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NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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The filters you have selected from various query interfaces will be stored here, in the 'Filter Cart'. The database will be queried using filters added to your 'Filter Cart', when multiple filters are defined, each will be executed using 'AND' logic, so with each filter that is applied the result set gets smaller.

From the 'Filter Cart' you can inspect each of the filters that have been defined, and you also have the option to remove filters. The 'Filter Cart' itself will display the number of filters applied along with the number of subjects that are identified by the combination of those filters. For example a GUID filter with two subjects, followed by a GUID filter for just one of those subjects would return only data for the subject that is in both GUID filters.

If you have a question about the filter cart, or underlying filters please contact the help desk at The NDA Help Desk

Description
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Notes
Data Structures with shared data
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Element NameData TypeSizeRequiredDescriptionValue RangeNotesAliases
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*
src_subject_idString20RequiredSubject ID how it's defined in lab/project
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging was completed. MM/DD/YYYYRequired field
genderString20RequiredSex of the subjectM;FM = Male; F = Female
pr_advo_sk1IntegerRecommended1. How knowledgeable do you think you are about your rights in the adult service system?1::51=Not at all; 2= Below Average; 3=Average; 4= Good; 5=Excellent
pr_advo_sk2IntegerRecommended2. How able are you to apply your rights and knowledge of the laws in navigating the adult service system?1::51=Not at all; 2= Below Average; 3=Average; 4= Good; 5=Excellent
pr_advo_sk3IntegerRecommended3. How able are you to advocate for a child's needs in trying to get adult services?1::51=Not at all; 2= Below Average; 3=Average; 4= Good; 5=Excellent
pr_advo_sk4IntegerRecommended4. How able are you to assert yourself in trying to get services and/or supports for your child?1::51=Not at all; 2= Below Average; 3=Average; 4= Good; 5=Excellent
pr_advo_sk5IntegerRecommended5. How well are you able to communicate effectively with agencies, providers, or professionals?1::51=Not at all; 2= Below Average; 3=Average; 4= Good; 5=Excellent
pr_advo_sk6IntegerRecommended6. How well do you think you stay calm and non-adversarial with agencies, providers, or professionals?1::51=Not at all; 2= Below Average; 3=Average; 4= Good; 5=Excellent
pr_advo_sk7IntegerRecommended7. What is your self-confidence like in terms of working with agencies, providers, or professionals?1::51=Not at all; 2= Below Average; 3=Average; 4= Good; 5=Excellent
pr_advo_sk8IntegerRecommended8. What is your working relationship like with providers, agencies, or professionals?1::51=Not at all; 2= Below Average; 3=Average; 4= Good; 5=Excellent
pr_advo_sk9IntegerRecommended9. How able are you to effectively participate in meetings with providers, agencies, or professionals?1::51=Not at all; 2= Below Average; 3=Average; 4= Good; 5=Excellent
pr_advo_sk10IntegerRecommended10. How prepared do you feel to collaborate with providers, agencies, or professionals?1::51=Not at all; 2= Below Average; 3=Average; 4= Good; 5=Excellent
comments_miscString4,000RecommendedMiscellaneous comments on study, interview, methodology relevant to this form datapr_advo_sk11
pr_vapknow1IntegerRecommended1. Which of the following is NOT a type of diploma available in Tennessee?1;21=Right; 2 =Wrongpr_vapknowledge1
pr_vapknow2IntegerRecommended2. Until what age can a student with a disability continue to receive special education services?1;21=Right; 2 =Wrong
pr_vapknow3IntegerRecommended3. Name the two pieces of legislation that enable students with disabilities to receive accommodations in post-secondary education.1;21=Right; 2 =Wrongpr_vapknowledge2
pr_vapknow4IntegerRecommended4. Which piece of SSI legislation can assist with post-secondary education?1;21=Right; 2 =Wrongpr_vapknowledge3
pr_vapknow5IntegerRecommended5. In which of the following post-secondary models may students with disabilities participate in some classes with peers without disabilities and some classes with peers with disabilities?1;21=Right; 2 =Wrong
pr_vapknow6IntegerRecommended6. Which of the following describes competitive employment in an integrated work setting with ongoing support services for individuals with disabilities?1;21=Right; 2 =Wrongpr_vapknowledge4
pr_vapknow7IntegerRecommended7. Which of the following is NOT a requirement for Vocational Rehabilitation services?1;21=Right; 2 =Wrong
pr_vapknow8IntegerRecommended8. What does an IPE stand for?1;21=Right; 2 =Wrong
pr_vapknow9IntegerRecommended9. Which of the following is NOT a way that a Vocational Rehabilitation Counselor can close a case?1;21=Right; 2 =Wrongpr_vapknowledge5
pr_vapknow10IntegerRecommended10. If you have problems with the Division of Rehabilitation Services (DRS), who can you contact?1;21=Right; 2 =Wrong
pr_vapknow11IntegerRecommended11. Where should you go to complete an application for vocational rehabilitation services?1;21=Right; 2 =Wrong
pr_vapknow12IntegerRecommended12. How do you qualify for a Ticket under the Ticket to Work Act?1;21=Right; 2 =Wrongpr_vapknowledge6
pr_vapknow13IntegerRecommended13. Which of the following is NOT a requirement for SSI?1;21=Right; 2 =Wrongpr_vapknowledge7
pr_vapknow14IntegerRecommended14. What is substantial gainful activity?1;21=Right; 2 =Wrongpr_vapknowledge8
