|
subjectkey |
GUID |
|
Required |
The NDAR Global Unique Identifier (GUID) for research subject |
NDAR*
|
|
|
|
src_subject_id |
String |
20
|
Required |
Subject ID how it's defined in lab/project |
|
|
aid |
|
interview_date |
Date |
|
Required |
Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY |
|
|
|
|
interview_age |
Integer |
|
Required |
Age in months at the time of the interview/test/sampling/imaging. |
0::1440
|
Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
|
|
|
sex |
String |
20
|
Required |
Sex of subject at birth |
M;F; O; NR
|
M = Male; F = Female; O=Other; NR = Not reported
|
gender |
Query
|
psi1 |
Integer |
|
Recommended |
I often have the feeling that I cannot handle things very well |
|
1=Strongly disagree; 2=Disagree; 3=Not sure; 4=Agree; 5=Strongly agree; 888=NA; 999=missing
|
psi_iv_1 |
Query
|
psi2 |
Integer |
|
Recommended |
I find myself giving up more of my life to meet my childrens needs than I ever expected |
|
1=Strongly disagree; 2=Disagree; 3=Not sure; 4=Agree; 5=Strongly agree; 888=NA; 999=missing
|
psi_iv_2 |
Query
|
psi3 |
Integer |
|
Recommended |
I feel trapped by my responsibilities as a parent |
|
1=Strongly disagree; 2=Disagree; 3=Not sure; 4=Agree; 5=Strongly agree; 888=NA; 999=missing
|
psi_iv_3 |
Query
|
psi4 |
Integer |
|
Recommended |
Since having this child, I have been unable to do new and different things |
|
1=Strongly disagree; 2=Disagree; 3=Not sure; 4=Agree; 5=Strongly agree; 888=NA; 999=missing
|
psi_iv_4 |
Query
|
psi5 |
Integer |
|
Recommended |
Since having a child, I feel that I am almost never able to do things that I like to do |
|
1=Strongly disagree; 2=Disagree; 3=Not sure; 4=Agree; 5=Strongly agree; 888=NA; 999=missing
|
psi_iv_5 |
Query
|
psi6 |
Integer |
|
Recommended |
I am unhappy with the last purchase of clothing I made for myself |
|
1=Strongly disagree; 2=Disagree; 3=Not sure; 4=Agree; 5=Strongly agree; 888=NA; 999=missing
|
psi_iv_6 |
Query
|
psi7 |
Integer |
|
Recommended |
There are quite a few things that bother me about my life |
|
1=Strongly disagree; 2=Disagree; 3=Not sure; 4=Agree; 5=Strongly agree; 888=NA; 999=missing
|
psi_iv_7 |
Query
|
psi8 |
Integer |
|
Recommended |
Taking care of a child has caused more problems than you expected in your relationship with your spouse/boyfriend/girlfriend |
|
1=Strongly disagree; 2=Disagree; 3=Not sure; 4=Agree; 5=Strongly agree; 888=NA; 999=missing
|
psi_iv_8 |
Query
|
psi9 |
Integer |
|
Recommended |
I feel alone and without friends |
|
1=Strongly disagree; 2=Disagree; 3=Not sure; 4=Agree; 5=Strongly agree; 888=NA; 999=missing
|
psi_iv_9 |
Query
|
psi10 |
Integer |
|
Recommended |
When I go to a party, I usually expect not to enjoy myself |
|
1=Strongly disagree; 2=Disagree; 3=Not sure; 4=Agree; 5=Strongly agree; 888=NA; 999=missing
|
psi_iv_10 |
Query
|
psi11 |
Integer |
|
Recommended |
I am not as interested in people as I used to be |
|
1=Strongly disagree; 2=Disagree; 3=Not sure; 4=Agree; 5=Strongly agree; 888=NA; 999=missing
|
psi_iv_11 |
Query
|
psi12 |
Integer |
|
Recommended |
I don't enjoy things as I used to |
|
1=Strongly disagree; 2=Disagree; 3=Not sure; 4=Agree; 5=Strongly agree; 888=NA; 999=missing
|
psi_iv_12 |
Query
|
psi13 |
Integer |
|
Recommended |
My child rarely does things for me that make me feel good |
|
1=Strongly disagree; 2=Disagree; 3=Not sure; 4=Agree; 5=Strongly agree; 888=NA; 999=missing
|
psi_iv_13 |
Query
|
psi16 |
Integer |
|
Recommended |
When I do things for my child, I get the feeling that my efforts are not appreciated very much |
|
1=Strongly disagree; 2=Disagree; 3=Not sure; 4=Agree; 5=Strongly agree; 888=NA; 999=missing
|
psi_iv_14 |
Query
|
psi15 |
Integer |
|
Recommended |
My child smiles at me much less than I expected |
|
1=Strongly disagree; 2=Disagree; 3=Not sure; 4=Agree; 5=Strongly agree; 888=NA; 999=missing
|
psi_iv_15 |
Query
|
psi14 |
Integer |
|
Recommended |
Most times I feel that my child does not like me and does not want to be close to me |
|
1=Strongly disagree; 2=Disagree; 3=Not sure; 4=Agree; 5=Strongly agree; 888=NA; 999=missing
|
psi_iv_16 |
Query
|
psi_iv_17 |
Integer |
|
Recommended |
My child is very emotional and gets upset easily. |
1::5; 888; 999
|
1=Strongly agree; 2=Agree; 3=Not sure; 4=Disagree; 5=Strongly disagree; 888=NA; 999=missing
|
|
Query
|
psi18 |
Integer |
|
Recommended |
My child doesn't seem to learn as quickly as most children |
|
1=Strongly disagree; 2=Disagree; 3=Not sure; 4=Agree; 5=Strongly agree; 888=NA; 999=missing
