes l_inoth
Query paq_02_a9 Integer Recommended Reason increased meds: side effects 0;1 0=No; 1=Yes l_inse
Query paq_02_b Integer Recommended Que 2b skipped meds 0;1 0=No; 1=Yes l_skip
Query paq_02_c Integer Recommended Que 2c reduced meds 0;1 0=No; 1=Yes l_reduce
Query paq_02_d Integer Recommended Que 2d Increased meds 0;1 0=No; 1=Yes l_incmed
subject_description String 4,000 Recommended Subject related information (e.g the affection, phenotype, disease information, etc.).
site String 101 Recommended Site Study Site
study String 100 Recommended Study; The code for each individual study
Query week Float Recommended Week in level/study 99=week 10-week 14
Query vis_type Integer Recommended Visit type 0::2 1=Phone/remote; 0=doctor's office/In person; 2=No, not phone interview phone
Query masked_status Integer Recommended Medication: Labeled or Masked? 1;2 1=Labeled; 2=Masked
Query days_baseline Integer Recommended Days since baseline date
Query l_msdays Integer Recommended How many days have you missed taking your study medications during the last 7 days? 0::7
Query l_as_rx Integer Recommended Did you take your study medications as prescribed during the last 7 days? 0;1 0=No; 1=Yes
Query l_skfg Integer Recommended Reason skipped meds: forgot 0;1 0=No; 1=Yes
Query l_reout Integer Recommended Reduced med dose because of: out of meds 0;1 0=No; 1=Yes
Query m_msdays Integer Recommended How many days have you missed taking your masked study medications during the last 7 days?
Query m_as_rx Integer Recommended Did you take your masked study medications as prescribed during the last 7 days? 0;1 0=No;1=Yes
Query m_stop Integer Recommended Stopped taking masked med 0;1 0=No;1=Yes
Query m_days Integer Recommended Days ago stopped masked med
Query m_stse Integer Recommended Masked study medication stopped: Side effects 0;1 0=No;1=Yes
Query m_stsi Integer Recommended Masked study medication stopped:Symptom increase 0;1 0=No;1=Yes
Query m_stsd Integer Recommended Masked study medication stopped:Symptom decrease 0;1 0=No;1=Yes
Query m_stout Integer Recommended Masked study medication stopped:Ran out of meds 0;1 0=No;1=Yes
Query m_stfg Integer Recommended Masked study medication stopped:Forgot to take 0;1 0=No;1=Yes
Query m_stoth Integer Recommended Stopped taking masked med for some other reason 0;1 0=No;1=Yes
Query m_skip Integer Recommended Masked study medication:Skipped taking masked med 0;1 0=No;1=Yes
Query m_skse Integer Recommended Masked study medication skipped:Side effects 0;1 0=No;1=Yes
Query m_sksi Integer Recommended Masked study medication skipped:Symptom increase 0;1 0=No;1=Yes
Query m_sksd Integer Recommended Masked study medication skipped:Symptom decrease 0;1 0=No;1=Yes
Query m_skout Integer Recommended Masked study medication skipped:Ran out of meds 0;1 0=No;1=Yes
Query m_skfg Integer Recommended Masked study medication skipped:Forgot to take 0;1 0=No;1=Yes
Query m_skoth Integer Recommended Skipped labeled med for other reason 0;1 0=No;1=Yes
Query m_reduce Integer Recommended Reduced masked med dose 0;1 0=No;1=Yes
Query m_rese Integer Recommended Masked study medication reduced:Side effects 0;1 0=No;1=Yes
Query m_resi Integer Recommended Masked study medication reduced:Symptom increase 0;1 0=No;1=Yes
Query m_resd Integer Recommended Masked study medication reduced:Symptom decrease 0;1 0=No;1=Yes
Query m_reout Integer Recommended Masked study medication reduced:Ran out of meds 0;1 0=No;1=Yes
Query m_reoth Integer Recommended reduced masked med dose for other reason 0;1 0=No;1=Yes
Query m_incmed Integer Recommended Increased masked med dose 0;1 0=No;1=Yes
Query m_inse Integer Recommended Masked study medication increased:Side effects 0;1 0=No;1=Yes
Query m_insi Integer Recommended Masked study medication increased:Symptom increase 0;1 0=No;1=Yes
Query m_insd Integer Recommended Masked study medication increased: Symptom decrease 0;1 0=No;1=Yes
Query m_inoth Integer Recommended Increased masked med dose for other reason 0;1 0=No;1=Yes
paq_02_a7_sp String 100 Recommended Reason increased meds: other. Specify
paq_02_a14_sp String 100 Recommended Reason stopped meds: other. Specify
paq_02_a24_sp String 100 Recommended Reason reduced meds: other. Specify
paq_02_a20_sp String 100 Recommended Reason skipped meds: other. Specify
medadh_1 String 100 Recommended According to our readings of your electronic pill bottle, it appears that you took fewer of your antidepressant medication than your doctor prescribed. What was the main reason you took fewer?