pr_vapknow15IntegerRecommended15. How can you apply for SSI?1;21=Right; 2 =Wrong
pr_vapknow16IntegerRecommended16. With respect to SSI, what are your options if your child cannot manage his/her finances?1;21=Right; 2 =Wrongpr_vapknowledge9
pr_vapknow17IntegerRecommended17. Which of the following is NOT an example of in-kind support and maintenance?1;21=Right; 2 =Wrongpr_vapknowledge10
pr_vapknow18IntegerRecommended18. Which of the following could be an example of an impairment related work expense?1;21=Right; 2 =Wrongpr_vapknowledge11
pr_vapknow19IntegerRecommended19. If an individual with a disability is working and receiving SSI, under 1619A, how much of the SSI check will be reduced?1;21=Right; 2 =Wrongpr_vapknowledge12
pr_vapknow20IntegerRecommended20. Which of the following is a requirement to receive Family Support?1;21=Right; 2 =Wrongpr_vapknowledge13
pr_vapknow21IntegerRecommended21. How can a child qualify for SSDI?1;21=Right; 2 =Wrongpr_vapknowledge14
pr_vapknow22IntegerRecommended22. During the trial work period, how long can an individual with a disability work without receiving any cut to their SSDI benefits?1;21=Right; 2 =Wrongpr_vapknowledge15
pr_vapknow23IntegerRecommended23. Which of the following benefits automatically qualifies your child for TennCare?1;21=Right; 2 =Wrongpr_vapknowledge16
pr_vapknow24IntegerRecommended24. Which of the following benefits qualifies your child to receive Medicare?1;21=Right; 2 =Wrongpr_vapknowledge17
pr_vapknow25IntegerRecommended25. Under the current provisions, which of the following does an individual need to receive funding and services under the TN Medicaid waiver?1;21=Right; 2 =Wrongpr_vapknowledge18
pr_vapknow26IntegerRecommended26. Under the current provision, to which office do you apply for Medicaid waiver services?1;21=Right; 2 =Wrongpr_vapknowledge19
pr_vapknow27IntegerRecommended27. Which the new changes to Medicaid, there is an increasing emphasis on providing supports in which of the following settings?1;21=Right; 2 =Wrong
pr_vapknow28IntegerRecommended28. With the proposed Employment and Community First Choices waiver, which group of people will be targeted for Medicaid waiver services?1;21=Right; 2 =Wrongpr_vapknowledge20
pr_vapknow29IntegerRecommended29. Who will coordinate services under the proposed Employment and Community First Choices waiver?1;21=Right; 2 =Wrongpr_vapknowledge21
pr_vapknow30IntegerRecommended30. Under consumer directed supports within the proposed Employment and Community First Choices Medicaid waiver, which of the following applies?1;21=Right; 2 =Wrongpr_vapknowledge22
pr_vapknow31IntegerRecommended31. Which of the following is the MOST restrictive form of guardianship/conservatorship?1;21=Right; 2 =Wrongpr_vapknowledge23
pr_vapknow32IntegerRecommended32. Which of the following trusts DOES NOT include a payback clause to the government?1;21=Right; 2 =Wrongpr_vapknowledge24
pr_vapknow33IntegerRecommended33. How can you apply for a housing voucher?1;21=Right; 2 =Wrongpr_vapknowledge25
pr_knowhop1aIntegerRecommendedThe employment/vocational activities your son/daughter would prefer?1::51=Not at all; 2 =Slightly; 3 =To some extent; 4= Quite a bit; 5= Very much so
pr_knowhop1bIntegerRecommendedThe type and amount of help he/she would need to achieve this goal?1::51=Not at all; 2 =Slightly; 3 =To some extent; 4= Quite a bit; 5= Very much so
pr_knowhop1cIntegerRecommendedThe services and supports available to help achieve this goal?1::51=Not at all; 2 =Slightly; 3 =To some extent; 4= Quite a bit; 5= Very much so
pr_knowhop2aIntegerRecommendedThe residential situation your son/daughter would prefer?1::51=Not at all; 2 =Slightly; 3 =To some extent; 4= Quite a bit; 5= Very much so
pr_knowhop2bIntegerRecommendedThe type and amount of help he/she would need to achieve this goal1::51=Not at all; 2 =Slightly; 3 =To some extent; 4= Quite a bit; 5= Very much so
pr_knowhop2cIntegerRecommendedThe services and supports available to help achieve this goal?1::51=Not at all; 2 =Slightly; 3 =To some extent; 4= Quite a bit; 5= Very much so
pr_knowhop3aIntegerRecommendedThe social/recreational activities your son/daughter would prefer?1::51=Not at all; 2 =Slightly; 3 =To some extent; 4= Quite a bit; 5= Very much so
pr_knowhop3bIntegerRecommendedThe type and amount of help he/she would need to achieve this goal?1::51=Not at all; 2 =Slightly; 3 =To some extent; 4= Quite a bit; 5= Very much so
pr_knowhop3cIntegerRecommendedThe services and supports available to help achieve this goal?1::51=Not at all; 2 =Slightly; 3 =To some extent; 4= Quite a bit; 5= Very much so
pr_knowhop4String100RecommendedWhat would you most like to get out of this training?
pr_knowhop5String100RecommendedIs there anything else that you would like to tell us?
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.

Distribution for DataStructure: advoc01 and Element:
Chart Help

Filters enable researchers to view the data shared in NDA before applying for access or for selecting specific data for download or NDA Study assignment. For those with access to NDA shared data, you may select specific values to be included by selecting an individual bar chart item or by selecting a range of values (e.g. interview_age) using the "Add Range" button. Note that not all elements have appropriately distinct values like comments and subjectkey and are not available for filtering. Additionally, item level detail is not always provided by the research community as indicated by the number of null values given.

Filters for multiple data elements within a structure are supported. Selections across multiple data structures will be supported in a future version of NDA.