|
psi_iv_18 |
Query
|
psi19 |
Integer |
|
Recommended |
My child doesn't seem to smile as much as most children |
|
1=Strongly disagree; 2=Disagree; 3=Not sure; 4=Agree; 5=Strongly agree; 888=NA; 999=missing
|
psi_iv_19 |
Query
|
psi20 |
Integer |
|
Recommended |
My child is not able to do as much as I expected |
|
1=Strongly disagree; 2=Disagree; 3=Not sure; 4=Agree; 5=Strongly agree; 888=NA; 999=missing
|
psi_iv_20 |
Query
|
psi21 |
Integer |
|
Recommended |
It takes a long time and it is very hard for my child to get used to new things |
|
1=Strongly disagree; 2=Disagree; 3=Not sure; 4=Agree; 5=Strongly agree; 888=NA; 999=missing
|
psi_iv_21 |
Query
|
psi_iv_23 |
Integer |
|
Recommended |
I feel that I am (Parent Question) |
|
1= A very good parent; 2= A better-than average parent; 3= An average parent; 4= A person who has some trouble being a parent; 5= Not very good at being a parent; 888=NA; 999=missing
|
psi_iv_22 |
Query
|
psi23 |
Integer |
|
Recommended |
I expected to have closer and warmer feelings for my child than I do and this bothers me |
|
1=Strongly disagree; 2=Disagree; 3=Not sure; 4=Agree; 5=Strongly agree; 888=NA; 999=missing
|
|
Query
|
psi24 |
Integer |
|
Recommended |
Sometimes my child does things that bother me just to be mean |
|
1=Strongly disagree; 2=Disagree; 3=Not sure; 4=Agree; 5=Strongly agree; 888=NA; 999=missing
|
psi_iv_24 |
Query
|
psi25 |
Integer |
|
Recommended |
My child seems to cry or fuss more often than most children |
|
1=Strongly disagree; 2=Disagree; 3=Not sure; 4=Agree; 5=Strongly agree; 888=NA; 999=missing
|
psi_iv_25 |
Query
|
psi26 |
Integer |
|
Recommended |
My child generally wakes up in a bad mood |
|
1=Strongly disagree; 2=Disagree; 3=Not sure; 4=Agree; 5=Strongly agree; 888=NA; 999=missing
|
psi_iv_26 |
Query
|
psi27 |
Integer |
|
Recommended |
I feel that my child is very moody and easily upset |
|
1=Strongly disagree; 2=Disagree; 3=Not sure; 4=Agree; 5=Strongly agree; 888=NA; 999=missing
|
psi_iv_27 |
Query
|
psi_iv_28 |
Integer |
|
Recommended |
Compared to the average child, my child has a great deal of difficulty in getting used to changes in schedules or changes around the house. |
1::5; 888; 999
|
1=Strongly agree; 2=Agree; 3=Not sure; 4=Disagree; 5=Strongly disagree; 888=NA; 999=missing
|
|
Query
|
psi29 |
Integer |
|
Recommended |
My child reacts very strongly when something happens that my child doesn't like |
|
1=Strongly disagree; 2=Disagree; 3=Not sure; 4=Agree; 5=Strongly agree; 888=NA; 999=missing
|
psi_iv_29 |
Query
|
psi17 |
Integer |
|
Recommended |
When playing, my child doesn't often giggle or laugh |
|
1=Strongly disagree; 2=Disagree; 3=Not sure; 4=Agree; 5=Strongly agree; 888=NA; 999=missing
|
psi_iv_30 |
Query
|
psi31 |
Integer |
|
Recommended |
My child's sleeping or eating schedule was much harder to establish than I expected |
|
1=Strongly disagree; 2=Disagree; 3=Not sure; 4=Agree; 5=Strongly agree; 888=NA; 999=missing
|
psi_iv_31 |
Query
|
psi32 |
Integer |
|
Recommended |
I have found that getting my child to do something or stop doing something is |
|
1=Much easier than I expected; 2=Somewhat easier than I expected; 3=About as hard as I expected; 4=Somewhat harder than I expected; 5=Much harder than I expected
|
psi_iv_32 |
Query
|
psi33 |
Integer |
|
Recommended |
Think carefully and count the number of things which your child does that bother you. For example: refuses to listen, overactive, cries, interrupts, fights, whines, etc. Please circle the number which includes the number of things you counted. |
|
1=1-3; 2=4-5; 3=6-7; 4=8-9; 5=10 or more; 888=NA; 999=missing
|
psi_iv_33 |
Query
|
psi34 |
Integer |
|
Recommended |
There are some things my child does that really bother me a lot |
|
1=Strongly disagree; 2=Disagree; 3=Not sure; 4=Agree; 5=Strongly agree; 888=NA; 999=missing
|
psi_iv_34 |
Query
|
psi35 |
Integer |
|
Recommended |
My child turned out to be more of a problem than I had expected |
|
1=Strongly disagree; 2=Disagree; 3=Not sure; 4=Agree; 5=Strongly agree; 888=NA; 999=missing
|
psi_iv_35 |
Query
|
psi36 |
Integer |
|
Recommended |
My child makes more demands on me than most children |
|
1=Strongly disagree; 2=Disagree; 3=Not sure; 4=Agree; 5=Strongly agree; 888=NA; 999=missing
|
psi_iv_36 |
|
psi_iv_37 |
String |
100
|
Recommended |
In your own words, can you tell me what about this child causes you the most stress? |
|
|
|
Query
|
psi22 |
Integer |
|
Recommended |