medadh_2a Integer Recommended How likely would you be to take your medication if you received a reminder text message each morning 0::4 0 = Not applicable; 1 = Not at all likely; 2 = Somewhat likely; 3 = Very likely; 4 = Extremely likely
medadh_2b Integer Recommended How likely would you be to take your medication if we paid you $1.00 each day you took the medication 0::4 0 = Not applicable; 1 = Not at all likely; 2 = Somewhat likely; 3 = Very likely; 4 = Extremely likely
medadh_2c Integer Recommended How likely would you be to take your medication if we paid you $2.00 each day you took the medication 0::4 0 = Not applicable; 1 = Not at all likely; 2 = Somewhat likely; 3 = Very likely; 4 = Extremely likely
medadh_2d Integer Recommended How likely would you be to take your medication if we paid you $3.00 each day you took the medication 0::4 0 = Not applicable; 1 = Not at all likely; 2 = Somewhat likely; 3 = Very likely; 4 = Extremely likely
medadh_2e Integer Recommended How likely would you be to take your medication if we paid you $5.00 each day you took the medication 0::4 0 = Not applicable; 1 = Not at all likely; 2 = Somewhat likely; 3 = Very likely; 4 = Extremely likely
medadh_2f Integer Recommended How likely would you be to take your medication if we paid you $8.00 each day you took the medication 0::4 0 = Not applicable; 1 = Not at all likely; 2 = Somewhat likely; 3 = Very likely; 4 = Extremely likely
medadh_2g Integer Recommended How likely would you be to take your medication if we paid you $10.00 each day you took the medication 0::4 0 = Not applicable; 1 = Not at all likely; 2 = Somewhat likely; 3 = Very likely; 4 = Extremely likely
medadh_3 Integer Recommended Thinking back to when you started the study on [date started study], were there ever times between then and now when you took your antidepressant medication directly from the prescription bottle without first putting the pills in the electronic pill bottle we sent you? 0;1 0 = No; 1 = Yes
medadh_4 Integer Recommended Of all the times you took your antidepressant medication, how often was it from the electronic pill bottle? 0::4 0 = Never or almost never; 1 = Rarely; 2 = Sometimes; 3 = Usually; 4 = Almost every time
medadh_5 Integer Recommended Now thinking back from when you started the study on [date started study], until your last interview on [date last interview], of all the times you took your antidepressant during this period, how often was it from the electronic pill bottle? 0::5 0 = Never or almost never; 1 = Rarely; 2 = Sometimes; 3 = Usually; 4 = Almost every time; 5 = Every time
medadh_6 Integer Recommended Some people open the electronic pill bottle to see if it is working or for other reasons without taking the medication inside the bottle. Were there ever times when you opened the electronic pill bottle without taking your antidepressant medication? 0;1 0 = No; 1 = Yes
medadh_7 Integer Recommended Since you started the study, on how many days did you open the electronic pill bottle without taking your antidepressant medication? 1::4 1 = A few days; 2 = Several days; 3 = Most days; 4 = All days or almost all days
medadh_8 Integer Recommended Now again thinking back to the period from when you started the study until your last interview, on how many days did you open the electronic pill bottle without taking your antidepressant medication? 0::4 0 = Never; 1 = A few days; 2 = Several days; 3 = Most days; 4 = All days or almost all days
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

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