I feel that I am |
1::5; 888; 999
|
1=A very good parent; 2=A better than average parent; 3=An average parent; 4=A person who has some trouble being a parent; 5=Not very good at being a parent; 888=NA; 999=missing
|
|
Query
|
psi28 |
Integer |
|
Recommended |
My child does a few things which bother me a great deal |
|
1=Strongly disagree; 2=Disagree; 3=Not sure; 4=Agree; 5=Strongly agree; 888=NA; 999=missing
|
|
Query
|
psi30 |
Integer |
|
Recommended |
My child gets upset easily over the smallest thing |
|
1=Strongly disagree; 2=Disagree; 3=Not sure; 4=Agree; 5=Strongly agree; 888=NA; 999=missing
|
|
Query
|
psidrx |
Float |
|
Recommended |
Defensive Responding (mean score) |
|
|
|
Query
|
psidrt |
Float |
|
Recommended |
Defensive Responding (total score) |
|
|
|
Query
|
psipdx |
Float |
|
Recommended |
Parental Distress (mean score) |
|
|
|
Query
|
psipdt |
Float |
|
Recommended |
Parental Distress (total score) |
|
|
|
Query
|
psipcdix |
Float |
|
Recommended |
Parent-Child Dysfunctional Interaction (mean score) |
|
|
|
Query
|
psipcdit |
Float |
|
Recommended |
Parent-Child Dysfunctional Interaction (total score) |
|
|
|
Query
|
psidcx |
Float |
|
Recommended |
Difficult Child (mean score) |
|
|
|
Query
|
psidct |
Float |
|
Recommended |
Difficult Child (total score) |
|
|
|
Query
|
psitotlx |
Float |
|
Recommended |
Total Score: Total Stress (mean score) |
|
|
|
Query
|
psitotlt |
Float |
|
Recommended |
Total Score: Total Stress (total score) |
|
|
raw_psi_score |
Query
|
psitotalstressptile |
Float |
|
Recommended |
Parenting Stress Total Percentile |
|
888=not applicable; 999=missing
|
prctile_psi |
Query
|
psi28a |
Integer |
|
Recommended |
Compared to the average child, my child has a great deal of difficulty in getting used to changes in schedules or changes around the house |
1::5; 888; 999
|
1=Strongly disagree; 2=Disagree; 3=Not sure; 4=Agree; 5=Strongly agree; 888=NA; 999=missing
|
|
Query
|
psi35a |
Integer |
|
Recommended |
My child's behavior is more of a problem than I expected. |
1::5; 888; 999
|
1=Strongly disagree; 2=Disagree; 3=Not sure; 4=Agree; 5=Strongly agree; 888=NA; 999=missing
|
|
Query
|
days_baseline |
Integer |
|
Recommended |
Days since baseline |
|
|
|
Query
|
assbdic |
String |
5
|
Recommended |
Assessment Point |
D;14;E;24;LB;36;72;96;120; 9; B; 3; 7; 144; 168;192; C
|
D=MTA baseline assessment; 14=MTA 14 month assessment; E=MTA early termination assessment; B = MTA Pre-Baseline Screening Assessment (579/579); 09 = MTA 9 Month Assessment (530/530); 24=MTA 24 month assessment; LB=LNCG baseline assessment; 36=MTA and LNCG 3 year assessment; 72=MTA and LNCG 6 year assessment; 96=MTA and LNCG 8 year assessment; 03 = MTA 3 Month Assessment (438/687);120=MTA and LNCG 10 year assessment; 7= 7th Grade Assessment (221/276); 144 = MTA & LNCG 12 Month Assessment (578/578); 168 = MTA & LNCG 14 Month Assessment (585/585); 192 = MTA & LNCG 16 Month Assessment (505/505); C = MTA Pre-Baseline Screening Assessment (78/78)
|
|
Query
|
relationship |
Integer |
|
Recommended |
Relationship of respondent to individual |
1::94;-999
|
1 = Biological mom; 2 = Biological dad; 3 = Grandparent; 4 = Special education (sped) teacher; 5 = General education teacher; 6 = Occupational therapist; 7 = Speech and language therapist; 8 = Behavioral therapist; 9 = Paraprofessional; 10 = Aide; 11 = Principal; 12 = Administrator; 14 = Content teacher; 15 = Parent center director; 16 = Self; 17=Adoptive mother; 18=Adoptive father; 19=Foster mother; 20 = Foster father; 21=Grandmother; 22=Grandfather; 23=Step-mother; 24 = Step-father; 25=Aunt; 26=Uncle; 28=Both parents;31= Grandmother from mother side; 32= Grandfather from mother side; 33= Grandmother from father side; 34= Grandfather from father side; 36= Brother; 37= Sister; 38= Cousin; 39= female caregiver; 40=male caregiver; 41=Female child; 42=Male child; 43=Spouse/Mate; 44=Friend; 45=Parent; 46=Significant other; 47=Sibling; 48=Son/Daughter; 49=Son-in-law/Daughter-in law; 50=Other Relative; 51=Paid caregiver; 52=Friends; 53=Roommate; 54=Supervisor; 55=mother's boyfriend; 56=other parental figure; 57=Summary; 58=counselor ; 59 = other female relative; 60 = other male relative; 61 = non-relative ; 62=Maternal Aunt; 63=Maternal Uncle; 64=Maternal Cousin; 65 = Paternal Aunt; 66=Paternal Uncle; 67=Paternal Cousin ; 68=Biological/Adoptive Mother and Grandmother; 69=Biological/Adoptive Mother and Stepmother and Grandmother; 70=Biological/Adoptive Mother and Grandmother and Foster Father; 71=Biological/Adoptive Mother and Stepmother and Foster Mother; 72=Biological/Adoptive Mother and Foster Mother; 73=Biological/Adoptive Mother and Biological/Adoptive Father; 74=Biological/Adoptive Mother and Stepmother and Biological/Adoptive Father; 75=Biological/Adoptive Mother and Other; 76=Biological/Adoptive Mother and Stepmother and Stepfather; 77=Biological/Adoptive Mother and Stepfather; 78=Biological/Adoptive Mother and Grandfather; 79=Biological/Adoptive Mother and Stepmother and Foster Father; 80=Biological/Adoptive Mother and Stepmother; 81=Guardian, female; 82=Other female; 83=Guardian, male; 84=Other male; 85=Other/Grandparent/Nanny; 86 = Mother, Father, Guardian; 87 = Daughter, son, grandchild; 88 = Professional (e.g., social worker, nurse, therapist, psychiatrist, or group home staff); -999=Missing; 89 = Biological parent; 90=Other; 91 = Stepparent; 92 = Adoptive parent; 93 = Foster parent; 94 = Co-worker
|
|
Query
|
actbdic |
Integer |
|
Recommended |
Active status |
0::5
|
0=Inactive-Data collected after the 14 month treatment phase/after early termination from treatment phase/prior to treatment phase; 1=Active-Data collected during the 14 month treatment phase while subject received originally assigned treatment regardless of degree of compliance; 2=Active-This is the last active assessment for subjects who were about to violate treatment arm by receiving alternate treatment; 3=Active-This is the last active assessment for subjects who were about to leave the study by moving away;4=Yes, Active; 5=No, Not Active
|
|
|
site |
String |
101
|
Recommended |
Site |
|
Study Site
|
|
Query
|
sjtyp |
Integer |
|
Recommended |
Subject type |
1;2
|
1=MTA randomized trial subject; 2=Local normative comparison group (LNCG) subject
|
|
Query
|
psi37 |
Integer |
|
Recommended |
When I run into a problem taking care of my twins I have a lot of people that I can talk to for help or advice |
1::5; 888; 999
|
1=Strongly disagree; 2=Disagree; 3=Not sure; 4=Agree; 5=Strongly agree; 888=NA; 999=missing
|
|
Query
|
psi38 |
Integer |
|
Recommended |
Being a parent is harder than I thought it would be |
1::5; 888; 999
|
1=Strongly disagree; 2=Disagree; 3=Not sure; 4=Agree; 5=Strongly agree; 888=NA; 999=missing
|
|
Query
|
psi39 |
Integer |
|
Recommended |
I can't make decisions without help |
1::5; 888; 999
|
1=Strongly disagree; 2=Disagree; 3=Not sure; 4=Agree; 5=Strongly agree; 888=NA; 999=missing
|
|
Query
|
psi40 |
Integer |
|
Recommended |
I have had many more problems raising kids/twins than I expected |
1::5; 888; 999
|
1=Strongly disagree; 2=Disagree; 3=Not sure; 4=Agree; 5=Strongly agree; 888=NA; 999=missing
|
|
Query
|
psi41 |
Integer |
|
Recommended |
The number of children I have now is too many |
1::5; 888; 999
|
1=Strongly disagree; 2=Disagree; 3=Not sure; 4=Agree; 5=Strongly agree; 888=NA; 999=missing
|
|
Query
|
psi42 |
Integer |
|
Recommended |
I feel that I am successful most of the time when I try to get my twins to do something or not to do something |
1::5; 888; 999
|
1=Strongly disagree; 2=Disagree; 3=Not sure; 4=Agree; 5=Strongly agree; 888=NA; 999=missing
|
|
Query
|
psi43 |
Integer |
|
Recommended |
I often have the feeling that other people my own age don't particularly like my company |
1::5; 888; 999
|
1=Strongly disagree; 2=Disagree; 3=Not sure; 4=Agree; 5=Strongly agree; 888=NA; 999=missing
|
|
Query
|
psi44 |
Integer |
|
Recommended |
Having kids/twins has been more expensive than I had expected |
1::5; 888; 999
|
1=Strongly disagree; 2=Disagree; 3=Not sure; 4=Agree; 5=Strongly agree; 888=NA; 999=missing
|
|
Query
|
psi45 |
Integer |
|
Recommended |
When I was young, I never felt comfortable holding or taking care of children |
1::5; 888; 999
|
1=Strongly disagree; 2=Disagree; 3=Not sure; 4=Agree; 5=Strongly agree; 888=NA; 999=missing
|
|
Query
|
psi46 |
Integer |
|
Recommended |
Most of my life is spent doing things for my kids/twins |
1::5; 888; 999
|
1=Strongly disagree; 2=Disagree; 3=Not sure; 4=Agree; 5=Strongly agree; 888=NA; 999=missing
|
|
Query
|
psi47 |
Integer |
|
Recommended |
I enjoy being a parent |
1::5; 888; 999
|
1=Strongly disagree; 2=Disagree; 3=Not sure; 4=Agree; 5=Strongly agree; 888=NA; 999=missing
|
|
Query
|
psi48 |
Integer |
|
Recommended |
It takes a long time for parents to develop close, warm feelings for their children |
1::5; 888; 999
|
1=Strongly disagree; 2=Disagree; 3=Not sure; 4=Agree; 5=Strongly agree; 888=NA; 999=missing
|
|
Query
|
psi49 |
Integer |
|
Recommended |
It is hard to find a place in our home where I can go to be by myself |
1::5; 888; 999
|
1=Strongly disagree; 2=Disagree; 3=Not sure; 4=Agree; 5=Strongly agree; 888=NA; 999=missing
|
|
Query
|
psi50 |
Integer |
|
Recommended |
I feel capable and on top of things when I am caring for my kids/twins |
1::5; 888; 999
|
1=Strongly disagree; 2=Disagree; 3=Not sure; 4=Agree; 5=Strongly agree; 888=NA; 999=missing
|
|
Query
|
psi51 |
Integer |
|
Recommended |
Having kids/twins seems to have increased the number of problems we have with in laws and relatives |
1::5; 888; 999
|
1=Strongly disagree; 2=Disagree; 3=Not sure; 4=Agree; 5=Strongly agree; 888=NA; 999=missing
|
|
Query
|
psi52 |
Integer |
|
Recommended |
I often feel that my kids/twins needs control my life |
1::5; 888; 999
|
1=Strongly disagree; 2=Disagree; 3=Not sure; 4=Agree; 5=Strongly agree; 888=NA; 999=missing
|
|
Query
|
psi53 |
Integer |
|
Recommended |
When you think about yourself as a parent which of the following 4 statements do you believe?: 1) I can handle anything that happens, 2) I can handle most things pretty well, 3) sometimes I have doubts, but I handle things without problems, or 4)I don=t think I handle things very well at all. |
1::4
|
1=handle anything; 2=most things; 3= sometimes doubt; 4=not well at all
|
|
Query
|
psi54 |
Integer |
|
Recommended |
Which of these statements describes how easy it is for you to understand what your twins want or need? Is it: 1 very easy, 2 easy, 3 somewhat difficult, 4 very hard, or 5 usually I can=t figure out what the problem is |
1::5
|
1=very easy; 2=easy; 3=somewhat difficult; 4 very hard; 5=can't figure
|
|
|
version_form |
String |
121
|
Recommended |
Form used/assessment name |
|
|
|
|
study |
String |
100
|
Recommended |
Study; The code for each individual study |
|
|
|
Query
|
visit |
String |
60
|
Recommended |
Visit name |
|
|
|
Query
|
psi_1_percent |
Integer |
|
Recommended |
Defensive Responding Percentile |
|
|
|
Query
|
psi_2_percent |
Integer |
|
Recommended |
Parental Distress (PD) Percentile |
|
|
|
Query
|
psi_3_percent |
Integer |
|
Recommended |
Parent-Child Dysfunctional Interaction (P-CDI) Percentile |
|
|
|
Query
|
psi_4_percent |
Integer |
|
Recommended |
Difficult Child (DC) Percentile |
|
|
|
Query
|
daysrz |
Integer |
|
Recommended |
days since randomization |
|
|
|
Query
|
visnum |
Float |
|
Recommended |
Numeric Visit Number |
|
-1.5 = Pre-Screening; -1 = Screening; 0 = Baseline; ## = Visit ## (from 1 to 10); Whole numbers = standard monthly visits; #.001 - #.009 = Unscheduled; #.1 = End of Phase 1; #.2 = End of Phase 2; #.3 = End of Phase 3; #.4 = End of Open Choice Phase; #.5 = End of Study; #.6 = Genetic Analysis; 1000=all visits
|
|
|
timepoint_label |
String |
50
|
Recommended |
Timepoint/visit label |
|
|
|
|
beh_health_screening |
Integer |
|
Recommended |
Behavioral health screening |
0;1;777
|
0=Negative; 1=Positive; 777=Not applicable
|
|
|
psi61 |
Integer |
|
Recommended |
My child is much more active than I expected. |
1::5; 888; 999
|
1=Strongly disagree; 2=Disagree; 3=Not sure; 4=Agree; 5=Strongly agree; 888=NA; 999=Missing
|
|
|
psi62 |
Integer |
|
Recommended |
My child squirms and kicks a great deal when being dressed or bathed. |
1::5; 888; 999
|
1=Strongly disagree; 2=Disagree; 3=Not sure; 4=Agree; 5=Strongly agree; 888=NA; 999=Missing
|
|
|
psi63 |
Integer |
|
Recommended |
My child is easily distracted, and it is a problem for me. |
1::5; 888; 999
|
1=Strongly disagree; 2=Disagree; 3=Not sure; 4=Agree; 5=Strongly agree; 888=NA; 999=Missing
|
|
|
psi64 |
Integer |
|
Recommended |
Sometimes I feel my child doesn''t like me and doesn''t want to be close to me. |
1::5; 888; 999
|
1=Strongly disagree; 2=Disagree; 3=Not sure; 4=Agree; 5=Strongly agree; 888=NA; 999=Missing
|
|
|
psi65 |
Integer |
|
Recommended |
Which statement best describes your child? |
1::4
|
1=Almost always likes to play with me; 2=Sometimes likes to play with me; 3=Usually doesn''t like to play with me; 4=Almost never likes to play with me
|
|
|
psi66 |
Integer |
|
Recommended |
My child cries and fusses. |
1::5
|
1=Much less than I had expected; 2=Less than I had expected; 3=About as much as I expected; 4=Much more than I expected; 5=It seems almost constant
|
|
|
psi67 |
Integer |
|
Recommended |
My child looks a little different than I expected, and it bothers me at times. |
1::5; 888; 999
|
1=Strongly disagree; 2=Disagree; 3=Not sure; 4=Agree; 5=Strongly agree; 888=NA; 999=Missing
|
|
|
psi68 |
Integer |
|
Recommended |
In some areas, my child seems to have forgotten past learnings and has gone back to doing things characteristic of younger children. |
1::5; 888; 999
|
1=Strongly disagree; 2=Disagree; 3=Not sure; 4=Agree; 5=Strongly agree; 888=NA; 999=Missing
|
|
|
psi69 |
Integer |
|
Recommended |
It bothers me that my child does not like to be cuddled or touched very much. |
1::5; 888; 999
|
1=Strongly disagree; 2=Disagree; 3=Not sure; 4=Agree; 5=Strongly agree; 888=NA; 999=Missing
|
|
|
psi70 |
Integer |
|
Recommended |
I often have doubts about my ability to handle being a parent. |
1::5; 888; 999
|
1=Strongly disagree; 2=Disagree; 3=Not sure; 4=Agree; 5=Strongly agree; 888=NA; 999=Missing
|
|
|
psi71 |
Integer |
|
Recommended |
My child is always hanging on me. |
1::5; 888; 999
|
1=Strongly disagree; 2=Disagree; 3=Not sure; 4=Agree; 5=Strongly agree; 888=NA; 999=Missing
|
|
|
psi72 |
Integer |
|
Recommended |
Leaving my child with a babysitter is usually a problem. |
1::5; 888; 999
|
1=Strongly disagree; 2=Disagree; 3=Not sure; 4=Agree; 5=Strongly agree; 888=NA; 999=Missing
|
|
|
psi73 |
Integer |
|
Recommended |
My child easily notices and overreacts to loud sounds and bright lights. |
1::5; 888; 999
|
1=Strongly disagree; 2=Disagree; 3=Not sure; 4=Agree; 5=Strongly agree; 888=NA; 999=Missing
|
|
|
psi74 |
Integer |
|
Recommended |
My child usually avoids a new toy for a while before beginning to play with it. |
1::5; 888; 999
|
1=Strongly disagree; 2=Disagree; 3=Not sure; 4=Agree; 5=Strongly agree; 888=NA; 999=Missing
|
|
|
psi75 |
Integer |
|
Recommended |
My child doesn''t seem comfortable with meeting strangers. |
1::5; 888; 999
|
1=Strongly disagree; 2=Disagree; 3=Not sure; 4=Agree; 5=Strongly agree; 888=NA; 999=Missing
|
|
|
psi76 |
Integer |
|
Recommended |
When upset, my child is: |
1::4
|
1=Easy to calm down; 2=Harder to calm down than I expected; 3=Very difficult to calm down; 4=Nothing I do helps to calm my child
|
|
|
psi77 |
Integer |
|
Recommended |
My child cries often, and it bothers me. |
1::5; 888; 999
|
1=Strongly disagree; 2=Disagree; 3=Not sure; 4=Agree; 5=Strongly agree; 888=NA; 999=Missing
|
|
|
psi78 |
Integer |
|
Recommended |
My child has had more health problems than I expected. |
1::5; 888; 999
|
1=Strongly disagree; 2=Disagree; 3=Not sure; 4=Agree; 5=Strongly agree; 888=NA; 999=Missing
|
|
|
psi79 |
Integer |
|
Recommended |
As my child has grown older and become more independent, I find myself more worried that my child will get hurt or into trouble. |
1::5; 888; 999
|
1=Strongly disagree; 2=Disagree; 3=Not sure; 4=Agree; 5=Strongly agree; 888=NA; 999=Missing
|
|
|
psi80 |
Integer |
|
Recommended |
My child seems to be much harder to care for than most. |
1::5; 888; 999
|
1=Strongly disagree; 2=Disagree; 3=Not sure; 4=Agree; 5=Strongly agree; 888=NA; 999=Missing
|
|
|
psi53_5 |
Integer |
|
Recommended |
When you think about yourself as a parent which of the following 5 statements do you believe? |
1::5
|
1 = I can handle anything that happens; 2 = I can handle most things pretty well; 3 = Sometimes I have doubts, but find that I handle most things without any problems; 4 = I have some doubts about being able to handle things; 5 = I don''t think I handle things very well at all
|
|
|
psi81 |
Integer |
|
Recommended |
Since I brought my last child home from the hospital, I find that I am not able to take care of this child as well as I thought I could. I need help. |
1::5; 888; 999
|
1=Strongly disagree; 2=Disagree; 3=Not sure; 4=Agree; 5=Strongly agree; 888=NA; 999=Missing
|
|
|
psi82 |
Integer |
|
Recommended |
Mother''s education |
1::5
|
1=Graduate or professional school; 2=College graduate; 3=Vocational or some college; 4=9th to 12th grade; 5=1st to 8th grade
|
|
|
psi83 |
Integer |
|
Recommended |
Father''s education |
1::5
|
1=Graduate or professional school; 2=College graduate; 3=Vocational or some college; 4=9th to 12th grade; 5=1st to 8th grade
|
|
|
psi84 |
Integer |
|
Recommended |
I often feel guilty about the way I feel toward my child. |
1::5; 888; 999
|
1=Strongly disagree; 2=Disagree; 3=Not sure; 4=Agree; 5=Strongly agree; 888=NA; 999=Missing
|
|
|
psi85 |
Integer |
|
Recommended |
My child and I are not as close as I would like. |
1::5; 888; 999
|
1=Strongly disagree; 2=Disagree; 3=Not sure; 4=Agree; 5=Strongly agree; 888=NA; 999=Missing
|
|
|
psi86 |
Integer |
|
Recommended |
When I think about the kind of parent that I am, I often feel guilty or bad about myself. |
1::5; 888; 999
|
1=Strongly disagree; 2=Disagree; 3=Not sure; 4=Agree; 5=Strongly agree; 888=NA; 999=Missing
|
|
|
psi87 |
Integer |
|
Recommended |
When my child misbehaves or fusses too much, I feel responsible, as if I didn''t do something right. |
1::5; 888; 999
|
1=Strongly disagree; 2=Disagree; 3=Not sure; 4=Agree; 5=Strongly agree; 888=NA; 999=Missing
|
|
|
psi88 |
Integer |
|
Recommended |
I feel every time my child does something wrong, it is my fault. |
1::5; 888; 999
|
1=Strongly disagree; 2=Disagree; 3=Not sure; 4=Agree; 5=Strongly agree; 888=NA; 999=Missing
|
|
|
psi89 |
Integer |
|
Recommended |
I often feel depressed and do not have the energy to handle my parenting responsibilities. |
1::5; 888; 999
|
1=Strongly disagree; 2=Disagree; 3=Not sure; 4=Agree; 5=Strongly agree; 888=NA; 999=Missing
|
|
|
psi90 |
Integer |
|
Recommended |
I felt sadder and more depressed than I expected after leaving the hospital with my baby. |
1::5; 888; 999
|
1=Strongly disagree; 2=Disagree; 3=Not sure; 4=Agree; 5=Strongly agree; 888=NA; 999=Missing
|
|
|
psi55 |
Integer |
|
Recommended |
When my child wants something, my child usually keeps trying to get it. |
1::5; 888; 999
|
1=Strongly disagree; 2=Disagree; 3=Not sure; 4=Agree; 5=Strongly agree; 888=NA; 999=Missing
|
|
|
psi91 |
Integer |
|
Recommended |
I wind up feeling guilty when I get angry at my child, and this bothers me. |
1::5; 888; 999
|
1=Strongly disagree; 2=Disagree; 3=Not sure; 4=Agree; 5=Strongly agree; 888=NA; 999=Missing
|
|
|
psi92 |
Integer |
|
Recommended |
After my child had been home for the hospital for about a month, I noticed that I was feeling more sad and depressed than I had expected. |
1::5; 888; 999
|
1=Strongly disagree; 2=Disagree; 3=Not sure; 4=Agree; 5=Strongly agree; 888=NA; 999=Missing
|
|
|
psi93 |
Integer |
|
Recommended |
Since having a child, my spouse/parenting partner has not given me as much help and support as I expected. |
1::5; 888; 999
|
1=Strongly disagree; 2=Disagree; 3=Not sure; 4=Agree; 5=Strongly agree; 888=NA; 999=Missing
|
|
|
psi94 |
Integer |
|
Recommended |
Since having a child, my spouse/parenting partner and I don''t do as many things together. |
1::5; 888; 999
|
1=Strongly disagree; 2=Disagree; 3=Not sure; 4=Agree; 5=Strongly agree; 888=NA; 999=Missing
|
|
|
psi95 |
Integer |
|
Recommended |
Since having a child, my spouse/parenting partner and I don''t spend as much time together as a family as I expected. |
1::5; 888; 999
|
1=Strongly disagree; 2=Disagree; 3=Not sure; 4=Agree; 5=Strongly agree; 888=NA; 999=Missing
|
|
|
psi96 |
Integer |
|
Recommended |
Since having my last child, I have less interest in sex with my spouse/parenting partner. |
1::5; 888; 999
|
1=Strongly disagree; 2=Disagree; 3=Not sure; 4=Agree; 5=Strongly agree; 888=NA; 999=Missing
|
|
|
psi97 |
Integer |
|
Recommended |
My spouse/parenting partner and I have a lot of conflict over how to raise our child. |
1::5; 888; 999
|
1=Strongly disagree; 2=Disagree; 3=Not sure; 4=Agree; 5=Strongly agree; 888=NA; 999=Missing
|
|
|
psi98 |
Integer |
|
Recommended |
The financial cost of having our child has created problems between me and my spouse/parenting partner. |
1::5; 888; 999
|
1=Strongly disagree; 2=Disagree; 3=Not sure; 4=Agree; 5=Strongly agree; 888=NA; 999=Missing
|
|
|
psi99 |
Integer |
|
Recommended |
Since having children, I have a lot fewer chances to see my friends and to make new friends. |
1::5; 888; 999
|
1=Strongly disagree; 2=Disagree; 3=Not sure; 4=Agree; 5=Strongly agree; 888=NA; 999=Missing
|
|
|
psi100 |
Integer |
|
Recommended |
During the past six months, I have been sicker than usual or have had more aches and pains that I normally do. |
1::5; 888; 999
|
1=Strongly disagree; 2=Disagree; 3=Not sure; 4=Agree; 5=Strongly agree; 888=NA; 999=Missing
|
|
|
psi56 |
Integer |
|
Recommended |
My child is so active that it exhausts me. |
1::5; 888; 999
|
1=Strongly disagree; 2=Disagree; 3=Not sure; 4=Agree; 5=Strongly agree; 888=NA; 999=Missing
|
|
|
psi101 |
Integer |
|
Recommended |
Physically, I feel good most of the time. |
1::5; 888; 999
|
1=Strongly disagree; 2=Disagree; 3=Not sure; 4=Agree; 5=Strongly agree; 888=NA; 999=Missing
|
|
|
psi102 |
Integer |
|
Recommended |
I have problems sleeping, and I often feel tired during the day. |
1::5; 888; 999
|
1=Strongly disagree; 2=Disagree; 3=Not sure; 4=Agree; 5=Strongly agree; 888=NA; 999=Missing
|
|
|
psi103 |
Integer |
|
Recommended |
Since I had my child, I have often been sick. |
1::5; 888; 999
|
1=Strongly disagree; 2=Disagree; 3=Not sure; 4=Agree; 5=Strongly agree; 888=NA; 999=Missing
|
|
|
psi104 |
Integer |
|
Recommended |
During the last 12 months, have any of the following events occurred in your immediate family? Divorce |
0;7
|
0=No; 7=Yes
|
|
|
psi105 |
Integer |
|
Recommended |
During the last 12 months, have any of the following events occurred in your immediate family? Marital reconciliation |
0;4
|
0=No; 4=Yes
|
|
|
psi106 |
Integer |
|
Recommended |
During the last 12 months, have any of the following events occurred in your immediate family? Marriage |
0;5
|
0=No; 5=Yes
|
|
|
psi107 |
Integer |
|
Recommended |
During the last 12 months, have any of the following events occurred in your immediate family? Separation |
0;8
|
0=No; 8=Yes
|
|
|
psi108 |
Integer |
|
Recommended |
During the last 12 months, have any of the following events occurred in your immediate family? Pregnancy |
0;4
|
0=No; 4=Yes
|
|
|
psi109 |
Integer |
|
Recommended |
During the last 12 months, have any of the following events occurred in your immediate family? Other relative moved into household |
0;4
|
0=No; 4=Yes
|
|
|
psi110 |
Integer |
|
Recommended |
During the last 12 months, have any of the following events occurred in your immediate family? Income increased substantially (20% or more) |
0;4
|
0=No; 4=Yes
|
|
|
psi57 |
Integer |
|
Recommended |
My child appears disorganized and is easily distracted. |
1::5; 888; 999
|
1=Strongly disagree; 2=Disagree; 3=Not sure; 4=Agree; 5=Strongly agree; 888=NA; 999=Missing
|
|
|
psi111 |
Integer |
|
Recommended |
During the last 12 months, have any of the following events occurred in your immediate family? Went deeply into debt |
0;4
|
0=No; 4=Yes
|
|
|
psi112 |
Integer |
|
Recommended |
During the last 12 months, have any of the following events occurred in your immediate family? Moved to new location |
0;2
|
0=No; 2=Yes
|
|
|
psi113 |
Integer |
|
Recommended |
During the last 12 months, have any of the following events occurred in your immediate family? Promotion at work |
0;3
|
0=No; 3=Yes
|
|
|
psi114 |
Integer |
|
Recommended |
During the last 12 months, have any of the following events occurred in your immediate family? Income decreased substantially |
0;4
|
0=No; 4=Yes
|
|
|
psi115 |
Integer |
|
Recommended |
During the last 12 months, have any of the following events occurred in your immediate family? Alcohol or drug problem |
0;7
|
0=No; 7=Yes
|
|
|
psi116 |
Integer |
|
Recommended |
During the last 12 months, have any of the following events occurred in your immediate family? Death of a close family friend |
0;4
|
0=No; 4=Yes
|
|
|
psi117 |
Integer |
|
Recommended |
During the last 12 months, have any of the following events occurred in your immediate family? Began new job |
0;4
|
0=No; 4=Yes
|
|
|
psi118 |
Integer |
|
Recommended |
During the last 12 months, have any of the following events occurred in your immediate family? Entered new school |
0;3
|
0=No; 3=Yes
|
|
|
psi119 |
Integer |
|
Recommended |
During the last 12 months, have any of the following events occurred in your immediate family? Trouble with superiors at work |
0;2
|
0=No; 2=Yes
|
|
|
psi120 |
Integer |
|
Recommended |
During the last 12 months, have any of the following events occurred in your immediate family? Lost job |
0;2
|
0=No; 2=Yes
|
|
|
psi58 |
Integer |
|
Recommended |
Compared to most, my child has more difficulty concentrating and paying attention. |
1::5; 888; 999
|
1=Strongly disagree; 2=Disagree; 3=Not sure; 4=Agree; 5=Strongly agree; 888=NA; 999=Missing
|
|
|
psi121 |
Integer |
|
Recommended |
During the last 12 months, have any of the following events occurred in your immediate family? Legal problems |
0;2
|
0=No; 2=Yes
|
|
|
psi122 |
Integer |
|
Recommended |
During the last 12 months, have any of the following events occurred in your immediate family? Death of immediate family member |
0;6
|
0=No; 6=Yes
|
|
|
psi59 |
Integer |
|
Recommended |
My child will often stay occupied with a toy for more than 10 minutes. |
1::5; 888; 999
|
1=Strongly disagree; 2=Disagree; 3=Not sure; 4=Agree; 5=Strongly agree; 888=NA; 999=Missing
|
|
|
psi60 |
Integer |
|
Recommended |
My child wanders away more than I expected. |
1::5; 888; 999
|
1=Strongly disagree; 2=Disagree; 3=Not sure; 4=Agree; 5=Strongly agree; 888=NA; 999=Missing
|
|